Cabergoline User Reviews & Ratings (Page 3)

• viva
• Taken for 1 to 6 months
• August 2, 2021

For Hyperprolactinemia "i was diagonosed with PCOS and a high prolactinomia of 36.5ng. My fertility doctor placed me on cabergoline , metformin and ovofolic. I have taken 2 tablets per week of cabergoline for 8 weeks, test was re-run, and prolactin level is now normal. But have to continue the metformin and ovofolic due to the pcos. Its best to take the cabergoline at night before bed time to reduce the side effects. I am hopeful I test positive as soon as possible as I have been TTC for 2 years before I started treatment in June 5th, 2021."

• lexer...
• June 1, 2017

Dostinex (cabergoline) for Hyperprolactinemia "I used dostinex 2 years ago for a few months. I had nausea and vomiting the first few days, but I continued taking it for a year and the side affects went away. My prolactin went from just over 200 down to 94. It also helped me to lose weight. I had to stop taking it because it was too expensive. I started taking it again 2 weeks ago and the only side affect I have is mild headaches."

• Jeanny
• September 21, 2018

For Hyperprolactinemia "I was diagnosed of pituitary microadenoma. At first my doctor gave me bromocriptine 2.5 mg every day for the hyperprolactinemia. I took only 4 days because I was so sick after 4 days, dizzy ,nausea, vomiting, left ear the buzzing is so loud I felt like there is air inside. I ended up at the emergency. So Doctor change my meds to Cabergoline 2.5 mg once a week but the side effects are so bad too. I took only 2 weeks I can't stand it anymore dizziness and the nausea is the worse."

• L Joe
• August 2, 2017

For Hyperprolactinemia "32 yr. old male. prolactin levels 55.9. I've been on cabergoline for 4 weeks now. My lab results came back and I am now within the healthy range at 9.9. I went maybe 2 weeks with bad nausea and headaches then they subsided and those effects are less intense and less frequent. I rated a 7 because the medicine certainly works, and quickly at bringing down prolactin, I do not know the results about it shrinking the adenoma or not yet so I am still unsure if it works on that front. So far so good. While the side effects were annoying and disrupted my daily life, it is certainly better than the alternative of surgery to remove the "noma" from my pituitary gland."

• Gem
• Taken for 1 to 6 months
• July 21, 2022

For Hyperprolactinemia "I've been taking Cabergoline for about a month now due to high prolactin levels (76) , it was prescribed by my doctor but side effects have been rough. My anxiety levels have been through the roof, the first time I took the pill I had a horrible headache, sometimes it's difficult to breathe and last week I almost fainted at work. I haven't checked my prolactin levels again since I'm waiting for the treatment to be over (A month and a half of taking a pill of 0.5mg twice a week) but oh man so far its been a terrible experience, I just want it to be over. But hey, at least I got my period back and my sex drive back and I wasn't even aware that I had lost it."

• Scott
• Taken for 5 to 10 years
• March 30, 2018

For Hyperprolactinemia "Male 43 year old. Been on cabergoline for 10 years. Diagnosed with prolactinoma on the pitutary. Lots of side effects that got progressively worse. Depression, anger, loss of motivation, dizziness, horrible insomnia, occasional intestinal distress"

• TinyOne
• August 14, 2015

For Hyperprolactinemia "I have a macro non functioning pituitary adenoma which is causing compression of my pituirtary stalk "stalk effect" which causes increases in prolactin blood levels. My endo put me on this to reduce the 'stalk effect' I'm suffering from my macro adenoma. My crushing headaches have weakened, the lactating stopped and my period is back on schedule. However the side effects are extreme. They last about 5 days after taking my dose for the week. The nausea is unbearable, causing me to take a drug for that at $104/mth as I spent all day vomiting. I have what I describe as a feeling of being drunk and hungover all at once. I can't drive, but for two days a week. So tired, dizzy, weak, low blood pressure, flu like. I am hoping for surgery soon, but I live so remotely logistics make it difficult, as I'm 13 hours from the specialists. I rated a 5 as the headaches were horrid, but so are the side effects."

• T M
• Taken for 1 to 6 months
• June 24, 2022

For Hyperprolactinemia "My experience using Cabergoline has helped so far. As of 5/2022, my prolactin levels are down from 105 to 40. I started this drug in 4/2022, and since then, I've noticed dizziness, faintness, passing gas, slight blurriness in vision, increased mood (extra happiness) and cramps. Also, my bathroom routine is about the same. This drug has not impacted my ability to work or drive."

• GinaF...
• December 23, 2015

For Hyperprolactinemia "I've been taking it for about two weeks now because I have a prolactinoma and so far the side effects have been fatigue, extreme headache and my ears pop a lot as if I'm on an airplane, flu like symptoms stuff nose drowsy dizzy but it's not that bad. Also, really bad stomach pain so I usually take it before I sleep."

• Bonnie...
• November 14, 2015

For Hyperprolactinemia "I have a pituitary adenoma that causes high prolactin levels. The cabergoline gave me bad side effects first 2 weeks. Gradually got less severe. Prolactin levels became normal. Not sure if tumor is shrinking. But last MRI showed no growth."

• Benny
• Taken for less than 1 month
• October 26, 2021

For Hyperprolactinemia "I was prescribed Dostinex 0.5mg once per week to reduce prolactin levels that were elevated after coming off TRT for 5 years. I did question this since my prolactin count was coming down by itself with follow up blood work. I took this medication twice and won’t take it again. The reason being is that it made me feel completely uninterested in life and very depressed. I had no interest in my girlfriend, no sexual desire and my personality change was too much of a swing to the downside. After about 3-4 days I quite quickly begin to feel more normal again."

• Anonymous
• Taken for 1 to 6 months
• November 9, 2014

For Hyperprolactinemia "I've been taking cabergoline for about a month now and my first 2 weeks i had really bad headaches and stomach aches the next day. Now i just experience a very bloated stomach like twice a week which is annoying. I'm hoping that stops and i lose some of this weight gain because of this high prolactin."

• Esyn
• Taken for 1 to 6 months
• February 11, 2015

For Hyperprolactinemia "I have been diagnosed by micro prolactinoma (4x9 mm) about a month ago. My prolactin levels were around 150 ng/ml. I started using Cabergoline 0.25 mg twice a week. At the end of only one month, my prolactin levels dropped from 150 to 3 ng/ml. I have been told to use it for about 2 years to eventually shrink the tumor. The side effects were (especially in the first 2 weeks) nausea, extreme fatigue, and depression. I started on Zoloft for the depression and it worked pretty well."

• Jessica
• Taken for 5 to 10 years
• December 8, 2019

For Hyperprolactinemia "Diagnosed with a prolactinoma in '09 after noticing visual disturbances and lactation (wasn't pregnant). Tests and scans ran and tumor discovered. Prolactin levels were higher than what's normal and specialist prescribed Cabergoline 1/2 a tablet twice a week. Only major side effect I've noticed is insomnia. I never get a restful night's worth of sleep. I have miscarried 4 different times anywhere from 3-6 months into the pregnancy within the past 10 years. I have been told mixed reasons on why this keeps happening and if it's related to the prolactinoma or not. Lost over 70lbs with newfound lifestyle of working out and eating nutritiously along with Cabergoline. I wouldn't be surprised if the medicine helped, given I started losing weight within a month of not even trying. Stopped taking it for about 6 months at one point and initial symptoms came back. I continue to take it with no noticeable mood swings or lethargy even though I still suffer from insomnia."

• Guest...
• Taken for 1 to 2 years
• February 27, 2015

For Hyperprolactinemia "Cabergoline has been effective in lowering my prolactin levels and shrinking my tumor. However, the side effects are rough. Dizziness, extremely tired, nearly constant nausea, which often leads to vomiting. Cabergoline is better than the other two medications I have tried though."

• Anj
• Taken for 10 years or more
• December 15, 2018

Dostinex (cabergoline) for Hyperprolactinemia "After getting nauseated and not being able to function well on the other 2 Dopa agonists I tried, No nausea and no noticeable dizziness on this. Immediately upon starting cabergoline, I slept like A BABY. It was a very noticeable change. Then after a few months, I became an insomniac. The other persistent things were that I developed a stuffy nose when my dose was due and for about a day after taking it (every 4 days). I was also more tired the day after I took it (always at night). A good side effect was being able to drink very little with full effect. My temper was better than it was prior. It may have boosted my libido slightly. Eventually got my dose down to about an eighth of a pill, then a couple of months ago I lost my bottle. Withdrawal was sleeping incredibly poorly for about 4-5 nights. I’m not lactating, as I did every time when stopping it over the years, so maybe middle age is working for me. Cheaper in Canada, but recommend you get brand Dostinex only."

• neener
• June 28, 2015

For Hyperprolactinemia "I just started .50mg of cabergoline friday to lower prolactin and tumor on my pituitary glad. Saturday I felt so groggy, body hurt like I had the flu, bloating and drugged. It's Sunday and I still feel weak with a upset stomach. I'm trying to be patient and work thru side Effects. Any advice to minimize side effects. Will be calling my endo in the morning"

• Steph
• Taken for 1 to 6 months
• August 5, 2023

For Hyperprolactinemia "After reviewing so many negative/scary reviews about Cabergoline, I decided not to take it until after I did my MRI, which was 6 months later, and confirmed microadenoma. I have a microadenoma measuring 5 mm, and the endocrinologist prescribed 0.25 mg weekly. My prolactin level was 28. I decided to start taking it in June 2023. The only side effects I experienced were drowsiness and bloating/gas. It has been almost 3 months, and my prolactin level went down to 12. I am very happy with the progress and glad I made the decision to take it. Everyone's body reacts differently to medications."

• emian
• Taken for 6 months to 1 year
• April 28, 2022

Dostinex (cabergoline) for Hyperprolactinemia "I used it for almost a year, for the treatment of prolactinoma. After six months I did an MRI and the tumor is smaller but the effects are terrible, fatigue, sick stomach, foggy mind, depression I do not know what to say. I am very tired, I do not know how it will go like this. Next month I have a appointment with my endo and I will say that I cant use it anymore"

• Theo
• Taken for 10 years or more
• July 8, 2018

Dostinex (cabergoline) for Hyperprolactinemia "I am 30 years old and taking Dostinex for the last 13 years since I was diagnosed with macroadenoma. The first years I was taking 1mg weekly and the last years only the half dose - 0,5mg per week. What is really negative about Dostinex is its high price. I would like to inform users that I buy it from Bulgaria where the price is 4 times cheaper than in Cyprus (17 EUR per 8 tablets). In regards to the side effects, I used to have depressions and changes in the mood but I think is impossible to know if it comes from Dostinex or not. I wouldn't say there are strong negative side effects on me. I can easily concentrate and memorize. I have heard Dostinex is known to stimulate concentration and develop motor skills. I don't encourage nobody to take it without reason, but I believe beside negative there are positive side effects as well."

• Anonymous
• Taken for 1 to 6 months
• July 5, 2017

For Hyperprolactinemia "I had a 4.3 cm prolactinoma with prolactin level at 9500. Taking 0.5 mg every other day. Biggest side effect is costs and availability. Wal Mart pharmacy always does a partial fill as they are always out of stock. Internet search for average price yields nothing. Shame on these drug companies. Levels now at 600.......To Maleka on a previous post with ice pick pain headache, you may have trigeminal neuralgia. Your cure is tegretol. Been there done that, good luck"

• Ndeyang
• Taken for 1 to 6 months
• April 11, 2022

For Hyperprolactinemia "Am 30 yrs of age, having a high prolactine level of 39 l used bromocriptine for a month, recently l carried out a test and it was reduced to 18, now switched to cabergoline 0.25mg twice in a week due to scarcity of bromocriptine and also have PCOS, am trying to conceive for a year now but l just started the medication. l have this constant anger, depression and mood swings always, just so annoyed at any slight confrontation . But am still hoping l get pregnant soon. I really want to conceive ."

• Shani...
• January 29, 2018

For Hyperprolactinemia "2nd time on this medication for a naughty tumour secreting prolactin. Medication did cause me to go a little loopy and dizzy during the beginning, as a result I take the medication late in the evening so I sleep through the worst of it. I experienced hallucinations whilst on the drug, thinking I'm seeing spiders crawl up the wall in the corner of my eye, once I look they disappear, the hallucinations are more frequent in dark rooms. Changes in behaviour, I find it more difficult to control strong emotions. It's a bit annoying to get hold of, my pharmacy never has it in stock so I have to ring ahead to ensure it's ordered before I run out."

• Rose
• Taken for less than 1 month
• September 22, 2021

For Hyperprolactinemia "Wow it is amazing, I suffered high proclactin for 2 years and my doctor prescribed dostinex for me Before taking it I did not have regular periods But within a month of taking it I must testify is simply the best and my periods are back regular"

• Rvca
• Taken for less than 1 month
• September 11, 2021

For Hyperprolactinemia "Female 27 years old, being treated for depression and general anxiety disorder. I found out I had a microadenoma two weeks ago because of my persistent depression and anxiety , my dr put me on cabergoline .5mg twice a week, so half a pill Saturday morning, half a pill Saturday night, half a pill Tuesday morning and half pill Tuesday night. Only took it one Saturday and one Tuesday and ended up in emergency room for horrible panic attacks, they started two days after first dose but it came to a point where I just wanted to die so I could stop feeling like that. Dr put me on propranolol and alprazolam to lower my dopamine levels cause I was on a psychotic state for days, halved my dose and skipped my next one, made me miserable and I’m still struggling to breathe properly because of the effects, I don't like it now but still need to take it for my prolactinoma…"