Golimumab User Reviews & Ratings (Page 3)

• Craig...
• Taken for 6 months to 1 year
• March 25, 2014

Simponi (golimumab) for Ankylosing Spondylitis "Having suffered with Ankylosing Spondylitis for 10 years and with vast peaks and troughs in pain and the awful Methotrexate for 4 years with loads of side effects, I can honestly report Simponi has simply transformed my life. It's reduced swelling so well on my once sore toes I have excess skin, I'm running and active, I don't get any morning stiffness and NO SIDE EFFECTS thus far, it has cleared up my Psoriasis as well which sometimes returns towards the end of a month as you'd expect. The delivery method is far superior to methotrexate."

• Anonymous
• October 2, 2009

Simponi (golimumab) for Psoriatic Arthritis "My husband took his first dose last month and is getting ready to take his second dose in a few days. While I think the drug is working, the Patient Cost Support Program is difficult to deal with and we are still struggling to get reimbursement."

• Tuckers...
• August 9, 2016

Simponi Aria (golimumab) for Rheumatoid Arthritis "I have had 3 infusions and I am tired all the time and just want to sleep. My vision has also been more blurry. I understand the immune system can be lower on Simponi. I now have the shingles on my face and I had the shingles vaccine two years ago. I have had RA for 33 years and Plaquenil has helped me more than anything as far as stiffness and pain. Have been taking it for at least 20 years. I also take celebrex and methotrexate."

• Aussi...
• Taken for 1 to 2 years
• November 3, 2020

Simponi (golimumab) for Ankylosing Spondylitis "I have Ankylosing Spondylitis which was diagnosed 4 years ago due to a very bad case of Uveitis. I was given three TNF blockers without success. I was offered Simponi and this one worked, the pain went away after a few days and I was very happy about that as AS is very painful and it explains why I had a sore back for most of my life. I am now 58yo. I did not get any side effects but it did raise the blood pressure which I already have hypertension so it's made that worse and I can not get my BP under control. It did not stop the Uveitis from reoccurring but overall it has worked well."

• PsA...
• Taken for 6 months to 1 year
• January 30, 2020

Simponi (golimumab) for Psoriatic Arthritis "I tried Simponi for 9 months for psoriatic arthritis. At first it was like a miracle. Then the pustular psoriasis started on my legs, my hair started falling out, and my mood got very strange. Bloodwork showed super high cholesterol which was 3xs what it ever was. Psoriasis flared worse than ever all over my body. My skin has never gone back to normal. Terrible, scary drug. Wish I'd never tried it."

• Cooper
• Taken for 1 to 2 years
• June 16, 2020

Simponi (golimumab) for Rheumatoid Arthritis "I started taking infusion about 20 months ago. First year things appeared to go smoothly. Then I started experiencing weakness in right shoulder. Physical therapist diagnosed muscle deterioration and spent 3 months in therapy. Regained some of the strength then slipped and fell breaking ankle bone on both sides requiring surgery, pins, and plate in ankle. Never had a broken bone before!! It went down hill from there. Have had 2 infusions since and have had weakness in other shoulder, urinary infection. Horrible headaches, knees giving out and painful, sore wrists. Tire easily, weight gain, Blu-ray vision at times. I think it’s time to re-evaluate the benefits of this drug as I have went downhill quickly the past year"

• Kevin...
• October 12, 2015

Simponi (golimumab) for Psoriatic Arthritis "It seemed to work well for me right from the start. I had been on Remicade previously but I had to quit due to losing my insurance. By the time I went to Simponi I was hurting pretty bad. Unfortunately, it stopped working after a while (18 months) but that has been my personal experience with Biologics. When it worked, it worked well."

• Hugh
• October 8, 2023

Simponi (golimumab) for Rheumatoid Arthritis "Had RA for 50 years (now 67) and though the biologics do help with stiffness and pain, they do have many side effects which make life even harder. Was on 50 mg dose, now on 100 mg. Finding extreme tiredness, cold symptoms, and chest issues dreadful. Spoiling my life now, but been through most meds and I am stuck. Hoping reduction back to 50 mg will help with my general feeling."

• Aly
• Taken for 1 to 6 months
• June 21, 2023

Simponi (golimumab) for Rheumatoid Arthritis "I have had 4 injections now, and if anything my joint pain/stiffness has gotten worse. I have had to take prednisone courses to try to give me some relief. I have always experienced a mild headache after each injection within an hour to two but, since my last injection, my headache has not gone away. It has been just over a week now. I have a lot of muscle weakness and tingling feelings in my muscles as well as a lot of intense muscle cramping. I am trying to be patient as I am told it can take a bit to kick in and work but so far the only thing that keeps happening is more intense side effects. I have consistently had a cough (no cold symptoms) since starting the injection and cough up clear mucus constantly. The injection is easy to do which is a good thing."

• Patrick...
• Taken for 1 to 6 months
• April 9, 2016

Simponi (golimumab) for Ankylosing Spondylitis "Well, I would like to say Simponi has been very effective for me. From my first shot to the sixth the shot I just received this month the Simponi removed my symptons of AS to the point where I feel normal. Before being diagnosed and receiving Simponi I was in pain constantly and taking meds that were basically for gout which what I was being treated for before my diagnosis for AS. One month the doc tried Remicade but it was ineffective for me. The Simponi has given me back normality at least in the sense of physical well-being. It has been wonderful for me and my family as they don't have to worry about helping me when I have symptoms of swelling and pain. In fact I noticed that When i get scratches my wounds even heal faster. Thanks,"

• Emm
• Taken for 1 to 6 months
• July 10, 2018

Simponi Aria (golimumab) for Psoriatic Arthritis "No pain or skin issues after 3 days, but about 2 weeks after the first injection I got sick for the 1st time. The fatigue set in at week 3. I was well again at week 4 right in time for my next dose. Once again by week 3 I was sick with the worst throat /adenoid infection that just wouldn't quit. The fatigue is life changing. Dr. took me off after my second throat infection in 6 weeks."

• Linda
• Taken for 1 to 6 months
• May 14, 2023

Simponi (golimumab) for Rheumatoid Arthritis "I have been on every oral drug for treatment for RA. I then was prescribed Orencia subcutaneously for 2.5 years. I still had to use prednisone 15-25mg on a regular base when I worked. Orencia did not show any real change in my symptoms. I then changed to Simponi 50mg subcutaneously monthly. I could feel a difference after the very first injection. After 3 weeks my swelling and moderate to severe symptoms of RA improved. Following my second injection I noticed an over 50% improvement in my fatigue. As of now after my third injection, I can mostly claim I am improved by at least 80% of overall symptoms. Morning stiffness, my pain, my energy levels. In closing, without trying to sound dramatic I can confidently say Simponi 50mg subcutaneously monthly has overall improved the quality of my life by 90%."

• Melis...
• March 18, 2017

Simponi (golimumab) for Ulcerative Colitis "Simponi did not work for me. Tried it three months, and it made all the bleeding, cramping and diarrhea worse. I really wanted it to work for me...but it didn't. And Jannssen was NO help...called it "side effects," when it was "exacerbation of symptoms." Best wishes if you take it...I hope you find success with it. :)"

• Chrys...
• Taken for 1 to 6 months
• January 4, 2020

Simponi Aria (golimumab) for Psoriatic Arthritis "Was doing fine for about 12 weeks. Then I broke out with a Whole new form of palmoplanter pustule psoriasis and my regular plaque psoriasis came back almost vengeful to the point where my skin feels like it is burning. I had my first infusion in Aug, the again the second one 4 weeks later and by the middle of my 8 week stretch was when these rashes happened. My first three days after the infusion I experienced vomiting, and extreme tiredness but overall I felt fine. The second infusion was pretty much the same but then all this happened. I am so sore on my hands and feet it feels like I am walking or touching broken glass. I have to wear vinyl gloves to keep the moisture on my hands and keep my feet wrapped with non stick gauze and taped and covered so I don’t developers a secondary type of infection from something else. I can’t take the pain so my husband has pushed me to hire a cleaning lady to do my housework because all I am able to do it lay around. This is no way to live."

• tngst...
• Taken for 1 to 2 years
• February 5, 2013

Simponi (golimumab) for Ankylosing Spondylitis "I have narcolepsy and ankylosing spondylitis, I also suspect that I have Psoriasis on my scalp, but haven't had it diagnosed officially yet. Simponi relieves some of the pain and discomfort from the AS and I usually have no lesions on my scalp while I am using the injection regularly. I also take 5 tabs of methotrexate weekly (along with all the side medication that goes along with these). I recently came down with a bad cold and was taken off these medicines temporarily. Immediately upon missing my injection my symptoms were back. The lesions started to appear on my scalp and are pretty bad. I would say that my quality of life has significantly improved since starting the Simponi about a year and a half ago. I take one injections per month."

• Nathan
• Taken for 5 to 10 years
• October 8, 2020

Simponi (golimumab) for Ankylosing Spondylitis "Been on Simponi for 8 years. Has been amazing turned my life around. It can get sore within a week of injection but not sure if that can be helped. Tried Enbrel and Humira previously but they only worked for 6 months for me."

• Hano
• Taken for 1 to 6 months
• September 22, 2019

Simponi Aria (golimumab) for Psoriatic Arthritis "I received Simponi Arianinfusions from 12/2018 to 6/2019. I’ve had 4 UTI’s the last infection on 9/2019 went to my kidneys, I was hospitalized with Sepsis. Now I’ve been referred to a Hemotologist due to High Myelocytes. I always feel sick, tired, weak...I’ve also been prescribed Lipitor for extremely high Cholesterol. I’m a vegetarian and eat healthy. I’ve never had this problems prior to Simponi Aria Infusions."

• Johan...
• Taken for 2 to 5 years
• October 27, 2013

Simponi (golimumab) for Ankylosing Spondylitis "Simponi helps me so much. I take 2 shots per month. I Washington diagnosed about 7 or 8 years after mycket first signs of illness. Ive had it very hard. I get oxycontin when i have it too hard. But all in all, simponi is The best. I got a new life with it. Works as a chef, and without simponi i would not. I live in sweden, so i only pay about $300 a year. Or else i would have to pay ALOT. like $4000 per month. The negatives with this med, you cancer get alot of crap from it. But the pain i had before was crazy. Thank you my sweet Dr."

• Danni
• Taken for 6 months to 1 year
• April 1, 2023

Simponi (golimumab) for Rheumatoid Arthritis "While on Simponi I developed severe diarrhea. I was on this awful drug for 11 months. When I started Simponi I weighed 125 pounds I now weigh 101 pounds. After I stopped taking Simponi on my own I can't gain back the weight I lost and I am sick all the time I feel like my body is attacking me. My doctor wouldn't believe that Simponi caused diarrhea and the awful way I felt. I stopped Simponi a month ago and haven't had any signs of diarrhea. I still feel awful but I'm hoping to get my health back. You have to find a doctor who really listens when you talk which unfortunately I did not."

• Sabin...
• Taken for 5 to 10 years
• November 23, 2023

Simponi (golimumab) for Rheumatoid Arthritis "I've had RA for 20 years, tried numerous other biologics that always stopped helping after a few years or even a few months. By the time I got to Simponi, I thought I was done working. I had applied for disability. My doctor tried Simponi, and I was able to go back to work full-time, and six years later, I am still working. Not only am I still able to work, the dosing pen is very easy to handle, and it doesn't sting like other injections. I still have to take methotrexate and otherwise be diligent about my condition, but Simponi honestly gave me my life back 14 years into having RA. My RA is severe (two different joints replaced among other things), but my quality of life on Simponi is much better than I expected at this point. I am very grateful, and if you're reading this...don't stop trying new medications. You never can predict when one will be a home run like Simponi was for me!"

• Test...
• Taken for 1 to 6 months
• August 9, 2020

Simponi Aria (golimumab) for Rheumatoid Arthritis "Simponi Aria was no help in joint pain. Feel stupid, I have very hard time understanding people, my eyesight changed worse. I see objects but it takes me awhile to comprehend what I am looking at. I limit my driving as I worry crashing. If it’s like this I rather die, as I can’t do my work. Already like being by myself but not feeling like an idiot."

• LVettel
• Taken for 5 to 10 years
• October 17, 2022

Simponi (golimumab) for Rheumatoid Arthritis "Simponi has been the most effective biologic for me. I've used (infusions or injectable) Humira, Embrel, Orencia, Remicade and Simponi. I have been on Simponi 3x's as long as any other medication. Over 6 years of effectiveness. I take one 50mg syringe monthly and although I still struggle with fatigue, flares are managed as well as joint degeneration."

• Phil
• Taken for 1 to 6 months
• June 20, 2019

Simponi (golimumab) for Ankylosing Spondylitis "Took only 2 injections! After the second became very ill had a 104 temp and then ended up in the hospital with a spinal infection! I then was transported to a specialty hospital 2 hours away via ambulance, due to increasing swelling of the spinal cyst I developed full of infection and they feared I may need intubation, but cervical spine is fused so I needed to be at a different hospital! I spent a total of 14 days in hospital 10 of which in ICU , then 14 weeks at home with a picc line and heavy duty antibiotics! All due to simponi!!!!!!! This almost bankrupt our family,I almost lost my LIFE and job! "

• Dave
• Taken for less than 1 month
• November 5, 2021

Simponi Aria (golimumab) for Ankylosing Spondylitis "I was on Enbrel for 14 years I started Simponi aria this week and after my first infusion I am 75% better. This medication is amazing for people who suffer from A.S. Like myself. I would highly recommend. Talk with your Rhuematoligist Doctor to see if this will work for you too!!! Dave"

• Unsat...
• September 15, 2015

Simponi Aria (golimumab) for Rheumatoid Arthritis "I had to take Simponi for a brief time due to a change in insurance. I was taking Enbrel previously and was almost symptom free. Simponi did not help my RA at all! I took it once a week for about 8 weeks. I decided to pay the extra monthly expense for the Enbrel!"