Carbamazepine User Reviews & Ratings (Page 3)

• az200
• Taken for 1 to 6 months
• February 3, 2015

Tegretol (carbamazepine) for Trigeminal Neuralgia "Worked great on the pain. But my AST levels went through the roof. I am now unable to take them. Awaiting MVD surgery that can't come soon enough. Please ensure your doctor gives you regular blood tests. Mine did not hence my liver problems."

• Sonya
• Taken for 10 years or more
• February 11, 2021

For Trigeminal Neuralgia "About 2005 I got small shocks on my face and of course I ignored them had to go to work. Then was outside in the heat 2006 and I had a pain when my front tooth hit together. Of course I thought it was my teeth. My dentist said it's not my teeth. Go See a neurologist. So I saw my neuro. And he said it was either MS or trigeminal neuralgia. After tests. Lucky me it was both. He told me to start my MS meds and medication for the TN. I lived with the shocks that were building up in size. Til one day when my parent called ttyt he neuro and he gave me carbamazepine 200mg. It took half an hour to stop the pain. Been taking carbamazepine now since 2008. I find I have not been able to live my life with out it. I'm taking now 800mg. Then I found out I have osteoporosis. Tried to switch medication because of it. It won't let me. I tried all types of medications. Broke four bones so far. But I have to live with it now."

• Fight...
• August 2, 2015

Tegretol (carbamazepine) for Bipolar Disorder "I currently take 300 mg of carbamazepine a day. 100mg in morning and 200mg at night. Which is hard for me to remember the different doses because this medication causes me to forget everything. I also had really bad nausea and hot flashes when I first started taking it. I quit smoking cigarettes and drinking alcohol on this drug. Super amazing accomplishments, but on the other hand I have lost three jobs in six months. Before tegretol I was taking 300mg of seroquel XR a day and it made me a completely unemotional zombie. So It's hard for me to control myself sometimes because I'm feeling all these things I haven't felt before . I hope tegretol can work for me though and be my miracle drug, because changing meds is my living nightmare."

• guido
• August 5, 2016

For Trigeminal Neuralgia "Reading all your testimonies gives me hope. All though a few of you have had a bad experience or no relief at all. Majority seems in favor. I was recently diagnosed with TN. Never heard of it, also never felt pain like this in my life. Wakes me up, only eat when I'n starving, haven't been to the gym in 3 weeks. I've only been on it for 3 days and so far no change. I guess it takes sometime to get into your system. 100 Mg 2 times a day. Not tired or dopey at all. Seems like the people with the higher Mg have those symptoms. Well wish me luck. One thing I just recently discovered, if i'm looking down I start to get that twitch in my lip. Then I lean my head way back as I was lookin in the sky it seems to calm down."

• Anonymous
• March 12, 2012

Tegretol XR (carbamazepine) for Trigeminal Neuralgia "It worked OK but had a dramatic effect on my mental capacities. I was in the aircraft business and it got to the point where I felt I was becoming a danger to my customers and myself because of my inability to remember. The day I couldn't recall my favorite grandson's name was the day I quit taking it. I underwent a radiological procedure (gamma knife surgery) at UAMS in Little Rock, that cured the problem. I only have a mild flare up occasionally but it's nothing to what I used to suffer and is usually short-lived. I would recommend this procedure to anyone. It's painless and effective and was a God send to me."

• Gimino
• Taken for 2 to 5 years
• July 16, 2012

Tegretol (carbamazepine) for Peripheral Neuropathy "Regarding my peripheral neuropathy: Had reached max daily allowable level of Neurontin and was put on Tegretol, 200mg, 4 x daily. Brought it down to one tab daily and have not looked back. Never any side effects. Condition greatly improved! Cannot remember my last "attack"."

• Sarah...
• November 10, 2017

Tegretol (carbamazepine) for Trigeminal Neuralgia "I have been on tegretol for seven years now,I still have general pain with the occasional flair up of unbearable pain that I had before taking this medication. I am also on a high dose of folic acid as I became very anemic, this caused tiredness. It was just by chance I was diagnosed with TN after being in extreme pain for over 6 months, many doctors and tests one specialist just said it could be this, let's try this drug it may not work but if it does we are on the right track. To be honest with you if she said I needed to cut off a limb to ease the pain at that point I would have asked for the knife. I was miserable the pain was unbearable and so was I. I do feel it is not working as well after all these years may be due for review."

• Taylor...
• Taken for less than 1 month
• October 24, 2012

Tegretol (carbamazepine) for Bipolar Disorder "Caused me to be very drowsy all of the time, sleeping about 16 hours every night and I developed an itchy rash of red pimple-like bumps on my scalp and neckline and middle of my back after taking it for a few days."

• Wiyaka...
• Taken for less than 1 month
• March 29, 2017

Tegretol (carbamazepine) for Trigeminal Neuralgia "Diagnosed with TN about a week ago. I tore a Cartilage in my right knee, which I thought was painful. Well, nothing compares to TN, rather have a daily torn cartilage than this terrible pain. Ended up in hospital being given Morphine, Diazepam, and a Diclophenac Suppository, which is not the most enjoyable method of administration. Doctor has prescribed Tegretol. This has provided some relief, in as much the frequency of the episodes has reduced, but not the severity, which has not been attenuated in any way. At least I can function better than last week. Though now I do feel a bit zombiefied, and as I am unemployed looking for work this does give me some apprehension how I am going to cope with pain, sedation, and interviews.I am a Brit"

• bipol...
• August 17, 2014

Tegretol XR (carbamazepine) for Bipolar Disorder "I was previously diagnosed with major depression with severe anxiety attacks. I was taking anti-depressants and anxiety medication for 3 years. My mood would vary greatly throughout this time period. I was self medicate until one night I tried to drive myself off of a bridge with my car full of people. I realized at that point I needed help and nothing was working. I call my therapist he suggested that I go to the emergency room. I did. I ended up getting admitted for attempted suicide. After a week in the hospital it was apparent I was bipolar and in a episode. I suffer from manic and depressive episodes. They put me on Tegretol XR and I began to be able to actually sleep a whole night and think normally."

• Scott
• Taken for 10 years or more
• October 11, 2020

Tegretol (carbamazepine) for Epilepsy "I was on Tegretol from the mid late 80’s till 2016. It helped in the beginning. But as I got older, add on drugs were needed. Then in 2014, I could not stop eating. I was always hungry, yet loosing weight. I was diagnosed with hyperthyroidism. And I was put on medication for that. In 2016, my doc took me off tegretol and replaced it with lamictal. Once off the tegretol, my thyroid started to function normally. And medication for my thyroid was no longer needed. It’s not a bad drug. But your body changes over time. Another negative about the drug was how frequently I had to urinate. I would have to go at least 15 if not more times a day. Towards its discontinuation, I was on 1200mg of it daily."

• Ezgi
• Taken for 6 months to 1 year
• March 22, 2016

Tegretol (carbamazepine) for Bipolar Disorder "I have been using tegretol for 6 months , 200 mg a day two times. Before this I started with abylify and it did not help me. I feel much more normal than before and I don't feel like I am going up or down anymore. But I think one of the most important thing is also not using alcohol and sleeping 8 hours a day."

• Damis...
• June 5, 2019

For Bipolar Disorder "The carbamazepine has been a real life saver for me. I was hospitalized with psychosis and mania. I can get a racing mind also and/or rapid cycling (manic and depressed). This drug has helped me remain stable. I have been able to raise my son who is now two and even remain calm during tantrums. I needed to increase it many times for significant relief though."

• Anony...
• September 7, 2015

For Peripheral Neuropathy "A neurologist prescribed carbamazepine for my wife to treat persistent pain in the area of her surgery (brain tumor). She was on this drug for two months and it did not have any affect on her pain. It did almost kill her so BE VERY CAREFUL if you take this drug and have side effects such as low energy, drop in blood pressure, dizzy spells, etc. This can be a dangerous drug - in our case it depleted sodium levels and my wife almost went into a coma. It is her third day in the hospital after having to call 911 when she collapsed - she is slowly recovering."

• Monic...
• November 2, 2016

For Trigeminal Neuralgia "My shocks lasted 1-2 seconds,50 times a day..level 4 to 10.I could handle that. a little over a week ago I experienced the most painful shock/stab that was off the charts. It hit me on my right side, my lip gum, nose, nasal passage and spread out into my cheek. It kept striking me and got worse and worse. It left me the same way it came. It lasted about 5 minutes. I started taking the carbamazepine that afternoon. 100 mgX 3 a day. No strikes after 2 doses. I regret telling everyone how wonderful it was working. The last 2 few days I've had 1 small shock a day, I've started to feel pain in my nasal passage. I got a shock this evening about 7. I'm worried the meds going to stop working. I'll add another 100mg at bedtime if need be.I'm scared!"

• WWM
• October 29, 2010

Tegretol (carbamazepine) for Bipolar Disorder "Well, I would say that the side effects, when you stop talking is like so. I feel like I'm shivering inside, one of the worst feeling in the world. So bad that if I miss a dose, I'm waiting at the Pharmacy before its open. I suggest that one doesn't miss a dose."

• Sam-B...
• July 23, 2014

Epitol (carbamazepine) for Bipolar Disorder "This medicine has changed my life. For years, before I was diagnosed... I had no clue what it was like to live with a clear head. I'm able to think and act more rationally. The way I've always wanted to and never could. This medicine solidifies for me that treatment CAN WORK. Changed my life. I'm a happy girl. (and not just when I try to be)."

• Jen
• Taken for less than 1 month
• October 18, 2015

Tegretol (carbamazepine) for Trigeminal Neuralgia "Diagnosed with TN two weeks ago. Within first 24 hours of taking Tegretol, I felt amazing. No pain, clear head etc. A week and a half after starting the medication, I had a horrific TN episode for twenty hours. The pain was so bad it woke me from sleeping. I'm not sure whether to go back to Dr's for an increase or just put it down to allowing the meds to do its thing. Can only wait and see."

• Anonymous
• June 19, 2011

For Trigeminal Neuralgia "I went to several doctors and wasted 5 months and a lot of dollars before I was diagnosed with Trigeminal Neuralgia. I was originally diagnosed with TMJ disorder. My excruciating pain was right in the middle of my ear and it was the worst stabbing, electric-like pain anyone could imagine. It would just paralyze you. No indications on when it would happen. I have been on carbamazepine for about two months and it has work fantastically. It did make me a bit sleepy and unsteady in the beginning, but that has waned and now I really do not have any side effects. I do sleep better at night than I did before I took it. I take 2 chewable tablets, 100 mg, 2x a day and that has taken care of the pain. I have not had any episodes since I started taking it."

• Found...
• Taken for 6 months to 1 year
• May 21, 2012

For Trigeminal Neuralgia "I have trigeminal neuralgia with debilitating shock pain running from my upper gum/lip line up across my face into my eye socket. Carbamazepine was prescribed. After increasing the dosage incrementally, 800 mg a day (500 in the a.m. and 300 in the p.m.) it controls most of my pain. I still have touch sensitivity issues if I run my tongue over my lip too hard it sets off shocks. One thing you need to note: you may have to play around with the dosage and time of day you take it to control your pain. The first suggestion by my neurologist (100mg three times a day) didn't even touch the pain. It was only after I kept insisting that it wasn't working, he turned me loose to trial and error, on my own with an upper limit of 1000mg per day."

• BevMac
• Taken for 6 months to 1 year
• June 20, 2016

Tegretol (carbamazepine) for Trigeminal Neuralgia "Diagnosed with atypical TN after lower orthognathic surgery 20 months ago. Now on 1000mg Gapapentin 3x a day plus prolonged release Carbamazapine 400mg at night. Did start 100mg Carbamazapine in the morning but had problems with vision and balance so decided against it. Drugs working ok. Wish there was a solution to my problem :-( Now just been told by my doc that my white blood count down possibly due to the Carbamazapine so may have to come off it."

• Anonymous
• February 18, 2012

Tegretol (carbamazepine) for Bipolar Disorder "Started taking this medicine about two months ago, after the Lamictal-induced sickness wore off. Up to 400mg now and I think I need a higher dosage as have been manic for a couple of weeks now. But it started to work straight away, and no side effects except for my third day of taking them when I started to get a little confused. Was okay the next day though!"

• Beargo
• Taken for 5 to 10 years
• November 5, 2013

For Trigeminal Neuralgia "I have had trigeminal neuralgia for 8 years.I have been taking carbamazepine on and off for this time.This medicine has been very good for me,as it takes 99% of the pain away,with 800 mg per day.My side effect is tiredness,but I guess that is the price I have to pay for no pain.My TN used to stop after the season changes,but now it hasn't stopped,so it's carbamazepine everyday."

• Felicia
• January 25, 2018

Tegretol (carbamazepine) for Trigeminal Neuralgia "While I've taken tegretol in the past with no issues, this time is different. First time around no side effects. This time - possibly due to other medication - I've had horrible side effects. Headaches every day, dizziness, nausea to the point of not even enjoying a glass of water. Lightheadedness, unsteady on your feet -going for a walk with my friend the other day I MUST have looked like a drunk. TBH -this time around I'd rather have the nerve pain."

• Herbie...
• Taken for 2 to 5 years
• August 21, 2016

Tegretol (carbamazepine) for Bipolar Disorder "I found teratoll very helpful I take I conjunction with mertazapine and it has really changed my life I have many lifetime issues that will never go away but with this combination of drugs I feel my condition is under control now I take 400 milligrams per day of slow release with my dose of mertazapine and I only get angry now like a normal person get irrational only in extreme circumstances but generally I can function fine"