The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Ampyra (dalfampridine) for Multiple Sclerosis: For eight years now, I've been on 4-aminopyridine ER, the chemical name for dalfampridine, and am now on Ampyra. I was able to obtain 4-AP from a compounding pharmacy by prescription. I have been astounded by the change this chemical has made in me, and, through physical therapy and exercise, by what I have been able to gain because of it. The primary improvement for me has been leg strength, but I've also noticed some improvement in breathing, eyesight, balance and cognition, though I find no documentation to support my observations on these latter four. When I go off of the drug, these improvements vanish until I start up again. I've gone from power chair to forearm crutches to hiking again! Wow!!
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Ampyra (dalfampridine) for Multiple Sclerosis: Not a cure and I may have been expecting (hoping for) more, but it's working for me. I still use a cane to walk to the office (.33 mile), but I now get around the office without the cane, including going to the restroom, going for lunch, etc.
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Ampyra (dalfampridine) for Multiple Sclerosis: I have used almost every medication known to man for primary progressive MS. Understanding that this is not a cure but, the improvement in my mobility is amazing.
I still lack a large range of motion. But, going to the gym now (which I could not do before) hoping to rebuild and retrain muscle that I have not used in years.
I'm not 100% but, I am way better than I was before and I'll take back what I can get back.
A little before the time to take my second dose I tend to start return to the state I was at before I started taking it. Second dose and I'm back up ready to face the world feet first.
This has given me so much hope after I have been disappointed numerous times before.
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Ampyra (dalfampridine) for Multiple Sclerosis: I have been on Ampyra for 5 days and have been so happy with this new pill. The first 2 days were NOT good with the side effects, but each day just gets better. I am able to walk better (without dragging my left foot) and get up from a kneeling position without to much effort. This new medicine has given me a new outlook on my future. Thank you for this medical wonder!
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Ampyra (dalfampridine) for Multiple Sclerosis: I have taken AMPYRA for 1 month. The second day I thought it was my imagination but I did things I couldn't do before, like stand at the sink without leaning, lifting my legs much higher. My left arm was weak and almost always had a closed fist, not anymore. I can actually use the key board again with both hands. So much more to say, it is a miracle medicine. To bad, my insurance denied another month. Just purchased 15 day supply on my own ($592.50) while I fight the denial. Everyone should give it a try.
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Ampyra (dalfampridine) for Multiple Sclerosis: After 3 weeks on Ampyra I have recovered feeling and function in my left hand, after ten years. I have resumed seating, after decades. And a permanent brain fog has listed. My walking and balance are better, though I still use a walker. I consider it a miracle and feel mentally reborn.
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Ampyra (dalfampridine) for Multiple Sclerosis: I took my first dose today. The first thing I noticed was tingling in my legs and hands. As the day progressed my legs have felt less heavy, my left leg has dragged much less, I'm not shaking as bad and I have a lot more energy. I can't wait to see how I feel by the weekend.
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Ampyra (dalfampridine) for Multiple Sclerosis: My husband has secondary progressive MS and has been using Ampyra for 1 month. He didn't see any changes at first, but we now notice that he has an easier time swallowing (he used to cough a lot while eating/drinking), he hasn't fallen at all and he thinks his balance is better. Since the changes have been subtle he is now keeping a diary of how he feels each day.
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Ampyra (dalfampridine) for Multiple Sclerosis: I've only been taking Ampyra for 2 months, but all I have noticed is heavier legs and falling much more. I use my walker more than my cane.
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Ampyra (dalfampridine) for Multiple Sclerosis: I've taken Ampyra for seven months. I went from wheel chair to walker to cane in two months. Now I only use the cane when going out. It has done wonderful things for me.
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Ampyra (dalfampridine) for Multiple Sclerosis: Ampyra has made my quality of life a more positive experience! I used to have problems with my gait, Ampyra makes it so I am able to walk straight again. Also, I have noticed a drastic change in my cognitive functions. My thought process, language barrier and my ability to remember things short term has improved. I can really tell a difference if I forget a dose! Not a cure, but a step in the right direction!
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Ampyra (dalfampridine) for Multiple Sclerosis: I have SP Multiple Sclerosis and when I first tried Ampyra I thought it was a miracle medicine. I have now been on it for over 1 year and the positive effects have unfortunately diminished. I have had shoulder pains for some time and I am going off Ampyra for 1 week to see about any changes.
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Ampyra (dalfampridine) for Multiple Sclerosis: I have been taking Ampyra for 3 months and have noticed my weak leg is stronger and faster. My son noticed I was taking the stairs faster as well. I can put my leg in my pants while standing without using my hand to help it. I had insomnia at first but changed the times to 5 am and 5 pm with two ibuprofen at 5 am since I noticed some back pain in the mornings. That's gone.
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Ampyra (dalfampridine) for Multiple Sclerosis: I love Ampyra. It's such a shame it is expensive to get. I can now make it to the bathroom in time. HUGE improvement with that alone. But I can walk upstairs without lifting my legs with my hands.
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Ampyra (dalfampridine) for Multiple Sclerosis: I have had amazing results with Ampyra. I was relying on a walker more and more often because of leg weakness. Within two days of starting the medication; I was back to a cane and not even full time. After two weeks; I can now stand on my own for 4-5 minutes and can walk much faster without foot drop. The only reason I didn't give it a 10 out of 10 is because of mild side effects (nausea and headache).
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Ampyra (dalfampridine) for Multiple Sclerosis: It's been 9 yrs, and I am SP. Ampyra strengthens both legs. At times I walk on my own. When I did not have Ampyra, I needed my scooter. Now that I have Ampyra, I am walking again with my crutch cane. It's a start, I have no side effects, and I recommend trying Ampyra.
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Ampyra (dalfampridine) for Multiple Sclerosis: It is an amazing medicine. My right foot drop has improved tremendously. I can wash dishes without having to sit halfway through. I am glad to read others are experiencing wonderful effects too. It is my miracle.
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Ampyra (dalfampridine) for Multiple Sclerosis: Caused constipation, but the medicine has definitely increased the quality of life. I have been on it for 6 months and it is as good today as that first couple weeks.
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