User Reviews for Acetazolamide

Also known as: Diamox, Diamox Sequels

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Acetazolamide.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Mountain Sickness / Altitude Sickness 4 reviews 32 medications
   
9.5
Edema 2 reviews 52 medications
   
8.0
Pseudotumor Cerebri 21 reviews 2 medications
   
7.7
Hydrocephalus 0 reviews 2 medications
   
7.0
Epilepsy 1 reviews 28 medications
   
6.7
Glaucoma 9 reviews 40 medications
   
5.9
Seizure Prevention 1 reviews 34 medications
   
5.0
Summary of Acetazolamide reviews 38 reviews 7.3

Reviews for Acetazolamide

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Review by LewyLew:

User Rating:  
   
10

Diamox (acetazolamide) for Pseudotumor Cerebri: I was diagnosed with idiopathic intracranial hypertension in the early summer of 2013. I was put on 1000mg of Diamox at the beginning of November 2013 to keep the fluids from damaging more of my vision through swelling of my optic nerves. Felt the side effects within the first hour. Tingling in my hands and feet, some days my face. There were even days when my eyes and lips would twitch. All carbonated drinks taste like drinking battery acid. The first few weeks sucked, but it gets better with time. I just saw my eye specialist yesterday, 6 months of being on the miracle medicine, and the Diamox (and shedding a few pounds) has done it's job and not a trace of swelling! I'm able to come off it in a few short weeks. Thank God for good doctors!

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May 2, 2014 8:06 PM

Review by Marydoll:

User Rating:  
   
8.0

Diamox (acetazolamide) for Glaucoma: I am taking Diamox this is the 3rd time I have been prescribed this. It definitely works but side effects this time worst of all. Am dizzy and fell, pins and needles hands, feet and face. Headache don't know if medication or from fall. Nausea.

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March 2, 2014 4:21 PM

Review by auraleh (taken for 1 to 6 months):

User Rating:  
   
4.0

For Glaucoma: I have Iritis, so to get rid of the inflamation, I was given Ozurdex which caused intense pressure to 40%. The DR. gave me acetazolamide which got rid of the pressure, but caused these insane rashes everywhere on my legs and extreme muscle pain. The loss of appetite is not a big deal to me as well as the tingly toe thing but I have those as well. I've been on this medicine for 2 months and just realized my symptoms are as a result. I seem to be the only one with these crazy side effects so if anyone else has them, please share and tell your DR.

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February 20, 2014 3:45 AM

Review by Rainbow_d:

User Rating:  
   
9.0

For Pseudotumor Cerebri: I have been on acetazolamide 500mg 3xper day. On the first day I experienced tingling on my feet that lasted at most 5 minutes and I woke up disorientated on whether it was 9 the same night, the next night, or the next morning. I have a ridiculously busy schedule and I'm always tired so I am still unsure if I have experienced fatigue due to the medicine. Get the capsules instead of the tablets if possible. Tablets release all 500 mg at once. The capsules release little by little so you don't get all the side effects just dumped on you. With the capsules side effects seem to be lighter in intensity. Soda tastes like crap. I already urinate frequently due to my water intake. My psuedotumor symptoms have disappeared though.

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January 26, 2014 10:05 AM

Review by NurseERkels:

User Rating:  
   
3.0

For Pseudotumor Cerebri: I was diagnosed with pseudo tumor cerebri almost two years ago now and I've had a spinal tap done after a year of crippling painful headaches, blurred vision, bright red inflamed eyes, dizziness, the spinal tap unfortunetly went wrong and I had a spinal leakage from the high inter cranial pressure with an absolute horrible spinal headache so I had to have a blood patch then put on acetazolimide with the painful tingling sensations on my face arms and feet I couldn't sleep and I pee all night. I take 1500mg of it 3 pills a day and although it's helped clear my eyes my headaches, the wind tunnel noise in my ears of the fluid is still very loud I'm totally off balance and I have forgetfulness all the time not to mention I'm always tired.

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January 25, 2014 2:05 AM

Review by Anonymous (taken for less than 1 month):

User Rating:  
   
10

Diamox (acetazolamide) for Mountain Sickness / Altitude Sickness: Works very well to prevent symptoms of Acute Mountain Sickness with no perceived side effects. I take 125mg twice per day as recommended by the altitudemedicine.org website for high altitude hiking. This actually speeds up the bodys acclimitization process and doesn't just treat the symptoms. Highly recommend it for staying well on high altitude pursuits.

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January 20, 2014 2:36 PM

Review by CHELS6189:

User Rating:  
   
7.0

For Pseudotumor Cerebri: I was diagnosed on a wednesday and by thursday I had started taking this medication. It did not kick in until the third day when I finally woke up without a headache. However, after one day of the pill I have seen its side effects. All beverages with carbination are now out of the question, they taste horrible. Pepsi tasted like soapy dish water with a hint of bleach and I noticed the tingling in my lips. The tingling in my lips and legs however does not bother me. I just find that my legs fall asleep faster if I'm not moving them. When my lips tingle it kind of makes me laugh, it wont freak you out. Hoping that by the end of the week the headaches are completely gone!

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December 22, 2013 11:19 AM

Review by Waffy:

For Glaucoma: I was placed on diamox along with other medications as a means of reducing Intraocular Pressure after having being told of having ocular atrophy. It really works, but had tingling effects in my hands and feet as well as the drowsiness/tiredness.

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June 16, 2013 4:40 PM

Review by forever87 (taken for 1 to 6 months):

User Rating:  
   
10

For Pseudotumor Cerebri: The first two weeks I had general numbness of my whole face, tried to take a sip of soda and everyone thought I was overreacting to how disgusting it tasted. I also had terrible pins and needles in my feet that woke me up in the middle of the night. That has gone away now but when they upped my dose I discovered now that I am having severe joint pain in my knees and have been unable to function regularly at my job which I was very good at before. I forget stuff very easily, which I didn't know is a side effect but I saw others here stated the same. I still give it a 10 because despite the side effects it beats the alternative because I have not had a headache since I started the medication and my eyes get better everyday.

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May 6, 2013 9:03 AM

Review by QualityRN (taken for less than 1 month):

Diamox (acetazolamide) for Pseudotumor Cerebri: I was just diagnosed last week with PseudoTumor Cerebraii. I had my first spinal tap yesterday.I started Diamox today. About 4 hours after the first dose I took a sip of Mountain Dew and about vomited. It tasted like drinking melted nails. My appetite is lessened which I am so glad about. I am 60 lbs overweight. My mouth is dry and my lips are somewhat numb. But from everything I have read the side effects to this medication or any other would have to be really bad before I'd say I can't take this medication any more. I pray the meds work so I do not need a shunt. I did not think of this as a disease. I thought it was just an occurrence like reflux or migraines.

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March 16, 2013 9:49 PM

Review by exwvgirl (taken for 10 years or more):

User Rating:  
   
10

Diamox (acetazolamide) for Pseudotumor Cerebri: I have been on Diamox for many years. Started out with tunnel vision and then found to have pseudotumor cerebri (which my mom has too). I have even had lumbar punctures to drain the fluid off my brain as well in the beginning. This medication has worked wonders. I did have tingling and numbness in my feet, finger, nose, lips but that eased off by taking Vitamin C or eating oranges, (this was recommended by my doctor and it works). Now the tingling and numbness are gone. I don't know what I would have done without this medication. Now all I do is take the medicine once a day and move on with my life. Please hang in there and don't get discouraged.

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January 22, 2013 9:29 AM

Review by MogulMonster:

User Rating:  
   
10

Diamox (acetazolamide) for Mountain Sickness / Altitude Sickness: I don't always use medication when I go skiing in higher altitudes but when I do I prefer Diamox. This is a God send when I am sleeping at 10,000 ft and skiing at 12,000-14,000 ft. I tend to get a little clumsy and do not have the focus and sharp alertness while taking the medicine. I just need to take the medication starting a couple days before the trip for about 4-5 days. The whole process is all about getting your body acclimated to the change in altitude from sea level to 10,000 ft in a few hours. Other preparations are still needed such as avoiding alcohol, caffeine, NSAIDs, aspirin, sleeping agents. Start drinking a gallon of water each day while on this medicine.

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January 17, 2013 9:20 AM

Review by AngeS (taken for 1 to 6 months):

User Rating:  
   
3.0

Diamox (acetazolamide) for Glaucoma: I have been recently diagnosed with the disease called BIH which occurs mostly in women and very young children and currently taking Diamox with annoying side effects such as pins and needles in feet, hands and lips which can last up to 2 hours at a time and be painful. I wake every night with interrupted sleep with a headache or temperature! I have been turned off a lot of food but mainly fizzy drinks.

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November 28, 2012 4:41 PM

Review by Bkcwjzy (taken for 2 to 5 years):

User Rating:  
   
8.0

For Pseudotumor Cerebri: I developed a pseudo tumor over the course of a weekend. My intracranial hypertension onset was so fast because it was brought on by taking an extended round of tetracycline for a persistent sinus infection. My dosage of Diamox had been 1000mg/day but it was flushing my antidepressant out of my system too fast so it was lowered to 500mg/day. The tingling went down, too. I still can't drink carbonated drinks, but that's better for my weight loss anyway.

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November 3, 2012 8:38 PM

Review by Anonymous (taken for less than 1 month):

Diamox (acetazolamide) for Pseudotumor Cerebri: Can I just say for the people that are stating they have tingling/numbness with this medicine. I experienced this over a year and a half ago when I was first put on Diamox, they took me off it and put me on Topamax instead. For a year and a bit I was on Topamax and lost 30kg but the headaches never completely went away. Now I have been put back on Diamox for almost the last two weeks and I find only sometimes will I get any tingling at all... whereas last year when I first tried it I couldn't stand it. What I find works for me is taking the tablet whilst I'm eating, keeping my fluid up (only water), soft drinks and "bad" foods do tend to make it worse so I try to stay away from these. I find Diamox really does work if you're prepared to go that extra mile!

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August 22, 2012 9:25 PM

Review by Anonymous:

User Rating:  
   
3.0

For Pseudotumor Cerebri: My daughter (6) was diagnosed with pseudotumor cerebri one month ago. She had a spinal tap done to relieve the pressure and was put on a very low dose of the medicine (125mg) twice a day. All seemed well for the first two weeks, and now we are back to the beginning with headaches, swelling of the face, blurred vision and unusual tiredness. She saw a neurologist yesterday who doubled her dose. Needless to say--today she was so tired that she took 2 naps! THIS NEVER HAPPENS! I am worried that these are all side effects of the medicine now. As much as I don't want her to undergo surgery for a shunt, I would rather that than have her not be able to function because of these symptoms!

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April 3, 2012 5:25 PM

Review by Anonymous:

User Rating:  
   
5.0

Diamox (acetazolamide) for Pseudotumor Cerebri: I have only been taking the medication for a week. 500mg/day. I have lost 11 pounds in that week due to the loss of appetite. When I do eat I get sick. Nothing tastes good to me anymore. I'm having some crazy dreams at night. I urinate every 2 hours minimum. I get a tingling feeling in my fingers, face and legs. I'm having a spinal tap this Friday to relieve some pressure, I'm hoping after that happens I won't have to take this medication anymore. It has alleviated the headaches though!

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February 6, 2012 1:11 PM

Review by Anonymous:

User Rating:  
   
10

Diamox (acetazolamide) for Pseudotumor Cerebri: I was diagnosed with this condition in 1997. The radiologist said they did not know what caused it and there was no cure but there is medicine to maintain. Many years later with 3 different shunt placements...I now have a shunt that still does not work but I have my Diamox to help me!

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August 24, 2011 5:16 PM

Review by poamflores:

User Rating:  
   
10

Diamox Sequels (acetazolamide) for Pseudotumor Cerebri: While there are some side effects, and it doesn't completely eliminate my condition, Diamox has allowed me to live a normal life. Most people do not even know that I am sick. I also have not had to have a shunt.

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July 14, 2011 9:56 PM

Review by Anonymous:

User Rating:  
   
8.0

Diamox (acetazolamide) for Pseudotumor Cerebri: This medicine helped me so much to relieve some of the pressure in my head and leveled the pressure in my eyes. I also have edema of the legs and it gets so bad that at times I retain over 20 lbs of water which slows me down terribly. The pills helped me greatly and kept me active. However my doctor decided to take me off them and put me on Topamax because though the pressures were down, the headaches and pain was still there. I have gained so much weight because I barely move at times and have not been as active as I once was. My legs and now my abdomen are filled with fluid. Wish I could get Diamox again!

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June 6, 2011 12:09 PM

Review by babylove1820:

User Rating:  
   
5.0

For Glaucoma: I have a lot of fluid in my optic nerve, blurred vision. I have couple days taking this medication twice daily, and it give me some side effects ...gives me tingling in my fingers and toes, nausea and I also experienced dizziness but my doctor says it will go away in two weeks.

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April 7, 2011 5:29 PM

Review by Abree:

User Rating:  
   
6.0

Diamox (acetazolamide) for Glaucoma: I was given Diamox to prevent any increase in eye pressure after an ICL surgery (basically cataract surgery). My pressures were great, but the side effects from this were no fun. I experienced dizziness, tingling in my toes, and worst of all, my taste was off. The worse taste difference I noticed was in caffeinated beverages and that's what caused my to do some looking around to see what was going on.

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March 22, 2011 3:04 PM

Review by Cindyrose69:

User Rating:  
   
5.0

For Seizure Prevention: I am taking carbamazepine for seizures, but found that I was gaining a lot of weight (22 pounds in 2 months). After doing much search on the web I found an article where a doctor did research on 15 patients that had weight gain on carbamazepine and found that by taking the Acetazolamide the patients were able to lose the weight they had gained and maintained the weight lost. Today is day 2 on the Acetazolamide and I am sick to my stomach, feeling a bit dizzy and withdrawn. I would love to lose the weight that many of you have mentioned, but not sure if I want to deal with the side effects to achieve this.

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December 16, 2010 10:54 AM

Review by Anonymous:

User Rating:  
   
5.0

Diamox (acetazolamide) for Pseudotumor Cerebri: I've been on this medication for 2 weeks because of increased pressure in my spinal fluid due to head injuries. While the medicine works amazingly well on the headaches, my brain basically turns to mush when I'm on it and I can't function well enough to do my job or understand my school work. I also have really annoying tingling feelings in my hands, feet and lips that hasn't yet gone away. I wish there was a way to get this to keep working for my headaches.

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November 3, 2010 12:34 PM

Review by jennyd55:

User Rating:  
   
9.0

Diamox (acetazolamide) for Pseudotumor Cerebri: I have been on this medicine for approximately 4 months. The benefits that I have had with my vision and headaches has been wonderful. The things I am not sure about and cannot find much about is that I have a great deal of memory loss. I have searched this on several sites and I cannot find anything about it so I am not sure if it is a side effect or if it is happening to me for some other reason. I have had some confusion since I have started it and that is starting to concern me. The only alternative to this medication is to have a shunt put in and I am not sure I am ready for that. I don't like the fact that I cannot have carbonated beverages but I am sure that it is a good thing as I was a soda addict.

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November 3, 2010 9:50 AM

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