Xyrem for Cataplexy User Reviews

• Anonymous
• January 26, 2012

"I've been taking Xyrem for about 6 yrs at 4.5gms 2 x a night. My doctor said I had the worst case of Cataplexy he'd seen in his career! Xyrem with 40mgs of Desoxyn and 150mgs of Effexor during the day I have a life again! I still have to nap about midday and I still won't chance a comedy club (the Cataplexy still sneaks in once in a while) but I hope to some day. I found out the hard way to make sure you don't drink anything before taking because you will NOT wake up to pee until the dose wears off! A small price to pay when I consider what it was like before Xyrem. "

• Surreal
• July 5, 2016

"I am 57 years old and have had some version of narcolepsy since age 30 or 35. I tried Nuvigil and then added Adderal but still had breakthrough narcolepsy and cataplexy. The cataplexy broke my foot a year ago and my wrist six months ago. This is the most amazing medication! I would go to bed at midnight and awaken at 10 or 11 in the morning. I would fall asleep for a cumulative 2 to 3 more hours during the day. I awaken between seven and 8 o'clock bright eyed and bushy tail to use my parents phrase. I am fully alert and have no further problems with sleepiness throughout the day. I am still experiencing occasional morning nausea and inappropriate diaphoresis or sweating for no reason. An ice pack at the back of my neck will break it."

• Rizza...
• Taken for 2 to 5 years
• October 29, 2017

"I have narcolepsy with cataplexy and also sleep apnea. I started taking Xyrem about 3 years ago, and the difference in my ability to function is phenomenal. No more hypnogogic/hypnopompic hallucinations, drastically improved cataplexy, very few episodes of sleep paralysis. And for about 5 minutes before it knocks me out, I get a buzz of epic proportions. Sadly, xyrem has gone up more than 800% in price. It costs over $5,000 per bottle, and I'm on 3 bottles per month. Unwanted side effects that I've experienced are, during titration (dose increased by Dr) 1. I had trouble breathing properly. 2. the first night of my highest dose (4.25) it knocked me out so hard that I wet the bed. 3. Wicked vocab. I swear a lot during a dose. idk why!"

• bluhat
• November 5, 2011

"I have had a great improvement in my mental function. I can now pay attention and follow along with what is going on around me. With a switch to Desoxyn as a daytime medication wow I feel like a normal person at least for me. Get a safe to keep it in as the ramification of having it stolen are great. And the paperwork long. The number of agency's involved boggled my mind. "

• Ree
• Taken for 1 to 2 years
• August 29, 2020

"Xyrem helped with the cataplexy symptoms and helped with my day to day. However, the first dose did not always work and that left me in a very disorienting state. I also suffer from depression and the xyrem intensified this. I overdosed twice because of this. I had zero self control when taking this medicine. The first overdose was on purpose. The second, I’m not sure, I blacked out. This medicine really helps, since being taken off I realized how much is was helping. However mentally it is better for me to be off it."