Botox for Migraine Prevention User Reviews (Page 5)

• Anonymous
• November 23, 2016

"I had my third set of Botox 3 weeks ago. It has done wonders to my severe neuralgia and Paroxysmal hemicrania. I had some side effects the first two sets (3 months apart) but they went away after about 10-12 days and I have been 90% pain free. I was getting up to 9-12 attacks a day lasting about an hour each, and lost my job as a result. This last set has produced terrible side effects: Headaches on forehead (Banding), severe shoulder pain, very puffy right eye, chronic skin rash on my back, occipital area of neck, and upper arms. Large red welts that burn and itch. It has now been prevailing for over a week.... I also have inflamed intercostal muscles especially around my sternum and it id incredibly painful."

• Sassy...
• Taken for 2 to 5 years
• June 17, 2018

"Had migraines for 20 years and used botox for about 11 times now. At first seemed to really help but wore off after 2 months. Now I am having ear problems, dizziness and severe pain on side of head and neck. I think I am going to stop botox treatment."

• Willa...
• December 2, 2016

"I just had my fourth Botox injection for migraine. So far it's helping. The migraines haven't been eliminated, but they've been reduced in number and severity, and there are more days between clusters of headache days. I STRONGLY recommend going to a headache specialist or neurologist for an evaluation before trying this. Botox works best for migraines that involve involuntary tightening of the tiny muscles in the forehead, temples, and along the "migraine band" on the sides of the head. If those aren't contributing to a person's migraines, then Botox is unlikely to work. Be forewarned that getting needles stuck in your tender scalp does hurt, some days more than others. My neurologist prescribed a topical anesthetic cream for next time."

• Lpstop...
• Taken for less than 1 month
• October 27, 2021

"2.5 years since my 151 injections of Botox for migraines. I have been extremely sick ever since. It destroys the vagus nerve. Always feel like I am having a heart attack and can't breath My new Dr said it gave me GERD. I'm on meds for it and I feel about 50% better. So sorry to hear about other stories of Botox Knowledge is power we need to stick together"

• Ticoune
• December 16, 2016

"I had used Botox injections for migraines and they WORK, not only is the Botox a temporary paralysis in the muscles but in the nerve endings as well and thus reduced and/or lessened pain. Then there is the added perks of smoothing lines in the face (as the face is the only place on the body where the muscles are attached to our skin, thus the temporary paralysis causes the wrinkles to dissipate)"

• Julie...
• Taken for 1 to 6 months
• March 27, 2022

"After years of dealing with what I still believe to be severe tension headaches, but the doctors insist are migraines, I agreed to try Botox. The neurologist gave me 39 very painful injections. My “migraines” ALWAYS come from my shoulder through my neck and behind my left eye. I wake up with with the headaches. They don’t come on later in the day. I don’t have the major sound or light sensitivities. So, when I received these injections all over my face and the front of my scalp plus a few at the base of my skull, I had little hope of success. I was right. Not only did I not have success, it made things worse by somehow causing headaches to shift to the right-side of my head. The number of days with “migraines” increased. I know that the first round of Botox doesn’t always work, so I decided I would take a chance on a second. This was a huge mistake. I’ve run out of room right when I got to the worst experience of my life, sorry. Please weigh your options carefully."

• Truen...
• Taken for 1 to 6 months
• March 31, 2019

"I developed tinnitus back at the end of June 2018. Along with it sharp sound sensitivity. A couple of weeks later chronic daily migraine. Had Botox treatment at the end of Dec. My daily migraines changed from aching, stabbing type to a electrical burning numbing, pulsing type. Had my next botox treatment on March 22 and my symptoms are worse. I now wake up with a migraine where previously I had a few hours before onset. I as well have an increase in tinnitus level, body aches, tired dry eyes, and overall body weakness. So disappointed. Don't know if I want to try a 3rd time ."

• Lilly...
• Taken for 1 to 2 years
• January 7, 2019

"I've been having Botox treatment for my migraines every 12 weeks for nearly 2 years and they have improved my symptoms massively, I have suffered from debilitating hemiplegic migraines for just over 20 years and despite being on most of the preventative drugs out there was getting attacks on average once a week, usually so bad that I would need hospital intervention. Since starting the Botox, I'm not saying it's magic, I still have attacks but the frequency and severity when one does hit is so much lower and I usually only start to have attacks around the time my next cycle of Botox is due, it has changed my life."

• Cassie
• Taken for 2 to 5 years
• April 12, 2018

"Before Botox, I would get around 17-23 migraines a month. Not headaches, but true migraines where you vomit, and can’t function. The Botox shots worked great for preventing migraines and reducing pain. I went from 17 to 2 migraines a month, it was incredible! At first, it was the best thing that ever happened to me, but unfortunately, the crippling cost and intense side effect pain made me stop. It began positive, and slowly grew into a big negative. The side effects from Botox were manageable, but after two years, they grew to be unbearable. I started getting intense, massive knots in my neck, jaw, and shoulders that weekly massages and muscle relaxers couldn’t alleviate. It became a terrible chronic pain and because of the $1,500 out of pocket cost for 200 units every three months (with health insurance covering the rest) it just wasn’t a long-term option. We reduced the units, but the damage was done. If you're seriously considering Botox, try it for a year and see!"

• Abbycat
• January 26, 2018

"I have had migraines for 25 years. With treatment, I still average 10 per month. I'm in year 2 of Botox injections. First injection knocked me down with severe flu like symptoms, vomiting and severe pain at every injection site. Horrible. Each round of injections brings different symptoms which makes me believe the Botox itself is inconsistent. Last 2 rounds, I now have non healing deep lesions between my eyes , continued areas of peeling that feel like Burns and a lot of painful facial neuralgias. My lips, and chin are often numb. Also having peripheral neuropathy which my doctor cannot determine a cause. My treatments are on hold until I see a dermatologist and my neurologist."

• alexa...
• Taken for 1 to 6 months
• December 1, 2021

"My daughter had daily migraines with no relief for 7 months. Finally had the chance to do Botox, all shots were administered, with pain at injection sites. So excited about the opportunity since insurance did not want to cover originally, but headache turned into horrible 1 1/2 week long migraine, and it never got better, only worse: weak neck could not hold the head up, pain in the neck, given a muscle relaxant, which caused heavy dizziness, fainting. Dry mouth followed, terrible nausea, feeling close to vomiting, insomnia, anxiety, fear of what is going on. When we talked to the neurologist, were told is not from the botox, that no one ever had those reactions. Check with the gp dr! :) Her face is hot, she has to have a fan on at all times. Tinnitus sound like a fire drill going on 24/7, chills all over body and tremors. At wit's end since no pain medication seems to help, a different kind of head pain since the botox. Do NOT do botox unless you have read all information, life&death!"

• Lulu
• August 23, 2020

"So I received about 4 rounds of Botox for my migraines. Around after my second time getting it I noticed the front of my hair (in front of my ears) began to curl excessively. I naturally have curly hair but the roots are usually not curly/frizzy. The front section of my hair began to become kinky and VERY dry. Nothing is wrong with this type of hair but I have 2 different curl patterns on my head with a noticeable difference in patterns. I consulted multiple hair dressers and they all came up with the same thing, it must be the Botox. I have tried multiple different products, different styling techniques, and treatments but the front section of my hair is a frizzy which doesn't match the rest of my hair. My last treatment of Botox was 4 months ago and I do NOT plan on getting it again. Has this happened to any other curly girls/anyone in general? BTW it did somewhat help with my migraines but due to my hair situation I decided not to continue this."

• ajt
• June 18, 2021

"I get very painful tingling all over my entire body and it's terrifying. I also have pretty bad headaches and speak like a stroke victim. One round and I stopped having the painful parasthesia and my headaches are better. I can also speak more clearly. The second round was fine too and it's already helping on the second day while the first took about two weeks I am having some mild side effects that may scare some patients off: the left side of my face feels a bit numb, my throat is occasionally tight (breathing and swallowing not affected), my forehead feels kinda frozen. Are these side effects worth it? Yes. I get these feelings off and on anyway without the Botox except for the frozen forehead. Anyway, I hope I can keep this up for many years and, while I seriously suggest looking into the warnings involving the use of ANY drug, I also encourage you to try Botox if you can. It's fantastic. And unlike triptans, it doesn't run the risk of cardiac problems. Good luck!"

• Coby
• Taken for 6 months to 1 year
• May 15, 2019

"Had tremendous results with a mix of Botox and medicines to reduce severe headache occurrences from 15+ headaches per month down to 8 or fewer. Incredible improvement. One scary drawback - noticable frontal hairloss!"

• The...
• August 13, 2017

"Very excellent experience with relief from migraine upon wakening lasting up to thirteen days at a time. I have had no migraines after the botox started working three days after injections. I do have neck soreness which is lessening as the days go by. I am on my first round and will try it again in three months."

• Doxibug
• Taken for 6 months to 1 year
• March 3, 2023

"I have 12-15 migraines per month which have not improved with preventatives like amitriptyline or the CGRP inhibitors. After my first two rounds of Botox, 3 months apart, I had little relief from the migraines but no side effects. After the third round of Botox, I woke up a few hours after the treatment with severe, violent vertigo. Once upright, I was ok as long as I didn't move my head. At all. Had to miss a couple of days of work and it eventually subsided to a tolerable degree (though today, 5 weeks later, I STILL have vertigo/room spinning when I lie down to sleep. Cannot do yoga, cannot swim, cannot go to the dentist, cannot get my haircut). The doctor does not think this was due to Botox. I think it was -- never had this before. Also, my neck is very weak and painful - that too never was an issue for me. And I still get all the migraines on top of that. I will not do Botox again."

• Pain...
• Taken for 1 to 6 months
• January 17, 2019

"My migraine was constant. Lasting weeks at a time. I have only had one treatment with Botox and it cut the intensity of the migraine considerably. I now can feel highs and lows. The lows being partial relief. Unfortunately, it is like the migraine moved into my jaw, neck, shoulders and then down my spine in a flare up. Holding my arms up while driving causes spasms that will rival the worst Charlie horse! A month in and the neck pain is getting very slowly getting better. I have tried numerous muscle relaxants and creams to help, but nothing ever kicks it. I will try a second injection. I plan to discuss omitting or limiting the injections in my neck and back of the skull with my Dr. to see if we can lessen the neck pain and still get relief."

• Shay
• Taken for 1 to 2 years
• August 20, 2018

"I’ve had migraines for 35 years and they were getting progressively worse over the years, to the point where meds would work okay for a few hours and then another migraine would begin. I had at least 1 migraine a day every day of the month for years. Then I began Botox injections...amazing and down right life changing. Highly recommend."

• Lowkey
• June 9, 2019

"I had headaches/migraines most days of the month and finally got sent to a neurologist who started me on Botox treatment. Oh my gosh it has been life changing, I’m so thankful for these treatments!! I haven’t had any adverse side effects other than a stiff neck for a couple of days."

• Brown...
• Taken for 2 to 5 years
• September 16, 2018

"I’ve been getting Botox for two years now. My migraines used to be 15-18 a month and now they are between 6-8 a month. I feel human again and not like they rule my life. However, since I started Botox my neck hurts 100% of the time. Sometimes so bad I can’t turn it to the left. Honestly sometimes I know driving isn’t very safe since I can’t turn my head. That being said. For now I’m happy with the results. I can’t raise my eyebrows anymore either so my kids like to tease me :)"

• rkbiker
• May 15, 2023

"Botox was my last resort after everything else failed me. A week after my first treatment, I'm having nonstop headaches, shooting pains in my head, my neck and shoulders hurt more than ever, I have no energy, and I had nausea, dizziness, and stomach cramps. I wish I had never gotten this."

• Tammy
• Taken for 2 to 5 years
• March 24, 2023

"I get this every three months for migraine prevention. I have severe allergies and I was afraid to try this for the longest time but I finally gave in as I was blowing through so many of the available meds. I wish I had tried it when my doctor first offered it. This has changed my life as nothing has since becoming a parent. I used to get migraines so frequently and badly that I was suicidal. I didn't know what it was like to not have a headache. Enter Botox injections. The daily headaches are gone. The migraines are down to one a week from at least two or three with the pain level being 4-5/10 instead of 7/8-10. Now I only go to urgent care maybe every two months for the pain cocktail injections instead of every week. I will admit, the injections are pretty painful. There's something like 32 at each visit, every 3 months. But if you get the freezing spray it makes it more bearable. The increase in quality of daily life makes the 15 min/4x year of pain worth it."

• Jen...
• Taken for 6 months to 1 year
• July 6, 2021

"Did this for about 9 months. I thought it helped at first, but the migraines kept coming. Not totally convinced it failed, it could have been the doctor not having enough experience in injecting/placing the botox?"

• Xano
• January 3, 2019

"I get the Botox injections for my cluster headaches and have informed my doctor I(neurology) that I am satisfied with the results. I'm not having to tote around needles and or pills just in case I got a cluster headache. I would agree the botox for cluster headaches for me is a 5-star rating"

• FLgea...
• Taken for less than 1 month
• July 18, 2018

"Migraines started when I was 11 yrs old I'm almost 42 now. I have 22 migraine days average a month. Nausea, vomiting, etc. Had my 1st round of Botox injections 3 weeks ago...only 1 migraine since. Still waiting to see how it affects me long term, but so far I'm pleased"