Tresiba for Diabetes, Type 1 User Reviews (Page 2)

• Halra...
• January 12, 2017

"I've been on insulin since 1985, most recently Humalog and Lantus, I;ve been taking Tresiba for 6 weeks now, 30 units at bedtime and I almost never use the Humalog unless I eat something high in carbs. It is almost like being off the multiple shots I was on at every meal, I recently got a Dexcom CGM and can monitor my sugars constantly."

• Liberty...
• May 1, 2017

"My Endo insisted I switch from lantus to tresiba. I was quite stable on lantus and humalog for over 15 years but she said it was better. I've been a diabetic for almost 30 years and so I was very hesitant to switch. I should have listened to myself. The first 3 weeks were okay but not better. Then I started feeling breathless and fatigued. It took me awhile​ to realize it was the tresiba. I switched back to lantus a week ago and I am already feeling better. No more breathlessness or fatigue. My blood sugars were worse on tresiba so it will take a bit to straighten out my a1c. I really should have listened to my gut. Just because it's new doesn't mean it's better."

• Volgirl
• Taken for less than 1 month
• August 15, 2016

"I have been a diabetic for 51 yrs. I used Lantus as my bedtime insulin and Novolog on sliding scale for meals. I was taken off Lantus by Endo and replaced it with Tresibia. 1st day I noticed dizziness, 2nd day it was worse on 3rd day I can't walk across a room for I am going side ways. I am so sick for i feel like I am on a merry go round non stop. My BS dropped to 25 this morning and with the dizziness and this I was in a bad shape!!! Back to my Lantus I go and Tresibia is in TRASH where it belongs!!!!!!"

• John...
• Taken for 2 to 5 years
• June 26, 2017

"I have been on tresiba since June of 2015. After a couple weeks I adjusted fine to tresiba and love it. However in September of 2015 I began to develop stomach problems. At first I didn't think anything of it, however it has only become worse over time. I had a colonoscopy done in June of 2016. Dr found nothing wrong. Also had a MRI done later last summer in which I had to drink a dye. Once again found nothing wrong. June of this year I had a upper endoscopy and once again nothing was found. I feel like my stomach is going to explode. And I feel nauseous, however have never thrown up. Just wondering if anyone else has had these problems."

• Izzy
• Taken for less than 1 month
• November 4, 2018

"I’ve been on tresiba for just under a week (made the switch from levemir) and have mixed feelings. Although it’s still early days in terms of fine tuning the dose, I feel like it would probably be a great option in terms of enabling more consistent and lower blood glucose levels. HOWEVER, since day 3 I have felt absolutely dreadful. I have had chronic diarrhoea, that just doesn’t seem to go away. Awful agony stomach pains. I’ve felt exhausted, far beyond what I’ve ever felt before. To the point where I feel like I could sleep 24/7. And I’ve felt breath-less for no reason also. I really want tresiba to be a viable option for me, but unfortunately it looks like it’s the most likely cause of these symptoms. So I’ll be on the phone to my diabetes team tomorrow, looks like another switch will be necessary. Just hoping I’ll start to feel remotely normal soon!!"

• Johnpg
• Taken for less than 1 month
• December 29, 2015

"Very very happy. Only one shot a day & this stuff is smooth. Don't have to take as much apidra. Been taking it since 12/6/15 . Already reduced my total insulin intake from 48-50 units to just 40. Only take 30 Tresiba in morning & if blood sugar is 70-100 hardly no need for apidra with my normal breakfast. Probably will slowly come down on Tresiba. This is a breakthrough."

• Goldie...
• Taken for 1 to 6 months
• July 25, 2019

"Right before the 4th of July, my Endo had me try the Tresiba insulin. I had been on fast acting prior because of the pumps, so I had nothing to compare this with in terms on results. Tresiba worked very well on getting my sugars in range, and I even had several nights of perfect 117 sugars throughout. This insulin is a poor mans pump - however!... However, I experienced all the worst symptoms like headaches, foggy brains flu/cold like symptoms (honestly, I attributed it to my running around like a 20 years old at age 30) but then the swollen ankles came. Swollen, tender and my skin started feeling on fire. After I realized this was all from my insulin - I called my doctors office and told them to switch me off immediately. Which they did and I switched to Levemir. Here's to hoping it works well. With my review and reading others - I am convinced the Tresiba needs to e assigned to type 2's only because they seem to have better luck then type 1's are on this brand."

• Sky
• Taken for 1 to 6 months
• September 10, 2019

"I was diagnosed with Type 1 diabetes two years ago at 36 years old. Recently I switch from levemir to tresiba as recommended by my endo to see if my lows will minimize during physical activity and keep me level. Unfortunately, my sugars stayed somewhat high 200-250mg/dL for the two months I was on Tresiba and I developed a rash in my lower back that was gradually getting worst. My endo said she never encounter anyone with a rash not at the injection site but if I felt more comfortable then to switch back to Levemir. I also developed this dry, white patches in my skin. Again my endo wouldn't say it was related to Tresiba but adviced me to go to a dermatologist. I was then told it was lichen sclerosis. I also gained weight on Tresiba. Doctors should be more aware of perhaps lesser known side effects. It seems as though they are completely clueless. Good luck everyone on managing your disease."

• Mia...
• September 22, 2016

"this med is awful for me. I am more out of control than I was on lantus. terrible headaches in the afternoon and evening. my hypo awareness is worse. if it wasn't for my cgm I would probably be in hospital or dead. I think new meds are a great thing, but when your insurance renews in oct - nov people can no longer afford it due to copays ,so they have to change back to a more affordable med and start all over again it's a terrible way to live."

• Verac...
• Taken for 6 months to 1 year
• January 26, 2023

"I have Type 1 Diabetes and found Tresiba did not work as effectively as Levemir. My glucose levels stayed in the 300 range even after a dosage change. I experienced sore muscles, weight gain, general sick feeling, and extreme fatigue. I do not recommend this medication for type 1 diabetes."

• PA-Cat
• Taken for less than 1 month
• June 21, 2018

"I've had Type 1 for nearly 40 years. My endocrinologist recommended Tresiba to replace Lantus. I took it for one month. After 2 days, I saw no changes or improvements in blood glucose levels. As the fourth day approached, I figured the flu was why I had been having blood sugar fluctuations. After a week, I seemed to have stomach issues and nausea for days, and then I had headaches and blurred vision and felt like a trainwreck. After 2 weeks of symptoms, I began to wonder whether I even had the flu. After 3 weeks of symptoms, I decided to read the medical insert thoroughly, only to discover that these flu symptoms, blurred vision and dizziness, and stomach issues were all SIDE EFFECTS. I called the endo office and spoke with a doctor on call, who agreed that maybe I should just switch back to Lantus and see how I felt. I took Lantus that evening and felt better within 12-24 hours. My endo never called me back, so I won't see him again. Maybe he gets kick-backs to market this."

• Cat
• Taken for less than 1 month
• September 14, 2020

"Awful awful awful. I have had diabetes for 35 years and have NEVER felt so unwell on any insulin before. Today is the last day I will take it. Roller coaster sugars, eating to keep up, weight gain, chills and sinus problems, soooo moody, going in the bin tonight, where it belongs."

• Typeo...
• Taken for 10 years or more
• August 22, 2020

"I have had several Tresiba pens that do not work at all and I have to supplement with bolus shots ever 1-2 hours and fast until a new pen takes effect 1-2 days later. I do not know if it is a lot issue or a refrigeration issue during shipping. I store it in a refrigerator within 5 minutes of picking up the chilled insulin from the pharmacy. I have NEVER had an issue similar to this with any other insulin including Lente, NPH, Regular, Novolog, Levimeir, Lantus, or Humilog over the last 44 years."

• Julia...
• August 26, 2016

"I've been a Type I diabetic for 14 years and just recently (within the past month) made the switch from Lantus to Tresiba. I have had constant headaches in the afternoons since switching and today is the second time the pen has just stopped working. I will be partially through the injection when the pen stops dispersing the insulin - you can press on the plunger but nothing comes out and the numbers do not go down. Not having insulin when your life depends on it is the scariest feeling in the world."

• BetsyBz
• Taken for less than 1 month
• January 9, 2017

"I've been a type1 for 3 years now. My glucose levels haven't been well controlled.My last A1C was 12,the best was an 8. My work hours fluctuate, taking a shot, or eating" at the same time everyday is near impossible. I've just switched from Lantus a few weeks ago, had to cut my dose from 30 to 26. Tresiba is more powerful, causing lows. Not complaining, just a little scary, especially at night. It's trial and error, as the whole "my pancreas stopped making insulin, so I have to manage the "mimic the natural production"" thing. I haven't experienced any side effects, as I've been reading in the thread. Think I have a winner. I have an endo apt soon. Luck!"

• Jrteer
• Taken for less than 1 month
• April 5, 2019

"Since I have been using tresiba for my type 1 diabetes my blood sugar levels have gone up from my usual low of 109 to a high of 199, to now well over 600. I was wondering how long it was suppose to start working then when I checked it can take 4 hours to get into your body but should last at least 24 hours, but my levels are too high."

• cat
• Taken for 1 to 6 months
• September 17, 2020

"I have been taking Tresiba for little over a month and have had great results. It has kept my blood sugars between 100 and 120. I still have problems with waking highs in the 160s but am still titrating according to my NP instructions. I use Fiasp for short acting and, these together, have been a godsend to me. I am very pleased with Tresiba. I do have a cgm which makes this sooo much better."

• Emmyy...
• Taken for less than 1 month
• May 23, 2016

"I've been a type 1 Diabetic for 21 years. I switched from Toujeo to Tresiba to try and combat the the low blood sugars I have while I'm asleep. My endo said this was the only type of LL insulin that had the compound breakdown to avoid the night time lows. Every review (there are hardly any patient reviews for this drug) has said it takes significantly lower doses on this then any other LL insulin. That has actually not been my experience. I've had to increase the LL dose and oddly enough, I still have those night time lows. Then all day my blood sugar is higher then it needs to be. Two weeks on it is plenty of time for my body to adjust, yet I'm still having the same issues. Not impressed with this insulin. Had much more stable BS on Toujeo"

• Chris...
• July 11, 2019

"I was changed to Tresiba from Lantus last October (2018) within two months I developed lichen sclerosis. My diabetic doctor denied that there could be any link and were adamant that I should remain on Tresiba. Six weeks ago I stopped Tresiba and put myself back on Lantus. My symptoms immediately abated and today, the dermatologist told me that I seem clear. I think health professionals should be aware of this as lichen s is a most unpleasant and potentially dangerous condition."

• Symone...
• July 22, 2016

"I have been taking 14 units each morning for the past 3 weeks. Week one not bad I think because of the transition from Lantus to Trebisa. Week 2 started having highs in the morning with meals and then dropping low starting around 4pm. Week three highs still in the morning and having to take triple Novolog (1 unit per 15 carbs) and then by 4 pm dropping to the 40's and 50's and having to drink up to 3 8oz glasses of OJ to level back out. This week I am trying to split the dosage to 7 units in the morning and 7 at night. That was a fail, I ran high all night. With all these challenges Dr. switched me back to Lantus."

• Sally
• Taken for 6 months to 1 year
• August 21, 2019

"I am 37 years old, I started to inject this insulin last year, my HA1C was going up (7.9) and my blood sugar not control during the night (19) and day(13), I already gain weight near 12 kg in one year. It was the horrible insulin which, I used for diabetes during 22years."

• Type...
• Taken for 1 to 6 months
• November 30, 2016

"Went from twice daily Levemir to Tresiba. Controlled blood sugars equally well. Did like the convenience of once daily injections. HOWEVER, I gained 12 pounds over 4 months. Cannot attribute the weight gain to anything else (exact same diet, exercise, and labwork fine)."

• SickN...
• Taken for less than 1 month
• July 4, 2018

"I've been using lantus since I was first diagnosed as type one diabetic almost 6 years ago, but my doctor kept telling me to increase my nightly dosage. Eventually I was taking 16 units per night but kept having hypos during sleep and throughout the day. I'd go to sleep with a 320 and wake up with a 70. So my endo switched me to Tresiba. Tried it for a week and went back to Lantus. I was getting awful body pains and headaches, and then I found out my initial problems were because my Lantus dose was too high (I switched doctors at that point). Also, the whole point of me switching to tresiba was so I wouldn't crash at night. And what happened? I crashed at night."

• nicas...
• Taken for 6 months to 1 year
• October 28, 2020

"My son who is Type 1 diabetic has been on Tresiba for a year and it is the best insulin. His A1C level dropped from 9 to 5 and his blood levels are always in range. Its actually affordable and perfect for him."

• Maybe...
• Taken for 1 to 6 months
• October 28, 2016

"Been taking Tresiba about 3 months. It is really good so far. Seems to keep my sugar under control. I especially notice it does really well at the 24 hour mark. When taking humulin N, my sugar would rise at around the 18 hour mark and continue rising until it was time to dose again around 7 am. The rise would be up in the 3 or 4 hundreds. Now my blood sugar does not rise at that time at all. In fact, it goes crazy low. I'm completely hypoglycemic unaware with this insulin until i actually test my sugar, and it will be in the thirties and forties. Such s strange feeling being that low and not being aware of it. Haven't had my a1c tested on it yet, but overall it seems to be working well."