Trileptal User Reviews & Ratings (Page 3)

• Anonymous
• January 21, 2011

For Trigeminal Neuralgia "I developed TGN in 1997. This is not the typical TGN since it was caused by a stress ulcer about 3/4" from the left side of my mouth over the junction of three facial nerves. About a year after the ulcer healed, the facial pain abruptly developed big time. I was first prescribed Tegretol, but made me feel like a dope. Trileptal was then prescribed and I have cut it down to only 75 mg at night. Occasionally take 150 mg Trileptol 1 X when my facial pain really tunes up. Also rub in a little dab of Metrocream topically over that painful area that numbs my face just enough to minimize any pain. "

• Disen...
• September 1, 2011

For Bipolar Disorder "I wish I could echo all the positive stories mentioned in this string of comments but...I have had some inconvenient side effects including: double vision, fatigue (even with regular exercise, somewhat healthy diet, and a healthy amount of sleep each night) and major hostility, particularly with those close to me. Maybe my dosage isn't right but I am not sure I want to stick with it. I take it in addition to a fairly low dose of Lamictal."

• Sarita...
• November 6, 2010

For Seizures "Been taking Trileptal for about a year. Mostly because every 5 to 6 years have to change my medicine because I tend to get immune to them. Have taken Sodium Valproate, Tegretol and Carbamazepine over the last 30 years. With Oxcarb seizures are controlled but not totally gone. Also, am putting on extraordinary amount of weight, looking for other options for what is becoming an obesity problem."

• VAbaby
• October 28, 2009

For Bipolar Disorder "This mediicne was given to me as I was being taken off an antidepressant and has given me headaches, nausea, joint pain, and feeling of not being fully alert. I was started at a 1500mg daily dose and I think that is way too high for me. I have been at this dose for over three months and the doctors seem to think that the side effects are outweighed by the positives. I have felt more depressed since they put me on this but they don%u2019t worry about that it. I would rather have the antidepressants back at least, I could be a human with them."

• Anonymous
• Taken for 10 years or more
• August 8, 2014

For Seizures "I have spacial seizures. I take 1200 mg per day. It has been 100% effective for the last two years. I had about six months of problems after I began taking Lipitor, but none since I was taken off the Lipitor. I'm a 67 year old male who has had seizures for over 30 years. It has been as effective as Tegretol was until it stopped working after 14 years. I had a short bout with low sodium after open heart surgery."

• Scott
• Taken for less than 1 month
• October 24, 2020

For Epilepsy "I was put on this drug in the early 2000’s. I was not on it very long to know if it’d helped with my seizures or not. Because after two weeks, my hearing was not rite. Everything sounded higher pitched. And I had ringing in my ears. I was taken off the drug. My hearing returned to normal. But the constant ring in my ears never went away. It’s not as loud. But in quiet environments, I hear it."

• Anonymous
• Taken for 6 months to 1 year
• October 4, 2016

For Seizures "Although this medication did decrease my daughters absence seizures, if she took this at any time 30 min before or after eating, she had a severe reaction. Her throat would burn inside and out, her face would flush, she would get dizzy and unable to focus. This would last about 5-10 min. and then she would get so tired, she would instantly fall asleep and sleep for hours. She was at a pretty high dose during this time 1050mg 2x daily. We finally stopped this medication, because of the stress of having to watch so closely when she ate and when she could take this medication."

• Ashton...
• Taken for 2 to 5 years
• March 30, 2023

For Epilepsy "Was diagnosed with Nocturnal Focal Onset Epilepsy on June 22nd, 2020 and this medicine has been a lifesaver ever since. The only downside is that I'm having to take 2400mg Every single night all at once to control my seizures. I am a heavyset person at 360lbs so I guess that is normal. But it works and I'm able to sleep peacefully. They recently changed the design of my pills. It used to be like a peach colored oblong tablet but today when I got a refill, it was brown pills that were smaller with a easy to swallow coating which I am so happy about. And it kicked in in only 20 minutes whereas the old ones took about 45 minutes to an hour and a half to kick in."

• Anonymous
• October 5, 2011

For Trigeminal Neuralgia "Well, the pain on the nerve goes away pretty quickly after taking 150 mg of Trileptal, which I just started taking this year, because when I was told that I had trigeminal neuralgia last year, I didn't find out until the pain was almost over, but the medicine only lasts about 4 hours or so. At first, I got a headache, which didn't last too long, so I didn't take anything for the headache. What concerns me the most is that lately I have been getting pain on my ankles the next day after doing a 45 min kickboxing work-out and it's not going away, which I never had before. Today for the first time in my life I had a terrible pain on my pelvis that I couldn't hardly walk . Hopefully the pain goes away soon, and I won't have to take anything, 'until next year'!"

• kbclimb
• October 16, 2009

For Bipolar Disorder "This medication has helped me so much and with minimal side effects. I am also taking gabapentin and a low dose of Lexapro. This combination has finally made the difference. but everyone has a different body chemistry."

• Elect...
• March 26, 2022

For Seizures "300mg x2 a day of Trileptal caused water retention and swollen lymph nodes. However reducing it to 300mg along with Keppra 250mg x 2 a day has worked wonders for me. The Trileptal helps me sleep and helps with moodiness caused by Keppra. Keppra controls seizures very well. Overall, Trileptal is a great medication with little side effects. This combination of medicine is great for me."

• taymay
• Taken for less than 1 month
• September 3, 2020

"So I basically just started Trileptal but so far I’m doing terrible. At first it wasn’t too bad, I was in the mental hospital for days and I took two pills a day and did fine. But now I’m home I’m nuts. I’m constantly getting angry, but I am on my period right now, so that might be it. I had a confidence boost but now I’m just upset and always tired, like the tiredness sucks majorly, hopefully after a little while it gets better. So far not so good though, I don’t mean to get so angry but I am now."

• under...
• September 7, 2011

For Bipolar Disorder "I have been on Trileptal for a little over a year. I was taking 1200mg/day. On the flipside, the symptoms of dizziness and double vision I had about an hour after I took the medicine I just dealt with because the medicine worked so great in stabilizing my moods. These two side effects never lessened. I am Bipolar 1 with one major depressive episode. I also take Welbutrin. I am being taken off the medicine slowly due to acute hyponatremia which hospitalized me for 3 days. I took Tegretol prior to the Trileptal. I loved the Tegretol but wanted to change because there were less potential side effects with the Trileptal which is now very ironic. I will be starting Lamictal when the Trileptal is completely out of my system."

• Diana...
• Taken for 10 years or more
• February 18, 2021

For Epilepsy "This medication trileptal I have been on for over 14 years it has helped me from having seizures however now I'm getting very tired on it can't do my daily chores don't know why it's affecting me like this now"

• DogMo...
• Taken for 1 to 2 years
• December 22, 2017

"After expensive, unnecessary dental work and a little research, I diagnosed myself with Trigeminal neuralgia (TN). Took a little convincing to make a believer out of my doc, but finally got a consult with a neurologist. He was doubtful until I described my symptoms, which were typical TN symptoms. Trileptal is my 4th major TN drug to try (new neurologist) and at first it was a godsend. I've been on it a little over a year now, and am on neurontin an baclofen as well for other pain issues. It has in the last week just quit working. I still work as an RN in ICU and am scared to take too much more because I need my mind to function at top capacity. I already feel a little slow thinking from all the meds I'm on, but can't function without them."

• Anonymous
• February 24, 2011

For Seizures "My daughter has been on Trileptal for 2yrs. now and she did have a small seizure during the first 4 months but after increasing the dose to 5ml twice a day she has had nothing but a few migraines since. In another month or two we are planning on slowly taking her off. So I will find out soon exactly how well it has been working."

• Anonymous
• Taken for 2 to 5 years
• July 26, 2021

For Epilepsy "Been on Trileptal now for about 5 years. I have Nocturnal seizures. Just had a breakthrough seizure during the day. First time. It was horrible. I fell and rolled down a sidewalk. Was out for 45 mins. Came to at hospital in pain from injuries. Dr. is now adding another drug. I hope and pray it works because I'm also losing all of my hair. Fixing to buy a wig."

• Anonymous
• Taken for 10 years or more
• July 1, 2022

For Epilepsy "I have been taking Trileptal for Nocturnal seizures since I was young, and aside from a few instances of breakthrough seizures believed to be caused by sleep deprivation or my levels being off due to weight gain this drug has completely controlled my seizures."

• alfred...
• June 14, 2017

For Seizures "My daughter is 5 years old and has been healthy, and has been developing at a normal rate. I heard a loud thud. I found my daughter on the floor. There was vomit on the bed and my daughter was on the floor. It lasted 15 minutes. It was so scary. She was jerking very violently, and her eyes were rolling in the back of his head. It was horrible. No one should have to see their child like that, my doctor is saying she's had seizures. She had an MRI ,an EEG,they did a spinal tap. After returning from the hospital, my daughter experienced vomiting, I could not bear to see my daughter going through this problem at the early age of her life. I read a lot of fake testimonies at blogs, facebook and website of people that was cured from seizure"

• Lucky...
• Taken for 10 years or more
• July 17, 2021

"I have had Trigeminal Neuralgia for 27 years and used oxicarbazepine but was allergic to it , however, the generic trileptal has worked perfect for me! If I accidentally skip a dose, which has happened twice in all those years, then I have suffered indescribable pain! TRILEPTAL IS PERFECT FOR ME AND I CAN NEVER SAY THANK YOU ENOUGH TO THE MANUFACTURER!!"

• Patty
• Taken for 5 to 10 years
• December 11, 2023

"I have been blessed with MS, but I am also one of those unfortunate ones who have developed trigeminal neuralgia. My neurologist, at the time this first happened, started me on Tegretol. When it was discovered that it helped to prevent the face pain, I was switched to Trileptal (oxcarbazepine) because of the better risk-to-benefit ratio. I doubt I could function without Trileptal. The face pain of the middle branch of cranial nerve V is like having a wire brush that is plugged into an electrical outlet hammered into my face constantly and then set on fire with a blowtorch. Trileptal prevents this pain for the most part. Occasionally, I will have breakthrough pain and the dose is increased. The major side effect for me is ataxia, so I do not walk very well and sometimes take some real nasty falls, but the face pain wins so I deal with the side effects of Trileptal. I take a 300 mg tablet at bedtime and often 150 mg or 300 mg again during the day depending on breakthrough pain."

• xxjin...
• Taken for 1 to 6 months
• November 9, 2023

"I'm a 30-year-old woman and was diagnosed with idiopathic TN. I started on Trileptal 300 mg daily 3 months ago. I increased the dose to 1800 mg due to persistent pain. The side effects I experienced were dizziness and constant sleepiness. I felt tired all day, had no energy, and had extremely slow thinking with poor memory. However, my pain got under control, so I decreased the dose to 600 mg. One important thing that nobody told me could happen is that I developed hypothyroidism as a very rare side effect within a month of starting the medication. So, I am currently fighting both TN and hypothyroidism. Despite the annoying side effects, I would still recommend trying this medication because it eventually helped alleviate the pain, at least for now. Living with pain can make anyone go completely crazy."

• realj...
• Taken for 2 to 5 years
• January 5, 2023

"Trileptal has been an amazing medicine for my bipolar disorder completely changed how I feel, no longer dizzy and no longer having racing thoughts/mood swings. This medicine gives me mental clarity and I can actually think and focus much better as well."

• msbarch
• October 16, 2009

"I was glad to read that someone else found slurring of words, using wrong words, etc. occasionally popped up. This medicine worked great for years until it got my sodium level dangerously low. Haven't found as effective a substitute some 10 months later."

• Anonymous
• March 19, 2009

"I have been on Trileptal for about 1 1/2 years. It has worked for the most part with keeping the seizures at bay. I have gone from having around 5 seizures a month when I was first diagnosed with epilepsy to around 2 a year. When I first was diagnosed I was put on dilantin which did not work. I continued to have seizures; one of which resulted in me crashing my car through my garage door. The problems I have with Trileptal are that it has caused me to break out with acne. Especially on my back and face. Also it causes me to have a drunken sensation for about half an hour after I take it. I talked to the doctor about this and she told me it was because I was eating either right before or after."