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Ustekinumab User Reviews & Ratings (Page 2)

Brand names: Stelara, Wezlana, Selarsdi

Ustekinumab has an average rating of 7.4 out of 10 from a total of 253 reviews on Drugs.com. 67% of reviewers reported a positive experience, while 19% reported a negative experience.

Reviews for Ustekinumab

  • Lisamp
  • April 14, 2016

Stelara (ustekinumab) for Psoriasis "I have had chronic Psoriasis for 25 years, since I was 9, all over my body, face and hands. I tried Methotrexate when I was 22, and I was finally clear for the first time. I was on this medication for 12 years, with a small break to have my child. Unfortunately it just stopped working, my liver wasn't happy and my Psoriasis was coming back, BAD. My only option was biologic therapy - Humira or Stelara. I had to undergo months of tests to qualify for funding. I finally had my first injection 7 weeks ago, and without exaggeration on the second day I felt my skin changing, relaxing. A week in and it had visably got better, thinner and less angry. Now my skin is 90% clear, just some slight pinkness on my legs. And no side effects! AMAZING!"

9 / 10
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  • Anonymous
  • December 29, 2010

Stelara (ustekinumab) for Psoriasis "I had psoriasis on about 85% of my body before I started on the Stelara. I have used virtually all the immunosuppressant medications in the past: Enbrel, Raptiva, Humira, just to name a few. They all did well for a few months, but always ended up not working. Even when they were working, I always had patches on my legs and scalp that wouldn't go away. Not with Stelara. A week after my first injection, the flakiness was gone, with the red quickly fading to pink. A month later, I had my second and within 2 weeks all spots were gone. I have now been on the medication for over a year and am currently completely free of any plague, no redness, no maddening itch. I go and have an injection every 3 months. Best medicine ever."

10 / 10
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  • Pain-...
  • June 30, 2015

Stelara (ustekinumab) for Psoriasis "Using Stelara has been nothing short or amazing for me. I didn't have 95% body-coverage like some of the people here but my hands were completely covered and it seemed to be spreading onto my wrists and up my forearms. The pain was excruciating and I was emotionally exhausted from constantly trying to hide what was happening to me. I'm a musician/educator and spend a great deal of time in front of people. I do feel that Stelara saved my life. I am 100% clear of all signs of psoriasis. No itch, no bleeding, no pain, just normal looking skin. I am also completely alleviated from the mental strain, anxiety, self-consciousness, etc. What an amazing change in my life."

10 / 10
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Frequently asked questions

  • Psori...
  • December 6, 2016

Stelara (ustekinumab) for Psoriasis "I got diagnosed with psoriasis about three years ago, it wasn't bad at first so I never paid too much attention to it, and it eventually went away. About a year ago it came back, and took over my entire body. I was covered in rough, itchy, red patches and there was nothing that would fix it. I tried natural oils, salts, tanning, ointments, foams, even pills, and nothing worked. These things helped and soothed my psoriasis, but nothing really made it go away. I finally turned to Stelara and I could cry from the results. I am getting my second injection this Friday, and after only the FIRST one, my skin looks 75% better. The injection immediately caused my skin to be less itchy, and appear far less irritated. I suggest Stelara to EVERYONE!!!"

10 / 10
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  • Cara
  • Taken for 2 to 5 years
  • November 8, 2023

Stelara (ustekinumab) for Crohn's Disease "I have Crohn's. Was diagnosed in 2010. I tried pills and after a while, it didn't work. Then I tried Humira and that failed after 2 years. I then ended up hospitalized 3 separate times for my Crohn's within a 3-month period and was septic all 3 times due to extreme complications from Crohn's. After 3 weeks of hospital stays and a new GI, I was prescribed Stelara. I can't stress enough how this medication changed my life. I've been on it since February 2020 and I haven't had a flare-up, pain, or major issues. 5 stars for me! I highly recommend this medication."

10 / 10
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Are you taking this medicine?

  • Bambi
  • Taken for 6 months to 1 year
  • January 22, 2013

Stelara (ustekinumab) for Psoriasis "I have suffered from psoriasis for 20yrs and the condition fluctuated over this time. I have tried creams, methotrexate, light therapy and cyclosporine - none of which helped. Eventually I saw a fantastic dermatologist - I had to try 3 treatments and if they failed, I could apply for permission to try biologics. I tried Enbrel first -worked until I fell ill with tonsilitis & my psoriasis came back with a vengence. I switched to Stelara, I am about to take my 5th injection, and it has been amazing. Within weeks, I was almost clear. This was the 1st summer I've been happy to show my body at the beach! Minimal side effects too."

10 / 10
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  • Lindy...
  • Taken for less than 1 month
  • May 8, 2020

Stelara (ustekinumab) for Crohn's Disease "I have recently had my second bowel resection for Crohn's and today have started my first infusion of Stelara. No other drug has helped unfortunately. Chronic constipation, bloating and an inability to digest or process food has left me not really eating at all for the past 2 years. I am hopefully this drug will give me a quality of life again but am also aware the side effects may become an issue. The depression side of things may be interesting as I am bipolar...hopefully I'm covered there..Good luck to us all on our journey."

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More FAQ

  • Cootie...
  • January 27, 2014

Stelara (ustekinumab) for Psoriatic Arthritis "I am 65. I have had psoriasis and arthritis since I was 13. I was covered. Like others I had used tar, creams, PUVA , UVB in my home and ENBREL which caused many side effects. Dreaded white flakes everywhere! Itching was just awful. 2 1/2 years ago I tried Stelara, what a wonder I cleared in 2 injections. What a joy to have clear skin and go in public and not be embarrassed. Had to stop because Medicare did not cover it. I became totally covered again worse then ever. Finally found some finical help. I have had 2 injections, all plaque is gone looks so good. I have a great deal of redness but expect it to clear. I have had a madding itch the past few days, hope it is not a side effect. "

9 / 10
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  • Gary...
  • Taken for 2 to 5 years
  • May 12, 2015

Stelara (ustekinumab) for Psoriasis "Now 48, I have had psoriasis for 32 years. Never have I experienced a medication that has worked so well. I have been covered head to toe and I am now 95% clear. So nice to not see psoriasis in the mirror. I wish everybody can have results like mine."

9 / 10
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  • reevsie
  • May 24, 2014

Stelara (ustekinumab) for Psoriasis "Psoriasis cleared completely after first injection, now 6 weeks after my second one its starting to come back on my head, I'm also experiencing difficulties deep breathing while exercising and when I exert myself, also elbow and knee pain, being an active exercise person this is dramatically affecting me now,"

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  • Frost...
  • July 24, 2016

Stelara (ustekinumab) for Psoriasis "Stelara is a life saver. I have psoriasis for over 30 years. I have tried creams, PUVA, Vit A meds, Fumiderm, Otezla nothing has worked. My last med Otezla didn't work for me and made things much worse. I had my first Stelara injection on May 7 2016. After about 10 days I could feel an improvement. After 4 weeks there was a dramatic improvement and I was almost clear. It is 9 weeks since my second injection and my life has changed in so many ways for the better thanks to this medicine. There is a slight redness where some of the patches were but the dermatologist assures me these will fade. I have no side affects whatsoever. Thank you for this life changing medicine and for restoring my self esteem after all this time"

10 / 10
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  • Debid...
  • June 6, 2017

Stelara (ustekinumab) for Psoriatic Arthritis "I have had severe psoriasis for 22 years. Last year I developed psoriatic arthritis too. The pain was debilitating and made dealing with my skin even harder. It took doctors 6 mth to prescribe Stelara but once I got it, I got my life back. I've only had 2 jabs but I feel fantastic and my skin us 100% improved. A wonder drug for me. I pray to God it doesn't fail like Humira and Cosentyx. Good luck to all of you suffering with these horrific disease's"

9 / 10
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  • Clint...
  • March 14, 2014

Stelara (ustekinumab) for Psoriasis "I had almost disabling psoriasis for 10 years. My feet was my biggest problem area, many flare ups made it hard to even walk. I too have been on everything in the past, starting with ointments all the way to Remicade, Humira, and Enbrel with little success, mostly only helped for less than 6 months. Prednisone has almost ruined my joints, and as most of you know causes weight gain. In September 2012 I got my first injection. By December I was completely clear doing insanity workouts! Over 2 years I enjoyed a psoriasis free life and it's been great! Unfortunately, I started flaring 2 months ago, and my dermatologist put me back on prednisone as my whole body is covered again. Not sure where to go from here."

8 / 10
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  • nebsk...
  • July 19, 2016

Stelara (ustekinumab) for Psoriatic Arthritis "I've been on Humira and Enbrel. Hands down those two were the worse experiences of my life. So many side effects. I've tried Methroxate and that was even worse!! Finally, I was introduced to Stelara and I haven't had a flare up for two years now. I work out 5 days a week (weight lifting and cardio) and just have the normal muscle soreness. My joints haven't gotten worse at all. My psoriasis is pretty much all gone. I've had no side effects that I can remember. I haven't gained or lost weight. Long term, not sure how this will affect me but I want the quality of life now and I got it with this shot. most insurances will have you paying $200 but if you get the Stelara card, it goes to a $5 per shot copay! (every three months)."

10 / 10
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  • Liver...
  • June 18, 2016

Stelara (ustekinumab) for Psoriasis "I had 65% coverage of my body with thick plaque psoriasis. PUVA, methaltrexate, every cream in the book....no improvement. Was fortunate enough to join the clinical trials for stelara in 2005, have been injecting 90 mg every 3 months since then. I am 99.9% clear with no flare ups and PA under control. No side effects that I can recognize. To me Stelara is a life changer."

10 / 10
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  • Kate
  • Taken for 1 to 6 months
  • June 25, 2020

Stelara (ustekinumab) for Crohn's Disease "I've been on Stelara for Crohn's for over 10 weeks with poor results. I am losing the remission created by remicade. Stelera caused me exhaustion and I have stomach aches, sensitivity and bowel struggles."

3 / 10
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  • WAano
  • Taken for 6 months to 1 year
  • August 23, 2021

Stelara (ustekinumab) for Crohn's Disease "Been on Stelara injections for 12 months. I didn't detect any problems until 5 months ago when I started losing my balance, got a virus in my mIddle ear and headaches and nausea. Doctor suspects it is connected to Stelara - has anyone else experienced these symptoms. Anyone else experienced this??"

8 / 10
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  • kevstar
  • Taken for 1 to 6 months
  • August 5, 2015

Stelara (ustekinumab) for Psoriasis "I have had servere psoriasis for 15 years I am now 34 nothing has work apart from u v but the condition soon came back after treatment since being on stelara I have notice a 90% improvement before starting I was 80% covered I could not hardly walk I had thick scales from my neck right down to my ankles since I have been on stelara all I have is a long thin white patch on the inside of my right leg and and I still have some red on both sides of my stomic,i have never felt so healthy or happy blood test always come back clear and I can at last wear shorts and tops with no sleeves with out worrying about what people think"

9 / 10
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  • Gobli...
  • May 17, 2014

Stelara (ustekinumab) for Psoriasis "Stelara has been great. I have experienced no side effects and I just got my second shot and my Psoriasis is 90% faded after 4 weeks since my first shot. Basically if your insurance will cover it's realistically a miracle. Good luck reader. I hope you have a similar experience of success."

10 / 10
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  • Hannah...
  • Taken for 1 to 2 years
  • May 17, 2023

Stelara (ustekinumab) for Crohn's Disease "Stelera fixed my stomach pretty much straight away. I was going to the loo for up to 20 times a day for nearly four years! At first, everything was great. I’ve been on it for a year now and the side effects are awful. I have horrific fatigue, headaches, brain fog, hair thinning, pale skin, and aged terribly ( I’m only 32 ). I haven’t stopped taking the medication yet but it’s made me feel so fragile. Just wish I could feel normal!"

5 / 10
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  • Melly...
  • Taken for less than 1 month
  • September 30, 2016

Stelara (ustekinumab) for Psoriasis "I got my first injection almost 4 weeks ago and am amazed! I've suffered since I was 29 and am now 41. I've tried every topical cream/ointment that's out there. Cortisone injections in my hands and feet that thinned my skin out so bad you can see all my veins - even spent almost $10,000 on an in home phototherapy bed with only sporadic relief. I live at the beach during the summer with my kids and this summer I had to wear a dress to my ankles to save embarrassment. After only 4 weeks, my feet are 100% clear except for some redness and my legs are clear with the exception of light pink spots where all of my lesions were. No side effects at all so far. I've never been so happy :)"

10 / 10
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  • OnACl...
  • Taken for 1 to 2 years
  • February 2, 2017

Stelara (ustekinumab) for Psoriasis "I developed a severe case of psoriasis soon after my 18th birthday, with 90% of my body covered. For years I tried everything under the sun including steroids, PUVA, all topicals, Embrel, Humira, and methotrexate. The only thing that ever helped was the metho and if I tried to go off of it, I would be unable to leave the house for months on end, living in excruciating pain. I had been on metho for over 30 years, resigned to a life of weekly nausea and chronic lethargy, when my new doctor suggested Stelara. I tried it, positive that it would fail like everything else I had tried. And that was when life began for me again. I have now been on it for 1.5 years and for the most part completely clear. It has been a miracle for me!"

9 / 10
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  • GValez
  • Taken for 1 to 2 years
  • September 10, 2013

Stelara (ustekinumab) for Psoriasis "54 years old ..chronic psoriasis for over 49 years. I've had all the treatments known and then some. This medicine is a God send. It's the only treatment that's ever truly worked and I can say I'm 100%. "

10 / 10
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  • Criss...
  • Taken for less than 1 month
  • February 9, 2018

Stelara (ustekinumab) for Crohn's Disease "I am on week 2 on the initial Stelara IV infusion. So far, no side affects! (As I had with Humira, Cimzia, and Remicade). I have noticed that I am able to tolerate milk a bit more than I was able to prior. Not as much gas or abdominal cramping. Looking forward, and hoping the medicine will help me achieve remission!"

4 / 10
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  • MaryJ...
  • August 18, 2014

Stelara (ustekinumab) for Psoriasis "Stelara is an excellent medication. I first contracted psoriasis through strep throat. I was covered in red spots from the neck down. Previously, I used a medication that cleared it up but it was harsh and made my hair fall out! I switched to Stelara and it cleared it up within days, I kid you not. The only side effect has been fatigue and maybe a mild case of depression (which I'm not sure can be attributed to the Stelara). I'm only giving it a 9 because it won't clear up the patches on my face AND it is very expensive (right now the cost is 19,000 but Johnson & Johnson is covering it). Highly recommend though."

9 / 10
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Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.