Tamoxifen User Reviews & Ratings (Page 4)

• Darcy
• Taken for 6 months to 1 year
• March 30, 2022

For Breast Cancer, Prevention "I was diagnosed with stage 1 breast cancer in March of 2021. I had a right breast mastectomy with implant. I was put on 20mg of Tamoxifen in July. By September I had so many reactions that I could not do daily activities. I was so tired that I would fall asleep if I sat down. I started having migraine headaches which I never had. I requested to cut my dose in half. My symptoms were better and I could deal with them. I still had leg swelling, joint pain and fatigue. Daily exercise helped with this. My doctor and I agree that my body was probably overloaded. I am fortunate that my risk is low. My advice is do your research and discuss your concerns with your doctor. As of March, 2022 I am trying another estrogen blocker. If I have severe symptoms I will go back on 10mg of Tamoxifen."

• Roxanne...
• Taken for 1 to 6 months
• October 21, 2022

For Breast Cancer, Prevention "I took 25 MG a day for stage 1 breast cancer. I felt exhausted most the time. I didn't know it was messing with my hormones and giving me osteoporosis, I stepped up on the sidewalk and my leg broke in two places, the breaks left me with a drop foot, that happened 7 years ago, and I only took tamoxifen for 5 months, never took it again, and I'm cancer free without it."

• RNano
• Taken for 6 months to 1 year
• July 7, 2021

For Breast Cancer, Adjuvant "At age 58 I was diagnosed with stage 1 IDC in Oct 2017. Had mastectomy in Dev 2017. Refused to start Aromatase inhibitors for first year post op due to side effects. Tried AI for a month after Oncologist convinced me and I had side effects of terrible muscle pains and cramps, hot flashes that were severe, and severe constipation. Was also put on Effexor to help against side effects. I stopped both of these and asked to be put on Tamoxifen, but at a lower level with my argument being that the San Antonio University study in 2013 documented that 5mg was enough to keep cancer from reoccurring and the 20 mg caused greater side effects. Also, an Italian study states the same. MyOncologist doesn’t like it, but I take the 5mg dose daily, at night. Still have insomnia, hot flashes, muscle pains and cramps. Also my BUN level is high. Is this drug worth being on with these side effects??? I’ve weaned myself to 2.5 g per day and symptoms are a bit less."

• Jmh
• Taken for 1 to 2 years
• March 26, 2023

For Breast Cancer "I started tamoxifen one year ago. For the first 4 months, I had not one side effect but then I slowly started getting side effects. I was severely depressed, angry, and agitated, had hair loss, sweats, chills, insomnia, tiredness, aches and pains in my ankle and knees, pins and needles, and cramps, and the worst is the UTI but when you have tested it’s negative. I just get the side effects of UTIs so can’t have any medicine as there is no infection hmmm. It’s easy to take I’m on 20 mg daily for 10 years as I’ve had invasive lobular breast cancer and had some lymph nodes removed as well. The only good thing with this drug is I haven’t had a period in five months or any period cramps. I’m 52 years old and was not menopausal but I’ve found different brands give different side effects and trying to get the brand you prefer is much harder than people think. This is a potent drug that is doing at the minute what it’s supposed to do so I will carry on taking it."

• Anonymous
• Taken for 5 to 10 years
• March 22, 2023

For Breast Cancer "I was diagnosed in 2014 with Stage 0, DCIS. I had a lumpectomy, radiation, and Tamoxifen for 5 years. Five years became nine. In 2020 I was diagnosed with Lupus SLE due to symptoms such as hair loss, muscle fatigue, and joint pain. Blood work confirmed the diagnosis. My symptoms worsened over the next couple of years, you name it, I had it and blamed Lupus. My ONC just took me off of it after nine years (not 10, but 9 with no reason). My Rheumy (for Lupus) just told me she's excited to see how this will affect me. I went home and googled the long-term side effects of Tamoxifen and within two days of stopping it, I noticed a significant improvement. I am no longer shuffling around like a 90 yo in the mornings (I'm 60), no more achy, throbbing, firey feet at night, no puffiness, etc. My PCP told me when I was diagnosed with Lupus she didn't think I had it that bad and all along I've thought to myself, WOW if this isn't that bad I would hate to see what bad is like."

• Deamo
• Taken for less than 1 month
• October 14, 2021

For Breast Cancer, Metastatic "As soon as I started on Tamoxifen I had indigestion. Within 4 weeks I had an acid feeling in my throat, lips and stomach. My throat was so raw that nothing helped for the acid reflux. Had to stop. As soon as I stopped so did the reflux."

• Neya
• July 27, 2021

For Breast Cancer "I was diagnosed with breast cancer last year at the age of 32 and had my mastectomy on Oct 28, 2020. I began taking the tamoxifen in Feb this year(2021) and stopped after a few days. After visiting my oncologist I realized how important it was that I continue with the medication. I’ve taken the medication consistently for two months and within the months I’ve experienced hot flashes, insomnia, and leg pains and mood swings that has interfered with my life. Counseling is a great help along with my support system. On top of this I can’t begin freezing my eggs until after being on the medication for three years. There are a lot of sacrifices I have to make and realities that I have to face at now age 33. I want to live and will do what’s necessary to make sure that I give myself that chance to."

• Jenni...
• Taken for 5 to 10 years
• October 29, 2021

For Breast Cancer "Hi everyone! I am so happy to have found a forum about this drug. There aren't many blog groups about Tamoxifen and I would love to bounce my side effects off of others. I am 44 years old and I have been on Tamoxifen for almost two years. I feel like I am experiencing every side effect on the list. I was diagnosed with DCIS. After a lumpectomy and lymph node removal surgery I underwent 25 rounds of radiation and here I am for a recommended 5 years worth. I have been experiencing shortness of breath, lightheartedness, severe mood swings, (like 0-60 in seconds) discharge comes and goes. Some days it is worse than others. I WAS having severe night sweats in the very beginning, but when I told my doctor about it she suggested I take a 2 week break to "reset" my system. After the 2 week break, I went back on the Tamoxifen and the night sweats were a lot less! Even if I have to throw the covers off a little bit, I sleep a lot better now than I did."

• Anonymous
• Taken for 1 to 6 months
• August 15, 2021

For Breast Cancer, Metastatic "I take tamoxifen for bone mets. I take 10mg tamoxifen at the same time as 10mg of melatonin and 125mg of Vit E succinate. I also juice veggies, eat vegan and take supplements. The side effects I have experienced are lighter periods and moods (my PMS is gone); mild, sporadic itching across my whole body; bone and achiness; tiredness. I’m hoping the tamoxifen will help to fill in the holes the cancer has left in my bones (I have heard reports of this happening)."

• Anonymous
• Taken for 5 to 10 years
• March 8, 2013

For Breast Cancer "I took Tamoxifen for 5 years with very little side effects. I had some weight gain, but nothing I could not handle. I had hot flashes in the beginning, but finally went away."

• berni...
• April 22, 2009

Nolvadex (tamoxifen) for Breast Cancer "Positive and Negative points . Makes you gain weight, feel moody and bloated. Fluid retention is bad."

• Anonymous
• Taken for 6 months to 1 year
• May 15, 2017

For Breast Cancer "I don't like this medicine. The more I took it the more I got side effects. I don't feel myself I'm going to ask my Dr if I can get off it. I've only been taking it for 1 year and I hate it."

• Anonymous
• Taken for 2 to 5 years
• February 14, 2014

Nolvadex (tamoxifen) for Breast Cancer "Bones hurt a lot, hot flashes were really bad."

• Happy...
• Taken for 1 to 2 years
• April 1, 2018

For Breast Cancer "I have been on this drug for one year. Have pain, weight gain, lack of sleep, tiredness, but I am alive. I think it gets easier as time passes. I try to remain positive."

• Kcyor...
• Taken for 1 to 2 years
• May 3, 2014

For Breast Cancer, Adjuvant "Hot flushes not to bad, suffer from fatigue and bone pain, but the medicine makes me feel safe."

• D Lea...
• Taken for 6 months to 1 year
• July 30, 2013

For Breast Cancer, Prevention "I have take tamoxifen for 6 months now, few side effects but bearable on this, very happy with them."

• Tea
• Taken for 1 to 6 months
• November 5, 2019

For Breast Cancer "Horrible joint pain in wrists and arms. Unbearable. . . I feel as if my wrists are broken."

• Ina
• Taken for 1 to 2 years
• November 22, 2020

For Breast Cancer "I can relate to leg cramps at night, severe back pain & insomnia. I’ve picked up a lot of weight & feel constantly swollen. Anyone else with these last 2 symptoms?"

• Anonymous
• Taken for less than 1 month
• July 23, 2020

For Breast Cancer "Tamoxifen is awful"

• BDR
• Taken for 5 to 10 years
• February 12, 2023

For Breast Cancer, Prevention "Taking tamoxifen for 6 years, the first 5 years has little side effect, but now I have fatigue and depression. But thank God my mammogram is cleared."

• nrehk...
• October 12, 2020

Nolvadex (tamoxifen) for Breast Cancer "I feel my thought process is delayed after commencing this medication, which can be frustrating. Leg cramps are minimal & occur only when in bed. Minimal side effects if I remain cancer free."

• AmyB
• August 15, 2017

For Breast Cancer "Diagnosed at age 40 (in 2012) with Stage IIa Invasive Ductal Carcinoma. E/P+ HER2 -"