Ustekinumab User Reviews & Ratings (Page 3)

• Kdub
• Taken for 6 months to 1 year
• May 18, 2017

Stelara (ustekinumab) for Psoriasis "I have had severe Plaque Psoriasis for 32 years. I am a 50 year old male. I have tried everything you can imagine over all those years. Even a 6 week program at The University of Michigan did not help the 85% coverage I have had since I was 18. Nothing worked until July of 2016 I had my firat Stelara injection. Within 3 months I was almost clear and almost a year later I am clear except for a couple spots under my fingernails. It is a miracle to me. If you have lived with it you know what I mean."

• CD 2013
• September 3, 2013

Stelara (ustekinumab) for Psoriasis "I am 50 years old and have suffered with severe psoriasis for 45 years. I've tried every treatment known to man and the best is Stelara. I was clear by the second injection and no side effects. I did take a study injection years ago and it worked but made every joint and muscle in my body swell and pain. Needless to say I stopped taking the medicine. I have been taking injections now for 10 years and my blood work is always perfect so there doesn't seem to be any long term effects."

• Rach
• Taken for 6 months to 1 year
• June 26, 2020

Stelara (ustekinumab) for Crohn's Disease "Stelara put my severe Crohn’s disease into remission and it has stayed that way for the past 6 months. The shots don’t hurt very bad and it’s only 1 every 8 weeks for me! Side effects I’ve noticed: headaches, fatigue, groggy day after shot."

• Drumt...
• January 30, 2016

Stelara (ustekinumab) for Psoriasis "I am 41, I have had psoriasis since I was 3 and was misdiagnosed from the beginning as anything from warts to cradle cap. I've used Cole tar, all of the lights(including PUVA), steroids, vitamin D, diet, Chinese herbs, acupuncture and methotrexate ( probably more I can't remember). I have never been more clear than I am now. I've had no side effects that I am aware of and couldn't be happier. I was afraid of biologics, but I should have embraced them sooner"

• Bgunit
• Taken for 1 to 6 months
• June 21, 2015

Stelara (ustekinumab) for Psoriasis "I'm 53. I've had psoriasis for as long as i can remember. It has been moderate most of that time. About a year ago it started getting bad. My dermatologist tried the new oral medication. After three months it was still getting worse. I got to 95 %. I coulnt sleep from the intense burning and itching. They decided to put me on Stelara. Within a week i noticed a huge difference. I just got my 1 month shot. My upper body is completely clear. I only have a few spots left on my lower legs and feet. I was actually on Enbrel 8 years ago. It did work but this Stelara is incredible. I cant remember when my skin was this clear. My girlfreind just hought me a bunch of short sleve shirts. I is totally amazing."

• RG15794
• September 12, 2016

Stelara (ustekinumab) for Psoriasis "I've been battling severe scalp psoriasis for 6 years, as well as the beginning of psoriasis in my genital region. Topicals didn't come close to helping. I was on Otezla for 3 months but the side effects (vomiting, diarrhea, and headaches) were horrible. I tried Humira for 5 months but it didn't reduce the plaques enough. After my first stelara injection, there was a dramatic decrease in my scalp psoriasis, and the few patches on my genital region disappeared completely. After the second injection, my scalp is 80% clear with no itching or burning. The injection itself is pain free, the needle is maybe half an inch. I haven't had any side effects either. Highly recommend, I'm so happy with the results!"

• North...
• Taken for 1 to 6 months
• October 6, 2013

Stelara (ustekinumab) for Psoriasis "After 6 years on Enbrel, it finally stopped working and I started on Stelara this past July 2013. Excellent results clearing tough, thick-skinned body areas like elbows and knees within 1 to 1.5 months and I'm very pleased. Somewhat perplexing while on Stelara are short cycles of psoriasis turning up and then disappearing from thin-skinned areas like scalp while the bigger problem body areas remain clear. I never had scalp psoriasis while on Enbrel, but I'd still choose Stelara overall for faster, better overall clearing."

• In LA
• Taken for 1 to 6 months
• August 4, 2012

Stelara (ustekinumab) for Psoriasis "After going through the PUVA, topicals, vitamin E, fish oil, dry skin lotions, both tanning under the sun and even meditation. The answer to my psoriasis has finally arrived after 10 years in the form of Stelara. I'm 47 years old, single, workout at the gym 2x a week and mountain bike every weekend. Two weeks after my first shot in June 2012, I saw improvement on my skin: the scales were flatter and I didn't itch as much, and my dry skin didn't seem to be dry as it was. My face and scalp had the most obvious clearing, that my hair stylist asked what shampoo I was using. When I came back for my next injection in July 2012, I was 90 per cent clear! Now I believe I am 100 per cent clear. So far no side effects. Thank you Stelara."

• Worse...
• Taken for 1 to 6 months
• March 1, 2017

Stelara (ustekinumab) for Psoriasis "Do not use Stelara. I wish I hadn't. I have had nothing but stomach/immune system issues since taking Stelara about 1 year ago. It did reduce the psoriasis but at a cost that no one should pay. I have several scans and an endoscopy only to have the gastro intestinal specialist tell me that my issues appear to be related to the Stelara and that my immune system has potentially been compromised indefinitely. STAY AWAY from all biological drugs, they are not safe in my opinion."

• Joanne
• Taken for 2 to 5 years
• February 1, 2019

Stelara (ustekinumab) for Psoriasis "When I started on Stelara I was covered from head to toe. I’ve been in it now for 4 years and I have no psoriasis! No side effects! I have a pixie hair cut now for the first time! It’s changed my life!"

• asere...
• September 7, 2013

Stelara (ustekinumab) for Psoriasis "Wow, what can I say, this medicine has changed my life. My head was the worst, completely covered. Had to put oil on it and leave it on most of day or over night. My head would be stiff after 3 days with the build up. After one treatment it was completely gone. So happy now. Was thinking about going on disability but now don't have too."

• Karezig
• Taken for 6 months to 1 year
• April 19, 2021

Stelara (ustekinumab) for Crohn's Disease "I was diagnosed 20 years ago and had a right hemi colectomy 15 years ago, Humira stopped working for me so I was changed to Stelara 6 months ago. First couple of doses intermittent headaches and felt tired but kept on them. Started with water infections, bad constipation resulting in internal bleeding and haemorrhoids, really tired and depressed caused by the constant headaches and joint pain so I'm giving up with them,"

• PJ Le...
• February 7, 2010

Stelara (ustekinumab) for Psoriasis "Stelara completely cleared 90% BSA, including severe palmar plantar pustular psoriasis within 52 days of initiating treatment. Side effects included extreme fatigue lasting approximately 72 hours after each application. Feeling "sunburned" was noted for several days after initial fatigue."

• Clic
• August 9, 2015

Stelara (ustekinumab) for Psoriasis "Stelara is a wonder drug! It has cured up to 98% of the psoriasis I have suffered from for 50 years. No side effects (so far) apart from helping with arthritis of the knees. I can recommend this drug, although very expensive, from my personal experience."

• NYC...
• April 9, 2017

Stelara (ustekinumab) for Psoriasis "I am a registered nurse and have had psoriasis since I was 12. I am now 56. It was mostly contained to my scalp during the winter months. But I started experiencing psoriatic arthritis which was getting worse in my hands and feet. 1 month after starting Stelara, I noticed a difference. It has been 9 months and I have no more psoriasis or arthritis pain. I did not experience any side effects. I highly recommend this product."

• mds_02
• November 5, 2014

Stelara (ustekinumab) for Psoriasis "Have been on Stelara for about a year and a half. When started, I had 50-60% coverage. It was down to about 10-15% by the time I had my second injection, and down to about 5% by the time I had my third. It has remained about that level since, but now only consists of flat pinkish spots that barely itch at all and look more like old scars than the scabby, cracked, bleeding mess they were before. As for the side effects; I seem to be more prone to various infections than before. I seem to catch colds more easily. Also, I usually feel some muscle pain and fatigue starting the day after my injection and lasting for a couple of days (easily dealt with by scheduling my appointments on Friday afternoons and taking it easy over the weekend)."

• Harry
• July 22, 2015

Stelara (ustekinumab) for Psoriasis "64 year old Male Chronic Plaque Psoriasis since age 12. Hospitalised many times. Previously tried everything including PUVA, UVB & Tar, Dithranol, Topica Steroids, Topical Calcipitrol , Acetretin, Cyclosporin, Methotrexate, Fumaric Acid Esters, Infliximab (Remicade) and finally now Stelara. All treatments with the exception of Acetretin and Cyclosporin have been effective to some degree up to full clearance but the relapse time was always short. Was on Remicade for 3.5 years which was very effective but lost its effect over the last 6 months. Have just had my 3rd set of injections (2 at a time) and am as clear as I have ever been in 52 years. Truly life changing. Paid for by NHS!"

• Methos
• Taken for 1 to 2 years
• October 5, 2013

Stelara (ustekinumab) for Psoriasis "Back when Stelara was first approved for psoriasis, my dermatologist went ahead and put me on it. I cleared in one shot, took the next 2, and we laid off. Minor side effects - some swollen tonsils and sinus issues. Fast forward a year and half - went back on it - after my second shot, I spent the next 6 months going through a continual round of sinus infections that required injected antibiotics, and got confirmed influenza A despite being vaccinated. Tests showed likely my immune system couldn't handle. "

• TDarMan
• June 25, 2015

Stelara (ustekinumab) for Psoriasis "I've had psoriasis, and some psoriatic arthritis since I was 12, I'm 40 now. I had 95% body coverage, and started taking Stelara as one of the first trial patients in Canada in early 2009...what a difference. No more throbbing knees, and I hover between 5 - 10% coverage now, it was at 0% for a couple of years but I had an injury and gained a bunch of weight, so that is why it's up now (maybe 3 kids doesn't help either ;-). The only issues I have are the price (thankfully it's covered), and the fact that I am more susceptible to colds and flu, and will get sunburn easily if I don't watch out."

• Kybee...
• Taken for 1 to 2 years
• July 26, 2016

Stelara (ustekinumab) for Psoriasis "I was 90% covered. Dermatologist took one look at me and put me on Stelara. Within a week, people started remarking that the plaques along my hairline seemed to be fading. After the booster, all but my scalp and back of thighs had cleared, and both of those were greatly diminished. Within six months, the raised red areas where the plaques had been were clear. At one year, all that's left is minor plaques on my scalp that could be mild dandruff. I have noticed that things like bruises and bug bites seem to take a long time to heal, but given the action of the drug that seems to make sense. My insurance covers the majority of the (expensive!) medication, and there is a program that covers the rest so I have no out of pocket expense on it."

• AMAZING...
• Taken for 2 to 5 years
• September 2, 2013

Stelara (ustekinumab) for Psoriasis "I have suffered from severe plaque psoriasis for ten years. I have taken every biologic medicine that is available and Stelara has been by far the BEST. It has totally changed my life the past two years and the GOOD news is my dermatologist said it is not one of the medicines that eventually stops working like the others. If it clears you and you are healthy with no major side effects its possible to live a psoriasis free life for years! The side effects of many biologics were harsh especially Remicade but the last two years on Stelara I have only noticed a bit of fatigue and only one upper respiratory infection."

• Gwynnie
• April 17, 2010

Stelara (ustekinumab) for Psoriasis "Psoriasis diagnosis: I received my first injection the end of December 2009 and I saw an immediate difference within the first two weeks. The second injection was due; however, I was ill with an upper respiratory virus in which my Doctor indicated to wait until it was resolved. I was about 1.5 weeks late with the 2nd injection. I was flared and received the 2nd injection with itching down 50% and cleared approximately 40%. Two weeks after the 2nd injection, I developed moderate arthritis symptoms in my shoulder, right knee and my finger joints. It was time for the 3rd injection after waiting 3 months. I remained at the 40% clearing. I discontinued this medicine due to joint issues and flaring increase by the end of 3rd month."

• Lulup...
• February 22, 2016

Stelara (ustekinumab) for Psoriasis "This has been great for me. I've struggled with psoriasis for 16 years, then this last year I developed psoriatic arthritis too. I was given Stelara after much struggle with the insurance company. The 45 mg dose helped and did more for my psoriasis than my arthritis but the 90mg dose has changed everything. My hand and my feet are almost completely free of psoriasis and my arthritis is nothing like it was this time last year. Crazy expensive but it has changed my life."

• Adama...
• October 20, 2015

Stelara (ustekinumab) for Psoriasis "28 year old male.. Been on stelara for 2.5 months went from 70% covered to almost 0% it had worked amazingly... Just a question does any pay know how long it takes to start seeing some of the red go away that was in the really bad spots? Thanks all and good luck"

• Crusty...
• Taken for 1 to 2 years
• December 29, 2015

Stelara (ustekinumab) for Psoriatic Arthritis "I have had psoriatic arthritis for the past 12 years every treatment failed on me including photo therapy, humira, enbrel, etc. I was covered approximately 70% and completely covered on my face and head. I tried stelara and after 6 months got decent clearance I could see my face again. I am at one year now and at month 10 it just failed hard, I right back where I started. I can just shake my head, hair, and face over a sink and completely cover it scales, chunks, paste, and slough from my psoriasis. I very frustrated . No one should have to live through this. I haven't been on a date in over a decade. No one even talks to me, I am in complete isolation. I hate stelara because it gave me hope"