Phenytoin User Reviews & Ratings (Page 4)

• 55bar...
• Taken for 10 years or more
• May 1, 2021

Dilantin (phenytoin) for Seizures "On Dilantin extended plus phenobarbital for 47 years for seizures. Not an episode for 38 years. Requires regular check of blood level with adjustment when elevated. Excellent dental hygiene important. Bone loss after long term use with moderate anemia. These effects worth it for total control of episodes. Specialist prescribes brand only due to efficacy."

• wear
• May 6, 2014

For Epilepsy "I have taken phenytoin for nearly 3 years . I am now on 500mg which does concern me even though it controls my seizures really well. So far I have swollen gums and some memory and motivation problem, although I am 58 so that might account for that."

• trouble...
• April 5, 2020

For Seizures "I have been on phentyoin sodium for a long time and at first it didn't help right away but, my doctors increased my meds and I'm proud and glad to say I haven't had any attacks in the last 5 yrs. I get my levels checked and I'm able to do things I thought I would never get to do. I'm glad my doctors made the change. and the meds have never giving me any troubles none of the side effects have taken place and I'm 39 and been on it for 15yrs grand total. I'm pleased."

• Chris...
• December 20, 2014

Phenytek (phenytoin) for Epilepsy "I've been taking this medicine for years. I was having difficulties keeping my medicine levels in the proper zone. The extended release has been great. I'm in a small group of people who need their Dilantin level slightly above the 10-20 range. I'm able to stay at 20-22 with the proper dosages that have been prescribed for me. I cannot take the generic brand. When I was on the generic, my levels were not as stable."

• Max
• Taken for 10 years or more
• October 30, 2023

For Myotonia Congenita "My brother and I both have Myotonia Congenita and were diagnosed around 8 and 10 years old, respectively. We were put on Quinine back in the 60s. It certainly worked, but the side effects were feeling super racey, hyper, and dry-mouthed, so uncomfortable that we had to lay down shortly after taking it before going to school. It'd be another 30 years of taking nothing till we were introduced to phenytoin. It took a good month before we noticed a difference - he was on 400mg and I 200mg - as his symptoms were worse due to alcoholism. The worse you treat your body, the worse Myotonia Congenital is, though it certainly made a marked improvement in both of our lives. I went off of it every 3 years or so (for a year) to see how my body would react without it. I'd get by, but the older I got, the more my Myotonia symptoms became pronounced. Now at 70, I've had to up the dosage to 300mg to avoid falls. Side effects? None. But that's not the case for everyone. I consider myself very fortunate."

• Nicki...
• Taken for 10 years or more
• March 13, 2024

For Seizures "I have been taking Dilantin 100mg x 4 for epilepsy since 1967 - 54 years! No seizures in over 44 years when I went off it for 7 mos. This has been the best drug invented for me. Have led a wonderful life, driving, healthy, and active. Finished graduate school and taught for 25 years. I defied my high school teacher's expectations when she told me I would never get a job or amount to anything with a seizure disorder. The occasional depression and tired feeling is offset with drinking lots of coffee, eating lots of greens and fruit, and exercise."

• srr
• Taken for 10 years or more
• November 16, 2023

For Peripheral Neuropathy "Took Dilantin for 20+ years for sleeping issues. Quit working when Pfizer started to make it. Ended up with neuropathy in my feet, and phenytoin is on the list that can cause neuropathy. Old and outdated drug, also known as the ugly drug because it's known to cause abnormal bone growth in your face and elsewhere."

• Mankind
• Taken for 10 years or more
• November 6, 2023

For Seizure Prophylaxis During or Following Neurosurgery "My father took Dilantin daily for several years to counter seizures caused by brain surgery. It worked well for him, for controlling seizures. However, he did say that it had a very negative effect on his teeth. 'Dilantin makes your teeth fall out,' he said. So, there's that, I guess."

• Neweric
• August 11, 2017

For Myotonia Congenita "It's been only a week I am on it , reduced my anxiety, it reduced unwanted electrical activity in both hemispheres(was irritating) its life saver for me, SE : gum growth ,low vitamin d causing joint pain"

• Anonymous
• August 10, 2008

Dilantin (phenytoin) for Anxiety "I use 100mg once a day to control anxiety. It works well. People at work have noticed I am much calmer at work."

• Michael...
• Taken for 6 months to 1 year
• March 13, 2024

For Anxiety "I started with 50 mg per day for two weeks and then 100 mg once in the morning. Amazing drug! No more panic attacks and wonderful for anxiety. Also, I experienced vivid dreams."

• riggles
• August 30, 2007

Dilantin (phenytoin) for Seizures "I have been using dilantin since I was 15 years old and have had no side affects. I am 42 years old now. I thank god because I have grown out of most of my seizures."

• Anonymous
• May 31, 2010

Dilantin (phenytoin) for Trigeminal Neuralgia "Very effective for Trigeminal Neuralgia for past 2 years at 500mg daily. Not so great now, so I must have built tolerance to it, as I'm having daily bouts of pain again."

• SANJA...
• Taken for 1 to 2 years
• July 9, 2012

Dilantin (phenytoin) for Seizures "I am on 300 mgs of Dilantin one day and 400 mg the next day. Unfortunately, the day I take 400 mg I do not get the full sound sleep at night. What are the experiences of others?"

• msbarch
• October 16, 2009

Dilantin (phenytoin) for Trigeminal Neuralgia "Stops the pain but makes me too dizzy to function. My doctor also doesn't like the long term effects on the cerebellum."

• JoeM
• February 8, 2009

Dilantin (phenytoin) for Epilepsy "I've been on Dilantin since 1979 and have not had any issues or seizures."

• Anonymous
• April 5, 2008

Dilantin (phenytoin) for Seizures "I'm 52 years old and had a Grand Mal 4 years ago and have been taking Dilantin since without incidence. No side effects. The medicine is effective and relatively affordable."

• almost...
• May 13, 2010

Dilantin (phenytoin) for Seizures "I experienced Stevens Johnson Syndrome when I first started taking this drug. It took 3 months of high doses of prednisone to recover. "

• Anonymous
• October 17, 2009

Dilantin (phenytoin) for Seizures "I think I might be allergic to this medicine as I had the hives in the evening from my scalp down. "

• Arabe...
• September 25, 2013

Dilantin (phenytoin) for Seizures "I have been taking Dilantin for about two weeks and so far no problems, hopefully I won't have any."

• christy...
• November 10, 2008

Dilantin (phenytoin) for Epilepsy "It is a miracle drug and it works fantastically."

• ZHM
• Taken for 1 to 6 months
• November 12, 2023

Dilantin (phenytoin) for Seizures "This medication caused extreme fatty liver disease and cognitive impairment. Both conditions were quickly reversed once I stopped taking Dilantin."

• Anonymous
• November 8, 2009

Dilantin (phenytoin) for Epilepsy "I've been on Dilantin for about 20 years and it works for me."

• Anonymous
• June 21, 2009

Dilantin (phenytoin) for Epilepsy "It was okay, I took it for 15 years then they changed it 2 years ago and I cannot take it anymore."

• Chelle
• Taken for 6 months to 1 year
• December 7, 2012

Dilantin (phenytoin) for Epilepsy "The first 3-4 days made me a bit groggy immediately after taking it, I couldn't drive. Within a week, I adjusted quickly."