Also known as: Carbatrol, Epitol, Equetro, Tegretol, Tegretol XR
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Review by Anonymous (taken for less than 1 month):
Tegretol (carbamazepine) for Bipolar Disorder: I only took this 1 1/2 days because I had a severe bad reaction physically, but the second evening I was on it I felt so calm, peaceful, and happy, that I didn't even want to fall asleep knowing it would be gone in the morning. I would've given it a 10 if not the physical reaction. I really recommend trying this mood stabilizer for anyone with bipolar and it works in just a couple of days. I was just an unlucky one, again.
Tegretol (carbamazepine) for Bipolar Disorder: I have been taking Tegretol for a couple of years and it really helps with my bipolar. I can notice a big difference compared to if I'm not taking it. I just don't like how it makes my head and tongue feel numb, but it's a small price to pay.
Epitol (carbamazepine) for Bipolar Disorder: I was put on this medicine as a treatment for bipolar disorder. This is like a miracle for me. It has helped my mood stay stable and has helped my attention span as well. And its very affordable.I would recommend this to anyone for treatment of bipolar disorder. It has saved my life.
Tegretol (carbamazepine) for Bipolar Disorder: Thought I would share my experiences on "Tegretol" too. I have been on Tegretol for 3 days now and can tell a HUUUGE difference! I have not been given the "full blown" Bipolar diagnose yet, I think this will need some more in depth conversations with my psychiatrist. Well yes I was given Tegretol as a mood stabilizer on Wednesday. I took the first 100mg before I went to sleep. The next morning I didn't really feel any different, it was maybe in the evening or the afternoon that I noticed an improvement. I was a lot calmer, my thoughts were gathered, this has been the case until this day. I will ask my psychiatrist to up the dosage of Tegretol but it's early days yet. All in all I love this medication.
Review by missbones (taken for less than 1 month):
Tegretol XR (carbamazepine) for Trigeminal Neuralgia: I have been on Tegretol XR for about 3 weeks now for Trigeminal Neuralgia. I take 100 mg 2x a day. It took like two days for it to work. I only start to have pain from the attacks when I'm due for my next dose. And it's not nearly as bad. The only problem is that I'm already on pregabalin for fibromyalgia, so the Tegretol added makes me totally out of it. I can't remember things, I'm double drowsy all day, I zone out, and I don't like that it has negative interactions with about 500 medications including Tylenol, which I usually take for breakthrough pain because ibuprofen doesn't work on me. So overall, it helps but I really hope I don't have to take this for a long period of time.
Tegretol (carbamazepine) for Bipolar Disorder: I have been on this medicine since late September of this year (2013). I was on Abilify since I was 7 years old. I am now 21. I have gone from being a stick figure to a 254 pound blowfish and I'm 5.9". Since being on Tegretol. I have lost over 20 pounds and am eating less and am more on average scale of what a human being should be consuming on a daily basis. I love this medicine. It helps me think clearly meaning I am much more calm and stabilized with my bi-polar. The ONLY complaint I have is I am constantly having heat-flashes. I am male by the way. I have asked many different psychiatrists, pharmacy, and my PCP about it. None have ever found that to be part of the side effects. I rather deal with this then major weight gain from Abilify.
carbamazepine for Bipolar Disorder: For effectiveness in my case, this medicine gets a 1. For keeping me manic the entire time it was prescribed, it gets a 10. My bipolar mania even seemed to be triggered and brought on originally from this. A huge and long episode ensued about 2 weeks into its initial use. For the most part, the mania was of the more pleasant and euphoric type, rather than the agitated and awful one. It did do one thing. It made me absolutely certain that I had bipolar disorder, without a single doubt. It worked effectively on my late mother, but just kept me artificially happy. Like any psych med, it's hit or miss and, essentially, I struck out.
Review by Cairo John. (taken for 10 years or more):
carbamazepine for Trigeminal Neuralgia: Been taking for 10 years. Just had a bad 3 months and it took 1600mg for 3 weeks to control it. Now back to 1200mg and am reducing 100mg every 2 weeks. I was down to 600mg prior to this. A very heavy cold set it off this time. For some strange reason, 1 x400mg tablet is far more effective than 4x100mg tablets. I am in UK so no insurance and little cost.
carbamazepine for Trigeminal Neuralgia: I have had trigeminal neuralgia for 8 years.I have been taking carbamazepine on and off for this time.This medicine has been very good for me,as it takes 99% of the pain away,with 800 mg per day.My side effect is tiredness,but I guess that is the price I have to pay for no pain.My TN used to stop after the season changes,but now it hasn't stopped,so it's carbamazepine everyday.
Tegretol (carbamazepine) for Epilepsy: This medicine has given nothing but trouble. Headache, Feeling sick and worse of all I now have a very itchy rash all over my body which is driving me round the bend.
Carbatrol (carbamazepine) for Epilepsy: I'm 51, been having seizures since I was 12. Carbatrol and Depakote are what I'm taking now for about 20 years. These are the only medications that seem to work for me, I've been considered controlled, I drive, the best thing that happen to me. Only thing they are just so expensive.
Equetro (carbamazepine) for Bipolar Disorder: I have taken a lot of medicines and hated all of them or they didn't work for me. This one actually works but my sex drive, well I have none now and that in turn makes me depressed so I think my doctors going to have to try something else.
Review by rowdytexan (taken for 10 years or more):
Carbatrol (carbamazepine) for Epilepsy: I was put on this medication over 11 years ago. I had to be boosted up to 1200mg daily to get the blood serum level in the right area. It had to be combined with Keppra to finally help me obtain control of my epilepsy. It has been very effective the past 11 years, and I have had no side effects with it.
Tegretol (carbamazepine) for Epilepsy: There is nothing more scarier than that first few seconds when your seizure starts and nobody is around. Tegretol has saved my life! I am so thankful my doc put me on these tablets 200mg three times a day and I'm happily seizure free.
13 users found this comment helpful.
Tegretol (carbamazepine) for Trigeminal Neuralgia: Stoped the pain of trigeminal neuralgia. Side effects like unsteadyness, fingers twitching, sore joints, seeing aura's, reading difficulties, speaking difficulties.
19 users found this comment helpful.
Review by Lindy1628 (taken for less than 1 month):
Tegretol (carbamazepine) for Trigeminal Neuralgia: I have been put on this medication for pain. After 6 mouth operations - I was left with terrible upper gum and palate pain. I have only been on it for 5 days - it is not working. The pain is severe and constant. I am praying - as I take it longer - it will take the pain away.
Tegretol (carbamazepine) for Schizoaffective Disorder: Tegretol is very effective for my mood swings and hallucinations. It helps slow the racing thoughts and hyperactivity and thinking people are out to get me and helps with hearing voices. When I do not take it, everyone can notice a huge difference in how I act.
10 users found this comment helpful.
Review by Carbatrol Free (taken for 5 to 10 years):
Carbatrol (carbamazepine) for Epilepsy: I have had epilepsy for 14 years now and during the first 9 years I took Carbatrol. At first it was great seizure free then the side effects kicked in. I was depressed and had anxiety, my emotional state changed. I felt nausea, dizzy, and sometimes uncomfortable in my body. I switched to
Keppra and I'm happy. I'm normal moods and so far no side effects in Keppra.
Tegretol (carbamazepine) for Trigeminal Neuralgia: I was initially put on Tegretol only to have it stop working after about 3 weeks. Dr. added Neurontin and eventually had surgery to remove the blood vessel and wrap the nerve. Best of luck to anyone with this terrible condition.
13 users found this comment helpful.
Review by feeling normal (taken for 6 months to 1 year):
carbamazepine for Bipolar Disorder: This is the ONLY thing that has worked for me. I was diagnosed with a 'nonspecified mood disorder', feeling totally out of control, no concentration, extremely irritable, suicidally depressed, angry, extremely everything, you name it. Tried on Lexapro (small effect, then nothing), Effexor (killed my whole soul- left me feeling nothing at all and HORRIBLE to wean off off and gained 30 pounds in two months), Zoloft (turned me into a raging psychotic mess- violently angry ideations, a real nightmare), Xanax (psychosis), self-medication (won't go into that, but obviously not a good idea)....anyway, you get the gist. This medication gives me NO side effects and just took away my 'craziness' it changed my life.
15 users found this comment helpful.
Tegretol (carbamazepine) for Epilepsy: Have been taking for 13 years. Have been seizure free. It has changed my life. Only side effect I've noticed is a little more tired than normal. Only sometimes. Other than that good to go!
19 users found this comment helpful.
carbamazepine for Trigeminal Neuralgia: I started taking gabapentin for my trigeminal neuralgia nearly 3 years ago but it gave me alarming mood swings, I nearly hit my wife! This sent me back to the doctor and I was put on pregabalin which was slightly better on the moods swings but became less effective over time. Now on Tegretol slow release (400mg morning and 600mg evening) it allows me to work but in some pain. I tried 600mg twice a day but I slept all day every day for a month. Breakthrough pain can be helped by taking tramadol and Co-codamol although only slightly. Overall good but it will leave you sleepy and forgetful - don't forget it's job is to slow the neurons in you're brain (I believe it was originally developed for epilepsy). Don't expect to be completely pain free and good luck.
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