The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Keppra (levetiracetam) for Epilepsy: I had my first seizure over 3 years ago at the age of 23. Upon receiving a MRI scan I learned that I had a brain tumor called pleomorfic xantro Astro sytoma. After having it removed I was put on Keppra XR 1500mg twice a day and have been seizure free ever since. However recently I have been having new side effects appear. At first the only side effect I had was exhaustion and occasional insomnia however over the past two weeks I have had tingling sensations on my scalp and bouts of vertigo and I am very scared about what this could mean I hope everyone else is doing well.
Keppra (levetiracetam) for Seizures: I was diagnosed with epilepsy when I was 23. I am now 35 I was put on Tegretol 500mg twice a day. For 2 years my life was a nightmare I still got seizures and double vision everyday. I was then prescribed 500mg of Keppra twice daily along with the Tegretol. The double vision went completely and I found that I only have 1 or 2 seizures max a year, this is usually because of lack of sleep or forgetting to take my medicines. Yes I find my attention span is not great sometimes along with tiredness and mood swings. The positives for me outweigh the negatives. Good luck in finding what suits you best.
Keppra (levetiracetam) for Epilepsy: My daughter is 4 and started having seizures 9 months ago. She has been on Keppra since then. Overall it has worked to control but not completely prevent her seizures. It has stopped them from spreading to her whole body but she still has them in her face about once a month even though her dose has been increased several times and she is now taking 7 mls twice a day. The side effects now are not as bad as when she first started this medicine. Since she has been on it however she has not had as good of an appetite and some days she wont eat at all. Her sleeping habits have been irregular as well. Some times she freaks out and starts biting anything she can. She doesn't talk so she can't tell me how she feels.
Keppra (levetiracetam) for Seizures: It works most of the time. I developed epilepsy when I was almost 60 years old and the first medication I took gave me horrible headaches. This works, but it also can give me diarhea and when that happens and the medicine doesn't stay in my body long enough to work, I can have mild attacks. Sometimes I have the mild, brief attacks even when the medicine stays in me.
Keppra (levetiracetam) for Seizures: I had surgery for a benign brain tumor over 8 yrs. ago; Gamma Knife radiation surgery 3 yrs. ago. The Gamma Knife surgery left me with scar tissue that caused me to have my first partial seizure. This required me to remain on seizure medication, levetiracetam.
To prevent recurrent seizures, I was on a dose of 1,000 mg./ 2x's day. I was on this dosage for over 2 yrs. No seizures, but side effects crept up slowly: bad memory loss, difficulty finding words, fatigue, weight gain. Then, the intolerable ones: deep depression, mood swings, crazy flip-out anger. It just kept getting worse, until I couldn't wait to get off of it! My doctor called it the "Keppra Rage". I guess this is well- known side effect that I could not tolerate.
25 users found this comment helpful.
Keppra (levetiracetam): I have been taking generic Keppra 4 times a day for over 4 years. I was placed on this medication by a neurologist to help with tremor and undiagnosed illness (possibly MS). I have experienced much less tremor. I also began taking gabapentin about 2 years ago. I take 600mg daily. Between the two medications as well as a weekly injection of steroids I have found relief from my tremor as well as my undiagnosed "flare ups". I also have INO and I have many other symptoms of MS but because I have not been able to have a neurologist diagnose my symptoms I remain undiagnosed. I have had 6 MRI's and 5 CT scans. I have seen 8 neurologists and I have also had many other diagnostic tests. I hope to someday have a diagnosis.
Review by Jonathan's mom (taken for 1 to 6 months):
Keppra (levetiracetam) for Seizures: My son had his first seizure at 18 yrs old. He has a brain injury from birth and very mild cerebral palsy affecting his right side. Went to ER and was referred to neurologist. Did a CT scan, blood work, EEG all normal except the injury to brain which showed no changes in size or concern. Was told not to drive for three months CA law. Was put on Keppra 500mg morning and night total 1000mg. Has not had a seizure and we will be following up with the neurologist in 2 days to have his driving privileges reinstated with DMV. Very hard for him not being able to drive and having someone else do it. Regarding side affects none. Has taken medicine every day. Neurologist did say we will re evaluate stopping the medicne in 2ys.
11 users found this comment helpful.
Review by Newport620 (taken for less than 1 month):
Keppra (levetiracetam) for Seizures: I was given one dose of keppra as a precaution because I had a "spell" that I'm not sure was a seizure or just a bad anxiety attack. It made be feel dreadful: dizzy, depressed, weepy, spaced out. It's been nearly 36 hours since I took it and I'm still feeling not quite right. Horrible stuff. I had an EEG and it was normal. I wish the doctor had waited with the med until the results of the EEG, CatScan and MRI.
10 users found this comment helpful.
Keppra (levetiracetam) for Epilepsy: I just had my third seizure and I was switched from Topamax to Keppra. I find that this medicine makes me hyper and then extremely tired. I am 18 years of age and I experience the depression side effect and almost all of the side effects. Really wanting to find a right balance.
18 users found this comment helpful.
Keppra (levetiracetam) for Seizures: Started taking Keppa (750mg twice daily) alongside Lamictal (250mg twice daily) as the latter medicine was not 100% efficient to control partial seizures. Although the Keppra seems to have stopped the seizures completely, there are many side effects to be aware of. Drowsiness, tiredness and irritability/moodiness are extremely common, so that is often a downer, especially when you're trying to enjoy yourself. Depression is difficult to identify as dwelling on the side effects on the leaflet only makes you feel worse! Overall, an effective medicine for treating epilepsy but I had many bad side effects.
36 users found this comment helpful.
Keppra (levetiracetam) for Epilepsy: I have been on Keppra for 10 months. After 45 years on Dilantin my liver was being poisoned. Dilantin worked as far as controlling seizures. Keppra has worked so far but I have insomnia and no appetite.
16 users found this comment helpful.
Keppra (levetiracetam) for Epilepsy: The only few problems consists of drowsiness which is better than having seizures. Another important issue is dosing. You most take every days worth or it can lead to an aura or a full fledged seizure which can effect drivers licences (loss of 2 years).
14 users found this comment helpful.
Keppra (levetiracetam) for Epilepsy: After EEG showed seizure activity, Neurologist started me on 500mg/day Keppra. At the 4 hr mark, I felt very spaced out. Couldn't think, hazy, slurring speech, lethargic, etc. Neuro suggested I start taking at night, so that I could "sleep through" the odd feeling. Now, I WAKE up at the 4 hr mark... on the dot, every single night. I still feel spaced out, and find it hard to get comfortable and fall back asleep. Takes me about an hour to fall back asleep. Sleep disturbances cause me to feel tired during day.
26 users found this comment helpful.
Keppra (levetiracetam) for Seizures: 46 yr old male. Over 3 month period experienced 3 auras and finally the first seizure in January '13. Prescribed Keppra by neurologist. 500mg x2 daily. Not a hint of seizure activity since being placed on this medicine. However, I do experience some tiredness (mild). Otherwise leading a very normal life style.
48 users found this comment helpful.
Keppra (levetiracetam) for Epilepsy: I started taking Keppra 500MG twice a day 2 weeks ago after being hospitalized for a tonic-clonic seizure lasting about a half hour. Since I started taking the 500MG, I used to fall asleep for more than 8 hours at a time. I've gotten a few headaches, but nothing as serious as the ones I used to get before. My reaction/talking/thinking time was definitely slowed down, but its improved a lot. The first week I used to sleep the whole night through, now its reversed where I can't stay asleep all night. I noticed my mood has changed and mostly for the worse (angry all the time). Really frustrating to adjust to but hoping for the best. Seizure-free so far!
30 users found this comment helpful.
Keppra (levetiracetam) for Seizures: I'm French and am 28 years old. I had my first seizure in 2009. My neurologist gave me Lamotrigine for 2 years, from 100mg daily at the beginning to 400mg at the end. The frequency of seizures has been reduced but I still had some.
I arrived in USA in 2011 and my new neurologist prescribed me Keppra because I wanted to have a new medication, more efficient. I take 500mg twice daily. I don't have any seizure since I started this medication, so more than one year now.
I'm very satisfied so far, but of course I have side effects and it's sometimes very difficult to deal with. I'm very tired all day long, I need to sleep at least 8 hours every night. I'm like bipolar, sometimes euphoric, sometimes very depressed.
I'm a different person now.
52 users found this comment helpful.
Keppra (levetiracetam) for Seizures: I am so glad I found this forum! My husband was on Dilantin and it was working well but a few years ago his Dr switched him to Keppra because it was newer. He started having severe depression and mood swings to a point where they diagnosed him with Bipolar. The depression has been getting worse and worse to a point where we almost hospitalized him because I was afraid he may hurt himself. Today I spoke with his mental health provider and asked about trying Depakote and decided to come home and research if he could take both. After reading the reviews I am 100% convinced that it is the Keppra causing his depression and I am taking him to the Dr Monday to have him put back on Dilantin!
42 users found this comment helpful.
Keppra (levetiracetam) for Epilepsy: I had my first seizure when I was 17 (now 23). I always wanted to be on a medications that was safe so one day when I had a family. And now have my family with a healthy boy. I do have to say I was having the depression, I was having dizzy spills and really bad headaches. But I talked to my doctor he lowered my dose and gave me Topamax to take with it. And now my headaches are gone. It is very hard to actually to find the right medication for yourself. I wish you all the best!
17 users found this comment helpful.
Keppra (levetiracetam): My doctor put me on Keppra to see if it will help with my problems of completing sentences and being at a loss of words. I haven't been on the medicine long, but the side effects are very apparent. I feel almost drunk sometimes I am nauseous and dizzy and have not noticed any change in my condition. I have to be very aware and on top of my game to do my job.
Keppra (levetiracetam) for Seizures: I have a brain tumor. I've been on 1500mg/day since Feb 2011. I had a gran-mal seizure in the middle of the night. First seizure, first indication of the brain tumor. Haven't had a seizure since. Radiation took care of the tumor. Have not experienced any of the side-effects that most other people comment on other than occasional constipation. My dreams seem to be more vivid and realistic than before. I'm 50 in two months.
43 users found this comment helpful.
Keppra (levetiracetam) for Epilepsy: I am on a very small dose for epilepsy 250mg twice a day. It has made me quite tired, but apart from that there's been no problems. I only have a couple of seizures a year so hopefully this low dose will keep me seizure free.
18 users found this comment helpful.
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