Acetazolamide User Reviews & Ratings (Page 5)

• Perse...
• Taken for less than 1 month
• July 6, 2018

For Pseudotumor Cerebri "I was diagnosed in 2013, I was told you have pressure headaches, and I thought no big deal. I stopped going to my Neuro Dr and he failed to give me the actual Dx or even tell me how serious my DX is. I only learned I have IIH in 2018 when I requested my medical records, due to a worsening of my headaches, pulsating tinnutis, dizziness, visual disturbance, eye pain, pressure, horrific headaches, and feeling like I will live with a migraine like headache everyday of my life. I don't know about anyone else but when you start to think Trepanation (making a hole in your head) could be a good thing you know it is bad. I am now taking Acetazolamide again. Day 2: change in taste buds, carbonated drinks taste awful, cheese is terrible... Tingling in lips, face and hands. Moderate stomach pain. Feelings of lethargy, decreased appetite, generally feel unwell. My Dr advised some or all will go away."

• babyl...
• April 7, 2011

For Glaucoma "I have a lot of fluid in my optic nerve, blurred vision. I have couple days taking this medication twice daily, and it give me some side effects ...gives me tingling in my fingers and toes, nausea and I also experienced dizziness but my doctor says it will go away in two weeks."

• Estel...
• Taken for 6 months to 1 year
• December 18, 2017

For Pseudotumor Cerebri "All I have to say is that this pill has made my life so much better. Three years ago this pseudotumor cerebri started after having my first born. I was at my heaviest at 245lb pounds. Ever since I've never been the same until now although I deal with the side effects (sleepy, muscle weakness , tiredness, tingling ) being sleepy has been the worst to cope with because I'm a mother and I have things to do BUT at least some days I'm able to function well and that's better than nothing. I also take Potassium which helps a lot for the tingling !!! I hope one day I no longer have to take these pills and finally have my life back and enjoy it ! BTW I'm 21 yrs old"

• Kaykay
• Taken for less than 1 month
• September 23, 2016

For Pseudotumor Cerebri "I have been taking this medicine for only two weeks after being diagnosed with pseudotumor cerebri and it is awful. I feel like everything is getting worse. Before the medication I already had the ringing in my ears, the terrible headaches, and occasionally I had numbness of my face, hands, and legs along with many other symptoms. Now since taking this medication the ring and headaches are EXACTLY the same if not worse and my feet are killing me, they are constantly "asleep" with the feeling of tiny thumb tack jabs all over...it's multiple times a day, walking, standing, sitting, laying down, I feel worse now than I did before. I don't know what to do but I know I cannot continue like this. I know that everyone reacts differently."

• Taji
• Taken for less than 1 month
• May 28, 2019

Diamox (acetazolamide) for Mountain Sickness / Altitude Sickness "Upon arrival in Lhasa, Tibet at approx 3000 MAS(metres above sea level) I started getting a very bad head ache. Approx 8 hrs later the headache had progressed to extreme throbbing. I drank plenty of water and took diamox as prescribed by my g.p. for altitude sickness. The next day I signed myself up on tour to travel to nam tso @ approx 5000 mas.."

• Tondawg
• Taken for less than 1 month
• April 2, 2021

For Glaucoma "First of all oh my god the taste of soda is god awful it started the first day I was on it I'm on day 14 I get the tingle in my finger tips I feel nausea and a bit dizzy but then it goes away and comes back. Last but not least the most explosive diarrhea I have ever experienced in my life and I had really bad stomach bug the diarrhea from this stuff is so much crazier. The bowel sounds and stomach and intenstine gurgles are insane they're so loud as soon as I hear them I have to go destroy the toilet bowl with my diarrhea all over it. Oh my god it does help with eye pressure tho I will say that but oh my god I wish I knew how to get rid of these side effects"

• Catpawz
• Taken for less than 1 month
• July 3, 2019

Diamox (acetazolamide) for Mountain Sickness / Altitude Sickness "I took one of these pills (125mg) to try it before my vacation and I haven't felt so sick in a long time. OMG it was horrible!! It started with mild dizziness and tiredness. Not so bad but by the 12th hour I just wanted to check out. A lot of dizziness, very tired but couldn't sleep, nausea and headache. Generally I felt awful but couldn't put my finger on how else it made me feel this awfulness. I took a meclazine and some Advil and felt a bit better. The next day, I still felt a bit weird but not so awful. That stuff lasts a long time and if you take it on vacation and have my reaction, you'll waste a lot of hours being miserable."

• VPeng...
• September 3, 2017

For Glaucoma "For lowering pressure the medication is very effective, however the side effects are a nightmare. I get tingling sensations everywhere, dehydration, increased urine, drowsiness. It doesn't help that I'm also a teenager who needs to concentrate on my studies so it's a miracle I managed to get through school recently."

• Jammie
• Taken for 2 to 5 years
• January 27, 2019

For Pseudotumor Cerebri "My doctors had me taking 1500mg 2x a day, my headaches went away. I had problems getting the medication so I started taking 1000mg 2x a day and I was doing well, if I didn’t take any at all I would be able to go 2-3 days before getting a headache. I went about 6 months no medication and with no headaches before they started up again. I was able to get a hold of the medication but I’m having trouble getting refills, I’ve been taking 2 pills every night and It works but I can feel them slowly coming back. I’ve been taking these pills for almost 4 years now and I’ve tried everything to take care of it, I’ve lost weight, taken headache OTC pills, coffee helps but not to get rid of them — please if anyone knows of an alternative to the medication that can help— willing to try anything at this point TBH."

• Mnires...
• March 10, 2020

"I am using acetazolamide to help with my Ménière’s Disease. I’m only on 250 mg but need to work up to 500 mg daily. I feel like I’m in a fog and extremely tired. The pins and needles in my hands, feet and face come and go. Is there anyone else using acetazolamide to help with Ménière’s symptoms? I can’t tell if it’s making them worse or better."

• Cindi...
• December 7, 2015

For Mountain Sickness / Altitude Sickness "I have used Diamox (generic form) at least six times and swear by the medication. Prior to using, I would get headaches and nausea so bad it would ruin the weekend trip. This drug is truly a miracle for people who suffer with the effects of altitude problems. Very few side effects that I experience. Tingling in your fingers and toes on occasion, little tired, but not extreme. Carbonated drinks are strange tasting as well."

• mrs...
• Taken for less than 1 month
• March 19, 2018

For Glaucoma "This is the third time taking acetazolamide. The main side effect for me is the eggy taste inmy mouth, constant loose bowels, numbness in my hands and feet and face, feeling cold, tired and week. think I've tried almost every eye drop on the market and pressures are still over 40. I'm on this medication for 2 months four times a day. My operation is on 3/5/18 really hoping the side effects ease off soon it's beginning to get me down."

• Cristil
• July 28, 2010

For Pseudotumor Cerebri "I have been taking this medicine for a few weeks now. My neurologist looked in my eyes and caught the Pseudotumor Cerebri. He immediately sent me for a brain scan and a lumbar puncture the next day. He thinks it was caused by minocycline which I had been taking for my acne. I am also having to see an optometrist on a regular basis to check for vision loss. My neurologist took me off propranolol(headache preventative), the antibiotic, and all my prescription face creams. I am on 750mg right now but will be on 1000mg in a few weeks if tolerated well. My massive headaches are gone, the heartbeat in my ear is gone. The only side effects I have are the tingling in hands and feet, sodas taste flat, my appetite is gone, and I am tired a lot. I have to have blood work often."

• amand...
• Taken for 1 to 6 months
• June 23, 2017

For Pseudotumor Cerebri "My experience with acetazolamide has been okay. I started taking it after my lumbar puncture to relieve the pressure. (I got IIH because it was a rare side effect of an antibiotic I was on for my acne, minocycline) it has been VERY effective at relieving the pressure, but gives really annoying side effects, like tingling of my fingers, face, and toes. Like when I'm trying to sleep my feet tingle and go crazy and it makes it impossible to sleep. It also made me have little to no appetite and I have lost 20 pounds in about 2 months. I my neurologist told me that long term use of this medication can cause kidney damage, but 6 months to a year shouldn't be a worry. (I am only going to be on diamox for 6 months. I've been on it for 4 months)"

• LPano
• Taken for less than 1 month
• September 1, 2019

For Pseudotumor Cerebri "This is by far the worst medication I have ever been on. I’m a week in to taking the medication now and I’m struggling to sleep due to the pins and needles in my face and eyes. It’s just constant. I also suffer with panic disorder and my anxiety has been sky high since starting these tablets. I recommend to anyone that if you begin these tablets then ask your GP for some propranolol to go with them."

• Little...
• Taken for 1 to 6 months
• November 27, 2014

For Pseudotumor Cerebri "I was diagnosed with Pseudotumor Cerebri a little over 2 months ago, after many visits to doctors, nurses and hospitals. Then an amazing neurologist who finally gave me an answer as to what was causing all my problems. I have since had 2 spinal taps and have another still to come she is looking at doing bi-weekly. but since starting this medication. I have regained most of my vision, I had lost most of. I do miss my coffee but tea still is ok. I have an allergy to the pills so I take medication to stop the hives and itching and sometimes the pins and needles in my legs bring me to tears. My face tingling makes me giggle the twitching in my face does drive me crazy, but really its all better then going blind or getting the shunt."

• Chip
• Taken for 1 to 6 months
• March 20, 2019

For Glaucoma "My worst side effect experience is lack of appetite and lethargy at times, now I have some diarrhea. But my eye pressure is down to 18 in one eye 13 in the left as of last check, but the loss off appetite concerns me"

• Anony...
• Taken for 1 to 6 months
• December 11, 2016

For Pseudotumor Cerebri "I am almost 20 years old and was diagnosed about 3.5-4 weeks ago. I got a lumbar puncture and then started Diamox and it has been an awful experience.The first week and a half I was severely exhausted had nausea and the taste issue and basically wasn't functional. Then for about a week or so I seemed to be getting better until a few days ago when I've been very rapidly getting new symptoms/side effects like severe joint pain, itchy scalp, and waking up with my eyelids swollen half shut and then this morning my lips where extremely swollen. I had to go to the ER to make sure it wasn't an allergic reaction but it seems to be just a weird reaction to the meds (not allergic). I hate it. If I didn't have to take it, I wouldn't."

• Bless...
• February 13, 2018

For Hydrocephalus "I am currently on this medication 500mg 2x's a day to treat the excess fluid gain on my brain that causes seizures. The first dose of this medication I instantly had a really bad taste for soda and for most anything that I ate or drank. I experienced extreme tiredness dizziness headaches and had a decrease in appetite. After about 2 days I noticed numbness and tingling in my hands and feet ringing in my ears a stabbing pressure pain in my eyes and abdominal pain I had to pee every 20-30 min and had extreme diarrhea instantly after every meal, all my bowel movements are diarrhea. After telling my neurologist about it he said they are common and to take once a day for 2 weeks to let my body adjust then back to 2x's. I fluctuate back and forth with the once and twice a day because he will not let me stop taking it and all of the affects still remain after 8 months of treatment but it has decreased the fluid levels on my brain and I lost 30 pounds are the only benefits"

• NO123...
• February 5, 2018

For Pseudotumor Cerebri "I have been on Diamox for 3 weeks. I continue to have severe headaches still same pressure on my eyes and head. I can not stay awake taking this medicine. I get up and try to sit on couch and within 5 min I’m out. I see a Neurosurgeon in 3 days and I hope he can help me. I can’t even walk properly because my balance is so off. My wife is typing this as I speak."

• Nawaf
• June 30, 2020

Diamox (acetazolamide) for Pseudotumor Cerebri "I am 50 years old with a BMI of 28.9. I was suffering from a headache for 3 month. After taking diamox 250 I started to gradually feel better but after a month I started have high pressure headache which was worse than before."

• Andyc...
• January 6, 2019

For Pseudotumor Cerebri "I was taking this 3x a day and it helped my ICP that began after brain surgery, but it slowly began to make me severely depressed and I didn’t realize that was the problem, until I ran out and went 2 days without it and my mood improved drastically. Not sure what to do now. Will see dr in 2 days"

• Alethya
• September 20, 2017

For Glaucoma "My eye pressure was up in the 40s and Dr. gave me 1 pill only to help get it down. About 20 mins later I started feeling numbness all over my legs, arms, nose and upper lip. It was annoying but not painful. I was needing to pee very often and was super low energy the rest of the day. Glad I only had to take the 1 pill. It only slightly helped the eye pressure issue."

• Calico
• Taken for less than 1 month
• September 10, 2016

For Pseudotumor Cerebri "I was just diagnosed with Psuedotumor Cerebri after 3 years of medical issues. Started losing my eyesight and then they found a blood clot in the main artery of my brain. Once blood clot was treated still had fluid behind my eyes, headaches, foggy brain and no energy. The diamox has helped the foggy brain. The side effects weren't bad had tingling for few days, metallic taste and drowsiness.The drowsiness is the worst part because several other medicines I take cause drowsiness also. I did have pain in my joints for first two days but it went away. I have lost 8lbs since starting it. I will find out at the end of the month if the fluid build up behind my eyes is gone. I"

• Marib...
• Taken for less than 1 month
• June 17, 2017

For Pseudotumor Cerebri "I was just recently diagnosed with high intracranial pressure with no papilledema and a huge blind spot I my left eye. I was told that a spinal tap would only cause a leak since I have a connective tissue disorder. I got an MRI and CT and everyone said they were normal excect for Dr. Driscoll. She started me on diamox and it has done wonders!!! I can see at dark now and I don't have constant eye pain/pressure, neck pain or problems sleeping. I have to sleep with a soft cervical collar and had to raise the head of my bed to make sure the fluid continues to drain even when sleeping. I do have numbness and tingling but it's more amusing to me than painful. It is difficult to keep your CO2 levels at 22 but use alkaline h20"