Ustekinumab User Reviews & Ratings (Page 4)
Brand names: Stelara, Wezlana, Selarsdi
Ustekinumab has an average rating of 7.4 out of 10 from a total of 253 reviews on Drugs.com. 67% of reviewers reported a positive experience, while 19% reported a negative experience.
Reviews for Ustekinumab
- The...
- Taken for 1 to 6 months
- October 25, 2016
For Crohn's Disease "Wow. I have tried every medication from 6mp methotrexate humira infliximab vedolizumab etc. all failed in the end and my latest try vedolizumab didn't work at all. I was in a flare for 8 months my Consultant said the only option left was to remove my colon. I have never been in so much pain and weight loss. Then I got a call from the hospital saying the drug company was willing to offer me ustekinumab. It's not licensed in the UK yet for crohns so I wasn't sure. But omg within 9 days of treatment I've never felt so good . I must admit in those 9 days when I never felt anything I thought it wasn't going to work then boom I woke up one day and felt amazing. If you get offered this amazing drug just give it time and it will work wonders"
- ann
- December 26, 2015
Stelara (ustekinumab) for Psoriasis "Had psoriasis for 14 years started in palm of my hands which was really bad for 8 years then my legs, past three years spread all over 90%, no sleep, severe itcing at night, skin shred everyday from room to room embarrassed to go any where wore clothing all over even gloves I have not even visited family I was depressed I had from puva, uv treatment, tar cream endless of cream and ointment all failed , December 4th 2015 had my first shot of stelara I must say they have saved my life, no more bleeding, no shredding I still have a long way to go but my skin show so much improvement. thank you I feel so much better This is a miracle drug for all of us who suffer from p Thank you Annette"
Frequently asked questions
- What are the new drugs for plaque psoriasis?
- What biosimilars have been approved in the United States?
- How quickly or how long before Stelara starts to work?
- How long can you keep Stelara in or out of the fridge?
- Tano
- Taken for 2 to 5 years
- November 7, 2018
Stelara (ustekinumab) for Psoriasis "I wish I could post a picture. My arms, legs, and torso were covered in guttate and plaque psoriasis, and now I just have a couple small spots of guttate that pop up around my calves/ankles. I wore a short sleeved dress that came just below the knee to go to dinner with my boyfriend for my birthday, and I felt and looked so great. It helps that I've also worked hard to lose 40 lbs.... But I honestly don't know if I would have worked so hard to lose weight if I would still have had to cover up all the time anyway. The best is that I can wear shorts and tank tops in hot weather again! I know stelara helps people with much bigger problems. But being comfortable in your own skin is definitely important."
- minuit
- Taken for 6 months to 1 year
- June 3, 2012
Stelara (ustekinumab) for Psoriasis "This medication just makes me ask the question WHY PEOPLE STILL TAKE METHOTREXATE AND 6-MP FOR PSORIASIS? I've been on this medication for about a year now and it's been a life saver. It took me from 80% body coverage (very thick plaques under all hair follicles, eyebrows would crack and bleed, just horrible) to just having a few little spots within 8 weeks. If your doctor is going give you a TNF blocker, tell him you want Stelara. So much more effective, convenient, and with fewer side effects. It's now classified by my insurance as the same coverage as Enbrel for psoriasis, and is even covered to a greater degree than Humira. In turn, you may be able to get it as a first line biologic if you request it. "
Are you taking this medicine?
- Yanesse
- Taken for 1 to 6 months
- November 29, 2016
Stelara (ustekinumab) for Psoriatic Arthritis "AMAZING!!!!! Stelara saved my life. it worked within my first injection and by the next month I was 90% clear. I just got my 12 weeks follow up and im 100% clear still taking my injection but clear I was covered head to toe 3 months ago."
- Barbara
- Taken for less than 1 month
- September 20, 2021
Stelara (ustekinumab) for Crohn's Disease "I just started Stelara to treat Crohns. It's been a rough year with 4 hospitalizations and constant illness related to the disease. I'm so hopeful that Stelara will allow me to stay off the oral steroids. The steroids are super effective but of course horrible side effects. I've gained so much weight I don't recognize myself. I've only been on Stelara a week so too soon to tell but I do notice I'm sleeping a lot more than usual and I've been noticing a slight soreness in my throat. As I've been reading the reviews I noticed a lot of people mention depression which is concerning as I struggle with depression anyway. I'm hopeful Stelara may be the drug that finally works for me. Good luck to everyone in your healing journey."
More FAQ
- Can you get a flu shot or take antibiotics while on Stelara?
- How is Stelara injected or administered?
- What blood tests are needed for Stelara?
- makta...
- March 2, 2016
Stelara (ustekinumab) for Psoriasis "At the start, after 2 injections, I was 99.5% cured, then the NHS decided to stop my treatment on the retirement of my Dr , in 5 weeks, the Psoriosis returned, worse than it had ever been, after 8 weeks still no treatment forth coming, my whole body was burning red hot & 75% scaley, had an injection 3 months ago, 99.9% of my body had cleared of Psoriosis in 2 months, I am due my next one next week, the NHS is holding it back again, I am dreading what is going to happen to me & my body if i don't get the next injection."
- Anonymous
- July 27, 2011
Stelara (ustekinumab) for Psoriasis "I am 38 and have had psoriasis all my life. I have used everything I could get my hands on and only had brief relief over the years. I started Stelara in March 2011 and 3 weeks after my first shot I was 100% clear. I just took my 3rd shot and I am still 100% clear. If anyone has the facility to try this they should, this medicine really works. Thanks to the creators of Stelara, I wish I had started it before. I go everywhere I possible can without a shirt now..yeah!"
- Ndam
- November 7, 2015
Stelara (ustekinumab) for Psoriasis "I have been on stelara for over 1 year now. Had psoriasis on the palms of my hands and feet very badly. It has worked very well and i only get ocassional little flares now as oposed to not being able to walk. Side effects have been acceptable, noticed I get sick more easily and am prone to migraines when first taking a shot. Overall I would recommend Stelara for someone who is suffering."
- AnnaK...
- Taken for 1 to 2 years
- September 19, 2016
Stelara (ustekinumab) for Psoriatic Arthritis "I have had psoriatic arthritis for 20 years. Mostly attempting to control the arthritis which at times has been debilitating to say the least. For the first year my skin was clear after the loading doses. I wore shorts and went swimming without fear! And while I'm still very happy with stelara I've noticed it doesn't control my arthritis as well (still manageable) and I have small patches beginning to appear. I'm well under the 200lb weight for the higher dose."
- Lady...
- Taken for 1 to 6 months
- February 9, 2017
Stelara (ustekinumab) for Psoriatic Arthritis "I've had psoriasis for 48yrs. I had my 3rd shot a few weeks ago. My psoriasis have cleared up 85% and helping Arthritis. I had tried everything you could think of. I'm glad my Dermatologist suggested this to me."
- Joe
- Taken for 6 months to 1 year
- November 24, 2020
Stelara (ustekinumab) for Crohn's Disease "Stelara was a 1 star for the first 24 weeks. The waiting period was ridiculous. I just did my third at home injection so today puts my 32 weeks in I did not see any results until about 24 weeks on the medication. Stelara works for crohn's you just have to give it time to work. Now we are starting to work on the dosing schedule to prevent flare ups around dosage time."
- dotti...
- June 21, 2010
Stelara (ustekinumab) for Psoriasis "I have psoriatic arthritis. I took my first shot on 5/26/10 and so far I am really pleased with the results. I take my second shot on 6/22/10. I was on humira for 10 months. Then it quit working. My body was 80% covered and I was miserable. Now my body is almost back to normal. The only side effect I had was insomnia and was tired for the first 10 days, then it went away. Hope it continues to work. Will keep you up to date after this shot."
- Victr...
- Taken for 1 to 6 months
- April 17, 2015
Stelara (ustekinumab) for Psoriasis "I was 65 when I got psoriasis, tried everything possible until I told my derm. I have to have something. I have received 2 inj. & feel it has pretty much saved my life (not really) but I'm so much more comfortable. However I retired in Jan. & my ins. changed to Humana which will not cover Stelara, so at this time I am stressing (worst thing you can do) about how I can continue this inj. without having to pay the enormous price, so I am researching everything possible...long story short I have definitely benefited from the Stelara..."
- Ney
- December 5, 2015
Stelara (ustekinumab) for Psoriasis "I have Crohn's disease and was put on remicade to treat it and then I developed medical induced psoriasis it's so bad and painful I can't walk some days and I have a hard time opening things like doors. All of hair fell out and be a 24 year old girl I was devastated. I was put on stelara at an abnormally high dose of 90mg 1 a month for a few months now I'm at 6 weeks the goal is to get me to 8 weeks stelara has made an improvement my hair has started to grow back in and right after the shot I can walk and my hands start to heal but within a couple of weeks I back slide again but stelara has really helped me not lose my mind completely if I was a normal psoriasis person maybe it would be better."
- Creat...
- July 22, 2016
Stelara (ustekinumab) for Psoriasis "What a life changer! I started Stelara 2 months ago. It took about a month for me to start seeing some relief and now at the end of my second month, no more itching, redness, and almost all of the psoriasis is gone. I only wish I had started this sooner! Make sure you check out the patient assistance card that can be used in conjunction with your medical insurance."
- Ziggy...
- May 24, 2017
Stelara (ustekinumab) for Psoriasis "Dear all. I am 49 yrs old (M) just start the treatment. I just would like to let you know after a week my affected skin spectacularly improved. Improved mean I do not have any peeling areas…:-) I will get another injection for next month, and after every quarter. I am starting to believe again it will works after many other useless alternative treatment.. Although I do not know the side effects .. I'm a little frightened of what I read .. but I am so happy :-)"
- sunda...
- November 11, 2013
Stelara (ustekinumab) for Psoriasis "I had never had psoriasis until age 50 it came on all of a sudden pretty much all over my body and nothing worked to get rid of it. I started the Stelara injections 10-7-13 and was amazed at how it cleared. I also was using the vitamin d cream at night. Just had my second injection 11-7-13 yet this time it did not work near as well. The psoriasis is back and getting as bad as it was prior to the first shot. It's a bummer because the next injection won't be for 3 months. Just so happens had my yearly blood work 10-14 and my cholesterol was 280/170 it has never been that high. I am also a breast cancer survivor and remembered the first time to have them inject my right arm as I had lymph nodes removed from the left side wonder if thatmatter"
- jaime
- December 1, 2014
Stelara (ustekinumab) for Psoriasis "27 year old female. Suffered with plaque psoriasis since age 12 (15 years) just woke up covered from head to toe one morning. Tried every treatment avail in Canada- nothing worked. Parents went on a year hunt for a cure the first year I had psoriasis, but turned up with nothing that remotely worked. Two years ago I was prescribed Stelara , best decision I ever made. Price is insanely high but with the right teams amazing coverage became available. So far no noticeable side effects other than my common cold lasting longer than usual. Blood work and tests always come out fine. Only problem I have had while on this medication is I was diagnosed with strep throat and because of that my psoriasis came back very drastically and over night."
- Mal
- Taken for 2 to 5 years
- May 22, 2018
Stelara (ustekinumab) for Psoriasis "I just lost my best friend to Stelara, yes it cleared her psoriasis up but she got severe lung problems last year and was put in ICU in Feb 2108 and then started having strokes 5 wks ago. We lost her Saturday night. She started seeing different symptoms a year ago. I told her and she said oh no its not the shot. I think it was - this stuff is poison"
- Richw
- May 31, 2013
Stelara (ustekinumab) for Psoriasis "45 years with psoriasis. Tried everything - no luck. On Stelara for three years now. WONDERFUL experience. Only side effect is I am always tired, but I can live with that as I no longer have ANY symptoms. Wonderful medicine but VERY expensive. This would be the LAST medicine I would give up if I had to give up my meds."
- dfh
- October 3, 2010
Stelara (ustekinumab) for Psoriasis "I had my first Stelara injection 2 months ago (and a booster 30 days ago). The difference is amazing, I have no more flakes, the redness is during to pink. I can wear shorts in public and not be embarrassed. NO side effects at all! This is a fantastic drug."
- Karin
- Taken for 1 to 6 months
- October 9, 2020
Stelara (ustekinumab) for Crohn's Disease "No side effects (only fatigue), but not working very well to control Crohn's flare-up. Don't use this if you have severe active flare, you will not be able to control your disease. I'm switching to anti-tnf."
- Chris...
- May 26, 2020
For Crohn's Disease "I was diagnosed with crohn’s disease at age 22; I am currently 34. For 10 years my disease was unmanageable, and I suffered a great deal. I have tried every biologic, and every Crohn’s medication with no luck. Two years ago I began using Stelara, and this drug has saved my life and offered me a shot at remission. I did still flare for the first six months, but I have basically achieved a full remission. During my remission on Stelara I was able to carry to term my first pregnancy; a true miracle that wouldn’t have been possible without this medication. I decided to withhold my injection in the third trimester, and postpartum so I could breast feed. I am one and a half months postpartum, and I am developing a flare up so I will resume my injection. Me and baby are both healthy so far. I wanted to share my story because I know that I wasn’t able to find a similar account when I was looking for answers."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Stelara (ustekinumab) for Psoriatic Arthritis "Had a mild case of Psoriasis - just one patch and some dandruff scales. Had Psoriatic arthritis for about two years - morning stiffness, swollen small joints and knee pains - I endured these for almost two years. On Doctor's advice started Stelara. After the started dosage, she also prescribed Remicaid for a few weeks. However, it took almost a week for my Pharmacy to fill Remicaid. Within 3-4 days of taking this medicine, I felt better slightly and stopped my daily Celebrex. And when my Pharmacy called me to pick-up Remicaid, I said I don't need it! Within two weeks I could feel better enough to stop Celebrex. I took my second shot about 6 weeks ago. At this point my joint pains are 90% gone. I am almost back to normal. I am able to wear my wedding ring that I removed before finger stared swelling. I am back to going to Gym - build my muscles back up. Life is good! Bobby"