User Reviews for Kineret
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
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Reviews for Kineret
Review by Gabby B:
For Schnitzler Syndrome: I've been on Kineret (anakinra) for several years for Schnitzler Syndrome. No other medication gave me relief, except high dose steroids, but I was pain and hives free within a couple of days of starting Kineret and back digging in the garden and walking kilometres when I had spent the previous 7 years mainly in bed. It was on the PBS list but now my hospital pays for it on my behalf. No injection site problems or side effects.
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April 10, 2013 4:08 AM
Review by Sessa:
For Still's Disease: Yes, it does burn when you start to take it and the spot injected might itch. I did a couple of things before taking the shot. 1. warmed it up for about 30 minutes 2. applied ice to the spot I planned to inject 3. would take a Benadryl to keep the itching down. I've been on it several yrs now. It burns or itches...once in a blue moon. It has helped but doesn't keep the fevers and joint/muscle pain completely away, anymore. Good luck! This medicine is definitely worth a try if you have AOSD.
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January 31, 2012 9:48 PM
Review by Anonymous:
For Schnitzler Syndrome: Kineret works great for my Schnitzler's Syndrome. It can hurt when injected but if I warm it up to room temperature by letting it sit out for a while or hold the syringe in my hand to warm it up, it hurts A LOT less.
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September 3, 2011 1:04 PM
Review by Still fight'n:
For Still's Disease: I've only been taking the 100mg shots for 8 days now. It does burn even after it has warmed up. I think this might be because it's thick and has to be injected slowly. But like they say.. no pain no gain.
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February 11, 2011 8:38 PM
Review by Anonymous:
For Still's Disease: The drug works very well. What they don't tell you, though, is that it burns like a steroid each time, every time. So go into it forewarned as it's not anywhere in any literature and it's not something your physician will likely tell you beforehand.
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March 5, 2010 7:59 PM