Lupron User Reviews & Ratings (Page 2)

• kluff
• Taken for 6 months to 1 year
• July 26, 2017

For Prostate Cancer "I was diagnosed in September 2016 with prostate cancer, and I have been on lupron ever since, in between I had 37 radiotherapy sessions. I have to be on lupron 2 years, but I would love to end it now. It has done o/k at lowering PSA but my QOL has suffered greatly, along with that of my dear wife. My mental health has taken a big hit with extreme depression and anxiety and bodily I have no strength and no ED. It works great for some men without any side effects but for others like me they can be overwhelming. Best wishes to all on this journey. kluff."

• Mom...
• Taken for less than 1 month
• November 11, 2013

For Endometriosis "My daughter(19) was given Lupron immediately after surgery to remove endometriosis.. The doctor came to us right as she was in recovery and said she was giving her Lupron to suppress the cause. No explanation of side effects...how I regret it. She had to leave college...and the pain, weight gain, lack of concentration, etc have been traumatic for us all. It takes YEARS to get this out of your system! I regret EVERY day that I let this happen to my daughter. I should have asked the questions, but I trusted the doctor."

• MrDee
• Taken for 6 months to 1 year
• November 16, 2016

For Prostate Cancer "From the urologist, Lupron is a hormone to shrink the prostate prior to the x-ray treatments for cancer. I have lived with BPH for several years, and it did not shrink the prostate in my opinion. Subsequently, I learned from the Oncologist it was for lowering the PSA. and it did lower the PSA. The hormone was injected in the right and left gluteus muscles with the predicted soreness that passed with time. Three months prior to radiation; markers were placed in the prostate. After the markers were placed a second round of injections were required. This round resulted in a mistake, and the injection in the left gluteus resulted in the Sciatic nerve being punctured which has resulted in severe pain and soreness continuing to date."

• dOCwALT
• Taken for 1 to 6 months
• February 13, 2017

For Prostate Cancer "Hot sweats were the thing most mentioned and most noticeable. My apologies for lack of empathy to all those who I've known going through them. Muscle mass loss and decreased exercise tolerance. My total weight lifted in a usual work out fell to about 1/3. Dry scaling skin and increased dry hair. However, my creeping male pattern baldness was certainly less noticeable. Testicular size and libido took a hit."

• Etienne
• October 31, 2015

For Prostate Cancer "Stage 2B prostate cancer. Proton beam therapy coupled with six months on Lupron. Dreaded getting the second 3-month shot. Side-effects: Almost total loss of libido and sexual function within 30 days--lasting for several months post usage; debilitating hot flashes (2X/hour, 24/7); 15 pounds of weight gain; 50% increase in cholesterol under same diet; dangerous liver impact (GGT > 130) w/o alcohol use; significant breast growth."

• Inspe...
• Taken for 10 years or more
• January 9, 2016

For Prostate Cancer "Doctors just give it out like cough medicine. I have a from of muscular distrophy , lupron almost killed me and the doctors did not know what to do. 11 years later I am still having side effects from the synthetic hormone. doctors should realize that one size does not fit all."

• Mrs...
• Taken for 1 to 6 months
• November 3, 2013

For Endometriosis "I was given the three month injection in July 2012, with no mention of the potential side effects. I have been off lupron for over one year and still have debilitating bone/joint and muscle pain. I have had significant hair loss, short term memory problems and depression. My physical disabilities mean I will probably have to give up work. It is disgraceful that this drug was given to me with no discussion around these life changing side effects. I'm worse now than before I started!!"

• Prost...
• Taken for 2 to 5 years
• April 15, 2018

"My husband was only 41 years old and diagnost with stage 4 prostate cancer PSA was 59 and Gleason 9 it was in 5 lymph nodes surgery was not a option He went through chemo and 45 rounds of radiation and have been on Lupron every 3 months for 5 years now ( he was given 2 years to live) I thank god every day for having him here with me but he isn’t the same man I’ve been with for the last 30 years. This drug is the only thing keeping the cancer from growing but it’s destroying him and our marriage. The physical side effects are joint pain , sweats all the time, muscle lose and strength and our sex life went from 5-6 times a week to 1-2 a month. Mentally he’s a mess and dealing with him is so hard . He went from have to much testosterone to none He’s overly jealous, crying easily, sensitive and just down right crazy sometimes and he was none of these things before."

• kf7711
• Taken for 1 to 2 years
• July 20, 2012

For Endometriosis "I was on Lupron twice for endometriosis. The first time I had hot flashes and headaches, after I got off they went away. The second time I had the same side effects, except when I got off of Lupron the headaches did not go away and turned into migraines. Now I have had migraines for 16 years since being off of Lupron. I was never plagued with headaches before Lupron. My doctor said I always had the trigger for migraines and Lupron flipped the switch on. If I knew then what I know now, I would have taken a different approach to treating my endometriosis. Having endometriosis and migraines together was worse. Now I'm in menopause and going through everything to the nth degree."

• Anonymous
• August 16, 2011

For Endometriosis "This is my fourth month into the Lupron cycle. I have endometriosis. Have no period, NO PAIN. I do get some hot flashes and a little weight gain but that is the least of my problems on the shot. It is the joint pain. It is the worst in the morning when I get out of bed. My hands, legs and feet are the worst. It is not so bad throughout the day. But when I sit for sometime then get up again the pain starts all over."

• Anonymous
• August 2, 2011

For Breast Cancer, Adjuvant "After surgery and radiation therapy, I was unable to take Tamoxifen, so I got a 1-month shot of Lupron to prevent a recurrence of breast cancer. I had no symptoms, so I got the 3-month shot and immediately had problems. I expected the bad hot flashes and dryness, but wasn't prepared for the severe bone pain and muscle pain. I'm used to dealing with pain, but this was extreme. By the end of the 3-mos, the bone pain was gone, but the muscle pain and injection site soreness was still there. I got another 1-mo shot and have been doing better. Now I have unexplained swelling/soreness in my left hand. "

• JustM...
• Taken for 6 months to 1 year
• May 10, 2017

For Endometriosis "Many years of pain - After exploratory surgery and a part of one ovary taken than laparoscopic 3 times to get rid of the endo, I thought this was going to be my saving grace ! It has ruined my life and I'm talking well over 20 years Ago. If I remember correctly it was a new drug they we're trying at the time. Yes it stopped my period and pain but literally jumped from 110 to 140 in one month , had a complete breakdown first time ever in my life breaking a glass table . Depression and anxiety and Anger became my life . I reported all symptoms even the little ones , such as sweating and not sleeping , hot flashes etc . So not worth the lasting side effects depression never went away ! Don't use this drug / it took my happiness in life -"

• Anonymous
• February 18, 2012

For Endometriosis "I have been on the Lupron shot now 5 months. I have had no periods or period associated pain since the second month. There is some minor pain and irritation at the injection site for a day or two after the shot. I have had pretty intense hot flashes and night sweats, minor joint and muscle pain, but the worst for me has been the massive headaches. I am taking another medication now to help with those. I would still recommend the shot if your endometriosis is severe, the side effects still aren't as bad as the pain I was in before. Trying to hang in there for another 4 months."

• Anonymous
• October 3, 2011

For Endometriosis "I started the Lupron at the beginning of the summer, April 2011 to be exact. The only side effect I can say I had trouble with was the hot flashes but nothing unbearable and usually over pretty quick. The first 3-4 weeks after an injection, I would have issues with vaginal dryness but again, nothing unbearable. I had no mood swings or crazy headaches but I have been constantly plagued with headaches since I was a child so I wouldn't know if this had any effect on those. Overall, it has been a totally bearable experience and the hot flashes were nothing compared to the pain I had before the Lupron. I would suggest it if your endometriosis is bad enough."

• Futur...
• April 17, 2013

For Endometriosis "I was diagnosed with fibroids twice, ovarian cyst 8cm big, and endometriosis. I'm going to take my third dose in two weeks and I was prescribed this medicine for six months. Pros- after the first injection no periods! 5 months without a period was right up my ally being I had been bleeding so much for so long, I needed the break. Cons- If you eat salty food or heavy carbs you feel like you are going to throw up. Hot & cold flashes, sweats, stiff joints, joint pain, headaches, sleeplessness/severe insomnia, dry skin & dry eyes. I could go on, but I'm doing this to rid myself of ongoing bleeding, pain, and infertility. It's worth it to stick it out if it really works, I don't know if it does yet, but I know I'm not bleeding."

• Jenasis
• Taken for 6 months to 1 year
• October 20, 2016

For Endometriosis "I've been on Lupron for 8 months now. I have very very painful endo that has put me in the ER at least 50X in the last 5 years. I tried depo shot and continuous use of the Nuva ring before this. Nothing has worked, except Lupron. I do suffer hot flashes and a bit of fatigue/joint point around the time that would be my cycle. The first cycle on the injection was still hell, second I could still work :)! My doctor wants me on it for a while, as I'm only 23 and she does want to jump to a hysterectomy just yet. I'm scared to go beyond the recommended year of Lupron, but so far so good and it's the only thing that's given my life back. I hope that if you try it, it works for you. Though, we are all different."

• Micke...
• Taken for 1 to 6 months
• June 28, 2017

For Endometriosis "The hospital OBGYN decided to give me this while I was receiving treatments to prevent me from bleeding out(I have leukemia) and only told me I would get night sweats and a slight mood swing and I would not get my period. I had my period for a month and a half straight, causing me to get transfusions almost daily, my bones feel like they're breaking, I went from 115 to 170, I'm constantly about to punch through things or cry uncontrollably, suicidal thoughts shot through the roof, blood pressure dropped, sweating so much, I can't walk much anymore without sharp pain and tiredness, etc. I begged them not to give me it on my second round of chemo and they still did. Do yourself a favor and don't take this drug."

• cakea...
• March 2, 2016

For Endometriosis "I was diagnosed with endometriosis and polycistic ovaries when I was just 16 years old. I'm now 22 and I've gone though 9 birth control pills and 9 different gynos. I had a laporoscip surgery when I was 17, which removed scar tissue and large cysts from my ovaries. After the surgery I was on birth control (seasonique which is wonderful for endometriosis) and up until a year ago I haven't had many issues with pains. I started to get the pains again, along with bleeding for 3 months on birth control, so I went ahead with Lupron. After reading up on it, I was hesitant, but moved forward. It stopped the bleeding, but the pain is still there and now my joints ache every day and also depression and suicidal thoughts are always there. Do not do it"

• Jennifl
• October 6, 2014

For Endometriosis "I received my first shot June 18 and thought I made biggest mistake of my life after reading several blogs. After a couple of weeks to my surprise, I felt good. I did have hot flashes, vaginal dryness and joint pain, but went away eventually. Had my second shot Sept 18, currently having hot flashes and joint pain"

• Trying...
• Taken for 1 to 2 years
• February 23, 2016

For Endometriosis "I took it 8 years ago for fibroids, cysts, and severe endometriosis. I was on Lupron for a year after trying other options. I had hot flashes and joint pain, plus a lot of the other symptoms mentions. Calcium and Vit D helped with joint pain. The symptoms remained consistent while I was on the Lupron, however even with the side effects, the year that I was on Lupron was the best I have ever felt. FINALLY no more debilitating pain. I got pregnant after the 6 month weening off period and had two kids. If endo is an inconvenience for you, maybe not the best drug. If endo is ruining your life, some side effects and symptoms are worth getting your life back. I am on it again and grateful that there is something out there that gives me relief"

• cj200...
• November 22, 2015

For Endometriosis "This drug should be taken off the market, It kills your immune system and the side effects never wear off. I had three injections in 2002 and am still suffering from what has happened to my body. The joint pain and hot flashes are unbearable. This medication has robbed me of enjoyment of life. It's only purpose is money for Big Phar and ease of surgery for the doctor. No Benefit to the patient at all. Do not take this, it will ruin your life."

• Ms No...
• Taken for 6 months to 1 year
• May 14, 2016

For Uterine Fibroids "I was given 7 monthly injections of Lupron, given to me at my PCP's office each month. This was done for the fibroids I had and for the fact that I was on a plan to have an entire hysterectomy at the end of that 7 months. I bled very little really, but overall thats about the best thing I can say about that drug After every injection I was an emotional basketcase before I could even get back to my car from the doctors office--emotional to the hilt. I'd go home and then...become lost in my own surroundings in my own home. I would not recommend anyone who's planning on having a hysterectomy to use this 'pre-surgery' drug. Ever. I mean, its hard enough to have to get a hysterectomy to begin with, then make it harder on yourself?"

• Mauya
• Taken for 1 to 6 months
• August 19, 2015

For Endometriosis "I've recieved my first round in June 2015. Almost immediately I started experiencing side effects. Headaches, weight gain, hot flashes,constant sweating,mood swings,made my depression worse, now swollen legs and ankles also severe joint pain. This is becoming unbearable and I'm rethinking doing the next cycle. It's help with my endometriosis, which I'm happy about but these side effects are a...."

• memem...
• Taken for 1 to 6 months
• September 13, 2016

For Endometriosis "Was prescribed Lupron after endo surgery since not all growths could be removed. I was very scared to be taking it after I read about it (I cried in doctor's office when getting the injection). But I ended up loving it. It stopped my periods and the pain, so my anemia was under control and I had so much energy! As for side effects, there was insomnia (but I was not tired from it, so it was OK) and hot flashes started after about two months - but that was nothing compared to the relief. I only got one 3-month shot, but the positive effects lasted for quite a bit. I hope to get another 3-6 months soon. I know there are risks to this, and everyone reacts differently, so I could not advise anyone to take it or not, but for me it was wonderful."

• pose
• Taken for 1 to 2 years
• February 6, 2016

For Endometriosis "I was diagnosed with stage 4 endometriosis after my 1st laparoscopy in june 2015. Following my 1st surgery i started Lupron injections in hopes to slow the endo growth. I had 3 rounds of Lupron causing terrible side effects which included but not limited to: fatigue, night sweats, mood swings, joint pain, severe abdominal pain, lack in sex drive, natural lubrication, anxiety.. Dec 2015 my 2nd laparoscopy and 6mths of Lupron left me with stage 3 Endometriosis. Doc wanted to continue with 6 MORE months of Lupron and another surgery. I declined such offer. I am very unhappy with how this drug effected my life.My body will never be the same after Lupron. Dont take this drug."