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Keytruda for Non-Small Cell Lung Cancer User Reviews (Page 3)

Keytruda has an average rating of 4.2 out of 10 from a total of 90 reviews for the treatment of Non-Small Cell Lung Cancer. 34% of reviewers reported a positive experience, while 59% reported a negative experience.

Reviews for Keytruda

  • Dee
  • May 10, 2018

"My Mom was supposed to have three infusions. After the first, she became ill with several side effects. She was so brave and went for her second one, two days later she was in the ER with a collapse lung. Her health declined so rapidly and she passed away one month later. I honestly feel it was the Keytruda, she would have lived longer without it. Please stay away from this drug."

1 / 10
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  • cabbe...
  • Taken for less than 1 month
  • May 24, 2018

"My father in law took his first dose of Keytruda and after few days he felt strong pain all over his body. His heart was beating out of control. After we took him to emergency and after all scans and test the doctor confirm that was the side effect from the Keytruda. After one day in the hospital his heart was already so damaged that after less than a day he passed away. This drug took his live. This drug needs to be taken out of use and revaluated."

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  • GoodSon
  • Taken for less than 1 month
  • March 16, 2018

"We were hopeful and optimistic as my mother did not desire chemo or radiation to fight her cancer. Same day she received her first dose her heart began beating out of control. Had no family history of heart problems. Was admitted and died in hospital nine days later. Personally believe this drug took her life away sooner than the cancer would have if untreated. Miserable but quick end."

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Frequently asked questions

  • Conce...
  • April 12, 2019

"My husband has stage 4 NSCLC diagnosed in 2016. On March 31, 2018 he was diagnosed with a 5 cm tumor on his right frontal lobe of his brain, which was surgically removed. Dr. started my husband on Keytruda May of 2018. All was going good until Nov 29, 2018 brain scan showed 5 tumors on the dura lining around his brain which is inoperable. He had radiation which did get rid of the tumors for now. Dr. kept him on Keytruda. 6 weeks ago, after his Keytruda treatment, my husband got very weak, short of breath and stayed in bed 95% of the time as he was so exhausted from doing nothing. 3 weeks later he had another treatment of Keytruda and the same thing again, weakness, in bed all the time and short of breath. Today he was feeling much better but had to have his Keytruda again today. I will monitor him to see if this treatment kicks him down again. Does anyone have any advise? His Oncologist states that Keytruda is the only thing keeping him alive right now."

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  • Nana
  • Taken for 1 to 2 years
  • September 26, 2019

"My husband , age 66 with Lung Epithelioid Sarcoma stage 4. Rare form and aggressive. Keytruda caused hypothyroidism, weakness, aches and swelling in arms and legs, tingling and numbness in feet, severe mood changes. Yes, this keytruda has helped him fight this cancer but at a cost to quality of life. It is wonderful to have him here with us after 20 months of battling this cancer, but saddens me to see he cannot fully enjoy life, keytruda also caused eyes to blur and therefore he cannot read books which he has always loved to do! At what cost shall we suffer just to stay alive? Not to discourage others to not take this drug, everyone reacts differently to drugs, many can continue to support their family. But in my husband case, he has the side affects listed on the website."

5 / 10
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Are you taking this medicine?

  • baf
  • Taken for 2 to 5 years
  • October 1, 2019

"Husband was diagnosed with stage 4 non small cell lung cancer April 2017 after heart surgery. Was put on it in the beginning and I believe that this is the only thing keeping him alive. Never been sick or weak, no problem except hard to breath at times."

10 / 10
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  • Ferma...
  • Taken for 1 to 6 months
  • December 6, 2017

"I have had numerous treatments over the past 18 months, now these didn't improve my general health, but that wasn't very bad at any time. I have now had 4 treatments of Keytruda & find that my general health has improved. My energy levels have certainly risen, certainly not as much tiredness as before, like l can walk 3 mile most days without any bother. Previous to starting this treatment l had great discomfort with fluid on my lung, this discomfort has now gone. I never had any side effects from getting Keytruda, me living a very normal life, long may it continue !!"

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More FAQ

  • Lisa...
  • Taken for less than 1 month
  • May 29, 2023

"My brother was diagnosed with non small cell lung cancer in October 2022. He had his port put in on October 12 and they started his first round of chemotherapy and Keytruda on Friday, October 14, 2022. Five days later, Wednesday, October 19, he was admitted to the hospital for a severe lung infection and was put on several antibiotics but the infection got worse. He began to swell so bad that his skin was literally leaking, his kidneys shut down, he was incoherent and couldn’t speak. He had 20 lbs of dHe was on almost full oxygen and full dialysis. He had never had kidney problems before. They did so many procedures trying to figure out what was wrong. He had twenty pounds of fluid on him. We weren’t told of the side effects of Keytruda and what it would do to him. Keytruda killed my brother in 30 days!"

1 / 10
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  • Tess...
  • November 17, 2017

"My father had Keytruda and now he is dead . Stay away from this form of treatment!!!! It does not lengthen your life it shortens it. It also stops all the good in your immunity. Please stay away from this drug!"

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  • Duz
  • Taken for less than 1 month
  • November 6, 2020

"My dad took this drug because they said his chances were good to prolong life. They said his body tested strong. He took one treatment and was joking around that day. He had almost every side effect with 5-7 days. We lost him within 2 months after this. He was so weak and frail. I don’t recommend it. I regret ever going this route."

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  • bkcas...
  • Taken for less than 1 month
  • December 8, 2022

"Stage 1 Lung Cancer 3 years ago surgically removed. No chemo or radiation. Clean lung scans for 3 years. No cancer in the lungs now. However, diagnosed with lung cancer brain mets. Whole brain radiation and Keytruda treatments. Prior to Keytruda treatments patient had NO need for supplemental oxygen. ZERO need for supplemental oxygen. Within 4 weeks and after only 2 Keytruda treatments - severe lung damage occurred. As with other reports here, high levels of oxygen are now required and there is a continual severe drop in oxygen with any movement whatsoever. Sitting up in bed, shifting body to the side, reaching for something, causes severe drops in oxygen levels. Whether the lungs can be repaired or not is yet to be seen. I'm sharing this information with you and hope you will think long and hard before rolling the dice on this drug. The damage done is ironically somewhat more devasting than the cancer tumors in the brain. Think long and hard."

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  • Keytr...
  • June 18, 2020

"I believe keytruda killed my dad. After the second dose he quit eating. He was getting sick no energy. Doctors just kept saying it wasn't that and pushing the drug. He had a tumor that appeared and rapidly grew. Also his best friend was on this for the same and he is now really really sick. This is a horrible horrible drug and should be taken off the market"

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  • Not...
  • Taken for 1 to 6 months
  • September 16, 2021

"My husband has stage 4 metastisized Lung, Kidney and Brain cancer. He started Keytruda in Late May 2021. 3 1/2 months later he is in bad shape. Terrible shoulder pain. Confused. Tired. No appetite is 4 hospital stays. Can't eat solid food. Lost 12 lbs in 5 days! Heart attack. Keytruda is so bad for my loving husband. Please research this deadly drug before you or a loved one is given an infusion. My husband is slipping away from me and his family"

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  • Madda...
  • Taken for 1 to 6 months
  • November 3, 2021

"My dad started Keytruda in March 2021. He had lung cancer. This was pretty much the only option he was given. He died very suddenly 3 months later. One day he started having horrible abdominal pain. Took him to ER where he was admitted to ICU. He had one kidney completely failed and 3 aneurysms. I feel had he not started Keytruda he would still be with us."

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  • Micha...
  • Taken for 1 to 6 months
  • June 11, 2018

"My husband has had seven treatments. The worse side effect has been extreme fatigue although he has continued to work full time. It affected his thyroid, and he is now taking Synthroid. He has been an insulin dependent diabetic for many years, and the Keytruda has apparently affected that also. Working with his endocrinologist to get that under control. He will have a scan done in a couple of weeks. Hopefully it will be good news. We both agree this drug is way better than undergoing chemo."

8 / 10
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  • egerb...
  • Taken for less than 1 month
  • August 13, 2021

"My mother in law completed chemo and radiation for stage 4 lung cancer, radiation helped a lot with brain and bone tumors. She did one treatment of keytruda, her lungs became inflamed and she died 10 days later. I believe immunotherapy is the future for cancer treatment after traditional options are used, keytruda is NOT it."

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  • Anonymous
  • Taken for 1 to 6 months
  • February 21, 2021

"I started with a tumor on my lung....it had spread to my lymphnodes in neck and stomach before it was found. I did 3 cycles of platinum chemo shrunk cancer 40% then continued to keytruda and last scan it had shrunk another 28%, 68% total in 3 months with both treatments. I've had zero side effects. I'm even back to work part time now."

10 / 10
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  • JLC
  • Taken for 6 months to 1 year
  • March 19, 2024

"My wife has been doing the Keytruda treatment for close to a year now with no serious side effects. It has helped greatly to where chemo can now be stopped. I have read good reviews here and some very scary ones! The problem is everyone reacts differently to all medications and if you went by all the side effects listed on medications, you wouldn't even take them. I so wish all success on this terrible illness and strength in your fight against it!"

9 / 10
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  • Dad
  • Taken for 1 to 6 months
  • September 17, 2022

"NSCLC. Just plain and simple. Keytruda killed my dad. He went thru radiation and that shrunk the main tumor. We should have stopped there!!! 3 treatments of Keytruda and he took a nose dive: No eating, could barely walk, declined quickly. Hospice started. Three days later dead. My dad was 95 but very active for his age. If you have an elderly love one, let them live there life. Don't give them Keytruda!!"

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  • Mikes...
  • Taken for 1 to 6 months
  • February 22, 2018

"My brother was diagnosed with stage 4 non small cell lung cancer. After 2 treatments of Keytruda his cancer had spread like wildfire and his health severely declined. He then tried chemo but after just 3 treatments he was too weak and was put in hospice. He passed away just 4 months after being diagnosed."

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  • Gary...
  • Taken for 2 to 5 years
  • September 6, 2023

"Stage four non-small cell lung cancer. April 26, 2019 - mass with biopsy of a lymph node showing adenocarcinoma of lung origin. June 2019, after having recently been started on Keytruda immunotherapy. And I am using it now."

10 / 10
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  • Anonymous
  • Taken for 1 to 6 months
  • October 9, 2017

"Had all of the requirements - PD-L1, 90% effaced, did not have the tumor mutations, 1st line of defense. Bought in to the "wonder" drug hype and it FAIL MISERABLY. Cancer metastasized. Now being treated with chemo and responding but it's too late"

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  • Color...
  • October 24, 2021

"I took keytruda successfully for 2 years. My oncologist wanted me to keep taking it since I was doing so well, even though the drug shouldn’t be taken for more than 2 years. At almost exactly the 2 year mark, my body filled with fluid. I gain 30 pounds almost instantly and my skin was itchy and painful. After a sort of brush off from my oncologist that Keytruda was the reason, I saw many doctors until I got to a rheumatologist that figured it all out foe me. I now have Cutaneous scleroderma caused by the keytruda and it is so painful. Now all efforts are to treat the scleroderma and not the cancer."

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  • Mom
  • Taken for 6 months to 1 year
  • April 7, 2023

"My mom, at age 87, was diagnosed with stage 1 lung cancer in February 2020. She had SRT (Stereotactic radiation therapy) 5 treatments and had CT scans every 6 months. She was told everything was well. However, in January 2022, she was diagnosed with malignant pleural effusion, and her only option was immunotherapy. Her PDL1 met the criteria, and she had 9 treatments, with infusions every 3 weeks. She had zero side effects, but the effusion did not subside, so she stopped treatment. Her oncologist told me to bring in hospice. However, 8 months later, she is still here and doing quite well. She is on oxygen 24 hours a day, but at age 90, she is enjoying her life. I feel bad for everyone who had a terrible experience with this drug. I am not sure if the Keytruda helped; hospice has been giving her daily prednisone, which also seems to have helped. I am now not sure what to think."

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  • OMG
  • Taken for 1 to 6 months
  • November 8, 2021

"My husband was given keytruda and broke out in severe psoriasis. So, they stopped the treatments all together and within 5 months he passed away. I would never use this drug. I think it's too aggressive."

1 / 10
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Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.

Learn more about Non-Small Cell Lung Cancer

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