User Reviews for Ampyra
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Ampyra.
Reviews for Ampyra to treat Multiple Sclerosis
"Recently diagnosed with MS (December, 2015 - 3 months ago) The MS specialist at UTHSC San Antonio prescribed Ampyra. I had extreme weakness in my right leg and some weakness in my right ankle, causing some problems walking and forcing me to cut way back on my biking and to go to traditional flat pedals as I could no longer work my foot well enough to use single entry clip in road bike pedals. Started Ampyra March 8, 2016 and within 48 hours I noticed a HUGE difference in leg function. It's now been two weeks and I'm back to using clip in pedals (MTB dual entry alas) on my bike and up to 30 miles per ride @ 15 mph, up from 20 miles @ 10 mph. That's a true quantitative measurement of improved function. Don't wait to try this stuff."
Ken Hylton (taken for less than 1 month) March 22, 2016
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"Ampyra is the only drug that has been helpful to me with the exception of Tysabri which I was forced to quit. I have been diagnosed with MS for over 10 years and have gone from RRMS to SPMS over the past three years or so. I read about Ampyra a number of years ago but was afraid to try it because of all the side effects. I wish I had tried it along time ago! I used to walk hugging the wall for balance and sometimes used a cane. I have only been on it for two weeks now and my balance is hundred percent better. I do not use the wall at all. I also have a left arm that wants to contract up so that it I hold it in front of my abdomen. I have noticed in the last day or so that my arm no hangs almost straight. Don't be afraid, try it!"
MsOllie (taken for less than 1 month) January 2, 2016
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"Ampyrya is amazing! I've only been taking this for a week and a half and love it! After 4 days of taking it I noticed substantial improvement! I am able to walk unassisted and stand for longer periods of time, feel like I have more energy and am looking forward to doing more things with my kids! AFO is still needed, but I feel so much better!"
AllieMSmom October 4, 2015
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"It has been a month now, vertigo gone after a few days, a couple of nights pain in my upper arms but not every night. Overall I seem to be able to do more, but not as much as I want. Hopefully this will continue to get better."
Diana1021 (taken for 1 to 6 months) June 16, 2015
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"2 days on Ampyra and already noting difference. As I get close to the end of the 12 hours, I do see a lessening of benefits, and I have also experienced the vertigo while lying down. But overall, I am looking forward to seeing how much my walking and standing improve."
Diana1021 May 16, 2015
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"I was diagnosed with MS 2006. I found myself with a loss of balance. I fell so much at my work I gave my co workers at the gym score card as to how I fell. I have a sense of humor which helps me get through this new found life. My dr told me about ampyra after I started taking this drug my falls decreased. We haven't had to score any of my falls in over a year."
megaw (taken for 2 to 5 years) May 9, 2015
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"Ampyra has been great for me. One of the biggest improvements is that I can stand up for longer periods of time. Before, I got tired and had to sit within 5 or so minutes. Now I can stand longer. My legs don't feel quite so heavy and my foot drop is better. A couple of times, by accident, I have missed taking my medicine and the change was very evident. When I got back on schedule, again I was much better. I am so glad to have this medication!"
Jiggles March 24, 2015
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"I have been diagnosed with Multiple Sclerosis for 17 years. I started Ampyra 3 years ago and since then I am more stable. I walk a little bit faster and get a lot more done in a day. Right after I started Ampyra I was able to snowboard with my kids, something I never thought would have been possible."
Junae (taken for 2 to 5 years) January 28, 2015
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"I was diagnosed with Multiple Sclerosis in 1988. Since I started taking AMPYRA (8/2013), I have experienced marked improvement in cognition, speech, diaphragm and core muscle strength. These gains were accomplished with the help of P.T. and O.T. professionals and continuous improvement efforts on my part (range of motion and exercise). Benchmarking and goal setting has helped me recognize the drastic changes taking place. Specifically, hand and finger dexterity, arm and shoulder range of motion, trunk stability, legs, feet and overall muscle regeneration after years of chronic deconditioning. The results are readily apparent to my Physicians, family, care team, friends."
aCHILLD January 3, 2015
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"It has definitely helped majorly with my arm function, my husband can tell and I can too, if I have no pills left or haven't taken them, my arms go around a little like gummy then. When I did a lot of walking, didn't care how fast I was, just happy to even be able to do it."
mommy of 5 August 12, 2014
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"Started taking 3-4 yrs ago in early 50's while transitioning from RR into SP. Early on saw subtle improvement with only mild constipation, but was unable to go without AFO. Past year in SP, balance and gait worsened where use AFO & cane fulltime. Decided a month ago to stop taking. Balance much better. Gait seems unaffected. Living with SP is definitely different from RR."
K-man (taken for 2 to 5 years) June 8, 2014
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"Doctor said I was headed for a wheelchair but now I hardly get asked 'what happened to your foot?' . If I concentrate while I'm walking, I can almost look like nothing is even wrong. Plus, I haven't fallen in over 6 months."
MonsterSlayer (taken for 1 to 2 years) February 20, 2014
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"This med is a wonder drug for me. I saw a difference in my walking speed w/in 2 weeks with only the 10mg use. As I moved up to the full 20mg daily I found I had more energy, didn't need my daily nap and even have done some light gardening. Last night I walked down a 3 story spiral staircase when leaving a concert (holding on to the rail and holding hands with my husband). My ONY negative is with the "Speciality" pharma which we are forced to use. (No choice they are the only pharma for this med.) Accredo is enough of a hassle (even for my MS renowned DR), I may stop if I have to deal with them monthly. Don't be afraid of the seizures warning in the info. W/ the time release pill it seems not to be an issue if take correctly."
YLGram October 19, 2013
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"Ampyra has been a Godsend for me! Before I started taking it, I was a "wall-walker". I always had to hold onto a wall before I took a step. Now I am walking without assistance. I saw improvement after my second dose. Now I am exercising again which makes me feel so much better-mentally and physically. I was 51 before I was diagnosed and not being able to walk made my life miserable. Now, I feel like I am more of a "normal" person than I have been in 20 years! Thanks Ampyra!"
national champs (taken for 1 to 6 months) September 10, 2013
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"Was having increasing difficulty with my left leg (drop foot, dragging, fatigue especially when on hills) and my left arm (typing characters out of order, weakness). Yes, I have Multiple Sclerosis. Took my first dose 3 days ago. Began to feel improvement within two doses, but thought it was a placebo effect. By the next day was I walking hills with ease, only muscle soreness (after) and a bit winded (during), but none of the neurological issues! I could also feel the medicine's effect begin to diminish about the 10th hour after a dose."
JimDadTwo (taken for less than 1 month) June 10, 2013
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"RRMS for 3 years. Started Amphrya 1 week ago and saw results on first day! Truly amazing that I can feel all the way to my toes in my weaker left leg! I am so encouraged by this pill. I have had absolutely no side effects. Still only taking 1 pill per day since its been only 1 week. Please give this a try, I wish I would have and not waited 3 years."
Nikman April 20, 2013
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"I have had some minor side effects but nothing serious. I used to use a foot brace and cane, but once the medicine kicked in I put them both away and haven't needed them since. This medicine is a God send, and I hope it will work for you too."
stella rondo (taken for 2 to 5 years) February 20, 2013
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"I have been on Ampyra for 4 days and I can't remember the last time I felt this good. Left leg is working better, can stand for longer periods of time, and I think that is just the beginning. Like others, I am going to start retraining my body to get back to normal as much as I can. Going back to Mayo tomorrow to have strength retested for before and after. I am part of a study going on. Drug company is contributing to keep my copay to a minimum."
PositivelyMS (taken for less than 1 month) January 22, 2013
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"I started Ampyra five weeks ago. The first full day I was miserable with nausea but over the next few days the nausea lessened. Three weeks into taking it I realized that I wasn't tripping anymore and my right leg footdrop was all but gone. Now I'm trying to strengthen my leg muscles and walking on the treadmill and riding the exercise bike everyday. I've had RRMS for 17 years. Four years ago I was easily walking three miles a day without any problems, but over those last few years I was weakening, tripping, falling. I couldn't even walk a half mile. I was in a leg brace and using a cane frequently. Just seeing a set of stairs I was going to have to climb put me "over the edge". Now I'm going up the stairs and starting to walk much better."
Djlillz January 16, 2013
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"I have been taking this medicine for a year now, and it works great for me. I have relapsing-remitting MS, and I experience balance and coordination issues while walking (among other things). The FIRST time I took this (10mg extended release tablet) I noticed an immediate improvement in my ability to walk. All of a sudden, I was dashing up the stairs, which normally gave me trouble. I'm able to walk most of the time without my cane now! I have also noticed better bladder control. I know it is not a cure, but it greatly helps my MS symptoms. Ampyra has been a great blessing."
Anonymous (taken for 1 to 2 years) December 22, 2012
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