User Reviews for Primidone
Also known as: Mysoline
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Filter by:Learn more about Primidone.
| Condition |
Reviews | Compare | Avg. Ratings |
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|---|---|---|---|---|
| Seizures | 7 reviews | 45 medications | 9.3 |
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Benign Essential Tremor![]() |
7 reviews | 9 medications | 6.0 |
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| Summary | 14 reviews |
7.7
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Reviews for Primidone
Sort by:| Review by clements74: | ||||||
primidone for Seizures: I started taking the generic drug Primidone 1-12-08 and so far it has controlled the shaking. I have been told I have seizures that come and go. I can't get my words out and at times I can't figure out what word or name I want to use. My coordination suffers and I feel like my mind is kind of cloudy. My hands also shook when I had these seizures. So far I would rate this drug a thumbs up.
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| January 28, 2008 11:27 PM | ||||||
| Review by Anonymous: | ![]() | User Rating: |
7.0
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Mysoline (primidone) for Benign Essential Tremor: I found Mysoline effective for my essential tremor, but the side effects of tiredness, lack of energy, plus reduced sexual function (difficulty in ejaculating) is quite frustrating.
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| July 13, 2009 8:56 PM | ||||||
| Review by Ken V: | ![]() | User Rating: |
10
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primidone for Benign Essential Tremor: I started using this in combination with propranolol for my tremor. I take 80 mg of the propranolol in the morning and 50mg of Primidone before bed. I had been taking the propranolol for 6-7 years already and it cuts the intensity of my tremors by 50-70%. By adding Primidone as a combination therapy I would say that it's 80-95% reduced. If you have a hereditary tremor like this you should ask your doctor about these medicines. Good Luck!
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| February 3, 2009 4:09 PM | ||||||
| Review by Elaine Tafelski: | ![]() | User Rating: |
10
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Mysoline (primidone): My doctor first prescribed Mysoline for me at least 12 years ago, after attending a Medical Conference. I was unable to raise a cup to my lips, or cut the food on my dinner plate. My tremor was noticeable by family and friends. I had been checked for Parkinsons, and the results were negative. This doctor learned that this medication was taken for Essential Tremor, which was mis-diagnosed too many times by Doctors. He wanted me to try it at least. I readily accepted, to take Mysoline, and before I knew it I had results. Taking this prescription, gave me my life back. I no longer needed assitance at dinner time, or by family and friends. I live a normal life now, not ashamed to go out in public. Inderal was added with Mysoline just lately. Thanks
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| September 7, 2008 5:35 PM | ||||||
| Review by kelp88: | ![]() | User Rating: |
6.0
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primidone for Benign Essential Tremor: I've had essential tremor for most of my life. It has got worse in the last 5 years, so I've taken 7 to 8 different drugs (at different times) to see how well they worked. Propanolol worked best, but unfortunately brought out my old asthma that I hadn't had since childhood. Primidone was the only other that seemed to work for me, but was not a cure all. The problem I had with Primidone was the bad effects it gave you, but I persevered and it went away in 3 to 4 days and has not come back again. The bottle says to take three 50 mg pills a day. This is a lower dosage. But, I just take one 50 mg pill once a day and have on occasion upped it to two when I want to feel more confident in public without embarrassing myself with hand tremors.
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| November 8, 2009 11:38 AM | ||||||
| Review by Anonymous: | ![]() | User Rating: |
9.0
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Mysoline (primidone) for Seizures: Great Seizure control. Low side effects after first 2 weeks.
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| January 8, 2009 1:13 AM | ||||||
| Review by eganan: | ![]() | User Rating: |
10
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primidone for Seizures: I have been using primidone for over 20 years for my epilepsy. I have not suffered any side effects. I also give the medication a thumbs up.
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| October 20, 2008 7:45 PM | ||||||
| Review by irishdeb1: | ![]() | User Rating: |
10
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Mysoline (primidone) for Seizures: I have been taking this medication for 30 years, and have never had a side effect or seizure. Works very well for me. No complaints.
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| August 12, 2009 2:02 AM | ||||||
| Review by hhrt_7u: | ![]() | User Rating: |
10
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Mysoline (primidone) for Seizures: Great!
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| August 26, 2009 3:15 AM | ||||||
| Review by Anonymous: | ![]() | User Rating: |
3.0
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primidone for Benign Essential Tremor: I was diagnosed with ET 6 weeks ago. I was prescribed Primidone. To date, I still am having serious side effects. My tremors are continual, even to the point where my left arm feels "dead". Generally I feel drained, dizzy, and sick to my stomach. My voice is halting, with shaky patterns, and is more affected when I am tired. I find it very difficult to take this medicine and will be calling my Doctor to discuss any other options.
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| December 9, 2009 7:33 AM | ||||||
| Review by NW: | ![]() | User Rating: |
1.0
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primidone for Benign Essential Tremor: I have epilepsy and had it controlled for several years with other medications. Recently I was diagnosed with Essential Tremor and the doctor prescribed Primidone. On the second day of use I had a seizure, as I continued usage and increased dosage as directed I started losing muscle control in my legs, I had periods where I thought I was losing my mind. I was unable to speak clearly as it felt like my tongue was swollen, but it was not. It got to the point where I could not stand up in the shower without leaning against the walls. My wife said get off that medicine! Could not reach my doctor so I decreased dosage to zero. I take a lot of different medications for number of different medical problems, I think my brain had had it.
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| December 14, 2009 11:41 AM | ||||||
| Review by A. Non: | ![]() | User Rating: |
7.0
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Mysoline (primidone) for Seizures: I was prescribed this medicine back in the late 80's for seizure control. I recently stopped using this in 2010. It controlled my seizures well, but I did not realize the side effects of it. Side effects were irritability, anger, increased depression and behavior. Because I literally grew UP with this medicine, I can now see these issues after changing the medicine. My brain was built to use it during puberty/young adult. This does control seizures, and actually suppressed anxiety by slowing down all brain functions. Be aware that epilepsy is cor-morbid with depression quite often and this medicine may enhance/increase depression symptoms.
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| December 23, 2010 8:19 AM | ||||||
| Review by Anonymous: | ![]() | User Rating: |
4.0
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primidone for Benign Essential Tremor: Primidone is a very effective but brutal drug, at least for me anyway. For the most part, it eliminated my shakes along with my ability to remember names and hold a chain of thought. Don't be afraid to give it a shot though. Medicines affect everyone differently and it might work great for you.
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| November 23, 2011 11:16 PM | ||||||
| Review by BillyJr: | ![]() | User Rating: |
8.0
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primidone for Benign Essential Tremor: Takes months to get used to. Good side effects for me include improved sleep and increased exercise tolerance. Bad (good?) side effect for me is delayed ejaculation.
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| February 4, 2012 11:23 AM | ||||||
| Review by Anonymous: | ![]() | User Rating: |
9.0
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primidone for Seizures: I have been using this medication for approximately 35 years. I have had two healthy children during this time. I am now in my 50's and find that I am experiencing tiredness, fatigue, and incoordination to the extent that I stumble or run into people or things easier than before. Whether this medication is a cause to my clumsiness or not, I am not sure. It has helped to control my seizures since my last one in 1975.
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| October 24, 2009 1:54 PM | ||||||




