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Reviews for Acetazolamide to treat Pseudotumor Cerebri
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Diamox (acetazolamide): I had swelling around my optic nerves causing vision problems and also had debilitating headaches that got worse with movement and made it impossible to exercise. I lived with it for years unknowingly and got progressively worse. My doctor diagnosed me with Pseudotumor cerebri. I have been taking generic Diamox for 3 weeks and haven't had a single headache. I can take my dogs for a walk now. There are 2 side effects I experience, tingling in my feet which was very bothersome but has lessened and that any beverages with carbonation taste terrible. No sodas, flavored water, beer, wine coolers, champagne. None of it taste normal/good.
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Diamox (acetazolamide): I have been on this medicine for approximately 4 months. The benefits that I have had with my vision and headaches has been wonderful. The things I am not sure about and cannot find much about is that I have a great deal of memory loss. I have searched this on several sites and I cannot find anything about it so I am not sure if it is a side effect or if it is happening to me for some other reason. I have had some confusion since I have started it and that is starting to concern me. The only alternative to this medication is to have a shunt put in and I am not sure I am ready for that. I don't like the fact that I cannot have carbonated beverages but I am sure that it is a good thing as I was a soda addict.
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Diamox (acetazolamide): I had been diagnosed with pseudotumor cerebri when I was 10 years old. That was 16 years ago and have been taking DIAMOX on an off for that long. I get very bothersome tingling that doesn't go away, often waking at night with extremely painful tingling in my feet that causes me to have to get up. I get crippling headaches, that hurts when I even breathe, and the last time I was on the medication, the headaches got worse while I was taking it. I am currently back on the medicine and have to go to the bathroom every 10 minutes. I take 1000 mg a day and can no longer drink pop. Anyway, I have good and bad experience with the Diamox but the benefits to my eyes well outway the inconvenience.
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Diamox (acetazolamide): I've been on this medication for 2 weeks because of increased pressure in my spinal fluid due to head injuries. While the medicine works amazingly well on the headaches, my brain basically turns to mush when I'm on it and I can't function well enough to do my job or understand my school work. I also have really annoying tingling feelings in my hands, feet and lips that hasn't yet gone away. I wish there was a way to get this to keep working for my headaches.
Diamox Sequels (acetazolamide): In February of 2008 I was diagnosed with Intracranial Hypertension due to a rare side effect caused by Minocycline prescribed to me by a dermatologist. This medication, along with my lumbar puncture, has stopped my vision loss. The side effects have been very difficult at times. I have experienced all of the common side effects including loss of appetite (lost 40 pounds), tingling from hands to elbows and toes to knees, and intestinal problems. Brain pressure remains high but vision is saved. Over-all just glad to be alive and without a shunt. Be well.
Diamox (acetazolamide): I have only been taking the medication for a week. 500mg/day. I have lost 11 pounds in that week due to the loss of appetite. When I do eat I get sick. Nothing tastes good to me anymore. I'm having some crazy dreams at night. I urinate every 2 hours minimum. I get a tingling feeling in my fingers, face and legs. I'm having a spinal tap this Friday to relieve some pressure, I'm hoping after that happens I won't have to take this medication anymore. It has alleviated the headaches though!
Diamox Sequels (acetazolamide): I was experiencing blurred vision, fatigue, loss of appetite, lack of concentration and an increased amount of severe headaches. After being checked for everything under the sun in blood work I was told I was fine. About a month later the headaches and the memory and concentration issues came along with more asthma attacks. My neurologist sent me for MRI, MRA and EEG nothing. He then sent me for a spinal tap which revealed I had pressure in my head double the normal. This happened on Wednesday April 21st, 2010 (last week). I received a phone call from my neurologist who said I needed to start taking the medication immediately. I have had no appetite, consistent nausea, and I throw up on a regular basis. So I deal with it or have a shunt.
Diamox Sequels (acetazolamide): While there are some side effects, and it doesn't completely eliminate my condition, Diamox has allowed me to live a normal life. Most people do not even know that I am sick. I also have not had to have a shunt.
acetazolamide: I have been taking this medicine for a few weeks now. My neurologist looked in my eyes and caught the Pseudotumor Cerebri. He immediately sent me for a brain scan and a lumbar puncture the next day. He thinks it was caused by minocycline which I had been taking for my acne. I am also having to see an optometrist on a regular basis to check for vision loss. My neurologist took me off propranolol(headache preventative), the antibiotic, and all my prescription face creams. I am on 750mg right now but will be on 1000mg in a few weeks if tolerated well. My massive headaches are gone, the heartbeat in my ear is gone. The only side effects I have are the tingling in hands and feet, sodas taste flat, my appetite is gone, and I am tired a lot. I have to have blood work often.
Diamox (acetazolamide): This medicine helped me so much to relieve some of the pressure in my head and leveled the pressure in my eyes. I also have edema of the legs and it gets so bad that at times I retain over 20 lbs of water which slows me down terribly. The pills helped me greatly and kept me active. However my doctor decided to take me off them and put me on Topamax because though the pressures were down, the headaches and pain was still there. I have gained so much weight because I barely move at times and have not been as active as I once was. My legs and now my abdomen are filled with fluid. Wish I could get Diamox again!
Diamox (acetazolamide): I was diagnosed with this condition in 1997. The radiologist said they did not know what caused it and there was no cure but there is medicine to maintain. Many years later with 3 different shunt placements...I now have a shunt that still does not work but I have my Diamox to help me!
acetazolamide: My daughter (6) was diagnosed with pseudotumor cerebri one month ago. She had a spinal tap done to relieve the pressure and was put on a very low dose of the medicine (125mg) twice a day. All seemed well for the first two weeks, and now we are back to the beginning with headaches, swelling of the face, blurred vision and unusual tiredness. She saw a neurologist yesterday who doubled her dose. Needless to say--today she was so tired that she took 2 naps! THIS NEVER HAPPENS! I am worried that these are all side effects of the medicine now. As much as I don't want her to undergo surgery for a shunt, I would rather that than have her not be able to function because of these symptoms!
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