Glatiramer User Reviews & Ratings (Page 5)

• Anonymous
• Taken for 1 to 6 months
• June 2, 2012

Copaxone (glatiramer) for Multiple Sclerosis "I chose Copaxone because of the liver problems that people have from the oral medication. I have been on Copaxone for 2 months now. I have had site reactions like swelling, redness and itching. I have started using the heat before and a cold pack after my injection which has helped. Recently, I have had some problems with numbness in my right side from under my arm down to my toes and a burning sensation from my calf down to my toes. It is probably a flare up. I will stay on the injections until my neuro tells me to stop. Shared Solutions is great and they are very helpful."

• Stuck
• Taken for 5 to 10 years
• November 18, 2017

Copaxone (glatiramer) for Multiple Sclerosis "I was diagnosed wiht relapsing remitting multiple sclerosis (RRMS) in 2009. Started Copaxone 20 mg. Used auto inject..Had injection site lumps, itching, bee sting like reaction always. The skin began to atrophy. Had the immediate post-injection reaction (IPIR) too many times to count. Can't breathe, flushing, back spasms, terrible headache, chest pain... was switched to 40 mg because of lack of injection sites a few years later.. IPIR was THE WORST I've ever experienced. Stopped taking it for about 6 weeks. No exacerbations since my diagnosis. While off the meds I started having more nerve pain. My MS Dr said to switch back to 20 mg. I had a bad reaction last night w freezing shaking and joint/muscle pain for an hour. I have 4 injection sites left to use. Hips and flanks. Don't want liver trouble from other meds. Stuck."

• Klm
• Taken for less than 1 month
• June 25, 2023

Copaxone (glatiramer) for Multiple Sclerosis "1st dose OK. 2nd dose a bit of nausea and weak for a short time, maybe 1 hour. 3rd dose, nausea, stomach pain, chest pain, pain between shoulders, very cold for several hours then very hot unwell for 10 hours very tired and weak the next day. 4th dose nausea, stomach pain, pain between shoulders, pain in kidneys, chest pain. Again, very cold, then very hot. Unwell for 24 hours, still very weak after 2 days."

• Kari
• Taken for 1 to 6 months
• January 3, 2020

For Multiple Sclerosis "I was on Copaxone for three years until Cigna switched me to Glatopa. I was fine with both just some injection site redness and swelling. Two months ago I was forced to switch to Glatiramer Acetate. Out of nowhere I went into anaphylactic shock right after my injection. My doctor believes it was because it was a generic. I have a very mild case and the remaining drug choices have so many bad side effects. Just make sure you consider all the side effects. They say they are rare but it does happen. I almost died and considering taking a break from these drugs."

• jerz
• July 31, 2009

Copaxone (glatiramer) for Multiple Sclerosis "I have been on 3 different MS medications, Avonex was the first and I loved it. My husband gave me the shots. I had to stop because of insurance reasons. I later went on Betaseron and I loved it too, no problems with my MS on either one of them. I had to stop it because I got blood clot in my left leg in January of 09 and my Doctor said it could be from the Betaseron based on side effects so she put me on Copaxone. It is most painful of them all, where I take my shots from one week till the next, I am still in pain. "

• Woman...
• Taken for 2 to 5 years
• October 16, 2019

Glatopa (glatiramer) for Multiple Sclerosis "I was fine with the shots w/and w/out the injector with copaxone. I could take a shot.. bam do it.. go on with life..now my shots are at times just paralysing with the burning and pain and the welts. I can feel every place I've taken a shot for the last 3 weeks and still have welts in some areas. Copaxone was so much smoother"

• MS12
• November 8, 2009

Copaxone (glatiramer) for Multiple Sclerosis "I have used Copaxone off and on for about 5 years. I don't like the injection sight reactions but they are small compared to some of the other treatments I have used. I was on Tysabri and it was great. I felt normal as before MS for about 2 weeks every month and 2 weeks waiting for the next infusion. Due to Liver problems my Doctor recommended I go back on Copaxone but with injections every other day. I have done this for 2 years and no relapse."

• Anonymous
• January 22, 2012

Copaxone (glatiramer) for Multiple Sclerosis "I was on Rebif for three years. I felt tired and dizzy all the time. My liver was greatly affected by the Rebif. I was afraid of liver problems and after checking out other medications I choose Copaxone. No liver problems. There is site soreness but as time goes by it is not so bad any more."

• Tammy
• Taken for 6 months to 1 year
• May 17, 2022

Copaxone (glatiramer) for Multiple Sclerosis "Diagnosed in September 2020. First medication I tried was Copaxone. For the first almost 6 months, I had no issues or side effects. Thought this is great! But for some reason my body started reacting badly to the site areas after injecting. I would break out in some kind of hive that would last the week, through time they seemed to get itchier and bigger. Nurses recommended switching due to this. It is a shame because other than that, I had zero side effects and my 6 monthly MRI was stable."

• Daphs...
• Taken for 10 years or more
• January 24, 2021

For Multiple Sclerosis "I was diagnosed with MS in 2008. I researched Copaxone. It was the best choice with minor side effects for me. I run 3 miles 4 to 5 days a week. My MD Doctor is pleased with my stability and write dispense as written. As of this refill my Insurance said I have to change to a generic. My system does not do well with medication in general so when we found Copaxone it was a God send.I have several phone calls to make because I don't want to switch and will fight like heck to stay on Copaxone."

• msreb...
• August 9, 2008

Copaxone (glatiramer) for Multiple Sclerosis "My doctor gave me my choices for what medicine I wanted to be on and I chose copaxone. I've been on it for 6 months now with little side effects. The biggest side effect I have is a skin reaction and that goes away in about 20 minutes and I haven't had another attack since I started it. "

• Anonymous
• Taken for 1 to 6 months
• February 17, 2022

Copaxone (glatiramer) for Multiple Sclerosis "So I have been on copaxone for about 3 months now. The injection site was bad. I got big welts and bad itching. That has went down quite a bit. But now as of a month ago I have been having very fast heart rate and having a hard time breathing at times. Also I'm cold all the time now. Never had a problem with that before. I don't feel like doing anything. I'm always tired. And the shaking and stomach aches and back aches and numbness in my face and hands all suck. I have also in the last month been having a problem with anxiety. I have never had anxiety before. I did all kinds of blood tests and a chest x-ray because I thought there was something wrong with my heart. But everything keeps coming back normal. So it has to be from the copaxone. I'm thinking I'm gonna stop the copaxone for a week and see if my symptoms improve. I can't take all of this. This is not me. It is driving me crazy."

• dkpar...
• January 22, 2012

Copaxone (glatiramer) for Multiple Sclerosis "I've been using Copaxone since Nov 2011. At first, the skin reactions were painful and sometimes, the sites on my legs are more sore than other sites. However, overall, it's better than Avonex, which I'd been on since 2006 (5 yrs). I don't feel as tired and don't have the flu-like symptoms. I use the autoject device which works well. My only challenge is to remember to take the medicine in case I get out of my normal routine, such as after a dinner out, etc."

• Cynth...
• Taken for 1 to 6 months
• November 29, 2016

Glatopa (glatiramer) for Multiple Sclerosis "I was diagnosed with MS a few months ago. Glatopa was the first drug prescribed. The auto-injector makes the daily injections easy to tolerate. I was on it for approximately one month before having an extreme adverse reaction that started immediately after an injection. It started with a strong metallic taste in my mouth, loud rushing sounds in my ears, and extreme dizziness and loss of motor functions followed by crushing chest pain and shortness of breath. The most severe symptoms lasted for 10-15 minutes, the chest pain for over an hour and the breathing problems for well over 2 hours. I believe I blacked out for several minutes at the onset of the reaction. I am currently not taking any MS medication."

• Greya...
• Taken for 1 to 6 months
• August 26, 2018

For Multiple Sclerosis "I was diagnosed in 2002 and put on Copaxone with no side effects and no progress of the disease on MRI's. This past January I had to switch to Kaiser and was unable to get any meds till July- they would only approve Glatopa. I had over the 6+months a lot of symptoms I had never experienced before and was scared for the first time since being diagnosed. I have been on the Glatopa less than a month and my mouth is numb and sometimes my lips and I'm not able to speak properly at times as my tongue can't work properly. I also have tremendous mood swings and intense feelings over being overwhelmed, none of which I had on Copaxone. They don't have a neurologist that specifically treats MS so I feel like my choice is nothing or Glatopa that may be doing me more harm than good. I wish there was more information on the difference with these drugs as there obviously are big differences."

• Gilen...
• August 20, 2017

Copaxone (glatiramer) for Multiple Sclerosis "Doctor and I, together, decided to begin copaxone 40 mg after having been on copaxone 20 mg for 6 years, gilenya for 6 years (survived viral Encephalitis after this drug). Almost immediately, my joints began to stiffen and became painful ... so much so that lifting and using my hands is very difficult. It feels like I have arthritis in my joints. The nurse and the MS clinic informed me this is a 2.7% reported side effect. Now trying to detox my body."

• Shokre
• Taken for 10 years or more
• January 4, 2024

Copaxone (glatiramer) for Multiple Sclerosis "I have been taking Copaxone for 16 years for RRMS, and it has made my life so much better. It has slowed the progression, and I have had a normal life during that period. I had a few smaller relapses that were caused by excessive stress. The only downside is that I have developed lipoatrophy at most of the injection sites, so now I will switch to some other medication."

• Meme
• Taken for 2 to 5 years
• December 12, 2017

Copaxone (glatiramer) for Multiple Sclerosis "I've been on Copaxone since 2015 tried Amryia brand it was terrible side effects. Copaxone was slightly annoying but not bad. Recently I've experience a relapse and had one 3day intravenous therapy. Tried to take my Copaxone and the nuasea was unbearable with gaging and pain in my back. My Dr. told me to take a break. I'll do that. Also the Flushing and itching seem to have heighten. I'm going to try in a week and see if the symptoms decrease if not I'm going to have to try something else.. I'm taking turmeric and multi 5000 mg vitamins.. My only recourse at this time...any suggestions..???"

• ciara
• Taken for 1 to 2 years
• August 25, 2017

Copaxone (glatiramer) for Multiple Sclerosis "Started taking Copaxone 16 months ago- no major side effects until last two months , On two occasions MS Nurse thinks I may of injected into bloodstream - uncontrollable shaking and chills - my husband almost called an ambulance. Neuro wants me to start Aubagio but I would like to trial the MS diet first on a 3 month trial.I don't know what to do !"

• Justm...
• Taken for 6 months to 1 year
• November 3, 2019

Glatopa (glatiramer) for Multiple Sclerosis "I was diagnosed with MS in 2014 started Copaxone in 2015...40mg 3x/wk..it was hard to get used to injections but I got used to it after about a year and I was at the point where I could just take a shot manually in the stomach or by the injector & I could just carry on. Then my tricare insurance decided to change to generic Glatopa..since then my shots have burned & injection sites hurt weeks after..noticed more numbness in legs and feet & constantly cold...My Dr is trying to fight for Copaxone but I don't think she's gonna win...I cant afford $5800.00 a month for copaxone..I'm going to request another MRI to see if there's any changes"

• JaRe
• November 28, 2015

Copaxone (glatiramer) for Multiple Sclerosis "You're supposed to inject this under skin not in the muscle. I have Transverse Mylytis and was just diagnosed w relapsing MS. Been getting shots but for some reason they stopped today and its only been 7 days!!!!!!"

• Anonymous
• January 18, 2012

Copaxone (glatiramer) for Multiple Sclerosis "Was on Copaxone for about a year with little to no changes. Still had progressions and got 8 new lesions during that time. My neuro changed me over to Cytoxon IV for once a month long with the Copxone. Have had no new lesions since being on this combination. She only uses Cytoxon for a year and then have to choose a new treatment option. "

• Lia
• September 25, 2020

For Multiple Sclerosis "Cigna tried to switch me to the generic of Copaxone and I fought it. I appealed it with detailed information of hospital stays and serious side effects with other oral meds I had tried, and Cigna approved my request for Copaxone. I do not tolerate generic medications well, and am 66 with initial diagnosis after age 50. There is no demographic information of the effect of the generic of Copaxone on senior adults who use it so I did not want to switch. Also if the generic was the same thing it would be called Copaxone. Generic drugs are allowed a 10% 'swing' in the filler/s added to the actual medication and that is where the problems usually come from. Generic is 'mostly' the same/similar but not the exact same medication as Copaxone."

• Momof
• Taken for less than 1 month
• April 25, 2018

For Multiple Sclerosis "I had a severe allergic reaction last night. My face and mouth swelled. I couldn't breathe and had a hard time swallowing. My whole body was covered in hives. I had to go to the ER. I will NEVER take this medicine again. I thought I was going to die."

• Cvano
• September 13, 2019

For Multiple Sclerosis "I've been on generic glatiramer for just about a year now. I have not had a relapse of my MS since being on it. I was just diagnosed a year ago so it's hard to say if it's the drug doing the work or my body just not relapsing. I've been contemplating coming off of it but I'm afraid to commit to that completely. As far as effects from the med, I get the site reaction. When I first started it was so very itchy and painful and now it's really not as bad. Sometimes I feel like I have a cough from it and I get headaches but I'm not sure if it's from the summer heat or the med itself. I had one post injection reaction where my heart started pounding and I became flush all over. It hasn't happened since. Overall I guess I'm satisfied with the medication and I'm kind of afraid to come off. I'm also somewhat afraid of possible long term effects even though most rave about the safety of this med.."