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User Reviews for carbamazepine systemic

Also known as: Carbatrol, Equetro, Tegretol, Tegretol XR, Epitol

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about carbamazepine systemic.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Bipolar Disorder 10 review(s) 59 medications
8.1
Epilepsy 20 review(s) 24 medications
7.6
Diabetic Nerve Damage 0 review(s) 39 medications
7.5
Trigeminal Neuralgia 8 review(s) 15 medications
7.5
Peripheral Neuropathy 0 review(s) 13 medications Not rated - Be the first
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Anonymous user said:
User Rating:  
10
Tegretol (carbamazepine) for Epilepsy: I have taken Carbamazepine for 36 years and have experienced no significant side effects. I take 400mg per day and have gained almost total control of my condition. No seizures since 1983. Do not cease taking Carbamazapine suddenly for any reason whatsoever. The withdrawal can be extreme. The ER medication is very useful.

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November 3, 2009 11:21 PM
Anonymous user said:
User Rating:  
2.0
Carbatrol (carbamazepine) for Bipolar Disorder: Had a hard time putting thoughts together.

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September 30, 2009 12:50 PM
Anonymous user said:
User Rating:  
5.0
carbamazepine for Trigeminal Neuralgia: After a week, started having anxiety attacks, which was disappointing because it was relieving the pain in my face.

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September 28, 2009 4:12 PM
Dije (unregistered) said:
User Rating:  not submitted
Tegretol XR (carbamazepine) for Trigeminal Neuralgia: Worked wonders for me for 25 years and slowly stopped being so effective. It is AMAZING for face pain. I took 600 mg for 24 years and then upped to 1000 daily until it became time to change. Still looking for something new.

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September 22, 2009 5:25 PM
Anonymous user said:
User Rating:  
10
Epitol (carbamazepine) for Bipolar Disorder: I took Epitol for a while and loved it.

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September 21, 2009 2:05 AM
Anonymous user said:
User Rating:  
3.0
Tegretol (carbamazepine) for Trigeminal Neuralgia: I have trigeminal neuralgia and have been suffering from it for quite some time. I was put on 300 mgs twice a day and it didn't help at all and the attacks were just getting more severe and frequent, so the neurologist upped it to 900mgs a day. Still no relief! I have been on two other kinds and pretty much have to rely on pain medication which doesn't even relieve all the pain.

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September 20, 2009 3:18 PM
Lynnie B (unregistered) said:
User Rating:  
9.0
carbamazepine for Bipolar Disorder: I have been on 400mg once a day at night since I got diagnosed with bipolar 4 months ago and I am definitely more stable. I haven't had a manic episode since. I have had a few depressed times but not to the extent of before. Carbamazepine is definitely doing it's job at stabilizing my moods.

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September 20, 2009 1:15 PM
Anonymous user said:
User Rating:  
10
Tegretol (carbamazepine) for Epilepsy: It works!

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September 12, 2009 5:46 PM
Anonymous user said:
User Rating:  
8.0
Epitol (carbamazepine) for Bipolar Disorder: Works very well in stabilizing mood. I need a very small dose twice a day, and I haven't noticed any side effects. Except maybe acne. Although I don't know if that is the cause. I have been on it nearly 2 months now and I notice progress everyday. I am able to focus and accomplish tasks instead of being scattered and all over the place.

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August 30, 2009 7:57 PM
Anonymous user said:
User Rating:  
9.0
Tegretol (carbamazepine) for Trigeminal Neuralgia: I have been suffering from Trigeminal Neuralgia for almost 8 years thinking that I was having tooth problems. Since my symptoms would come and go, I never did any further research and accepted my dentist's explanation that it was just sensitive teeth. This time, I couldn't accept that and decided to research further. Thank goodness I did and thank goodness for Tegretol! After being on it for only 2 days I am experiencing almost total relief! TN was the most painful experience of my life. The only down side to the medicine so far has been some light-headedness, which I am hoping will diminish or go away completely.

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August 27, 2009 10:13 AM
laurel3865 (unregistered) said:
User Rating:  
9.0
Tegretol (carbamazepine) for Trigeminal Neuralgia: I have been on Tegretol for only 2 weeks and it gave me much relief. Neurontin and Topomax did not work for me. Only side effect of Tegretol is sleepiness. I sleep very well at night. I was prescribed 200mg twice a day, but only take it once a day. Sometime I take it twice a day if pain in morning is constant.

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August 22, 2009 10:31 AM
Debbie :) (unregistered) said:
User Rating:  
10
carbamazepine for Epilepsy: I took this medicine for twenty-three years. It was great for me. As long as I took it on time, I had no seizures. I have tonic-clonic epilepsy.

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August 19, 2009 12:43 PM
Select Members have provided additional information by completing the member surveytabeloe said:
User Rating:  
9.0
Tegretol (carbamazepine) for Trigeminal Neuralgia: I started Tegretol a week ago for Trigeminal Neuralgia. I was having more and more episodes of TN, and was miserable. Since starting the medicine, I have only had one brief episode of pain. I have had terrible itching since I started taking it. I saw a different Doctor today about the itching, and he said the dose was too high. Hopefully the 100 mg twice a day will relieve the TN pain and not cause itching. I am happy to try the Tegretol, because TN pain is unbearable. Worse than any pain I've ever had (including labor, c-section pain, and oral surgery pain.

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July 17, 2009 3:27 AM
Anonymous user said:
User Rating:  
9.0
Tegretol (carbamazepine) for Epilepsy: I HAVE HAD SEIZURES FOR TWENTY (20) YEARS NOW. i HAVE TAKEN EVERYTHING THERE IS TO TAKE, NOTHING WORKED EXCEPT FOR TEGRETOL. HOWEVER, I STILL HAD BREAKTHROUGH SEIZURES, SO NOW I TAKE KEPPRA WITH THE TEGRETOL. I HAVE NOT HAD ONE SEIZURE FOR THREE (3) YEARS NOW. WOW, OH WHAT A FEELING!

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July 14, 2009 6:36 PM
Anonymous user said:
User Rating:  
9.0
Tegretol XR (carbamazepine) for Trigeminal Neuralgia: I have constant pain in my neck, scalp, left thumb. Tegretol helped but compromised my bone marrow. Be sure to have to have CBC blood work regularly.

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July 4, 2009 7:14 PM
Anonymous user said:
User Rating:  
10
Epitol (carbamazepine) for Bipolar Disorder: Epitol has helped me immensely. It pulled me out of a manic phase (after withdrawing from lithium, which didn't work) and has helped me from going into a deep depression.

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June 7, 2009 10:53 PM
SUSU1 2769 (unregistered) said:
User Rating:  
8.0
Epitol (carbamazepine) for Epilepsy: EPITOL IS AN OKAY DRUG BUT LIKE ANY DRUG IT HAS ITS PROBLEMS LIKE NO SEX DRIVE, AGGRESSIVE BEHAVIOR AND MOOD SWING BUT IF I DON'T HAVE ANOTHER SEIZURE IT IS WORTH IT AND SO FAR SO GOOD.

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June 6, 2009 5:17 PM
Membercwboone98103 said:
User Rating:  
9.0
Carbatrol (carbamazepine) for Epilepsy: I've been using this for 5 years now, no side effects.

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May 17, 2009 3:30 PM
The Geek (unregistered) said:
User Rating:  
9.0
Tegretol XR (carbamazepine) for Epilepsy: Tegretol XR works well in controlling partial onset seizures. Just as long as you take it vigilantly and sleep regularly. There are two things that keep this medication from being a ten. The first is the fact that your body becomes resistant to the effects of the medication resulting in a never-ending dosage increase to maintain your results. The other is one of the side effects of this medication is unsteady hands, and that can make certain tasks somewhat difficult, but as long you follow simple guidelines, this medication in conjunction with another anti-convulsant does quite well at keeping your disorder in check.

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April 9, 2009 3:49 PM
Anonymous user said:
User Rating:  
9.0
Tegretol (carbamazepine) for Epilepsy: I have been diagnosed with absence seizures for 6 years now, and have been taking Depakote ER. I have been seizure-free for 4 years, but have had severe migraines on and off, usually more during times of intense stress. My doctor prescribed me Tegretol to take as needed for them about a year ago, and it has always been 100% effective. The only side effect is that it makes me very drowsy.

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April 9, 2009 12:59 AM
Anonymous user said:
User Rating:  
5.0
Tegretol (carbamazepine) for Bipolar Disorder: My only real problem with my bipolar disorder is my aggressiveness and this medicine like the other 13 I've been on does nothing for it.

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April 4, 2009 12:33 AM
happy50 (unregistered) said:
User Rating:  
10
Tegretol (carbamazepine) for Bipolar Disorder: I have been using Tegretol for 6 months for BiPolar and I have felt happier consistently for the first time in my life. I have tried many others over 15 years and Tegretol has changed my life. I have had no side effects! Go Tegretol!

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April 2, 2009 5:44 AM
Anonymous user said:
User Rating:  
9.0
Tegretol XR (carbamazepine) for Trigeminal Neuralgia: Although the side effects can be very difficult to deal with but the pain of Trigeminal neuralgia is far far worse. This last attack that I had with the disorder put me to my knees begging to die so I started my Tegretol once again and now 6 days into it no pain at all. I am very nauseated and extremely dizzy but I will take the side effects over the pain any day of the week.

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March 8, 2009 7:41 AM
gaby_ro_2004 (unregistered) said:
User Rating:  
10
Tegretol (carbamazepine) for Epilepsy: I had my last seizure 6 years ago. I take Tegretol and Topamax 100.

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February 2, 2009 11:58 AM
kaysa (unregistered) said:
User Rating:  
10
Tegretol (carbamazepine) for Epilepsy: Tegretol gave me my life back - gave me freedom from tremors and seizures. I am a brain tumor patient.

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January 27, 2009 11:59 AM
Select Members have provided additional information by completing the member surveySteph73 said:
User Rating:  
10
Tegretol XR (carbamazepine) for Epilepsy: I have been on Tegretol for 20 years. I was switched to the Tegretol XR a few years back. I noticed no diffrence with the medication. Very good medicine with no significant side effects.

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January 22, 2009 9:02 AM
GeoRo (unregistered) said:
User Rating:  
10
I am 51 years old and have been seizure free for 12 years with Tegretol XR. I have no noticeable side effects. I am extremely satisfied with this drug.

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January 13, 2009 12:50 AM
Select Members have provided additional information by completing the member surveywanda-1tiscali.co.uk said:
User Rating:  
7.0
Tegretol XR (carbamazepine) for Epilepsy: I have been diagnosed with Temporal Lobe Epilepsy (seizures are so fleeting that I referred to them as funny turns). Lamotrigine worked for 4 months and then I was changed to Tegretol Retard which for the last 3 months has been effective. Side effets were tiredness and a rash which was treated with an antihistamine.

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January 6, 2009 2:43 AM
romagna73 (unregistered) said:
User Rating:  
6.0
Tegretol (carbamazepine) for Bipolar Disorder: I liked it more than valproate since it doesn't affect your weight.

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December 21, 2008 12:52 PM
Anonymous user said:
User Rating:  
10
carbamazepine for Epilepsy: I have been taking carbamazapine for about 5 years and it has helped a lot. I didn't have any side effects after the first month of starting it and it has stopped my seizures.

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December 9, 2008 2:00 AM
Anonymous user said:
User Rating:  
2.0
Tegretol (carbamazepine) for Epilepsy: My neurolgist just discovered I had seizures about a month ago and it has been constant trial and error finding a medication that will work. I was taking 600mg of Tegretol for the last week and I developed a awful red rash and itching all over. My doctor has changed me to dilantin today and I hope I do better on that. Keppra was the first drug and that didn't help.

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December 8, 2008 2:37 PM
Memberdskeller said:
User Rating:  
3.0
Tegretol (carbamazepine) for Epilepsy: After being on this medication for seven years I am still having break through seizures. I have now developed lucopenia as I did with Depakote. Now I have to go through the trial and error of finding a new medication.

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June 13, 2008 11:42 AM
tinux (unregistered) said:
User Rating:  
9.0
carbamazepine for Epilepsy: I am 24 years old and have been using this medication for the past 10 years. My dosage has been increased as my body grew. I have found it to control my seizures very well. I had initial fatigue, head aches, but they subsided after the first couple months. The reason I rated it at 9 is because I have not tried any other drugs, primarily for fear of losing the control Tegretol provides currently.

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May 22, 2008 11:13 PM
xxmicxx (unregistered) said:
User Rating:  
10
Tegretol (carbamazepine) for Epilepsy: I found ever since I've been on tegretol my seizures have stopped

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May 19, 2008 5:59 PM
cristalle65 (unregistered) said:
User Rating:  
9.0
carbamazepine for Bipolar Disorder: This has worked better than any other medicine I have used to treat mania. I only had slight fatigue when starting the medicine but it disappeared after a few weeks.

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May 10, 2008 9:05 AM
jmccorkle (unregistered) said:
User Rating:  
9.0
Tegretol XR (carbamazepine) for Epilepsy: I am a 55 year old male with rare seizures. I have taken regular Tegretol in the past, but didn't like it because of the side effects with fatigue, confusion, and memory loss. I have been on Tegretol XR for the last five and a half months, and have been very pleased. The side effects seem to be much less and allow me to function much more normally.

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March 9, 2008 12:28 AM
Memberreneedilks said:
User Rating:  not submitted
Tegretol (carbamazepine) for Bipolar Disorder: my son age 5 has used tegretol for the past 6 months for bipolar disorder - it has shown a great improvement in his mood changes and has allowed others to accept him more. if the tegretol is not given we notice a huge mood swing and rage and depression becomes more apparent.

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February 18, 2008 11:08 AM
Memberboslackey said:
User Rating:  not submitted
Tegretol XR (carbamazepine) for Epilepsy: I am 41 years old and have epilepsy. I take 1000 mg of tegretol xr and have been seizure free since 12/01. However, the side effects of the tegretol xr(to me) are significant. I have constant exhaustion and have trouble with my hand-eye coordination and memory.

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October 3, 2007 6:35 AM
Membertanacrn said:
User Rating:  not submitted
Tegretol XR (carbamazepine) for Epilepsy: My daughter has recently been taking Tegretol XR for the last 2 months. She has had a really good tolerance for this drug with very few side effects and an amazing cut back to her seizures. I prefer this drug to any of the other's she has tried. She is not dopey and still has her wits about her, unlike with the other meds she had been on. Tegretol has been really good for her so far.

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August 13, 2007 11:08 PM

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