Zavesca Side Effects

Generic Name: miglustat

Please note - some side effects for Zavesca may not be reported. Always consult your doctor or healthcare specialist for medical advice. You may also report side effects to the FDA.

Side Effects of Zavesca - for the Consumer

Zavesca

All medicines may cause side effects, but many people have no, or minor, side effects. Check with your doctor if any of these most COMMON side effects persist or become bothersome when using Zavesca:

Back pain; constipation; cramps; diarrhea; dizziness; dry mouth; gas; headache; heaviness in the limbs; indigestion; leg cramps; loss of appetite; menstrual disorders; nausea; stomach bloating, pain, or upset; vomiting; weakness; weight loss.

Seek medical attention right away if any of these SEVERE side effects occur when using Zavesca:

Severe allergic reactions (rash; hives; itching; difficulty breathing; tightness in the chest; swelling of the mouth, face, lips, or tongue); burning, numbness, or tingling sensation of the hands, arms, legs, or feet; flu-like symptoms (eg, fever, chills); memory loss; migraine; new or worsening tremors; severe or persistent diarrhea; unsteady gait; unusual bleeding or bruising; vision problems.

This is not a complete list of all side effects that may occur. If you have questions about side effects, contact your health care provider. Call your doctor for medical advice about side effects. To report side effects to the appropriate agency, please read the Guide to Reporting Problems to FDA.

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Zavesca Side Effects - for the Professional

Zavesca

The most common serious adverse reaction reported with Zavesca treatment in clinical studies was peripheral neuropathy.

The most common treatment-emergent adverse events reported in clinical studies with Zavesca were weight loss, diarrhea, and tremor. Other common adverse reactions were flatulence, abdominal pain, headache, and influenza-like symptoms.

The most common adverse reaction requiring intervention was diarrhea. Most episodes of diarrhea were ameliorated by the use of anti-diarrheal medications, and/or the avoidance of high carbohydrate content foods, or were noted to decrease over time with continued Zavesca treatment. The next most common adverse reaction requiring intervention was tremor. In many cases, tremor resolved despite continued Zavesca treatment. Dose reduction of Zavesca may ameliorate tremor, but discontinuation of Zavesca was required in some patients.

The data described below reflect exposure of 80 adult type 1 Gaucher disease patients to Zavesca in two open-label, uncontrolled, monotherapy trials, and one open-label, active-controlled trial. Patients were ages 18 to 69 years at first treatment. The population was nearly evenly distributed by gender.

Because clinical trials are conducted under widely varying conditions, adverse reaction rates observed in the clinical trials of a drug cannot be directly compared to rates in the clinical trials of another drug and may not reflect the rates observed in practice.

In two open-label, uncontrolled monotherapy trials, adult type 1 Gaucher disease patients were treated with Zavesca at a starting dose of 100 mg three times daily (dose range 100 to 200 mg three times daily) for up to 12 months in 28 patients [Study 1], or at a dose of 50 mg three times daily for up to 6 months in 18 patients [Study 2]. Table 9 below enumerates adverse events that occurred during the trials in ≥5% of patients. Reported adverse events have been classified using standard WHOART terms.

Table 9: Adverse Reactions in ≥5% of Patients in Two Open-Label, Uncontrolled Monotherapy Trials of Zavesca
Incidence of adverse reaction
Study 1
(starting dose 100 mg three times daily)
Study 2
(50 mg three times daily)
Patients entered in Study (n) 28 18
Body System - Preferred Term % of patients reporting % of patients reporting
Gastrointestinal System
  Diarrhea 89 89
  Flatulence 29 44
  Abdominal Pain 18 50
  Nausea 14 22
  Vomiting 4 11
  Bloating 0 6
  Anorexia 7 0
  Dyspepsia 7 0
  Epigastric pain not food-related 0 6
Metabolic and Nutritional Disorders
  Weight Decrease 39 67
Central and Peripheral Nervous System
  Headache 21 22
  Tremor 11 11
  Dizziness 0 11
  Cramps legs 4 11
  Paresthesia 7 0
  Migraine 0 6
Vision Disorders
  Visual Disturbance 0 17
Musculoskeletal Disorders
  Cramps 0 11
Platelet, Bleeding, and Clotting Disorders
  Thrombocytopenia 7 6
Reproductive disorders, female
  Menstrual disorder 0 6

In an open-label, active-controlled study (versus Cerezyme; imiglucerase), 36 adult type 1 Gaucher disease patients were treated with Zavesca, Cerezyme, or Zavesca + Cerezyme (Study 3) for up to 12 months. Table 10 enumerates adverse events that occurred during the trial in ≥5% of patients. Reported adverse events have been classified using standard WHOART terms.

Table 10: Adverse Reactions in ≥5% of Patients in Open-Label Active Controlled Study
Incidence of adverse reaction
Zavesca alone Cerezyme alone Zavesca + Cerezyme
Patients entered in Study (n) 12 12 12
  Body System - Preferred Term % of patients reporting % of patients reporting % of patients reporting
Gastrointestinal System
  Diarrhea 100 0 83
  Abdominal Pain 67 0 58
  Flatulence 50 0 42
  Constipation 8 0 25
  Nausea 8 0 8
  Mouth dry 8 0 0
Body as a Whole
  Influenza-Like Symptoms 0 0 8
  Pain 0 8 8
  Pain legs 0 0 8
  Weakness generalized 17 0 8
  Abdominal distension 8 0 8
  Back pain 8 0 0
  Abdominal distension gaseous 8 0 0
  Chills 0 0 8
  Heaviness in limbs 8 0 0
Metabolic and Nutritional Disorders
  Weight Decrease 67 0 42
Central and Peripheral Nervous System
  Tremor 17 0 33
  Dizziness 8 0 25
  Cramps legs 8 0 0
  Gait unsteady 8 0 0
  Numbness localized 0 0 8
  Shaking 0 0 8
Psychiatric disorders
  Appetite absent 0 0 8
  Jitteriness 0 0 8
  Memory loss 8 0 0
Vision Disorders
  Eye abnormality 0 0 8
  Visual disturbance 0 0 8
Reproductive disorders, female
  Menstrual irregularity 0 0 8
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Side Effects by Body System - for Healthcare Professionals

Gastrointestinal

Osmotic diarrhea appears to be the result of the disaccharidase inhibitory activity of miglustat.

Gastrointestinal side effects have included diarrhea (67% to 89%), flatulence (29% to 70%), abdominal pain (18% to 50%), nausea (14% to 35%), vomiting (30% to 33%), dysphagia (20% to 25%), and abdominal distension (20%). Epigastric pain not food-related, dyspepsia, dry mouth, constipation, anorexia, and bloating have also been reported.

Nervous system

Nervous system side effects have included headache (30% to 45%), tremors (30% to 40%), gait abnormal (33%), exacerbation of existing tremor (25% to 30%), gait spastic (25%), ataxia (25%), hyperreflexia (25%), and paresthesia (20%). Dizziness, cramps in legs, unsteady gait, and migraine have also been reported.

Metabolic

Metabolic side effects including weight decrease has been reported in 25% to 65% of patients.

Ocular

Ocular side effects have included visual disturbances.

Hematologic

Hematologic side effects have included thrombocytopenia.

Genitourinary

Genitourinary side effects have included menstrual disorder in the female patient.

General

General side effects have included abdominal distension (20%), abdominal distension with gas, generalized weakness, back pain, and heaviness in limbs.

Respiratory

Respiratory side effects have included nasopharyngitis (33% to 35%), cough 33%, and sinusitis (25%).

Psychiatric

Psychiatric side effects have included insomnia (30%), decreased appetite (25%), and depression (20%).

Other

Other side effects have included fatigue (35% to 42%) and lacerations (20%).

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