Golimumab User Reviews & Ratings (Page 5)

• Anonymous
• Taken for 6 months to 1 year
• July 30, 2016

For Rheumatoid Arthritis "I'm 27, and have had RA for 6 years. I've been on a few medications (Plaquenil, celebrex, methotrexate) to find the best fit for me. I have been taking Simponi injections once a month (as well as 20mg MTX weekly) for 7 months now and I've had great success! Very slight pain in my foot by the end of the month, but nothing like what I've been through before. I exercise regularly and don't have any kind of pain, so happy. The only side effect I've noticed is fatigue, which can be challenging to manage at times, but I also really like naps, so if that's all I have to manage I'm OK with that! My doctor says he's hoping he can start lowering/removing my dose of MTX soon too!"

• Nerys...
• Taken for 1 to 6 months
• November 22, 2022

Simponi (golimumab) for Ankylosing Spondylitis "I only was on Simponi for 8 weeks and sadly, it helped the pain and stiffness for my AS, but it caused major GI issues. I have IBD and it is supposed to help with that, but it made mine 1000 times worse. Liquid diarrhea up to 10 times a day and abdominal pain was horrible. Once the meds wear off, the symptoms get better."

• Volpe
• Taken for 1 to 2 years
• May 27, 2020

Simponi (golimumab) for Ulcerative Colitis "I've got UC started therapy with Simponi almost two years ago because I was a steroid-dependent, even if I generally felt well. The last colonoscopy, done 6 months ago, showed that I was in complete remission and luckily I still feel great. I haven't noticed any collateral effect, maybe I've just gained some weight, but probably I was underweight before (I am 1,63m tall, and my actual weight is 51,5kg)."

• Ksimp...
• Taken for 1 to 6 months
• July 28, 2022

Simponi Aria (golimumab) "I am actually on this for Pustular Psoriasis. I can't get over the extreme exhaustion, head and chest congestion, headaches, muscle aches, constant stuffy but running nose, my psoriasis is worse. It feels like it constantly on fire, the blisters only go away for like two weeks then come back worse than they was. Sweating a lot and heart takes spells of racing but goes away after 5 or 10 min. Will even happen in middle of the night. Gets so bad it wakes me up from sleep. I itch now from head to toe and now just about everything that touches my skin gives me welts. My vision has suddenly gone bad. I understand I’m old but this is crazy. It’s not worth the expense and getting much worse for 2 weeks of being without the blisters."

• none
• Taken for 1 to 6 months
• January 16, 2022

Simponi (golimumab) for Psoriatic Arthritis "I tried the injection once before after coming off of another biologic that made my symptoms worse. I did not really give it a chance as I did not seem to get any better. I was frustrated with my symptoms and took myself off of everything for 3 months. I had terrible joint pain could not open anything up and severe rash flare up so I tried it again with better results so far will be on my second consecutive dose shortly. The only thing I have found odd and maybe unrelated is heart flutters and an upset stomach."

• Anonymous
• Taken for 1 to 6 months
• December 10, 2021

Simponi (golimumab) for Psoriatic Arthritis "I have gotten worse while taking this drug. My skin is far worse and I’m incredibly itchy. I’ve suffered 2 severe middle ear infections and pustule psoriasis that I never had before in places I never had problems. I took 4 doses all together. The side effects are not worth it for me. I’m happy it works for some people unfortunately I am not one of them."

• Bentine
• Taken for 1 to 6 months
• June 9, 2023

Simponi Aria (golimumab) for Psoriatic Arthritis "I’m currently in the hospital suffering with intractable hip pain and a UTI. I received my 2nd infusion of Simponi Aria last week. I got deathly ill a few days later and couldn’t even walk from the pain. I’m going to have to go to a rehab because after 5 days in the hospital I still can’t put any weight on my left hip. I will never take another infusion of this medication. Pain has been worse than childbirth!!!"

• Kelly
• Taken for less than 1 month
• December 24, 2019

For Psoriatic Arthritis "I started on Simponi 16 months ago and got the Simponi infusion every 2 months. Mid summer I suddenly got underarm itching and now 6 months later I have severe itching on my back, neck shoulders and abdomen. I bleed from scratching and then scabs all over those areas. But there is no rash or hives. Unfortunately last week I had another infusion and wish I hadn’t. Needless to say, I’m miserable to say the least. I’m scratching incessantly and have been to 5 different medical specialists who are not sure what is causing it. Has anyone else had this problem. Thanks!"

• 7Dogl...
• Taken for 6 months to 1 year
• February 19, 2023

Simponi Aria (golimumab) for Rheumatoid Arthritis "I was on Simponi Aria for almost a year. At first worked great. Helped my fatigue some. Then about the last 3 infusions after about a month I could tell it was wearing off. So now they are switching me to something else."

• Barbara...
• February 9, 2023

Simponi (golimumab) for Psoriatic Arthritis "I have been taking Osimponi since November 2022 for Psoriatic Arthritis Spondylitis. I have been experiencing Chronic fatigue, shortness of breath, infections low hemoglobin, dizzy spells, and high cholesterol. It has also made me sick every day to the point I can hardly eat due to chronic nausea. Will not be taking next month's injection. Horrendous experience."

• Kings...
• Taken for 1 to 6 months
• January 11, 2023

Simponi (golimumab) for Rheumatoid Arthritis "I was taking Embrel previously and found that it helped but my doctor moved me on to Simponi. I have done two infusions of Simponi and developed psoriasis on my face which is painful. The doctor has told me I have had an allergic reaction to this medication. I have had an allergic reaction to a similar medication, Humira. If you can't take Humira do not use Simponi."

• Kay
• Taken for 6 months to 1 year
• December 23, 2020

Simponi (golimumab) for Ulcerative Colitis "Simponi has been a God send! Prior to starting Simponi I was unable to leave my home for any length of time. I had suffered for 2 years with UC and failed other treatments. My last C- scope in November 2020 was the best of the last 4. ❤ If I had one suggestion it would be to package an alcohol swabs with each injection ( like Humira does)."

• Bobson
• September 29, 2022

Simponi (golimumab) for Ankylosing Spondylitis "I’ve been using Simoni for almost 10 years now. Since starting my back, neck, and hip pain has gone from an 8/10 to a 2/10, and my energy almost doubled. It’s been life changing. Side effects for me included psoriasis, hair loss and weight gain. Well worth it though to not always be in constant and debilitating pain all the time. After 10 years I’d say it’s still about 90% effective."

• Jan
• July 17, 2019

For Rheumatoid Arthritis "I have used Simponi Aria area for nearly one year and what a difference it has made in my life I have chosen quality of life versus quantity I am just about nearly normal again. It has given me the quality of life and hopefully the quantity of life that I so desperately needed I am 61 years old"

• Ann...
• Taken for 1 to 6 months
• February 16, 2018

For Rheumatoid Arthritis "So far, no good. Although I've only had my second infusion today. 2nd month. I was diagnosed with RA over 10 years ago. I've tried a number of biological's with enbrel working best, but I can't afford that. I've had side effects with most of them, from dangerous blood pressure levels to diverticulitis. I have sharp generalized joint pain, meaning all over, almost every joint. Worse in my shoulders now, but that could change to other joints. I feel like my entire body is sprained and fatigued. The golimumab, or "simponi" as the brand name, has not yet started working for me. After my infusion today I got really severe burning in my chest and throat, as well as a head ache and fatigue. That has settled down now, four hours later. I also feel a little sad. Has anyone else felt sad? I don't know if this is due to the medication or not. I'll check back and revise my review if this stuff kicks in any better."

• Amanda...
• October 7, 2016

For Ankylosing Spondylitis "I was diagnosed three years ago with Ankylosing spondylitis, I first started with enbrel which I had some success with and the dr ordered me to stop the injectors due to a delayed skin reaction, be decided to go with the remicade infusion which ended up landing me in the hospital 24 hours after infusion due to delayed hypersensitivity reaction involving swelling of my throat, lips, eye lids and hives, after a brief hospital stay I had to take several weeks of steroids and benedryl to bypass the infusion until it was out of my system, I refused treatment for a year until last Thursday I received my first infsuion of simponi , I've had very minimal side effects nausea , dizziness, BUT I am already feeling the difference!! This drug is amazing"

• Jim
• September 24, 2020

Simponi (golimumab) for Ulcerative Colitis "Been on Simponi for 3 months 5 tubes. I think I’ m worse than before. Bloating and going to toilet more often! I’ll give it another 3 months, but I can tell its not working. I know someone who also had no success with simponi, but might with Humira."

• ian
• Taken for 5 to 10 years
• November 23, 2023

Simponi (golimumab) for Psoriatic Arthritis "This medication has been a life changer. After years of medications that seemed to have no major effect on my condition, there was a very noticeable improvement in my affected joints from the very first dose. I have suffered no side effects and have found both types of injections easier to administer than I imagined."

• IanW
• Taken for 2 to 5 years
• January 16, 2023

For Ankylosing Spondylitis "Golimumab works very well for me. I have both Ankylosing Spondylitis and Crohn's Disease, which are both very challenging to treat with conventional medicines. With Golimumab I don't need to take any extra medicines to manage both pain and issues such as internal bleeding and the Ankylosing Spondylitis is not causing further damage. I have been using Golimumab for some years now, with no obvious side effects or issues. I have an allergic reaction to Humira, another biologic sometimes used so, really, Golimumab is my only option. Since I am Australian, the cost is covered by Australia's very generous Medicare program. I have read that the monthly cost in the USA is around $US 6,000. I pay $AUD 6.70 a month."

• canad...
• Taken for 10 years or more
• December 16, 2022

Simponi (golimumab) for Psoriatic Arthritis "After taking sulfasalazine and celebrex for years (also worked quite well) ...Started my first biological, Simponi 13 years ago and it was a life changer. I have lived pain free and clear skin since the day after I took my first shot. I know for me it gave me a quality of life I had only dreamed about for years. Wouldn't change it for anything. Sometimes the risk brings rewards. This was the case."

• FHP
• Taken for 5 to 10 years
• September 18, 2021

Simponi (golimumab) for Ulcerative Colitis "Been on Simponi for over 10 years. It has worked miracles with my UC. Full remission. Now I have major joint pain. It started about a year or so ago in my left thumb joint. Now the pain is in every joint except one shoulder all within the last 8 months. I have no Idea what is going on but the pain from the joints is becoming greater by the day. The docs say age. I'm 62 and no history of RA in the family but who knows."

• Kelvi...
• Taken for 5 to 10 years
• April 12, 2023

Simponi (golimumab) for Ankylosing Spondylitis "Treating ankylosing spondylitis - took a long time to diagnose but once I was it explained the pain and stiffness, lethargy I experienced. I used to rest to reduce back pain, which was obviously the wrong thing for this condition. So, along with an increase in activity, I started Simponi Golimumab after suffering for about 7 years with the disease. I have now been on it for over 6 years or so and have had very little to no noticeable issues. However, the change in my sleep, stiffness, and pain is considerable. Even joints not typically associated with AS are improved pain-wise (I have a lot of sporting injuries). I sometimes get some stiffness creeping in at about the 4-week mark as I am due for the next injection (4 weekly). I also take glucosamine supplements for my knees which also improve soreness for me, and coupled with simponi my knees have never been so good. I have often found simponi to actually improve flu/fever/covid symptoms, contrary to instructions about infections."

• Wil
• Taken for 2 to 5 years
• April 27, 2022

For Rheumatoid Arthritis "Hi guys I seen a lot of negative comments which scared me and I thought I would share my experience with ankylosing spondylitis and Simponi. When I was 25 years old I had pain in my buttock turned out to be ankylosing spondylitis I was prescribed naprosyn and the pain came and went. I took tablets when necessary when I hit 36 years old the tablets did not work anymore and the flare ups were really intense and lasted a lot longer. I was given Simponi by my rheumatologist and it’s been 3 years no problems and I am like a new man, like I was 18 again. I so am thankful it has worked for me and I hope it works for others."

• Trishy
• April 13, 2021

For Ankylosing Spondylitis "I am 30, have suffered AS for 6 years, diagnosed 6 months ago. In Australia this medication under the PBS costs $41/mth. At first the meds healed Psoriasis lesions I'd had for 10 yrs but they are coming back. Started on 4 weekly, just been moved to 3 weekly injections. I was needing a top up at the beginning of week 4. My inflammation markers were up to pre Simponi levels. The meds work well to prevent pain in the nights. I am so stiff by day & have a terrible pain in my left hip. When I am on my menstrual cycle my AS comes back for the first few days which is unbearable, reliving what this medicine generally delivers me from. For the 1st 3 months the medication did give me lightheadedness, all day, & balance issues at night. However that has subsided finally. Overall this medication has given me some quality of life back, but I can definitely feel my body seizing, the only relief is at night stopping the constant waking provided it isn't 'that time of the month.'"

• Anonymous
• Taken for 1 to 6 months
• August 18, 2023

Simponi (golimumab) for Ankylosing Spondylitis "Using it for 3 months due to spondylitis and I haven't been feeling this good for a long time. My range of motion is much better and my neck and back pain is a lot better. A few things that I've noticed are that I had an infection that progressed very fast, but after antibiotics, it was cured. I'm also getting a lot of small scrapes on my skin on the hands and face."