Skip to Content

Join the 'Afinitor' group to help and get support from people like you.

Afinitor Questions


We found 21 questions associated with the 'Afinitor' topic.

My wife is taking Afinitor she has been taking it for nearly 3 weeks and has bad mouth Ulsers?

Posted 8 Jan 2013 by Dinniss 4 answers

Can someone tell us how long with they take to clear up or are they there until she stops taking it

If you take Afinitor and your legs, feet, ankles and eyelids swell, should you stop the med?

Posted 26 May 2013 by Sandra Key 3 answers

This is a new cancer drug for me and swelling is the only side effect I have had in the two weeks of taking this med. Should I stop taking until my doctor gets back into town?

My mother has severe diarrhea & malabsorption since taking Afinitor. How can this be best treated?

Posted 14 Feb 2014 by doctor75 2 answers

My mother is 73 years old with well controlled DM & HT. Metastatic CA breast disease progression has markedly slowed down with Afinitor since 9 monthes. However, this diarrhea is disabeling & caused 15 Kg weight loss. We have tried Smecta (Diosmectite) , kapect (Kaolin-Pectin) ...

Patient experiences of the use of Afinitor (Everolimus)?

Posted 24 Jul 2013 by Paz4321 1 answer

I have carcinoid cancer (NETs) in my liver, stomach and bone metastasis. I am on monthly Lanreotide 60ml Autogel injections and I have just started on Afinitor - Everolimus 10mg tablets on a daily basis. It's my 3rd day on this Everolimus treatment and so far I have been okay, but I would like ...

Am looking for someone who is taking Afinitor?

Posted 18 Oct 2013 by harley1999 2 answers

I am supposed to start taking this and am very nervous regarding side effects.

Afinitor - what can we do about the coughing side affect?

Posted 30 Oct 2010 by fairmont 1 answer

have anti coughing prescription, helps then doesn't. right now he is coughing alot. anything new for coughs? Thanks

Afinitor - Does anyone have trouble sleeping on infinitor?

Posted 6 Oct 2012 by Rosiemary 1 answer

I have only been taking infinitor for 3 days now and decided to take it at night because of possible nausea side effect. I have only slept about 4 hours even though I take ambien for sleep and have taken that for over 4 yrs.

Afinitor foods not to eat???

Posted 5 Aug 2013 by somebeach64 1 answer

Grapefruit or grapefruit juice, is one, are there any others??? Can my husband have garlic??? When he was on Sutent he could not have garlic because it caused bleeding, so can he have it on Afinitor??

Mouth sores from Afinitor?

Posted 6 Aug 2013 by somebeach64 1 answer

My husband is now day 14 on Afinitor, and now has sore mouth and and a hoarse raspy voice, and sore throat. He does not use toothpaste with alcohol or mouth wash, so I know its not that. Any known treatment or suggestion as to what to do for sore mouth and throat???

Afinitor - How old was the review person and what were your initial side effects?

Posted 16 Dec 2014 by mamachow 1 answer

Our daughter is 15 and just started Afinitor. She has extreme fatigue, upper abdominal pain, headaches (currently a constant given internal pressure from cysts surrounding the tumor within the brain) with increased pain, sore throat, ear ache. I took her to the doctor yesterday to rule out strep or ...

Page 1 2 Next

Ask a Question

Further Information

Related Condition Support Groups

Breast Cancer, Neuroendocrine Carcinoma, Pancreatic Cancer, Renal Angiomyolipoma, Renal Cell Carcinoma, Subependymal Giant Cell Astrocytoma, Tuberous Sclerosis

Afinitor Patient Information at

Search this Group