The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Elmiron (pentosan polysulfate sodium) for Interstitial Cystitis: I was diagnosed with interstitial cystitis in February 2000. Since that time, I've been taking the prescribed dosage of 400 mg daily. This has helped my interstitial cystitis symptoms tremendously. I had suffered for a long time before being diagnosed properly, so when this medication was presented to me and I took it for a couple of months, my pain was gone. I was so excited to finally get relief. Unfortunately, I had a recent blood test to check my liver enzymes. The AST was 61 and the ALT was 100, both of which are normal between 3 and 35. My physician wants me to decrease my dosage of Elmiron and check me again in 6 weeks. I'm very concerned about the high levels of enzymes in my blood. Be careful and keep a check on your liver.
7 user(s) found this comment helpful. Did you?YesNo
Elmiron (pentosan polysulfate sodium) for Interstitial Cystitis: I have been using Elmiron since February 2008. I love it. I think I did gain some weight but, who cares. I did not have as severe a case of interstitial cyctitis as some people but the medicine has sure been a blessing for me. I have just recently cut back on it because I believe I have leveled off with the symptoms. But just to be safe on that, I'll be seeing my Doctor to be sure. Don't want any flare ups. I've been able to eat again. I eat just about anything I always did. Mustard being my favorite. Thanks Elmiron for helping me. According to what I have read on interstitial cystitis mine is a mild case. I do hope Elmiron will help those with a severe case. I am so blessed and pray others will be after taking the medicine.
6 user(s) found this comment helpful. Did you?YesNo
Elmiron (pentosan polysulfate sodium) for Bladder Infection: I was put on Elmiron. I rapidly developed swelling, weight gain and blinding headaches. My Dr. said headaches were seldom from the drug.....he also said the weight gain/swelling were not associated with the medication. I went off the medication for five months, all problems went away. I went back on a trial of it and gained 5.5 lbs in two weeks and had headaches as well as swelling again!
20 user(s) found this comment helpful. Did you?YesNo
mammoo said: 
gougeon said: 
