Gilenya for Multiple Sclerosis User Reviews (Page 4)
Gilenya has an average rating of 7.1 out of 10 from a total of 93 reviews for the treatment of Multiple Sclerosis. 58% of reviewers reported a positive experience, while 18% reported a negative experience.
Reviews for Gilenya
- Great...
- Taken for 1 to 2 years
- April 2, 2024
"I, like many, really hesitated starting on treatment when I was diagnosed 2 years ago. I tried 6 months of alternative therapy but felt pretty awful with symptoms and my check up MRI showed more lesions. With two kids under 5 to look after, I sucked it up and went on the Gilenya as recommended by my neurologist. The hospital admission to get started was uneventful and I drove home fine. Then I felt like total crap for about 2-3 weeks as my body adjusted to the drug. Then my symptoms and side effects (dizziness, nausea, headache) started to resolve! My latest MRI showed no new lesions! I am back riding my horse, trail running, and chasing my two kiddies around. I still get some mild symptoms sometimes but overall feel really happy on this drug. Note - I was happy to only have two kids, but definitely a consideration if you haven't completed your family."
- Anonymous
- January 20, 2011
"I have been on this medication for a month and I have not experience one side effect. SO MUCH better than the shots. We will see later if it is as effective as they say it is."
Frequently asked questions
- Gilenya vs Tecfidera. How do they compare?
- Can Gilenya cause weight gain?
- Can Gilenya cause high blood pressure?
- Gilenya and the covid-19 vaccine, what should I know?
- deero...
- Taken for 2 to 5 years
- January 9, 2015
"Gilenya is by far the best medication so far in treating my multiple sclerosis. Easy to take and with few to any side effects. Highly recommend."
- carpa...
- March 9, 2011
"I have been taking it for 3 months and I have not really had any side effects from it. I have noticed that the heavy shooting pains I was having in my legs and feet have stopped which is a big relief."
Are you taking this medicine?
- Anonymous
- July 28, 2011
"I have been on Gilenya for 8 weeks and just recently noticed my hair has begun to thin. As I brush, numerous strands fall out. I am a 32 year old female so this is very concerning. "
- Anonymous
- August 3, 2011
"I have been on Gilenya for 3 months now for my Multiple Sclerosis and am very very impressed. I have had no side effects."
More FAQ
- Can Gilenya cause headaches?
- What are the new drugs used for multiple sclerosis (MS)?
- How much does Gilenya cost?
- What happens when you stop taking Gilenya?
- Remir...
- September 7, 2015
"Been on Gilenya for 3 months, I haven't seen any improvements! In fact I think I got worse! But who knows what will happen, injections/pills whatever but make it work!!"
- AZSteve
- April 15, 2012
"So far, no problems except a sore throught. It's only been 4 days I'll update later as I'm expecting good things from what I've read"
- Tammy...
- Taken for 5 to 10 years
- May 5, 2017
"After 5 yrs Gilenya is no longer working for me"
- Marty
- June 21, 2017
"Was on rebif over 10 years, went on Gilenya for trial. Stayed on it after trial ended. Tired, slight headache sometime. Better than taking Rebif. I will take these symptoms any day."
- Mano
- Taken for 1 to 6 months
- July 31, 2019
"I would not recommend Gilenya for MS. It made me worse. I could only take it for 5 months Then hair thinning, heavy period, halted my walking"
- Disgu...
- March 9, 2019
"I would NOT recommend Gilenya to anyone. The side effects are simply atrocious. It can cause such severe fatigue ."
- Anonymous
- Taken for 1 to 6 months
- October 4, 2017
"Hair loss, persistent headache"
- Crystal
- Taken for 6 months to 1 year
- February 12, 2020
"I have been on this medication about 8 months now and have experienced no side effects, I feel a lot better and am able to continue working and doing my everyday life activities."
- Cstokie
- Taken for less than 1 month
- November 20, 2016
"The drug lowered my blood pressure after first dose so I was not able to continue"
- mathg...
- Taken for 6 months to 1 year
- March 13, 2017
"Terrible stomach pains. How long does it last even when I'm off the med."
- Didys...
- Taken for 1 to 2 years
- August 6, 2020
"Gilenya is an awful drug!!!"
- Ms pp
- July 5, 2017
"Stabilized my MS symptoms and make it under control But the medicine already covered by my insurance so far"
- Kpoteet
- Taken for 6 months to 1 year
- November 2, 2017
"I like the convenience of it being a pill. The other medications I've taken for ME have been injections. Problems I'm having are thinning hair & hair loss."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
Learn more about Multiple Sclerosis
Care guides
Symptoms and treatments
Medicine.com guides (external)
More about Gilenya (fingolimod)
- Check interactions
- Compare alternatives
- Pricing & coupons
- Drug images
- Side effects
- Dosage information
- Patient tips
- During pregnancy
- Generic availability
- Support group
- FDA approval history
- Drug class: selective immunosuppressants
- Breastfeeding
- En español
"Anyone loves the idea of taking a pill vs. giving themselves a shot. I have really enjoyed the ease of taking my medication as a pill, however I have developed recurrent sinus infections over the course of 6 years. It has gotten progressively worse and is affecting my excessive absences from my job, which is undesirable. Looking into an alternative medication. Have previously been on Copaxone and Avonex. Overall I would say that this has helped with my lesions in my brain and spinal cord. There have been new ones and some have gotten smaller."