The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
acetazolamide for Glaucoma: I was placed on diamox along with other medications as a means of reducing Intraocular Pressure after having being told of having ocular atrophy. It really works, but had tingling effects in my hands and feet as well as the drowsiness/tiredness.
acetazolamide for Pseudotumor Cerebri: The first two weeks I had general numbness of my whole face, tried to take a sip of soda and everyone thought I was overreacting to how disgusting it tasted. I also had terrible pins and needles in my feet that woke me up in the middle of the night. That has gone away now but when they upped my dose I discovered now that I am having severe joint pain in my knees and have been unable to function regularly at my job which I was very good at before. I forget stuff very easily, which I didn't know is a side effect but I saw others here stated the same. I still give it a 10 because despite the side effects it beats the alternative because I have not had a headache since I started the medication and my eyes get better everyday.
Review by QualityRN (taken for less than 1 month):
Diamox (acetazolamide) for Pseudotumor Cerebri: I was just diagnosed last week with PseudoTumor Cerebraii. I had my first spinal tap yesterday.I started Diamox today. About 4 hours after the first dose I took a sip of Mountain Dew and about vomited. It tasted like drinking melted nails. My appetite is lessened which I am so glad about. I am 60 lbs overweight. My mouth is dry and my lips are somewhat numb. But from everything I have read the side effects to this medication or any other would have to be really bad before I'd say I can't take this medication any more. I pray the meds work so I do not need a shunt. I did not think of this as a disease. I thought it was just an occurrence like reflux or migraines.
Diamox (acetazolamide) for Pseudotumor Cerebri: I have been on Diamox for many years. Started out with tunnel vision and then found to have pseudotumor cerebri (which my mom has too). I have even had lumbar punctures to drain the fluid off my brain as well in the beginning. This medication has worked wonders. I did have tingling and numbness in my feet, finger, nose, lips but that eased off by taking Vitamin C or eating oranges, (this was recommended by my doctor and it works). Now the tingling and numbness are gone. I don't know what I would have done without this medication. Now all I do is take the medicine once a day and move on with my life. Please hang in there and don't get discouraged.
13 users found this comment helpful.
Diamox (acetazolamide) for Mountain Sickness / Altitude Sickness: I don't always use medication when I go skiing in higher altitudes but when I do I prefer Diamox. This is a God send when I am sleeping at 10,000 ft and skiing at 12,000-14,000 ft. I tend to get a little clumsy and do not have the focus and sharp alertness while taking the medicine. I just need to take the medication starting a couple days before the trip for about 4-5 days. The whole process is all about getting your body acclimated to the change in altitude from sea level to 10,000 ft in a few hours. Other preparations are still needed such as avoiding alcohol, caffeine, NSAIDs, aspirin, sleeping agents. Start drinking a gallon of water each day while on this medicine.
19 users found this comment helpful.
Diamox (acetazolamide) for Glaucoma: I have been recently diagnosed with the disease called BIH which occurs mostly in women and very young children and currently taking Diamox with annoying side effects such as pins and needles in feet, hands and lips which can last up to 2 hours at a time and be painful. I wake every night with interrupted sleep with a headache or temperature! I have been turned off a lot of food but mainly fizzy drinks.
acetazolamide for Pseudotumor Cerebri: I developed a pseudo tumor over the course of a weekend. My intracranial hypertension onset was so fast because it was brought on by taking an extended round of tetracycline for a persistent sinus infection. My dosage of Diamox had been 1000mg/day but it was flushing my antidepressant out of my system too fast so it was lowered to 500mg/day. The tingling went down, too. I still can't drink carbonated drinks, but that's better for my weight loss anyway.
Review by Anonymous (taken for less than 1 month):
Diamox (acetazolamide) for Pseudotumor Cerebri: Can I just say for the people that are stating they have tingling/numbness with this medicine. I experienced this over a year and a half ago when I was first put on Diamox, they took me off it and put me on Topamax instead. For a year and a bit I was on Topamax and lost 30kg but the headaches never completely went away. Now I have been put back on Diamox for almost the last two weeks and I find only sometimes will I get any tingling at all... whereas last year when I first tried it I couldn't stand it. What I find works for me is taking the tablet whilst I'm eating, keeping my fluid up (only water), soft drinks and "bad" foods do tend to make it worse so I try to stay away from these. I find Diamox really does work if you're prepared to go that extra mile!
acetazolamide for Pseudotumor Cerebri: My daughter (6) was diagnosed with pseudotumor cerebri one month ago. She had a spinal tap done to relieve the pressure and was put on a very low dose of the medicine (125mg) twice a day. All seemed well for the first two weeks, and now we are back to the beginning with headaches, swelling of the face, blurred vision and unusual tiredness. She saw a neurologist yesterday who doubled her dose. Needless to say--today she was so tired that she took 2 naps! THIS NEVER HAPPENS! I am worried that these are all side effects of the medicine now. As much as I don't want her to undergo surgery for a shunt, I would rather that than have her not be able to function because of these symptoms!
Diamox (acetazolamide) for Pseudotumor Cerebri: I have only been taking the medication for a week. 500mg/day. I have lost 11 pounds in that week due to the loss of appetite. When I do eat I get sick. Nothing tastes good to me anymore. I'm having some crazy dreams at night. I urinate every 2 hours minimum. I get a tingling feeling in my fingers, face and legs. I'm having a spinal tap this Friday to relieve some pressure, I'm hoping after that happens I won't have to take this medication anymore. It has alleviated the headaches though!
10 users found this comment helpful.
Diamox (acetazolamide) for Pseudotumor Cerebri: I was diagnosed with this condition in 1997. The radiologist said they did not know what caused it and there was no cure but there is medicine to maintain. Many years later with 3 different shunt placements...I now have a shunt that still does not work but I have my Diamox to help me!
Diamox Sequels (acetazolamide) for Pseudotumor Cerebri: While there are some side effects, and it doesn't completely eliminate my condition, Diamox has allowed me to live a normal life. Most people do not even know that I am sick. I also have not had to have a shunt.
Diamox (acetazolamide) for Pseudotumor Cerebri: This medicine helped me so much to relieve some of the pressure in my head and leveled the pressure in my eyes. I also have edema of the legs and it gets so bad that at times I retain over 20 lbs of water which slows me down terribly. The pills helped me greatly and kept me active. However my doctor decided to take me off them and put me on Topamax because though the pressures were down, the headaches and pain was still there. I have gained so much weight because I barely move at times and have not been as active as I once was. My legs and now my abdomen are filled with fluid. Wish I could get Diamox again!
acetazolamide for Glaucoma: I have a lot of fluid in my optic nerve, blurred vision. I have couple days taking this medication twice daily, and it give me some side effects ...gives me tingling in my fingers and toes, nausea and I also experienced dizziness but my doctor says it will go away in two weeks.
Diamox (acetazolamide) for Glaucoma: I was given Diamox to prevent any increase in eye pressure after an ICL surgery (basically cataract surgery). My pressures were great, but the side effects from this were no fun. I experienced dizziness, tingling in my toes, and worst of all, my taste was off. The worse taste difference I noticed was in caffeinated beverages and that's what caused my to do some looking around to see what was going on.
15 users found this comment helpful.
acetazolamide for Seizure Prevention: I am taking carbamazepine for seizures, but found that I was gaining a lot of weight (22 pounds in 2 months). After doing much search on the web I found an article where a doctor did research on 15 patients that had weight gain on carbamazepine and found that by taking the Acetazolamide the patients were able to lose the weight they had gained and maintained the weight lost.
Today is day 2 on the Acetazolamide and I am sick to my stomach, feeling a bit dizzy and withdrawn. I would love to lose the weight that many of you have mentioned, but not sure if I want to deal with the side effects to achieve this.
Diamox (acetazolamide) for Pseudotumor Cerebri: I've been on this medication for 2 weeks because of increased pressure in my spinal fluid due to head injuries. While the medicine works amazingly well on the headaches, my brain basically turns to mush when I'm on it and I can't function well enough to do my job or understand my school work. I also have really annoying tingling feelings in my hands, feet and lips that hasn't yet gone away. I wish there was a way to get this to keep working for my headaches.
19 users found this comment helpful.
Diamox (acetazolamide) for Pseudotumor Cerebri: I have been on this medicine for approximately 4 months. The benefits that I have had with my vision and headaches has been wonderful. The things I am not sure about and cannot find much about is that I have a great deal of memory loss. I have searched this on several sites and I cannot find anything about it so I am not sure if it is a side effect or if it is happening to me for some other reason. I have had some confusion since I have started it and that is starting to concern me. The only alternative to this medication is to have a shunt put in and I am not sure I am ready for that. I don't like the fact that I cannot have carbonated beverages but I am sure that it is a good thing as I was a soda addict.
30 users found this comment helpful.
Diamox (acetazolamide) for Pseudotumor Cerebri: I had been diagnosed with pseudotumor cerebri when I was 10 years old. That was 16 years ago and have been taking DIAMOX on an off for that long. I get very bothersome tingling that doesn't go away, often waking at night with extremely painful tingling in my feet that causes me to have to get up. I get crippling headaches, that hurts when I even breathe, and the last time I was on the medication, the headaches got worse while I was taking it. I am currently back on the medicine and have to go to the bathroom every 10 minutes. I take 1000 mg a day and can no longer drink pop. Anyway, I have good and bad experience with the Diamox but the benefits to my eyes well outway the inconvenience.
18 users found this comment helpful.
acetazolamide for Pseudotumor Cerebri: I have been taking this medicine for a few weeks now. My neurologist looked in my eyes and caught the Pseudotumor Cerebri. He immediately sent me for a brain scan and a lumbar puncture the next day. He thinks it was caused by minocycline which I had been taking for my acne. I am also having to see an optometrist on a regular basis to check for vision loss. My neurologist took me off propranolol(headache preventative), the antibiotic, and all my prescription face creams. I am on 750mg right now but will be on 1000mg in a few weeks if tolerated well. My massive headaches are gone, the heartbeat in my ear is gone. The only side effects I have are the tingling in hands and feet, sodas taste flat, my appetite is gone, and I am tired a lot. I have to have blood work often.
Diamox (acetazolamide) for Pseudotumor Cerebri: I had swelling around my optic nerves causing vision problems and also had debilitating headaches that got worse with movement and made it impossible to exercise. I lived with it for years unknowingly and got progressively worse. My doctor diagnosed me with Pseudotumor cerebri. I have been taking generic Diamox for 3 weeks and haven't had a single headache. I can take my dogs for a walk now. There are 2 side effects I experience, tingling in my feet which was very bothersome but has lessened and that any beverages with carbonation taste terrible. No sodas, flavored water, beer, wine coolers, champagne. None of it taste normal/good.
38 users found this comment helpful.
Diamox (acetazolamide) for Glaucoma: I had cataract surgery 7 days ago. Diamox is very effective to reduce the pressure in the eye but the problem is side effects. I had no appetite, constipation and hearing loss. I am hoping it will go away in few days. Anybody out there had similar experience, please share with us. Thanks.
Diamox Sequels (acetazolamide) for Pseudotumor Cerebri: I was experiencing blurred vision, fatigue, loss of appetite, lack of concentration and an increased amount of severe headaches. After being checked for everything under the sun in blood work I was told I was fine. About a month later the headaches and the memory and concentration issues came along with more asthma attacks. My neurologist sent me for MRI, MRA and EEG nothing. He then sent me for a spinal tap which revealed I had pressure in my head double the normal. This happened on Wednesday April 21st, 2010 (last week). I received a phone call from my neurologist who said I needed to start taking the medication immediately. I have had no appetite, consistent nausea, and I throw up on a regular basis. So I deal with it or have a shunt.
Diamox Sequels (acetazolamide) for Pseudotumor Cerebri: In February of 2008 I was diagnosed with Intracranial Hypertension due to a rare side effect caused by Minocycline prescribed to me by a dermatologist. This medication, along with my lumbar puncture, has stopped my vision loss. The side effects have been very difficult at times. I have experienced all of the common side effects including loss of appetite (lost 40 pounds), tingling from hands to elbows and toes to knees, and intestinal problems. Brain pressure remains high but vision is saved. Over-all just glad to be alive and without a shunt. Be well.
11 users found this comment helpful.
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