Trileptal User Reviews & Ratings (Page 2)

• Anonymous
• February 28, 2012

For Bipolar Disorder "This medication was extremely effective at stabilizing my moods. The problems that I had made it so that I could not continue on it and therefore needed to rate it so low (because of the severe side effects). First off, I literally saw double for several hours after taking it. Do you remember the Wrigley's double mint gum commercials? Well literally that's what I experienced. It DID go away after several hours afterward but was really weird and gave me a headache when it happened every morning. My skin, especially my lips, would get numb and tingly. The biggest problem though was that it gave me constipation so bad that nothing I ate or took could alleviate it. The ONLY way I could EVER go is if I took a heavy (not mild) laxative."

• Marge...
• July 17, 2016

For Seizures "I have temporal lobe seizures. I have taken Trileptal for many years and it has helped controlled the seizures. However; I have been having issues with low sodium. The doctors blame it on the Trileptal. So to fix the problem, they suggest eating high sodium foods, fluid restriction, and no water. Water dilutes the sodium. They also suggested that I add about a teaspoon of salt to my meals. So what I do for thirst is drink Gatorade but only a few sips. But you got to becareful and not to drink more than a liter of fluid in a day as this is what is recommended by the doctor. My neurologist recommended that I drink gatorade. So most of the time I drink Gatorade when I eat my meals."

• Joao...
• Taken for 10 years or more
• September 1, 2014

For Seizures "Due to possible heart failure about 15 years ago I started having partial seizures waking up in airplanes or hotels not knowing were I was for some time and than gradually became alert until I started with many severe seizures. I started with Tegretol and then switched with Trileptal that was very effective. Forgot to take it a few times and had seizures until I became very conscious of the need and since then I am quite well. I need to stay far from confrontations and conflicts. I currently take 1,500 MG daily (600 morning, 300 dinner 600 @ sleep). My sodium level suffered a lot but I am good on it now. The way to balance it is with coconut water, sports drink and adding a bit more on home cooking. It is a super medicine. I miss my red wine!"

• Jod
• September 25, 2011

For Trigeminal Neuralgia "I use it for Trigeminal neuralgia and it is working great! I was first prescribed Tegretol and it worked for about a year but then the pain started to return. Doc said the Tegretol was being metabolized at a faster rate and she switched me to Trileptal. It worked in about 8 hours! And, as others have noted, you do struggle for words and have a bit of short-term memory impairment, but the pain is gone! Also, so is your libido! Tegretol was like taking Viagra, increased libido! But, it's still a better life without the pain."

• Anonymous
• January 13, 2011

For Seizures "My son has been taking this medication for about 2 months now. Before he got on the medicine he was really mean and talked back. I found that he was not happy, crying all the time for now reason at all. He would have a seizure and about 10 times a day. It got where it was really hard. I finally got him to see a great doctor. She put him on this medicine and there hasn't been a seizure yet and he is playing laughing and having fun again. I really thank who ever came out with this medicine."

• Anonymous
• September 5, 2008

For Seizures "I have taken the drug for about 6 years with positive results for seizures. The seizures have subsided to about 1-2 partial complex seizures per month. I do go through periods of depression, especially when the prescibed amount is changed. I'm currently taking 1200 mg in the AM and 1500 mg PM. It's probably the best seizure medication I've taken to date, and I've been on almost all of them at some point in my life over the past 30 years or so."

• Anonymous
• April 23, 2012

For Bipolar Disorder "I'm going into my second month using Trileptal and started at 600 mg a day. My Dr just upped it to 900mg because it wasn't stabilizing my moods as much as I would like. I also take Klonopin for anxiety and the Trileptal for my bipolar. So far, no side effects like the Topamax with tingling but I'm hoping it starts working better. My Dr wants to throw in an antidepressant along with something for ADHD but wants to wait till this kicks in. "

• Randi...
• Taken for 1 to 6 months
• October 28, 2013

For Seizures "I'm 33 year old female and was diagnosed with seizures at 31. They came out of no where. Had MRI and a eeg no signs of anything they were normal. With not be able to find what type of seizures they are its hard to find help from anywhere. I tried this medication trileptal and it is a nitemare for me. I started with 2 tablets a day along with keppra that I was already on. They may not work well together. But I've been in trileptal for 1 month now and since the seizures has picked up which I didn't like that at all. I called the doctor which is surpose to be a seizure specialist and she said to up the medication And that's when I noticed they were coming more than they normally do and I noticed up set stomach. No success with it at all!"

• Anonymous
• May 27, 2008

For Bipolar Disorder "I have been on Trileptal for nearly two months. I have tried many medications because I am drug resistant. I take three tablets during the day. When I take a tablet I can feel a very comfortable soothing in about 30 - 40 minutes. This lasts for a few hours then I need to take another tablet. This is the best medicine yet. At least Trileptal provides quick relief."

• Anonymous
• May 26, 2010

For Bipolar Disorder "I have been taking this medication for 3 weeks now and have noticed that my moods have stabilized. I feel like this medication is really working in that respect and helping to make mine and my family's life much better. So far, this medicine works!"

• MARS
• Taken for less than 1 month
• December 22, 2023

"This is the first drug that has EVER worked for me. I have been medicated since I was 11 and I am 32. I have trauma, I have cancer, and I am very disabled. This is to give you some insight on some of my struggles. Four days ago I started Trileptal. I am telling you that I went from hating everything to bliss. No explosive outbursts. I will leave another review when I have been taking it for longer, but try it. It doesn't interact with my Adderall, Wellbutrin, Gabapentin, OR Elavil. It is covered by my government benefits. It helps me sleep, but not too long! I can still wake up when I want to! I actually cried because it's a miracle. My only complaint is that it makes me a little foggy. I am already ADHD so the extra brain fog is a little annoying, BUT keep in mind that I DO have cancer, fibromyalgia, AND PTSD so I am already pretty foggy as is. But I still have SO much energy and that's important when you have cancer. I just love it. Please try it?"

• Jimbo
• October 17, 2011

For Seizures "I was having seizures off and on for almost 4 yrs. Diagnosing this was difficult because I could never had a witness or could describe the symptoms. I was averaging 1 per month then I got worse. I had 4 in two weeks but all of them had witnesses. I called my doctor and he ran heart tests and an MRI on my head. That's when he said I had Partial Epilepsy and gave me the Trileptal. I've been taking it for 6 weeks and haven't had any problems since then. I like this pill very much and the best part is its only $4 a month."

• Epiwa...
• Taken for 6 months to 1 year
• May 30, 2020

For Epilepsy "I got diagnosed with Epilepsy on 7/3/15 after having 9 absence seizures in a 3 hour period. I was put on Keppra 250mg 2x/day and over the years it’s increased to 1000mg 2x/day. The seizures weren’t going away or becoming less frequent. In August 2019 I was put on Trileptal 300mg 2x/day after finding out I was also having complex partials and this pill was my miracle. I haven’t had a seizure since!"

• lastc...
• Taken for 10 years or more
• December 2, 2023

"I have been on Trileptal to treat my mania since 2013, and while it has treated it well by getting rid of the anger issues as well as helping me be more calm, it hasn't helped with the impulsivity as much as I would have liked. It also has made it difficult to lose weight as well."

• Anonymous
• August 21, 2011

For Anxiety "Completely messed up my stomach- constipated, nauseated, vomiting, rectal bleeding. Agitation, sleep problems and muscle discomfort (restless leg syndrome) upon discontinuation of medication. I also believe the increased agitation and abdominal discomfort led to an increase in my blood pressure. "

• Anonymous
• August 27, 2009

For Bipolar Disorder "I have been on 1800mg Trileptal for 3 years now for rapid cycling manic bi-polar. I don't have the depression part like most do. I absolutely love Trileptal. For the 3 years before that I had tried a handful from Lamictal, Topamax and Wellbutrin. They all resulted in violent outbursts. For about 2 years I took 1mg Abilify along with it, it worked okaay but I would still get very annoyed with everything. So it then got paired up with Geodon and it's worked wonders for me! It may have taken 5 years to get it just right but when its right you will know!"

• Elve
• January 5, 2010

For Seizures "I have been taking Trileptal for almost 1 month now and its such a life saver. I have been suffering from partial epilepsy for more then a year since I have been going to the hospital for almost 5/6 months and they could not discover what the problem was so I had to see a private doctor who diagnosed me with partial epilepsy and put me on Trileptal. As soon as I took these tablets it reduced the attacks to 1 every two days and after a month it completely got rid of it, so I am really happy with these. However, I do feel slightly drowsy after taking them but that does not matter since its taken all the seizures away which was my main concern since life just felt like hell prior to these. So I would definitely recommend it."

• Jav
• Taken for 1 to 6 months
• January 1, 2020

For Epilepsy "Taking trileptal for 5 months. Female. 450mg twice a day. No seizures but memory is now horrendous and I'm so dumb and numb. Also the 5-7% chance of having a deformed baby is not worth it but I'm stuck because all the seizures meds are horrid. Also now experiencing constipation."

• Anonymous
• October 29, 2009

For Trigeminal Neuralgia "Compared to taking Tegretol for TN I would give it a 10. Much less problems with taking and no Tegretol level or white blood cell counts needed, and I can take a lesser dose mostly get by with 2 a day with the other medicine it was min of 3 but mostly 4 a day. I do feel much better physically with the smaller dose of course. kinda looped for a week switching medicines as you take both to wean off Tegretol and onto Trileptal. I definitely would try it."

• learn...
• October 14, 2010

For Bipolar Disorder "After reactions to Lamictal and Topamax- Trileptal didn't space me out- and levels my mood. I take it with nothing else for mild bipolar episodes. No weight gain and my hair loss is not as drastic- if at all. Lamictal and Topamax made it fall out."

• osu
• November 24, 2010

For Bipolar Disorder "If not for this medicine, I would have failed college due to the bipolar disorder. Although I got some side effects at first, and whenever my dose is upped, they last for a day or 2. My moods are way more even, and combined with Klonopin I can finally sleep!"

• Dave
• Taken for less than 1 month
• January 8, 2024

"One thing I can say about this particular medication is that it stopped my overthinking. It also stopped my impulse to do something and that I'm not so quick to do something I'd regret later. I'm also calmer, and that in itself is amazing. I'm not walking around like a zombie, but I am a bit airheaded at times, but that feeling should subside the longer I'm on it. I give this med a 9 out of 10. Good luck and best wishes."

• Cita
• Taken for 6 months to 1 year
• May 27, 2019

For Epilepsy "My son had a head injury when he was very small and started to have seizures. Scared me so much at the time. Was told it was febrile seizures at the time. Over the past 3 years he started to have these 15 seconds tremors. We went to see a neurologist and she prescribed Trileptal for him after having a MRI and EEG which both came back normal. The medicine really does help with stopping the seizures. Because of the type of epilepsy he was diagnosed with, he will probably won't stay on the meds. But for now it's a big help. Seeing a child having seizures is so hard to watch."

• Lyon
• Taken for 1 to 6 months
• December 28, 2022

For Seizures "My 13yo son developed unexplained symptoms which started as hypersalivation 2 years ago, that progressed to frequent daily choking and vomiting. We saw all the specialists and I work in oral surgery. His symptoms got worse and worse and he was being described as a "medical mystery". A few months ago we went on a ski trip and he was suffering from severe altitude sickness and dehydration. On our last day he had his first seizure. We chalked it up as a fluke. A month later, he woke us up to another seizure. He immediately started on Trileptal, working up to 300mg 2x a day. And within a few weeks his symptoms dramatically improved. He still has mild hypersalivation. So we upped his dose to 450mg 2x a day and his symptoms have completely subsided. A lifesaver for a middle schooler, not just quality of life, but we were fearing he could choke to death."

• DWSDave
• Taken for 1 to 6 months
• June 21, 2014

"Thank you 'Drugs.Com'. for your list of severe side effects, I was able to explain to my Dr. why all these side effects that occurred within (3) weeks were the result of Trileptal. High fever, kidney infection with blood in the urine, extremely high PSA (from 0.5 to 13.3), elevated liver labs, positive/reactive for hepatitis B (after several labs, it was confirmed that it was negative), insomnia, total fatigue, etc. And the list continues, again this all happened within (3) weeks. After (2) rounds of antibiotics (PSA dropped down to 2.5), x-rays, cat scans, bladder/kidney tests confirmed that there was nothing wrong with my prostate, kidney or liver. Even after my experience I'm happy so many of you have wonderful results! Good luck to all."