Natalizumab User Reviews & Ratings (Page 2)

• K9PAWC
• Taken for 1 to 2 years
• September 20, 2013

Tysabri (natalizumab) for Multiple Sclerosis "I was diagnosed in June 22, 2012. Started Tysabri August, 2012. I have never taken any other disease modifying medicines. I am JC negative. MRI in July 2013 shows no new lesions, no active lesions. I have never had a side effect from Tysabri. When I was diagnosed, my right leg shook so badly, I could barely walk. I have drop foot, and weakened thigh and hip flexor muscles. These symptoms have improved slightly. I do not know if it is due to Tysabri or just how my MS is presenting. I chose Tysabri because I fall into the optimum category...no other meds and JC neg."

• Patmus
• January 1, 2016

Tysabri (natalizumab) for Multiple Sclerosis "I was diagnosed with RRMS 1992 while on deployment in Africa. Returned back to the states and had an MRI done to positively identify the MS. Done, was discharged from the Navy 1994. I then started Bataseron 1995 after having repeated relapses. Stayed with that for a few yeas then switched to Avonex, again stayed with that for a few years and switched to Rebif which was okay but began finding it hard to find inject points on my body. Then switched to Copaxone for a short time and it was determined that I was allergic to the drug so one more time. In 2008, I started Tysabri and am still on it. The infusions are not a big deal because I am self-employed. Do I feel like my old self, can%u2019t remember what that was like however I still Scuba dive,"

• mser
• Taken for 5 to 10 years
• June 1, 2015

Tysabri (natalizumab) for Multiple Sclerosis "Tysabri has been a life send for me. I have been on it since 2009 and its now 2015. Was dignosed in 2004. We can count back now to where my symptoms were started when I was in 1st grade, so it has taken me a long time to get it under control, been thru lots if not all of the medications nothing worked but tysabri. My lesions on my brain are beginning to shrink."

• Aura
• Taken for 1 to 6 months
• May 14, 2015

Tysabri (natalizumab) for Multiple Sclerosis "I just had my 4th infusion. Since the previous one and this past one, I have been extremely fatigued. Can't seem to do anything for any period of time. Have trouble sleeping due to a strange feeling I get in my chest (feels like my pulse is jumping out of my chest, no pain, just a very weird feeling). I was hoping this Tysabri was going to help me, but it hasn't. :("

• Anonymous
• September 7, 2011

Tysabri (natalizumab) for Multiple Sclerosis "Tysabri has changed my life. I have had 20 infusions now. At first I could feel a major "up" and then could slowly feel the medicine wearing off towards the end of the 28-day cycle. Now I don't feel much of an up or a down, but I feel consistent and "normal" again. I feel more level-headed, have consistent energy levels, and am able to work out at the gym two hours a day! The only side effect I've ever had was a bad headache on the evening of my infusion for the first 2 or 3 months. At my 6-month MRI/follow-up we found out that the Tysabri was actually causing a significant reduction in my lesions. I haven't had a relapse and only a handful of flare-ups (that last maybe an hour tops)."

• Bekaj...
• October 19, 2013

Tysabri (natalizumab) for Multiple Sclerosis "Just took my first does of Tysabri on 10-18-2013. Copazone stopped working after 5 years, Rebif did nothing to help. I tested positive for JC in February, then another doctor tested me in August and it was negative. So a third test showed inconclusive in Sept. Since I was on the decline I decided to take the infusion. I am 49 and want to live another 49 years. No real problems but my nerves. Slight itching the next morning and sore stomach. A lot less side effects than Rebif for sure! I worry about PML but I cannot change it. Praying for the best."

• LIFE...
• August 6, 2011

Tysabri (natalizumab) for Multiple Sclerosis "I have had multiple sclerosis for 12 years. Been on every medicine, steroids and the list goes on. 1 dose of tysabri. I'm walking 50% of the time without my walker (which I was using 100% of the time for the last 2 years). My mental and my balance have made a great recovery. I can't wait for my second dose!"

• Rod
• Taken for 5 to 10 years
• June 11, 2019

Tysabri (natalizumab) for Multiple Sclerosis "I've been on Tysabri for about 7 years. LOVE, LOVE LOVE this drug! I tried Avonex initially...I learned interferons and I don't get along well! Then Betaseron and Copaxone. Not strong enough. Tried Gilenya...always felt bad on it. Finally settled on Tysabri. Best decision ever! I have no side effects other than about a week before another infusion, I slow down...becoming more symptomatic and cranky! I'm a Tysabri "junkie!""

• Findi...
• Taken for 1 to 2 years
• December 20, 2015

Tysabri (natalizumab) for Multiple Sclerosis "I first wrote a year ago. I am now thousands in debt due to the freq cut off of benefits from organizations that give grants. I am not informed when the cut off payments. So I owe thousands, why don't the infusion centers notify patients when they have no funding. I have had nothing but severe pain in my joints. Severe rashes, sores, etc. I can't stand how I feel. I was over $200,000 in ACTH this last year. How can I afford to raise my family when I am denied all help. Who is getting all this money. I have been a coma for over 8 times this last year. Twice on life support. 8 cases of sepsis. I have no family, just two handicap children that I adopted. I can't believe Drs would do this to patients."

• Two...
• Taken for 2 to 5 years
• May 8, 2016

Tysabri (natalizumab) for Multiple Sclerosis "Was diagnosed in 2009. I was on Rebif for 2 1/2 years and had 2 relapses. My doctor and I decided to switch to Tysabri which I have been taking for more than 4 years. No relapses. MS is stable. I continue to test negative for JCV. This medication is easy and successful for me."

• Dhbeck
• Taken for 5 to 10 years
• July 30, 2015

Tysabri (natalizumab) for Multiple Sclerosis "I've been on tysabri since January 2008 and have not had any flair ups. It's even better that they can now test for the virus that causes the rare brain infection, which I don't carry. Benefit I like is its done every 28days so I don't worry about missing a dose or giving myself a shot. It usually takes about 3hours for the infusion. Only negative about tysabri is the cost. I'm on social security disability and after Medicare's payments I'm left with a bill for medicine and infusion of close to $1200 every 28days."

• 2014 MS
• June 3, 2016

Tysabri (natalizumab) for Multiple Sclerosis "In July of 2014, I was given the diagnosis of MS. The medicine has worked well for me so far. I have headaches after infusions, they don't last long. I take Cambia for the headaches. Tysabri helps me to walk, drive, travel, and keep my job. My dizzy spells don't happen as much. Tysabri is the only medicine I've taken for MS. I am still in shock from being diagnosed with this condition. I am very happy Tysabri,even with the risks of JCV and PML."

• IanC
• June 22, 2010

Tysabri (natalizumab) for Multiple Sclerosis "My wife was diagnosed with Multiple Sclerosis 2 months after I asked her to marry me, at age 19. Her symptoms were pretty bad. She was on Copaxone for over a year. It really didn't do anything for her. Then she went to a few more doctors who all said she had a aggressive case of MS. Her new doctor put in on Tysabri. She did very well after a couple months. She never had a serious set back. Then when we found out she was pregnant she went off of her infusions. After our baby was born 7 weeks later she had the most aggressive set back with her MS. She couldn't even hold our son. She decided to stop breastfeeding and to go back on Tysabri infusions. 3 weeks later she was able to hold him and is doing a little better each week."

• ashes...
• January 12, 2014

Tysabri (natalizumab) for Multiple Sclerosis "I was diagnosed in 2010. Tried Copaxone & Avonex. They caused allergic reactions. Started Tysabri in March 2012. I haven't had any new lesions. I get tired and bad headaches after infusions. The cost is getting to be to much, even with my insurance from my employer & the assistance program from Tysabri. "

• Sades
• December 11, 2015

Tysabri (natalizumab) for Multiple Sclerosis "After being diagnosed with MS I started on rebif injections which I continued with for a year and a half. I spent six days of the week with flu like symptoms. To be on rebif I had to stop taking warfarin which I need to help with another condition. 7.5 years ago I was switched to tysabri so I could once again take warfarin at the same time. That was the best thing that happened. I'm no longer feeling dreadful for the majority of the week and in fact suffer no symptoms. I'm fortunate that I'm jc negative and that the government here covers the cost of my infusions and best of all had no flare ups since I started on tysabri."

• Handy...
• Taken for 6 months to 1 year
• November 12, 2016

Tysabri (natalizumab) for Multiple Sclerosis "Tysabri is the first medication I was put on after being diagnosed with MS. So far it has been very effective, I started taking it after recovering from my first attack. I don't know if it is the Tysabri or just my body healing, but over the last 6 months I have continued to feel fewer and fewer MS symptoms. I was even able to run a marathon recently. I do treat positive for the JC virus antibodies, but my doctor had assured me that I can take Tysabri for up to two years with minimum risk of PML. The injection typically takes 1 hour, with another hour of waiting (something the government had mandated for some reason or another), but I have not felt any side effects."

• Crista...
• Taken for 2 to 5 years
• February 3, 2017

Tysabri (natalizumab) for Multiple Sclerosis "I have been on Tysabri since Jan 2015. Every month, about 7 days before my next infusion, my body is completely ravished with joint pain, pain & fatigue in my arms and legs. I have a cob web feeling in my left shoulder blade and my hands remain numb. I have been forced to go to the ER because the pain was intolerable. A few times I made it to my infusion but couldn't walk and the pain was so great they had to give me Dilaudid before my infusion. It usually takes 3 days after the infusion for the pain to subside . Every single month I spend 10 days in hell, but I am blessed to get 20 days of normal life. The FDA needs to understand that this drug does not last 28 days, this should be a 21 day cycle, otherwise people suffer with this drug."

• tk67
• March 22, 2009

Tysabri (natalizumab) for Multiple Sclerosis "I have had M.S. before 2000 and they diagnosed me in 2000. I have tried all the other therapies and all of them had the really bad side effects but Tysabri it is the most relaxing drug you can take. I got a little nauseated at first but then it has disappeared with time. You don't even know it is working. I was considered a quadriplegic and now I can get around my home without lifts or anybody jerking or pulling on me. It is a great thing Tysabri. I just wish that everyone could benefit from it like me. Thank you."

• Lelam...
• October 24, 2015

Tysabri (natalizumab) for Multiple Sclerosis "I was on Tysabri for 103 Infusions, almost 8 1/2 years. I was diagnosed in 2002. Copaxone first with reactions, then used rebiff for 4 yrs. Helped alot while it was working, then it stopped in 2006. Started Tysabri. The Best MS Medicine! I Loved It! I am Going to Miss having No Symptoms, Side Effects or Flare Ups. I just talked with Doctor going to try Gilenya, in 2 Months after Solulmedule. Keep "

• Dasta...
• Taken for 1 to 6 months
• March 1, 2016

Tysabri (natalizumab) for Multiple Sclerosis "Hi I am a 52 year old man who has had MS for about 18 years (SMPS) I'm on a lot of hormones for other problems which have helped masked the MS symptoms but not so any more, I'm now on Ty and have had 5 infusions and have not noticed any changes better or worse no side effects, I hope for a miracle but who knows, I'm JC neg and have a lot of trust in my Neurologist, lets all hope for a better tomorrow cost is 0 as Australia medicare pays"

• Mparm
• December 30, 2016

Tysabri (natalizumab) for Multiple Sclerosis "I have to give it 10 out of 10, as it changed my life. After years of injecting other meds and continuing to relapse, I started on Tysabri in 2009. I can honestly say that I cannot work full time without it, as the fatigue is greatly improved whilst on it. I have come off to get pregnant, and then continued back on after two babies. My last MRI showed that some of my lesions actually got smaller, and I have not had any brain atrophy whilst being on this drug. The only side effect I notice is slightly thinner hair. This is a drug that can have serious implications, and I think the choice to take it must be thought carefully, weighing all the benefits and risks. But for me, it has saved my life for 7 years."

• Lindsey...
• Taken for 5 to 10 years
• October 19, 2013

Tysabri (natalizumab) for Multiple Sclerosis "I was taken off tysabri when my original consultant left the hospital. After 5 years of better quality of life I now experience some nasty side effects after coming off the drug. Terrible rashes m.s symptoms returning ie dizziness, fatigue, coordination problems to name a few. Feel pretty rubbish to be honest. Consultant said couldnt justify script as scans had no changes. And was concerned about PML risk. I accept the risk, always have. Surely scans indicate drug doing what is expected? Am stuck now, what is available for me to try? Cost a big deciding factor!"

• Drano
• December 18, 2019

Tysabri (natalizumab) for Multiple Sclerosis "Has anyone else experienced mental issues with this drug . I got severe anxiety and started feeling depressed after started this drug and some mental confusion. Other than this the drug seems to be working."

• Abbe...
• January 6, 2012

Tysabri (natalizumab) for Multiple Sclerosis "My husband has been on Tysabri for a year now. The first six months were great. He liked that he was had no nausea and could control bowels compared to Copaxone and Rebif. Fatigue improved. He had very slight improvements to his walking gait and balance. Mental attitude was improved. Lately, balance is poor, walking is dragging/carrying his leg forward, twitch and jerks are back. Strangers call him spider man in public (he laughs). Depression is setting in again. Hearing ringing sounds. "

• Lady...
• August 1, 2011

Tysabri (natalizumab) for Multiple Sclerosis "I have received 36 infusions and from the 1st one, my progression stopped. My major side effect is extreme confusion. I feel as if I am going insane and taking my husband of 28 years with me. He is my biggest supporter, my hero, etc. I do not know how I would have made it the past 3 years without him. He is my translator because I get so confused I tell stories totally wrong, I talk backwards. I skip every other sentence but the thing I must keep remembering is that my MRI's have not changed from the day I started Tysabri. I am staying with it for 12 more months and hopefully my wonderful husband, doctor and I will survive this."