Cabergoline for Hyperprolactinemia User Reviews (Page 4)

Cabergoline has an average rating of 7.8 out of 10 from a total of 88 reviews for the treatment of Hyperprolactinemia. 65% of reviewers reported a positive experience, while 6% reported a negative experience.

Reviews for Cabergoline

Drin
Taken for 10 years or more
September 8, 2019

"I was diagnosed with prolactinoma in ‘01 after lactating 1.5 yrs with increased breast size. It all started after 3 mos Prozac in ‘98. Nurse wouldn’t believed it until I could demonstrate with shooting milk across the room. Put on Bromo for 3 months but was intolerable, then Dostinex 0.5mg twice/wk ever since. Prolactin levels have stayed below 15. Endo recently explained organ fibrosis/heart issues with med, that it’s usually only used 5 yrs max, plus once you hit Menopause it is not needed. I stopped 3 weeks ago. Breast size decreased 3” within a week-dream come true! They had increased 5 cup sizes in past 10 years. Then last week they suddenly got big again, plus milky discharge. My bad side effects-depression, rage, fatigue, weakness, worst is huge boobs which med originally controlled for many years. I felt human again for 3 wks. Also have MS which cabergoline worsens. This temporary, drastic, decrease breast size while off the med has me baffled. Will ask for brand Dostinex (was switched to generic years ago)."

4 / 10

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6 Report

HBK
Taken for less than 1 month
May 9, 2022

"I was prescribed this (0.5mg x 7 days) after a fertility treatment when my estradiol levels got really high. Caused terrible constipation, as if my entire gut motility had slowed down to a crawl, this despite taking senna/miralax daily, eating high fiber foods, lots of water, daily walks. Also felt intermittently lightheaded, slightly altered, and poor sleep."

5 / 10

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3 Report

Dilanka
Taken for 1 to 6 months
April 12, 2018

"I'm a 23 y/o male with secondary hypogonadism caused by high prolactin levels. My initial prolactin was 3900 (47-405) and testosterone 1.6 (10-38). After being on this drug for 4 months my prolactin dropped to 1045 and testosterone risen to 17.9. I'm taking 0.5 mg of cabergoline 3 times a week. Although my prolactin levels are not yet within the normal range, it has brought back my T levels from 1.6 to 17.9 which is amazing. Side effects are mild depression, headache, and drowsiness. I take it in the evening to prevent such bad effects of the drug."

9 / 10

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7 Report

Julie
Taken for 1 to 2 years
February 20, 2023

"Femelle 32, have been taking Cabergoline since 2021 because of an 8mm tumour and high lactose. I had my period back but I stopped taking it in August 2022. Now my vision is getting worse (blurred vision)."

8 / 10

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2 Report

Unicorn
Taken for 1 to 6 months
October 31, 2020

"I've been on .7 Monday and .5 on Friday for a week and no more lactation. I've started having weird dreams 3 days after I started the upped dose but I'm sleeping again so I'm hoping to tough it out. I'm hoping symptoms go away or lessen. Oh and I'm also having sharp pain in belly and bottom. I read somewhere that symptoms go away with time."

10 / 10

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4 Report

Are you taking this medicine?

Zuxyun
Taken for less than 1 month
November 10, 2016

"I am one month in take this pill 0.5mg every 3-4 days and I feel extremely dizzy, more dizzy than before I took it, it's hard to focus but I also feel it is doing its job and lowering my prolactin levels to where they need to be. I'm stopping the meds for now because the dizzy is to much, I take anti nausea meds and antivertigo meds and they work for a bit but they wear off and it comes back more intense I'm going this week to check my levels again, the pills works the side effects are rough."

9 / 10

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6 Report

zbanghi
February 5, 2018

"After 1.5 months of treatment, it has reduced my prolactin levels from 1264 μUI/mL to 285 μUI/mL. I take 0.25 mg weekly during meals as specified in the patient information leaflet (Europe) to prevent nausea and vomiting. I take it in the evening to prevent dizziness. When I took the second dose I started experiencing skin itching (I am prone to allergies), so now I take 1 tablet of Claritin (loratadine) one hour before taking cabergoline. I have had mild constipation. The next day after the first dose, I felt like I was raising from the dead. My depression was gone, my fatigue was gone, and in the first two weeks my panic attacks (very strong before starting the treatment) were gone. Unfortunately, after two months of treatment I am back to my “normal” depressed, tired and anxious self. Now, however, I am also angry all the time. It also seems to stimulate my hirsutism although I am on medication for lowering my testosterone levels."

9 / 10

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5 Report

Yvette...
Taken for 5 to 10 years
June 3, 2023

"This medication brought down my prolactin levels but it caused episodes of anxiety and tinnitus which I have been told has no cure. I was told that I would not be able to have children while taking this medication which was not correct. If aware of the long-term effects I would have not taken the medication and tried a herbal supplement if one was available."

1 / 10

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1 Report

Dolly
Taken for 1 to 6 months
October 1, 2021

"I was diagnosed with high prolactin in April 2021 (2803) since then it has from one drug to another. Because I haven't seen my period in 6months After I change my doctor he prescribed cabergoline and metformin, after taking for 2 months and my period didn't come he asked me to do HSG after that with continues taking of my drug by week 11and half my period came. The side effects were something else but I thank God my period is back hoping to get pregnant soon."

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2 Report

Cindy
Taken for 6 months to 1 year
December 27, 2019

"I’m 57 and was diagnosed with a pituitary tumor. A prolactinoma. My prolactin level was 1300 (not a typo!). The medicine cabergoline was very hard on my stomach and I was lethargic after taking it. I was not tolerating it well at all. My husband’s friend, a reproductive endocrinologist, suggested I try taking it vaginally to avoid the stomach. That has helped tremendously. The only side affects I have after switching is stuffy nose, mild mood change the day after, and some weight gain. My levels now after 8 months are at 70. They are hoping to get it down to 15."

6 / 10

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3 Report

Est...
July 31, 2017

"Just had an awful night from the effects of Cabergoline 0.5mg ..felt like there was poison in stomach and the abdominal pain is just too much. Had to vomit and had diarrhoea at the same time. It just happened so sudden. Most time just had bad cramps and abdominal pain. Bad times I get this combo of pain diarrhoea vomit and dizzy. 4 hours usually of intense abdominal pain And nightmare. I had started on the meds 9 years ago and stopped because of the cost and the cost for the Doc and the pain. But it works. It brought down the prolactin and menstrual does comes back. but once I stop he meds everything went back to the same prolactin level >250. Wish there's no side effect. It's a painful experience and since I had to take it every week."

7 / 10

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4 Report

Julia...
June 23, 2017

"28yo female, I was first diagnosed with a 13mm prolactinoma, which was later figured out to be a non-functioning pituitary tumor. Turns out, after seeing an expert surgeon, it is a Rathke's Cleft Cyst on the pituitary stalk. After no results of improved hormone levels with 4 months of Bromocriptine, I started Cabergoline .5 mg, 2 times a week. Symptoms such as extreme dizziness and lightheadedness occurred, but after nearly 6 months on the medication, it's not as bad. Mood changes and depression began after a couple months, and I hope to have my dosage decreased next week. All of my hormone levels were normal within 2-3 months, but I'm not sure I can deal with mood swings and depression. RCC's don't normally shrink with medication."

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3 Report

Mothe...
Taken for 2 to 5 years
July 15, 2022

"Found out I had microademnea and high prolactin levels of over 1800 back in 2019 due to breasts leaking and not pregnant.. been on Cabergoline 3 years now. I went for my MRI in Feb this year & it’s still same size etc it’s not shrunk, I’m still secreting milk. I not seen endo in ages. My moods not been good, headaches, little weight loss (only just after 3 years)"

5 / 10

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1 Report

Bridg...
Taken for less than 1 month
November 25, 2021

"I've been instructed to take 0.5 (1/2) dosage of Cabergoline after getting a result that my prolactin level is too high which symptoms were irregular (absent) menstruation, breast milk and not pregnant or breast feeding, Infertility, so I just started taking them I am told to take half every week, so far they are making me sick, headache"

10 / 10

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1 Report

Ange...
May 9, 2016

Dostinex (cabergoline) "Avoid this drug at all costs! I took it to bring down my prolactin levels which it did but I had some extreme side effects. Severe depression, fatigue, lack of motivation just to name a few."

4 / 10

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26 Report

JKL...
November 13, 2013

Dostinex (cabergoline) "Ive been taking Cabergoline for 7 years and it has helped keep my prolactin level normal. I can take it anytime of the day and it doesnt bother my stomach, i do get dizzy easier on this medicine."

10 / 10

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31 Report

Anonymous
November 9, 2010

"This medicine worked great for me in reducing my prolacting producing tumor"

10 / 10

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32 Report

Cindy
Taken for less than 1 month
September 27, 2019

Dostinex (cabergoline) "My mood change in a blink, felt so happy in a while then I will feel depressed again... It made me feel tired during the day."

6 / 10

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11 Report

Lilly
February 2, 2015

"The only side effects I get are stuffy nose and headaches. Stuffy noses are supposedly an unusual side effect, but I get one every time I take cabergoline."

8 / 10

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18 Report

Xano
Taken for less than 1 month
October 18, 2019

Dostinex (cabergoline) "I'm being optimistic about dostinex, I hope it really does work for me. I have side effects like blocked nose and severe arm aches. Can't wait to be totally free."

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10 Report

Anonymous
Taken for 1 to 6 months
December 16, 2012

"I took cabergoline twice a week (at night) for 5 months. The day after each dose, I felt extremely tired, nauseous, dizzy, constipated and had a numbing headache. The symptoms got worse over time."

8 / 10

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19 Report

BeBe
Taken for 1 to 6 months
March 24, 2016

"The day after taking the medication I felt nausea and sinus pressure for few hours in the morning. I took the pill with dinner. My Prolactin levels were reduced."

8 / 10

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13 Report

Lesli...
Taken for 1 to 6 months
October 22, 2020

"I've been taking cabergoline for four-months now and surprisingly the worst side effect I've experienced is constipation and drowsiness."

8 / 10

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7 Report

Anonymous
June 28, 2013

"I just took three doses of 0.25mg cabergoline but I developed severe headache and even fainted. My doctor suggested to stop medication for about a month."

3 / 10

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15 Report

caetano
March 12, 2008

Dostinex (cabergoline) "good drug for dysreflexy in spinal cord injurieds"

8 / 10

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20 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.