Keppra for Seizures User Reviews (Page 5)

• Nessq...
• Taken for less than 1 month
• April 13, 2016

"Our daughter was diagnosed 7 yrs ago and is now10 . She has tonic clonic and partial seizures sometimes out to 15 in one day bless her . We've tried epilim which was great for about 4 yrs the they crept back up so we tried tegratol and lamotragine together. They didn't work at all , so now she's on keppra. After just 3 days she had fits and was very happy girl . ( she has severe developmental delay) so it is hard to judge how she is feeling , but now she isn't eating and seems very very aggressive, we don't know what to do for the best?!?!?!?!"

• Shambo
• October 5, 2008

"Really is a wonder drug. It almost got rid of all my seizures but they are back again due to a trigger. It kept them away for 3 months, which is a miracle for me. I would get seizures every day for months. It was miserable. Plus this stuff hasn't given me awful side effects like many other anti-convulsant medicines."

• Gmarg...
• Taken for less than 1 month
• May 23, 2021

"I was put on Keppra to supplement to lamotrigine due to the pregnancy causing my lamotrigine to metabolize too fast. I immediately noticed an increase in exhaustion which was crippling on top of the pregnancy exhaustion. I could sleep 14 plus hours a day if I had the opportunity. My husband commented on the change in my personality and how my mood changed for the worst. Keppra wasn’t added until I was 29 weeks, so the personality change was not pregnancy hormones. I reached a point where I started asking myself why I even thought getting pregnant was a good idea. What soon to be mother wants to think that! I experienced dry mouth and a general feeling of malaise. If it wasn’t for the fear of another seizure while pregnant, I would NOT take this medication. I can’t wait until I give birth to get off of this miserable drug!"

• Kevin...
• September 5, 2015

"I was diagnosed with epilepsy when I was 17 and was prescribed Dilantin. I was having grand mal seizures and it was working ok. When I was 22 I moved to Florida and saw a new neurologist and he said Dilantin was an old drug and put me on keppra. I'm taking 1500mg twice a day and I'm having more grand mal seizures and partial complex zone outs. Keppra has not helped at all and I'm going to a new doctor for a different opinion on what to take."

• offth...
• January 19, 2011

"After thirty plus years unable to control nocturnal seizures with Dilantin, Tegretol and now, Tegretol XR I now take 500MG of Keppra twice daily plus the XR and am controlled night and day with no noticeable side effects. This has lasted for the last six years. I am very pleased and glad to get rid of those nocturnal seizures with their after effects. The difficult part is the cost of the non-generic, especially as I get older. "

• Dooby...
• Taken for 5 to 10 years
• February 12, 2020

"Hey everyone at the age 48 my brother was diagnosed with epilepsy seizures at that time he almost died because nothing would stop them. After multiple seizures back to back like 20+ the only thing that would even help control them was name brand medication (Keppra)they started him out at six 500 mg daily. Many different symptoms with this I've noticed over the years so I will list a few: mood swings, anxiety, depression, memory loss of dates & time, agitated, lies. Talk to the doctor about the amount of seizures he experienced since last visit and at times gets violent. This medication still dosn't control them like it should but by taking it he at least has a chance."

• SharKe
• June 28, 2009

"I have tonic-clonic seizures due to a malignant tumor in my frontal lobe. I was prescribed phenytoin, which controlled the seizures but my doctors could not get my blood levels stable so I was constantly oscillating from sub-therapeutic to toxic. After 6 months of trial and error with no success, I was switched to Keppra. Keppra failed to control the seizures and I became hyperactive, easily agitated, and began having suicidal thoughts. My doctor made me switch back to phenytoin. The FDA recently required the manufacturer of Keppra to change the warning label to include these as known adverse reactions in some patients."

• dataB...
• Taken for 1 to 6 months
• October 7, 2022

"Do not take Keppra if you have any psychiatric issues. It may stop seizures but with the terrifying risk of Keppra Rage. There is no need to take risk. Try a different AED, this drug was a nightmare. I lost my job because of Keppra Rage."

• Anonymous
• August 4, 2009

"I have been taking 2000 mg of Keppra a day for about 8 years now. I think that it is working good. I even took it when I was pregnant and thank goodness my baby came out fine. Think that there needs to be other information for woman who may want to have a child but are afraid to have a child due to seizures."

• Anonymous
• August 15, 2011

"I'd been having partial seizures every 2 wks lasting a few days for about 3yrs before having a tonic-clonic seizure and finally agreeing to go on medication. I started on Keppra and the seizures came once a month for about a week, similar to a girl's period, and I became very depressed, suicidal, and uninterested in anything. About 2yrs later I had another tonic-clonic seizure. Shortly after that I switched to Lamictal and am no longer suicidal but am still depressed and uninterested in anything and the seizures now come more frequently and randomly. "

• 319s
• September 12, 2015

"My 2 year old grandson was drop falling constantly every 2/3 min. He already was taking toprimate and onfi. We started koppra and the falling decrease with one dosage. three days now and no falls, no shakes or jerks."

• ajsgr...
• March 2, 2009

"It stopped seizures but I have gained 3 pounds a week. It has totaled 50 pounds. I hate it. It is destroying my life causing my thyroid and endocrine system to go haywire and I just want to get off of it. My endocrinologist wants to have me taken off immediately as my pancreas does not produce insulin and the weight gain is dangerous."

• Anonymous
• Taken for 2 to 5 years
• August 31, 2022

"I've had nothing but a lot of very serious problems with this medicine. It's caused me severe kidney issues problems with ataxia & having more serious issues with it not controlling my seizures & I have taken a lot of very serious falls because of this drug! This drug needs to be taken off the market ASAP!!!!!!!"

• Dannie...
• April 11, 2011

"I have only been on keepra for about a month but I'm noticing mood swings, shakiness and medicines make me sleep a lot. I haven't had another seizure thank god but the mood swings are awful. I hope after I have my brain tumor removed things get better."

• madds
• Taken for 2 to 5 years
• October 19, 2017

"Sometimes I feel drowsy, sometimes I feel dizzy, sometimes I don't. I am not sure if it is really part of the medication but I do know I don't seizure on it. Compared to the first type of medication I tried (it sent me loopy) this is a lot better, but it could also be better. -Over the years start to analyse how your head processes, how much do you remember and make sure you're not getting slowly cranky on it."

• jl2470
• September 24, 2011

"Have been on Keppra for about 8 months now. Only one seizure, but the side effects are getting to me. Depressed, irritable, weight gain. Neurologist has added a antidepressant to see if that helps. Just wish the medication was cheaper."

• Epsy
• Taken for 1 to 6 months
• May 20, 2023

"Overall the medication did indeed stop my seizures but the side effects were unbearable and to this day, I don’t remember those first few weeks on it but still get to hear about how cranky, irritable and foggy I was."

• Ehh
• September 1, 2010

"I have been taking 1500mg a day of Keppra for 7 years. I have had two perfectly healthy babies. I did not breast feed. I didn't want to take the chance. I was just happy they were born normal and healthy. At first it made me very, very tired but after a couple months, that subsided. I did start to gain weight after taking it but I thought that was from the pregnancies or a thyroid issue. I had no idea so many people gained weight with it and had irritability problems. Those are some things I have lived with for the last 7 years that could be a result of this. It does however, control my seizures. I have grand mal seizures and had a few over the years because I could not afford to buy the Keppra."

• Maken...
• Taken for 2 to 5 years
• April 5, 2023

"It stopped me from having as many seizures as before, but caused breakthrough seizures, particularly in my sleep. The dosage kept increasing, but that did not stop the seizures. It causes a lot of depression as well."

• 0726
• September 20, 2010

"Started having grand mal seizures about 4 or 5 years ago. I've been on Keppra for awhile now the 1st two drugs made me way too tired. I get headaches everyday and sometimes "flip out" (get really mean and mad) easily. I never thought it could be from the Keppra but now I wonder if it is. I have been seizure free though which is worth it to me!"

• Sandp...
• August 9, 2009

"I was placed on Keppra in January 2009 by an emergency room physician after a reported seizure, which had no professional diagnosis. A neurologist whom I saw post emergency kept me on the medication as I reported no side effects. I had what I now believe to be a fainting spell related to an atrial fibrillation condition of my heart and a strenuous run, without a "cool-down". I am pushing to get off this drug, as I experience dizziness, light-headedness, sleepiness and somnolence, fatigue and exhaustion most of the time. I am a 2008 Herat Valve transplant recipient and on diuretics and blood thinners, both required to avoid congestive heart failure and embolisms(artificial valve)."

• TonyB
• October 3, 2015

"I was on decadron and vimpat (Lacosamide, another anticonvulsant), and I'm pretty sure the vimpat was compounding the side effects of the decadron (mood swings, weight gain, blood sugar issues ('m also diabetic).Plus, I was still having seizures, especially whed I tried to work out (mostly running, but sometimes on an elliptical machine. I asked to be put back on the keppra I had taken for 6 months prior to being moved to the vimpat. I've been able to run again, and am having fewer seizures (although had one this morning after doing the ADA diabetes step out 23 mile walk and sprinting the last half mile to get to a restroom. I definitely feel like the keppra is more effective against seizures, still, and doesn't compound the side-effects "

• Jano
• Taken for 1 to 6 months
• March 8, 2021

"23 year old male, 6'1, 155 lbs. Never had any health issues other than ADHD (diagnosed at age 15) and 2 myoclonic seizures which I just only recently experienced. I underwent a battery of tests (CT, ECG, X-rays, bloodwork, etc.). All of my tests came back completely normal, save for slightly elevated blood pressure. I was put on Keppra 1000 mg, twice daily, as a result. I read up on how nasty the side effects allegedly were, but I found my personal experience with them quite underwhelming in comparison. Symptoms are definitely present though, chiefly gastrointestinal discomfort, irritability, restlessness, and feeling "spaced out". My most concerning symptom is that it has made it quite difficult to find things genuinely enjoyable like I used to. The best way that I can describe it is that it makes me feel robotic. Symptoms are obnoxious, yet manageable with some effort and patience. For seizures, I have not had any recurring episodes since being on it, so I can't say it's ineffective."

• Anonymous
• December 4, 2009

"Keppra alone did not do anything for me except make me depressed and have "Keppra rage". I was up to 1500mg 2x a day and would still have a grand mal about every 4 months and absence seizures in between. My neuro switched me to Topamax, Depakote and everything else but would break out in rashes or have horrible diarrhea and every other side effect. Back to Keppra I am 2000mg 2x a day (400mg a day total) now, weighing 175 (hell of a dose) and got put on Lamictal as well up to 100mg 2x a day of that. 1 month since addition of Lamictal and higher dose of Keppra and no seizure yet. We shall see."

• Hallu...
• Taken for less than 1 month
• August 17, 2021

"This is the worst drug I've ever been on. I was only on it for one week and the whole time I wouldn't leave my room and was reportedly having hallucinations of people trying to kill me, according to my family. Safe to say the doctors quickly changed my treatment."