Lialda User Reviews & Ratings (Page 3)

• Urseka
• November 4, 2017

For Crohn's Disease "Diagnosed with Crohn’s after routine Colonscopy 5/2017 and was started on Lialda. No symptoms of Crohn’s other than the discovery of ulcers during Colonscopy. Now having hair loss at temples and fear it will continue and/or get worse. Plus it’s not covered by my insurance and costs over $230.00 a month. My GI says if I don’t take it I risk getting colon cancer. I was basically told it’s better to be broke and bald than have colon cancer. I think there has to be another answer?"

• Tomh
• February 23, 2014

For Ulcerative Colitis "This is the only mesalamine formulation that prevents my symptoms (with an anti-TNF medication), and since it's taken only in the morning it's much easier to manage. Zero side effects. Very, very expensive. Sign up for the prescription copay card to make it as affordable as the generics. Note that while the active ingredient is available as generic, the delayed-release action of this brand makes all the difference in my experience."

• Anonymous
• June 13, 2010

For Ulcerative Colitis, Active "I was diagnosed with ulcerative colitis a year ago after suffering for months. Lialda worked to stop my diarrhea practically overnight. I have not had a flair or really any symptoms since starting this medication nearly a year ago. I highly recommend it. Much better than taking Asacol four times a day. Once a day Lialda is much better."

• Anonymous
• January 11, 2010

For Ulcerative Colitis, Active "I started taking Lialda 4 months ago for ulcerative colitis after having taken Asacol for a number of years. I have been in remittance for a long time, doing reasonably well, but for some reason my doctor wanted me to try Lialda. It has been so nice to only take 2 a day as opposed to 6 of the Asacol a day and I have had more normal body functions than I have ever had. The only problem, my prescription drug insurance, Medco Health, has removed Lialda from their formulary list. I am really upset about that. I don't know why unless it's because it's so expensive. I guess I'm going to be forced to go back on Asacol....."

• No...
• May 31, 2013

For Ulcerative Colitis "I have been on several Ulcerative Colitis medicines for the past 10 years. Lialda has been amazing - I feel like a normal person. Asacol worked for me but I could never remember to take it 3 times a day. Lialda was 4 pills (a bit big) once in the morning. Lialda has been my life changer. I heard it is outrageously expensive but with good insurance it is very manageable."

• Anonymous
• November 3, 2009

For Ulcerative Colitis, Active "Lialda works great. No rectal bleeding. NO side effects. I started taking it for 4 months and decided to quit taking it after 4 months to see what happens. Never had problems. Haven't gone back to the doctor since."

• Finally...
• Taken for 6 months to 1 year
• August 14, 2013

For Ulcerative Proctitis "I am 26 years old and have been battling with bad stomach problems for most of my life. I was diagnosed with Ulcerative Proctitis about 4 years ago. My doctor put me on Lialda but I didn't stick with it. This past December, I had my first flare up...it was awful. I lost 10lbs and just felt sick all of the time. I went back on Lialda (3 pills a day) in January. At first, I didn't feel any different but then it really started working. It has been 8 months and I feel like a normal person now. Still have the occasional stomach ache but nothing abnormal! Feel great!"

• Anonymous
• December 17, 2010

For Ulcerative Colitis, Active "Only been on it for a week but my fairly severe ulcerative colitis symptoms have fully subsided. I am taking 1.2g 2 x day. I also started 1200mg of slippery elm and Turmeric 2 days after starting the Lialda. "

• Anonymous
• July 6, 2011

For Ulcerative Colitis, Active "I have been diagnosed with ulcerative colitis for nearly 3 years. I take 3 pills a day. Initially, I was prescribed 4 pills, but did have an increase in headaches. But, just dropping to 3 pills alleviated the headaches and my proctitis is well managed. I have needed to do bouts of predisone 2 times, but overall, Lialda has worked for me."

• Anonymous
• July 16, 2015

For Crohn's Disease "With in the first 20 minutes of taking this medication, I started dizzy, disoriented, my mouth had gotten numb . With in 45 minutes I went into full anaphylactic shock and was taken to the er. So unfortunately this isn't for me. I just had my 3rd colonoscopy and actually now have severe Crohn's. Getting ready to start remicaide. I'm nervous but hopefully this will rid the pain and suffering I've been going through."

• Anonymous
• October 20, 2011

For Ulcerative Colitis, Active "I was worried to be on a medication such as lialda on its strongest dosage (4 pills a day). My doctor told me to have all 4 in the morning with food. The combination of the Lialda and Canasa suppository at night helped my symptoms within days. I was blood free for two weeks but now notice some blood again. I'm really frustrated and hope this is just going to take more time and not mean that I have to try something stronger. "

• chadTX
• November 14, 2010

For Ulcerative Colitis, Active "I am a male age 30 and I was diagnosed with Pan Colitis 3 years ago. Once I changed my diet (no lactose, less fast food, no sodas) it has seemed to be only confined to my left side. I have had a few flare ups each year but have always used prednisone each time. This works great for my UC but makes me a grump, I gain weight, get acne, etc. Each time (3-4 times) I have tried Asacol or Lialda it flushes out my colon with severe diarrhea to the point it is fluid only and each time I have stopped taking it because of the adverse reactions. Currently I am in a flare to the point of seeing blood and I do not want to have to start on prednisone again. So now I am on day 5 of taking Lialda and the diarrhea has been less each day. Hopefully I will stop seeing blood soon."

• Anonymous
• December 13, 2010

For Ulcerative Colitis, Active "I was only able to take Lialda for one week and had severe headaches causing tenderness in the lower bottom of my head, blurred vision and vomiting when headache worsened. It worked and I was feeling almost 90% back to normal, however the headaches worsened and had to discontinue."

• Anonymous
• November 8, 2008

For Ulcerative Colitis, Active "Lialda has given me a decent quality of life again. I've suffered relentlessly for 20 years and finally found a great doctor, who gave me this medication. It's not an overnight fix. I've been taking it for 3 months and it has fixed what I thought was permanently my lot in life. What a fantastic medication !"

• Very...
• Taken for 1 to 2 years
• January 19, 2016

For Ulcerative Colitis "After taking Lialda for 2 years my hair is very thin. It has not controlled me from going to the bathroom alot. I started noticing besides my hair getting thin, having severe headaches. had to have a blood transfusion and my urine started getting darker and darker. The the straw that broke the camel's back was my tongue and lips swelled and I had hives all over they were so severe that I didn't get any sleep they caused me to have blisters. After 3 trips to the ER they finally found something to help the hives. I haven't eaten a full meal in over a year do to the fact that my mouth and lips were so swore and painful to eat. When all the side affects started piling up I just quit taking it and call my gasteronolist and will see him in 2 weeks"

• Llgrr...
• May 17, 2018

For Ulcerative Colitis, Maintenance "I have been taking Lialda for years and it works but here’s the thing I also get migraines to a ridiculous degree so I was forced to cut back my dose. So for me at least the very high dose or what they call a therapeutic level is unnecessary. I’m in a maintenance space where I honestly only need it every other day, I usually get the beginnings of a migraine about an hour after I take it but the migraine doesn’t become full blown on the lesser dose but the medicine does it’s job. Looks like my UC became Crohn’s over time because I also have irritation in my mouth and all sorts of skin spots (look like bug bits but aren’t) and interestingly when I have a flare of any kind if I take two single pills for two days in a row it almost always goes away. Thought I’d say it because the higher doses are completely intolerable for me but I don’t really need it like that. I use the co-pay assist card which makes a big difference"

• BobbyS
• Taken for 1 to 6 months
• March 23, 2020

For Ulcerative Colitis "I have UC and have switched from Apriso to Lialda this year because of the price, been using it for 7 weeks now and have muscle fatigue and acne, it does seem to be starting to work, having fewer trips to bathroom then when I switched, Every time I eat even a handful of chips have a urge to poop. hope that goes away. Do plan on going back on Apriso next year after building up HSA funds back up."

• Schmom
• January 11, 2013

For Ulcerative Colitis "I used Liada for approx 1 month after a relapse of my Ulcerative Colitis. My doctor gave me samples of it. It worked very well. I had been on sulfasalazine for many years and was happy to find something else to take since I didn't have to take as many pills with Lialda. That said, after the samples ran out I was given a prescription and when I went to fill it at the pharmacy, I was shocked to see it was going to cost me over $300 for one months supply and that was AFTER my insurance paid more than half of it. I normally have a $5.00 copay so, needless to say, I am back on sulfasalazine and dealing with flareups again. (I got a discount card from Shire so the prescription would only cost me $120 a month but that's still too much)."

• Anonymous
• October 14, 2010

For Ulcerative Colitis, Active "I have microscopic colitis. Lialda works great but the only major drawback is the expense. $191 every two weeks. My insurance dropped me and that cost is with a local pharmacy prescription discount card. At this rate I will be unable to keep up with it."

• Love...
• April 16, 2015

For Ulcerative Colitis "****Helpful information**** Search the web for Lialda coupons to get Lialda for $10 a month! I am a 24 year old that has been diagnosed with ulcerative colitis since age 11. I started on Colazal when I was first diagnosed; but it only continued to keep me in remission for a few years. I was prescribed many of other medications that didn't seem to work for me either. Finally, once I was prescribed Lialda, my health and quality of life improved greatly! Lialda is such a life saver for me! (Although I still have occasional flare-ups, things calm down when suppositories are used in conjunction with Lialda )"

• Anonymous
• February 27, 2009

For Ulcerative Colitis, Active "I have take Lialda for 3 weeks and not much improvement. My doctor increased my intake to 3 pills everyday and started me on prednisone. In my opinion prednisone will do most of the work. I do not plan on taking Lialda long term because of side effects of headache, cramping, bloating, etc. This pill does not work fast enough."

• AGinc...
• Taken for 5 to 10 years
• March 26, 2017

For Ulcerative Colitis, Active "I'very been on Lialda since diagnoses nearly 10 years ago. I started with 2xday and progressed to 4x day about 4 years ago. A month ago I had a bad flare and am not on 6x day for a couple days + casana (sp?) Which is essentially the same drug only in suppository. It's already working to clear up my flare, but I'm experiencing acne and jumbled thoughts. Can't wait to drop the suppository once this is under control, hopefully I'm 1-2 wks. I don't know how "Iowa" cured themselves with diet -- I tried that and Lialda seriously changed my life."

• Anonymous
• Taken for 1 to 6 months
• April 19, 2013

For Ulcerative Colitis "After 8 weeks on Lialda, it did not clear up the blood, still had abdomen tenderness, and caused me to have diarrhea. I did get a discount card which brought the cost down to $10. If you like this medicine, you should go to their website and see if you can get this card. I got it from my MD."

• vndrc...
• September 1, 2016

For Ulcerative Colitis "Works fairly well on the ulcers, but the side effects are terrible. two days in my knee swelled to twice the normal size and I can't stand on it. Fever and headache constant. ache all over. eyes hurt. Going back to Colazol."

• 5jlw
• March 23, 2009

For Ulcerative Colitis, Active "I have been taking Lialda for over three months. I have lymphatic colitis. I was taking 3 pills once daily, now I am taking two. I had horrible side effects when I first started taking the medication - severe cluster headaches, nausea, and numbness in my face. The effects eventually wore off after a week. I still feel like I am not right though but my doctor has encouraged me to continue to take the drug for at least a year. I also have panic disorder which got worse than ever after I started taking Lialda. I finally got back on Effexor. I have lost weight. The colitis started getting better with the Effexor."