Ocrevus for Multiple Sclerosis User Reviews (Page 5)

• Anonymous
• Taken for less than 1 month
• February 7, 2019

"Just started my first infusion and I noticed a difference in my energy right away! No side effects for me either. I even went to the gym that night after their infusion. We will see at my next scan if it is working for me as far as lesions."

• Will
• Taken for 2 to 5 years
• December 27, 2020

"Diagnosed with PPMS 4 years ago. Have been undergoing Ocrevus infusions since 2018. There has been no increase of lesions since starting the treatments. There is no trace of cancer in any of my relatives, past or present. In August 2020 I was diagnosed with breast cancer. My oncologist says breast cancer in a male over 70 years old is extremely rare. My dilemma is do I continue the treatments and risk additional cancer developments or stop the treatment and let the MS progress. Once again a no win decision!"

• jbano
• Taken for 1 to 6 months
• December 10, 2020

"I just started taking Ocrevus in September. I was diagnosed with MS later in life at 52 after 5 years of not knowing what was wrong with me. The doctor said Ocrevus was the best option on the market. I have had not real issues and I am hopeful that in time I will see benefits. I would say I am more tired and no real changes that are significant. Most doctors in this area I am finding are just good at guessing. Neurologists seem to be very cold in their help to patients. Good luck to everyone and a safe holiday season"

• Anonymous
• Taken for 1 to 6 months
• February 21, 2019

"I just had my first injection and noticed improvement the same day! My MS has caused chronic fatigue for years but I never knew what caused the fatigue until this last August when I had my first MS attack and was diagnosed. I didn’t give ocrevus 10 stars yet until I get my MRI in December. But just based on how I feel, I think it is working wonders."

• Anonymous
• Taken for 1 to 2 years
• September 24, 2020

"I was diagnosed with MS at age 53 started with Ocrevus 2 years ago (my first and only medication for MS)infusions always go well just tired from Benadryl. I do have some dizziness day 3 and 4 after infusion. I lost hair after initial dose but none since. I get more fatigued with each infusion took me a month after June infusion to function. The improvement of my leg and body numbness is 100 percent lesions same but not worse. My body does know after 4 1/2 to 5 months I'm due for it again. I get head and arm pains but that's MS not the Ocrevus. Not having drop foot electrical sensation down my back or numb from almost half my body is worth it any day. The cost is 6 figures insurance always covers 100 percent. I have new insurance since I lost my job so we will see. Lowers immune system so with covid not seeing family being social a sacrifice hopefully that's temporary."

• Bida
• Taken for 1 to 6 months
• February 23, 2020

"I was diagnosed in may last year with MS, I am 33 M , I suffered optic neuritis then vertigo then optic neuritis, loss of movement in right hand with optic neuritis being a constant even still now, my right hand is able to grab an move things now but I have the weirdest sensation like a tingling numbness, my back is aching , and I have now got a kidney infection that has kicked my symptoms off even more , and my mental health is at an all time low, I had ocuruvus in November and have continued relapsing no remittance since before may , now I am worried as these reviews are terrible"

• Coding...
• Taken for 1 to 2 years
• February 14, 2020

"The swelling for me has been unbearable. Depression as well. The company should be more clear on side effects. It was the latest and greatest. I hope it works for everyone better than me, but if you have a choice, steer clear. It’s horrendous. I’ve been in Copaxone, Avonex, Tecfidera, and Ocrevus. I wanted to give Ocrevus a try. Huge mistake for me. Tecfidera was fine. Going back as soon as the O is gone. Never again."

• Leo
• Taken for less than 1 month
• November 26, 2020

"Had my first Ocrevus 1/2 infusion, get my next one in 3 days. No negative side effects beyond fatigue during infusion, from Benedryl. I have noticed that my legs feel a bit lighter, and in the last 4 days, my feet do not drag as much when walking. Hoping this continues! Time will tell..."

• Nataly
• Taken for 1 to 2 years
• August 18, 2023

"It is very easy and comfortable to use and mostly doesn't have any hard or scary reactions. I think it has a positive effect, and I'm sure I already feel benefits. I'm also sure it would be much harder without it, and I can feel that I started using it at the right time. My MS is RR type (we have been together for over 25 years), but knocking on the Secondary Progressive door. I'm positive that Ocrevus managed to keep that door closed."

• Tcmom
• Taken for 2 to 5 years
• October 31, 2021

"I started this after 5 years of Tysabri. Being jc + we were worried about PML. At first it seemed good but started noticing my walking and endurance was getting worse. Went from using a cane for long distances to all the time and contemplating walker most of the time. Also foot drop is really bad went from occasional to all the time. My hand is becoming clumsy and experiencing numbness. I went in for my 5th full dose and to speak to neurologist about other options. But he told me I couldn’t take the dose because my T cells were too low. It works well for some but be aware of these types of reactions are happening for others."

• Mary
• Taken for 2 to 5 years
• April 20, 2024

"I have had an overall positive experience. I've been on the infusion every 6 months now for 3 years, and the only side effect I've noticed was getting very tired after the infusion for the initial 2 starter doses and the 2 proper doses after; since then, no tiredness. I feel normal and haven't seen any significant progression in my condition."

• John
• Taken for 1 to 2 years
• June 2, 2022

"OI have had one year on ocrevus after being railroaded into it. Side effects include stiffness of lower limb joints, swelling to both legs, cystic acne to both sides of my chin just below the edges of my mouth, it's difficult being 50 and having to fight acne. I don't think I will carry on with it as the side effects are not good and are present 24/7"

• Peter
• Taken for 2 to 5 years
• June 24, 2023

"I’ve been on Ocrevus for 5 years and my only relapse in that time was a pseudo-relapse after my first half dose. After infusions i typically feel very fatigued, bad headaches, but after 2-3 days, I normally get better and feel awesome. My last infusion 2 weeks ago, I felt horrible for about 5-7 days. This is my 5th MS therapy and the only one that’s worked this far. Considering my symptoms haven’t been worsening, with no new symptoms and no significant relapses, I would definitely recommend anyone with RRMS talk to their doctor about starting this therapy."

• Grate...
• Taken for 1 to 2 years
• May 18, 2022

"My Fiancee has had MS since 2007. She was diagnosed with RRMS, and was on a couple of the other MS medications and was on Tecfidera 8 years and in early 2020 she said she was feeling off, like the Tecfidera wasn't working anymore. Shortly after telling me that she had a really bad relapse that lasted about three weeks ,during those 3 weeks I tried desperately to reach her previous neurologist but he would not return our phone calls. She got to the point where her health was deteriorating so severely I had to get her admitted by ambulance to the hospital BECAUSE that's the only way they would help her. When I finally got her in the hospital, her absent doctor shows up at her room in the hospital and proceeds to tell us that she was fine and Tecfidera was still working. Got her another doctor and got her on Ocrevus, and we definitely have seen some positive results Her daily life has improved 100%. We are happy it is working for her. ❤"

• Just...
• Taken for 5 to 10 years
• December 1, 2023

"I’ve had been taking Ocrevus every 6 months for the past 61/2 years. It’s been great, no new lesions in 61/2 years. It pretty much takes up 1 day every six months, which imo is much better than the weekly or bi weekly self injections not to mention the only notable side effect for me is fatigue day after infusion."

• Lavern
• Taken for 2 to 5 years
• February 25, 2021

"I have been using Ocrevus just over 3 years now. The first bill I received was for just over $55,000.00, that was for one infusion. I was walking with a cane when I was diagnosed with PPMS. I’m now and have been for a year, using a walker. I’ve noticed after about 4 months it’s time to take another infusion. I am not sure why it can’t be administered every 4 instead of every 6 months. Still taking it but not enough information on it yet."

• Bill
• Taken for 2 to 5 years
• December 23, 2020

"I was diagnosed with PPMS in 2017. In 2018 I began being treated with Ocrevus infusions. Subsequent MRIs revealed no additional lesions. This past fall I was diagnosed with breast cancer and had the tumor surgically removed. I am 71 years old. There is no record of cancer by anyone in my family. My oncologist stated he never heard of a male developing breast cancer at my age. My neurological team says there was evidence of breast cancer in women during the Ocrevus trial period. My dilemma is do I risk additional cancers or do I stop the Ocrevus treatments and allow the PPMS to proceed uninhibited."

• Margi...
• Taken for 1 to 2 years
• September 12, 2021

"After my dx, I chose Rebif. One year later my Neurologist suggested a new treatment that would alleviate the muscle aches, tiredness, stomach pain, runny noise, skin discoloration and elevated liver function test associated. When I started this drug I tolerated the introductory split dose but should've stopped after the 1st full dose WHEN I STILL HAD THICK HAIR BEYOND MY SHOULDERS! Every infusion to follow is split in half, they say the symptoms will subside. They didn't, they got worse and now I'm somewhat of a weak hermit. My stomach & calves hurt, I don't recognize my face or my handwriting and when I talk to them about the side of my face that droops, the hemifacial trigeminal twitching, they attribute it to caffeine! My skin is dry, my scalp itches and I develop a rash on my chest, neck and ears after infusions. I can see my scalp, my hair is thin, I have headaches, no strength, and zero energy. I don't care about lesions & I don't mind wearing face masks."

• Theo
• Taken for less than 1 month
• August 20, 2021

"I am a 33 yr old male who has had ms symptoms for 4 years now, but didn't know what the symptoms were caused from until recently getting diagnosed 3 months ago with ms after seeing different drs. this last year and getting tests done to figure out what was wrong with me. After getting diagnosed, my neurologist offered me Ocrevus. It took a little over a month to get my insurance to cover the costs of the infusion. Once that was said and done, I just got my first half infusion a few days ago and go back to get my second half dose in 2 weeks. The first half infusion went well and had no worsening symptoms. It's still too early to tell, but I'm hoping for positive outcomes with the future infusions ahead. I'll let you know how it goes."

• Holli
• Taken for 2 to 5 years
• November 10, 2021

"Diagnosed with advanced RRMS in 2016 at age 30. Started Aubagio and took that daily for a year or so. No help whatsoever, neurologist recommended Tysabri. Didn't mind the monthly infusions and my body tolerated it well. No new lesions, but I tested + for JC virus a year in, so doc switched me to Ocrevus. Have been taking this for the last 2 1/2 years. Have also been tested for JC virus 1-2 times a year. It was nice to only have infusions twice a year, but the headaches and horrible acid reflux I would get afterward keep me up for days. Noticed thinning hair and major depression/irritabilty/mood swings lately. The weeks leading up to my infusions I have daily headaches, dizziness and fatigue. It has kept my lesions at bay, I don't feel much better. I'm always tired. Keeping tabs on the JC, doc was sending me for wrong tests. New test shows JC+ again at 2.4, way over. He says stay on Ocrevus, but I'm discontinuing so as to not get PML."

• Bill
• Taken for 6 months to 1 year
• May 14, 2023

"Great treatment for my primary progressive MS. I have been on it since it first came out. Have suffered no side effects. I get it free from the company that makes it as I was the first in my area to get it. It prolongs my life."

• TLC
• Taken for 1 to 6 months
• October 5, 2021

"Was diagnosed with MS in 2004 at the age of 26. Started on betaseron left knots at injection site. Copaxone my body got to use to so I was switched to Tecfidera. Was on Tecfidera for 10 years loved this med no flare up until my last year on it. I was feeling a little weak in my legs so my neurologist put me on Ocrevus. First infusion went good just a little fatigue and headache. Took the second half dose two weeks later everything good until a couple day's later my right leg went completely out. My right arm was so weak I didn't want to lift it. I had a MRI done because of my relapse it showed I had a new lesion on my brain. This is my first relapse in 10 years. I don't know if it was the change in medicine or if it was just time for me to relapse since it has been so long. My leg was completely out for almost two month's and my arm still has little use. I am going to physical and occupational therapy now. My leg has gotten 70 percent better. Arm at 18 percent scared to do next dose Help?"

• eyero...
• Taken for 1 to 2 years
• June 16, 2021

"I have had very minor side effects while taking Ocrevus for the past year and a half. The only side effects I have experienced have been redness at infusion site and itchiness which does not bother me as much as losing my vision for a week, my sense of smell, or taste. Since I have been on Ocrevus I have been fine, no relapses, nothing. I am a happy patient. I have not had a relapse since 2019 and have no new lesions or worsening of current lesions. That sounds like remission for me but unsure until July 27, 2021 when I see my neurologist."

• Sergey
• Taken for 1 to 2 years
• September 13, 2022

"Had 3 infusions already. Not saying it's a bad drug in general, but sure didn't work in my case, so Doctor cancelled it and recommended me stem cell therapy, which appears to be my last chance. What I liked about it - 6-months gap between infusions, no need to think about it too often. Therefore, 2/10 instead of 1/10."

• FL man
• Taken for 2 to 5 years
• February 1, 2021

"PPMS 69 yo male. Diagnosed 07/07. Neuro retired 2018. New Dr tried Ampyra. Walking improved in 6 days. No more walker or canes. Better balance and walking. Started Ocrevus 07/19. No long-term SE. Can’t tell if it is doing anything. Weight gain. Little tiredness. Last infusion 01-27-21. Nothing positive or negative to report."