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I've been on Arava for over 10 years now. At first (following the loading dose) I was taking 20 mg daily. I went from not being able to dress myself to being completely independent and relatively pain free. I do have fibromyalgia, so there has been some muscle pain with that. I lost quite a bit of hair at first, but that stopped. After 7 or 8 years I asked my doctor if I could try to taper down. I went from 20 mg daily to 20 mg every other day. I have mild psoriasis which flared when I cut back, but eventually it cleared up again. After a year, my doctor decreased it to 10 mg every other day. The psoriasis flared again, but is now gone and I am maintaining at 10 mg every other day and doing well.
I have been on Arava for approximetely 2 months, prior to that I had Rituxin Infusion Therapy and was currently on 20 mg of prednisone. I had started to reduce the prednisone when I was down to 5mg and off, I started to have a burning in my mouth and tongue. I checked with the pharmacy and it is a know side effect for leisons and issue within the mouth. I am hoping that there is something else that I can take, as this past year my rheumatoid arthritis has been full blown out of control. I at least can now type and manage to button my clothes and tie my shoes. I can only hope.
I have been on Arava for 6 weeks and I also take 5mg of Prednisone. The medication has been extremely helpful in treating the swelling and soreness of the joints. I am now able to write, type, stir, laugh and I feel generally so much improvement, it's like getting my life back after several months of severe pain, swelling and stiffness.
55 users found this comment helpful.
Was on Arava for a little over a year. The hair loss, pain from the hair loss, gastrointestinal problems, and the infections are just too much. My hair is so thin. I went to my doctor and had it stopped. I lost another 6lbs in 2 months and that is with the introduction of Ensure. I hope others have a better experience then what I did. I am 27 years old and everyday I felt life leaving me little by little.
45 users found this comment helpful.
I started taking Arava in Sep. 2012. Two months ago I noticed my hair was falling out in the shower, and now in December my hair is so thin you can see my scalp. I also have to blow my nose ay least twenty times a day. And now I am getting sores in my mouth. I am not sure if I want to stay on it.
38 users found this comment helpful.
Arava worked great for me for about 2 1/2 months. My pain and stiffness was much, much improved. Unfortunately I developed a severe rash and had to take the medication to remove it from my system as quickly as possible. Had it not been for the rash I would still be on it.
42 users found this comment helpful.
I took Arava for about 8 months. It gave me a new lease on life to the point I was having no symptoms, pain or stiffness. I had to stop the medication because of Valley Fever. I want to get the message out to anyone living in a high risk state for "Valley Fever" be very aware and see your provider if you have any symptoms. I only had a persistent cough. Had chest X-ray done and was found to have a very large lung nodule that ended up being "valley fever" abscess.
37 users found this comment helpful.
I have taken Arava for over 10 years and have had good results. I have RA and I have stopped taking it because of surgery and because of a chronic infection but always go back. I have many allergies and most of the other meds for RA have caused bad reactions.
46 users found this comment helpful.
I took Arava for about one year. It worked fabulously for the rheumatoid arthritis. I was even going to aerobics and kick boxing. However, my hair started to fall out and I ended up with no eyebrows. Needless to stay I stopped taking it and my rheumatoid arthritis has not been good ever since. My hair grew back but in some spots it did not. I still have some bald spots in my eyebrows. I was not very happy about that as I am only 35.
59 users found this comment helpful.
I've been taking Arava for 12 months or so now. It worked in the early days but now, I have quite severe pain and am looking at starting to take Infliximab along side the Arava. With regards to side effects, none apart from the persistent, annoying tickly cough, which I've had now for about 7 months.
43 users found this comment helpful.
I have been on Arava for 1 month. So far - hardly any side effects. It has improved the quality of my life in that I am not experiencing any pain. I will continue to monitor any side-effects over the next few months.
46 users found this comment helpful.
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