Oxcarbazepine for Trigeminal Neuralgia User Reviews (Page 3)

Brand names: Trileptal, Oxtellar XR

Oxcarbazepine has an average rating of 8.0 out of 10 from a total of 54 reviews for the off-label treatment of Trigeminal Neuralgia. 78% of reviewers reported a positive experience, while 13% reported a negative experience.

Reviews for Oxcarbazepine

Anonymous
July 14, 2021

"I was given this medication for possibility of nerve pain. At first I was diagnosed 150 mg twice a day which equal 300mg. However after 2 days that didn't work for me at all. Then I was directed 300mg twice a day which it worked for about a week. Afterwards and currently my pain specialist up my doses too 750 mg. His giving me 5 days after 5 days no improvement he will up it to 900mg. I swear being in pain sucks but this is some good medication. I hope this helps."

8 / 10

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Raven...
Taken for 1 to 6 months
September 1, 2023

"In 2006, my Trigeminal-Neuralgia came on. I was told by a neurologist to take Tegretol. I let it go until 2008 when the pain became very long and intense. I took Tegretol 1200 mg until 2022. In 2023, I was put on Oxcarbazepine because no other medication would work. It took a week to start working at 1200 mg, and now I'm on 1275 mg. This is my last chance for medication. My neurologist told me I would have to have surgical help next. So far, so good! Thank you, Lord. This is a real blessing, despite some side effects. My eyes get some disturbance, and my balance is definitely affected. Sometimes, it takes 1/2 hour later, or 1 hour later, or 2 hours later to find my chair. I rely on this medication in my daily life."

10 / 10

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Appys...
Taken for 6 months to 1 year
January 19, 2024

"I also have TN. This is the most miserable condition known to man. I started on this drug about 7 months ago at 600 mg twice a day. There was some relief but had to add another drug for 85% control. I get extremely tired. I feel as if I am losing muscle strength. Still, I will continue this combination until the next recheck."

8 / 10

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Anonymous
Taken for 1 to 6 months
August 25, 2023

"It decreases my constant pain due to atypical trigeminal neuralgia. I am on treatment for TN for about four months and find it so effective and I am able to do my day-to-day activities without any disturbances."

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orkie
March 12, 2013

Trileptal (oxcarbazepine) "I have had Trigeminal Neuralgia for 20 yrs. There has been only one Dr. that hit it on the nose. Trileptal great medicine."

10 / 10

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98 Report

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Anonymous
Taken for less than 1 month
August 18, 2012

Trileptal (oxcarbazepine) "It worked very good; however it lowered my blood sodium which can be dangerous so I had to stop taking it."

8 / 10

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59 Report

Anonymous
April 29, 2009

Trileptal (oxcarbazepine) "It's great for trigeminal neuralgia pain. Aside from forgetting words and not being able to spell and weakness, the side effects are not too terrible. It is MUCH better than the TN pain."

8 / 10

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Anonymous
December 5, 2012

"Today is my first day taking Trileptal for Trigeminal Neuralgia and I have taken every medicine under the sun for pain relief and so far nothing, so fingers crossed this is the one."

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28 Report

Theresa
Taken for less than 1 month
April 26, 2020

"I’m on 1200mg oxcarbazepine currently. My TN is under control. I am extremely dizzy and sleepy."

10 / 10

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12 Report

JCTomes
August 10, 2009

"I am taking the maximum dosage for Trigeminal Neuralgia and I have seen no change at all."

1 / 10

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20 Report

Ally
April 3, 2018

"Been on this medication 2 weeks now. Was excited about pain relief until headaches started and I broke out in a rash on face and upper body."

6 / 10

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10 Report

aziz
November 6, 2020

"Reduce bouts of pain and improve mood. Also before oxcarbazepine I smoked a lot and after starting it my smoking rate decreased not sure why?!!"

10 / 10

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6 Report

No...
Taken for less than 1 month
November 18, 2022

"Upon taking Oxcarbazepine for Trigeminal Neuralgia TN, I noticed that it never gave me any relief. Dosage was increased and still no relief. I feel it was a waste of time to keep taking it."

1 / 10

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2 Report

Anonymous
Taken for less than 1 month
July 2, 2017

"Anyone have a lot of sneezing and itchy while on trileptal"

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6 Report

Stormy
Taken for 6 months to 1 year
September 27, 2020

"These don't take the pain down compared to tegretol."

3 / 10

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3 Report

Sunny
Taken for 1 to 6 months
January 30, 2021

"I had covid 12 weeks ago and been on Oxcarb meds for 8 weeks for the resulting Trigeminal Neuralgia. I have Had hoarseness the whole time. Is this from the neuralgia meds or covid 19"

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Karin
Taken for less than 1 month
August 27, 2023

"I started taking oxcarbazepine for TN and am now at 1200 mg daily, which prevents the shocks, but I'm having these weird 'zingers' to my left cheek and eye. Does this happen to anyone else?"

9 / 10

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0 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.