Invega Sustenna for Schizoaffective Disorder User Reviews (Page 3)
Invega Sustenna has an average rating of 4.3 out of 10 from a total of 70 reviews for the treatment of Schizoaffective Disorder. 30% of reviewers reported a positive experience, while 51% reported a negative experience.
Reviews for Invega Sustenna
- Crazy...
- Taken for 6 months to 1 year
- August 21, 2018
"I have been on Invega 234 injection for over 7 months. I do the injection every 3 weeks. It has helped with the auditory and visual hallucinations but unsure of the mood effects. Definitely more depressed and my anxiety has gotten much worse, but after I get the shot it seems to get better. I have been hospitalized every month with multiple, depressive problem after taking this medication and am now convinced that it is possible that this medication could be the cause. I am now going to try to figure out if this medication is worth being on or whether I should stay on it."
- DanaA...
- Taken for 1 to 2 years
- February 7, 2018
"I dont know why they started me on 156 mgs but I couldn't think straight on such a high of a dose and I was sleeping 16 hours a day. Zero libido, dizzy spells, acne, plus 50 pounds weight gain. I lowered my injection 3 times to now 39 mgs, the lowest dose. Less acne, still fat, still zero libido but, less dizzy. The benefit was that I have zero delusions."
Frequently asked questions
- How long does Invega Sustenna take to work?
- Can you drink alcohol while taking Invega Sustenna?
- Invega Sustenna vs Invega Trinza vs Invega Hafyera. What's the difference?
- How to transition to Invega Trinza from Invega Sustenna ?
- Scooter
- Taken for 1 to 2 years
- June 30, 2019
"I'm not sure how I need it but it's okay. I've been on it for about 1 and a half years. I can't complain. I've been on 234 mg every month for awhile like at least half of a year. It slows down the brain. I guess I would be too hyper without it. different meds affect people differently. It's totally fine and I feel okay. I feel peace."
- The...
- Taken for 1 to 6 months
- March 31, 2019
"I have schizoaffective disorder and I was put on invega because lithium causes kidney disease, it helps me sleep and to be able to function. The only side effect is it causes sexual dysfunction which is a common side effect."
Are you taking this medicine?
- Monica...
- Taken for 6 months to 1 year
- April 19, 2023
"Since taking Invega Sustenna 150mg, 4 weekly injections, I have gained 10kg even though I was eating a raw and plant-based diet. I have a flat affect, anhedonia, weight gain, high prolactin, and amenorrhea. I am also feeling slowed in my thinking and lack the motivation or inspiration to do anything. My psychiatrist refuses to put me back on the 3mg tablet which I thrived on without symptoms for over a decade. I researched my illness and now that I have insight into my illness I should be allowed to remain stable on a less lobotomizing medication dose for Schizoaffective Disorder."
- Dino
- Taken for 1 to 6 months
- April 26, 2023
"The worst medicine. I had a radical weight gain, 60 lbs gained in 3 months. I felt depressed while on it. I’ve been off for 2 and a half years and still haven’t gotten back to my normal weight although I’ve lost 22 pounds."
More FAQ
- Does Invega Sustenna need to be refrigerated?
- How do you give an Invega Sustenna injection?
- How to transition to Invega Hayfera from Invega Trinza or Invega Sustenna?
- Juno
- Taken for less than 1 month
- December 2, 2018
"Been a week since the first 250 mg injection of Invega sustenna. Arm hurt really bad for a few days and was kind of tired and felt like head under water, but as the week went on that fog lifted and so did the pain. Still have some noise in my head but can usually tell reality from fiction. Go back this week for 135 mg booster.. hopefully no pain this time and no head under water feeling."
- SKE
- Taken for 1 to 6 months
- December 22, 2022
"I got this in the mental hospital for the first time. Immediately, my mood became much more positive. After about 2 months, I really started to benefit from it. The noises/voices/paranoia disappeared, and I was able to start full-time employment after losing several jobs and applying for disability. I do notice that about a week before I’m due for my monthly injection, I start to get some symptoms again. I also notice that my memory is much worse than it was before, but I’ve been trying to keep my mind active by reading, playing games, and working. I don’t know if I have schizophrenia (I was diagnosed as bipolar at the hospital, but the doctor seriously sucked so bad), but I would guess I do, given the symptoms. Before this medication, I would hear things, see things, and would be extremely paranoid. Now, I’m happy and able to take charge of my life. I will say that I have gained a lot of weight (up to 300 lbs from 265lbs before the hospital)."
- Angel...
- Taken for 2 to 5 years
- September 6, 2021
"I have been taking Invega (117) for 3 years after a serious mental breakdown and being court committed to the psych ward against my will. I am diagnosed with bipolar and schizoaffective disorder. I was hallucinating, talking to myself and to my hallucinations, manic, angry, and delusional. This drug has really helped me. Although I gained a lot of weight and lost my sex drive, ALL of my hallucinations and delusions have completely stopped! I feel like it has improved my life. I actually do not mind the side effects and am grateful that I can now live a calm and peaceful life."
- Change...
- Taken for 5 to 10 years
- December 30, 2023
"This medication has been the best medication I have ever been on. It has completely changed my life. I am now capable of holding a job, maintaining my marriage and being a better mother. I've been on this medication now for 7 1/2 years. I'm on 156 mg, and yes, they've had to adjust it from time to time, going up and down in the milligrams, but all in all, like I said, this medication has completely changed my life."
- Kev
- Taken for 6 months to 1 year
- March 29, 2023
"I got this shot in my 3rd inpatient hospitalization. I was covered by Medicaid so there weren’t any issues. I was getting injections monthly and I started doing way better with my schizoaffective bipolar disorder. Without medications I have a verge behavioral emergency practically weekly. When I was on it, I could feel it in my steps and my balance, I felt so much better. The frantic thoughts racing through my head leveled out, and the main reason I see the doctor is regarding sleep insomnia. I started getting the shot and my balance felt well enough to get to sleep. When I would eat I wouldn’t panic. Some of these reviews are not true, the only bad part now is my new insurance doesn’t cover it and it’s $3000."
- Joepert
- Taken for 1 to 6 months
- July 8, 2018
"Total failure. No sex drive and impotent, no emotions, no thoughts. complete zombie, don't let them inject you with this poison"
- Boano
- July 10, 2019
"It’s a horrible drug that makes you have no thoughts in your head at all. I used to have a lot of passion for learning and now all of that is gone with this drug"
- Ruined...
- Taken for 1 to 6 months
- September 29, 2018
"I had five shots of this, I have no more interest in anything, no emotions, no motivation, no sex drive, no more sperm, and now I have huge man boobs."
- Sean
- Taken for 1 to 6 months
- December 6, 2019
"Invega sustenna is a Terrible drug especially the shot. Do not take for schizophrenia or schizoaffective. Will make it worse. Bad side effects too."
- Anon
- Taken for less than 1 month
- December 19, 2020
"The injectable form of this drug will steal your soul, your mind, and your spirit. This is a terrible drug."
- Arina...
- Taken for 1 to 2 years
- April 14, 2016
"I was on this medicine for a little over a year and I gained almost 100 pounds. I slept all the time and my emotions felt numb."
- Unknown
- Taken for 1 to 6 months
- October 29, 2022
"Do not take this invega sustenna injection!"
- Realg...
- Taken for 1 to 2 years
- May 3, 2018
"I hated this injection."
- Golog
- Taken for 2 to 5 years
- April 5, 2018
"Gained 65lbs in about two years but it stops the poltergeist."
- Anonymous
- Taken for less than 1 month
- August 9, 2022
"This drug definitely helps with Paranoia and delusions. However, it causes memory loss, weight gain, and emotional numbing. I have gained 12 pounds in 3 weeks."
- Renee
- October 2, 2022
"My son has been on Invega monthly shot for 8 months and behaves like he is on no medication."
- Another...
- Taken for 1 to 6 months
- May 25, 2023
"Made me feel like a zombie, made me fat. Voices and episodes were still frequent enough."
- Adam...
- Taken for 1 to 2 years
- August 24, 2023
"This med makes me very sleepy"
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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"The drug is helpful but only in small doses of 50-75 milligrams. The higher doses that most patients are being given are way too much. I have a relative that was put on a high dose to start and turned into a cripple with Parkinson's-type symptoms. At the hospital, the emergency doctor gave an injection and prescribed medication to reverse the side effects (very important). After 6 weeks, we asked the psychiatrist to only administer 50 milligrams this time and that is working very well. The problem, I believe, is in the high doses. It's too much for some people. It's not a one size fits all..."