The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Reviews for Glatiramer to treat Multiple Sclerosis
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Review by evelyn1964 (taken for 1 to 2 years):
User Rating:
8.0
Copaxone (glatiramer): After approx. 1 year of using Copaxone daily injections, my Neurologist is convinced that my Multiple Sclerosis progression has slowed down; if not, stopped progressing all together. My last MRI showed "NO NEW LESIONS", but up until then, my MRI's showed steady progression with "NEW LESIONS" every time. Copaxone has absolutely changed my life and I'm now living instead of just existing, but I'm worried about my recent weight gain (in the last year).
Copaxone (glatiramer): Been on Copaxone for over 10 years, kept me stable and still able to teach dance (but without spins & turns!!). Would not have continued without the shooter from your doctor, makes it quick and easy. Bought a needle clipper from the drug store so I can clip off needle and throw shot in garbage. Great travelling.......no need for a refridgerator for a couple of weeks. Just heard copaxone is coming out with a shot every other day YIPPEE!!!!...
Copaxone (glatiramer): Been on this medicine for almost one month not quite sure if its working 100% yet but I feel quite well. Hands still have tingly feeling, but I'm able to work and walk good just have to keep faith! It does burn as being injected other than that I just pray it works well.
Copaxone (glatiramer): I was diagnosed with Multiple Sclerosis in Dec. 2012. I had no idea why I was becoming unable to function properly anymore from walking to simple things like holding silverware. After receiving the diagnosis, I was relieved, happy, shocked crushed and pissed off. I was familiar with MS as my grandad had it for over 50 yrs. So I knew 1st hand what COULD be my fate. I was given a list of medications and told to study them and choose which one I felt most comfortable with and I chose Copaxone. I have been taking it for about two months now and have NO adverse reactions from it. I do not feel any real difference from it but the directions say that it can take up to 6 months before it begins to make a difference. I hope it does take away the excessive fatigue.
Review by MSgorgeousgeek (taken for 1 to 2 years):
User Rating:
9.0
Copaxone (glatiramer): I started Copaxone a couple of months after being diagnosed. At the time of diagnosis I was just getting over a relapse that included numbness on my left side and a phantom turtle-neck feeling. I haven't had any symptoms since then and that was November 2011. I'm pleased with Copaxone this far.
Copaxone (glatiramer): I been on Copaxone for 3 months and I got to say it gives me a lot of energy. I never really had bad flare ups but what I had was very scary to me and so far Copaxone has only gave me a little chest pain and shortness of breath but other than that I trust that Copaxone works. All I can say is stay positive.
Copaxone (glatiramer): Was diagnosed in 2001 with relapsing remitting Multiple Sclerosis - never had any major flare ups - took Avonex for 5 years - didn't notice any real difference - went on to Copaxone 5 years ago. What a revelation - major difference is it took my tiredness away. Painful injection and one incidence of 'heart attack that wasn't' worth it for the lack of fatigue. Can now work full time - walk miles etc.
10 users found this comment helpful.
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Copaxone (glatiramer): My mother has been diagnosed with Multiple Sclerosis for the past 12 years. She started out using Avonex and her symptoms got worse. The doctors discovered new lesions and my mother spells got more intense. She was finally put on Copaxone and has no regrets. She has no new lesions and Myelin sheath has been repairing. She has used Copaxone for 10 years, and would recommend it to anyone suffering with MS.
16 users found this comment helpful.
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Copaxone (glatiramer): I was diagnosed July 2012. Finally! I could no longer walk, my legs had gotten so weak. Was in a wheelchair already. PPMS is not fun. I have noticed that my legs are stronger, but still not able to walk. And my MS has not gotten any worse. Don't have and have never had "flare ups" but at the rate I was going downhill before Copaxone, this is great. I don't like the shots, but I know they are worth it.
Copaxone (glatiramer): I started taking Copaxone soon as I was diagnosed. I don't like the red welts and stinging but my doctor prescribed me spray to put on before I inject and it helps. I don't have much fat so I have the indentions and bruising. But I had not had any new lesions on it! But I decided I would stop taking it and was off it for 5 months and had a MRI and have more lesions so it does work! I'm back on it now hope my next MRI proves it works.
12 users found this comment helpful.
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Copaxone (glatiramer): I'm 17 and I've been on this medicine for 6 months now and I'm super pleased with it. I choose it because I didn't want flu-like symptoms. At first I was nervous about getting skin reactions but I haven't had anything at all! It was quite painful for the first couple of weeks and using heat and cold packs helped it but now I don't need to use them. I totally recommend this but it's a bit too soon for me to know if it's reducing attacks.
Copaxone (glatiramer): I started Copaxone 2 years ago and I am doing fantastic! I never miss a day and aside from a small bump at the injection site that lasts for a few hours, I have not experienced any negative side effects. I had my latest MRI 2 weeks ago and according to my neurologist, everything looks great.
Copaxone (glatiramer): Was diagnosised 11/2002. Put on Copaxone. Had to fight with insurance who kept denying for 6 months. But finally approved. In 9 yrs, have only had one major relapse that put me in hospital. Paralyzed from waist down for four weeks. Now use walker. God answered everyone's prayers. In 9 yrs have only missed taking my shot "once". Had problems in beginning with thigh shot. Nurse helped with that. Am very happy with Copaxone.
Copaxone (glatiramer): I chose Copaxone because of the liver problems that people have from the oral medication. I have been on Copaxone for 2 months now. I have had site reactions like swelling, redness and itching. I have started using the heat before and a cold pack after my injection which has helped. Recently, I have had some problems with numbness in my right side from under my arm down to my toes and a burning sensation from my calf down to my toes. It is probably a flare up. I will stay on the injections until my neuro tells me to stop. Shared Solutions is great and they are very helpful.
Copaxone (glatiramer): I have been on Copaxone for 12 years. I have had ups and downs with this medicine but never anything real bad. I did have some swollen lymph nodes in my groin that we assumed was from the Copaxone. I went off the medicine for a month and they started to go down. I went back on Copaxone after a flare from being off the medicine and haven't looked back. I think its a great medicine. I inject it myself mostly and my wife does it the rest of the time. I don't use my arms because when you get a muscle injection it is quite painful. I miss one here and there, to give myself a night without a needle. I have had very good luck with this medicine and hope it continues for years to come.
Copaxone (glatiramer): I was on Rebif for three years. I felt tired and dizzy all the time. My liver was greatly affected by the Rebif. I was afraid of liver problems and after checking out other medications I choose Copaxone. No liver problems. There is site soreness but as time goes by it is not so bad any more.
Copaxone (glatiramer): I've been using Copaxone since Nov 2011. At first, the skin reactions were painful and sometimes, the sites on my legs are more sore than other sites. However, overall, it's better than Avonex, which I'd been on since 2006 (5 yrs). I don't feel as tired and don't have the flu-like symptoms.
I use the autoject device which works well. My only challenge is to remember to take the medicine in case I get out of my normal routine, such as after a dinner out, etc.
Copaxone (glatiramer): Was on Copaxone for about a year with little to no changes. Still had progressions and got 8 new lesions during that time. My neuro changed me over to Cytoxon IV for once a month long with the Copxone. Have had no new lesions since being on this combination. She only uses Cytoxon for a year and then have to choose a new treatment option.
Copaxone (glatiramer): I've been on Copaxone since the day I was diagnosed almost 10 years ago. I too had the choice of which medicine I wanted to take and I chose Copaxone, and I haven't looked back since. Yes, I've had occasional flare-ups, but nothing major. I could barely walk when I started and it got me back on my feet and back to work full-time.
22 users found this comment helpful.
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Copaxone (glatiramer): I started Copaxone 2 months after being diagnosed. I was on the medicine for one month and loved the fact I wasn't experiencing any body aches, headaches and felt fine. HOWEVER, the site reactions over the course of the 2 weeks got worse. I had hot, fiery red colored 5-6 inch welt reactions at sites, that became itchier after the 2nd week of injections. I wanted to cry because I was itching nonstop 24hrs a day. I stopped taking hot/warm showers which helped but I still itched 24hrs a day. I developed rashes from my neck to my face. I stopped after 1 month. I would have liked to stay on Copaxone but rashes not located at the sites was a concern for the doctor and shared solutions team (the shared solutions team is great by the way!).
11 users found this comment helpful.
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Copaxone (glatiramer): I have been on Copaxone now for about 10 yrs. I never tried any of the other medicines but can say that my MS has not reached a stage which has debilitated me so its reasonable to conclude this may be having some benefit.
Never had major side effects - recommended for RRMS.
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Copaxone (glatiramer): I was diagnosed with multiple sclerosis 2 years ago and this is the 1st medicine I've tried and hopefully the only! I've only had 1 relapse since I've been on it and only side effects I've had (other than the after shot reaction which I've had 2 times, and isn't as bad as it sounds if you know it can happen) are redness, swelling and itching at injection site and weight loss (which I'm not complaining about). Sure everyone's response will be different, just like MS is different for everyone, but I'm very happy with this therapy and got over the fear of needles quickly. Actually I feel empowered when I take my injection.
27 users found this comment helpful.
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Copaxone (glatiramer): I've been on Copaxone for 2 years, and symptoms have gotten worst. I guess there's a reason the side effects make it so appealing to everyone. My doctor is finally changing it to another medicine, unfortunately due to severe liver side effects. I am in so much pain and fatigue everyday, I've lost so much of my life, my job, my social life. Trying to overcome this monster.
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