Skip to Content

User Reviews for Oxcarbazepine

Also known as: Oxtellar XR, Trileptal

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Oxcarbazepine.

Filter by:

User Ratings

10
   
59%(14)
9
   
13%(3)
8
   
21%(5)
7
   
0%(0)
6
   
5%(1)
5
   
0%(0)
4
   
0%(0)
3
   
0%(0)
2
   
0%(0)
1
   
5%(1)

Oxcarbazepine Rating Summary

8.9/10 Average Rating

24 Ratings with 27 User Reviews

What next?Compare all 9 medications used in the treatment of Trigeminal Neuralgia.

Reviews for Oxcarbazepine to treat Trigeminal Neuralgia

Sort by:

"Diagnosed May 2015 - left side typical TGN. Didnt want to take Tegretol because of the side effects so tried Gabapentin with minimal effect even on 2700mg pd. After 7 months of daily agony I finally changed to Trileptal. Took two weeks to kick in properly but have been pain free for the last 6 weeks. Have come off the Gabapentin (hideous) and am now working up the courage to come off the trileptal to see if its gone into remission. The MRI I had has identified the offending blood vessels but I really want to avoid surgery if I can. Medication is expensive but I have had very few side effects - I'll take that over pain any day of the week!"

   
9.0

jaal56 February 9, 2016

0 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"Life changing and I would not quit taking this unless I was forced to. I tried the tegretol and it was too severe for me. I have been on oxcarbazepine for 6 weeks now and it has almost stifled my trigeminal neuralgia episodes to where I can function now. It does have its side effects and I am often confused for the first few hours of taking my medication which is 150 milligrams 2 times per day. I'm glad we are starting out on a low dose As I am down to 102 pounds. I am also taking 3200 milligrams of gabapentin. This combination has worked for me. My last episode of trigeminal neuralgia was in September 2015 and it lasted for 34 days. That was it for me. I'm so glad for this medication to be available to me. There is a trade off though."

   
10

Melissa C. February 4, 2016

0 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"I have had trigeminal neuralgia for 14 years. The condition is debilitating. If you have the condition you know exactly what I mean. I take 1200mg 3 times a day. Which is a lot! I have side effects such as tiredness, blurred vision, forgetfulness, weight gain, trouble walking because of double vision etc... AND there is still break through pain. However, I would rather be tired and forgetful than have the lighting shock pain 24/7. I think it saved my life in a way."

   
8.0

in pain. (taken for 10 years or more) January 7, 2016

0 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"I have been on this medicine for 5 days and it has absolutely turned my life around...literally. I was trying Tegretol and it worked for my Trigeminal/Occipital neuralgia but made me off balance, slur my words even on a low dose. The doctor gave me this based on those debilitating side effects and I have almost no side effects so far and almost no pain! So hoping it will continue to work like this!"

   
10

Jenny Knoxville (taken for less than 1 month) September 8, 2015

12 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"41 yr old female have TN associated with MS. Had the gamma procedure 3 years ago and it worked wonders. However it's back. As I sit here today tears pouring down my face because it hurt to cry. I'm on lyrica oxtellar and Percocet. Problem is it hurt me to swallow anything including these pills. Has anyone had that problem. I haven't eaten or had anything to drink for two days...assuming if it doesn't go subside soon I'll need to be hospitalize just to get hydrated. The pain is out of control. Like an electric drill on the side of my face. Please help"

Tago April 7, 2015

13 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"My girlfriend has been on oxcarbazepine for about 8 months and she has been hospitalized for low sodium three times before they figured out that oxcarbazepine was causing it. This is a very serious condition. I'm glad it works for some people but be careful. It worked for her except for the side effects, unfortunately."

76 Triumph July 26, 2014

34 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"Found this opinion forum just after waking in the night with Trigeminal Neuralgia type 2 excruciating pain. Doc prescribed oxcarbazepine but hadn't taken it consistently because of the side effects. In the time it took to read everyone's comments here the medicine brought my pain way down."

   
9.0

cardsun July 14, 2014

12 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"I, like all of you have had trigeminal neuralgia for years. Was on Tegretol for 2 years then quite unexpected break through of magnitude 11 on a scale of 1 to 10 pains every 4 mins, my doctor prescribed Lyrica, useless with side effects of a drunk, double vision etc. In France oxcarbazepine is not the medicine of choice, convinced doctor to prescribe oxcarbazepine, in half hour normal. "

   
10

Aubin April 12, 2014

20 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Trileptal (oxcarbazepine): "I have MS and experienced a severe relapse and spent a week in the hospital with chronic face pain. After determining it was Trigeminal neuralgia, my neurologist and I spent several weeks trying numerous treatments. Trileptal was the only one that gave me not only immediate relief, but I haven't had any face pain for months now!"

   
10

JessMess August 6, 2013

77 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"I was taking Tegretol for about 2 years and it suddenly stopped working. The pain was insane and uncontrollable. My neurologist prescribed Oxstellar XR, but it was too expensive so he gave me samples of Trileptal and it worked extremely well. He then prescribed oxcarbazepine which was less expensive, it is a life saver. I'm probably taking too great of a dose but it's out of paranoia of the pain. Looking to have the surgery in case the medicines stop working."

   
10

Glad and painfree (taken for less than 1 month) August 3, 2013

38 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"I have been on this drug for 7 years. It is the only medication that works for the intense pain. I am on a very strong dose. 1200 mg 3 x daily and even taking this dose I still have some break through pain (spring and fall). The only side effect I dont like is getting tired. However, I would rather that than the pain."

   
10

Thankful everyday (taken for 5 to 10 years) July 31, 2013

39 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"I have had severe trigeminal neuralgia for one year, hospitalized 9 times in 9 months, the pain never left, I had it 24/7. I was taking up to one Tramacet every hour before I had microdecompression in February 2013. I have to say that all other treatments were not available to me as I had abhorrent loop trigeminal and the surgery was my last hope. The surgery was very difficult and was only 75% successful to date, whilst in surgery I actually had a major blood vessel that could not be decompressed. I have been on Trileptal since October 2012 and I have gained 50 lbs. I am hungry all of the time."

   
10

triggy sufferer May 12, 2013

26 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Trileptal (oxcarbazepine): "I have had Trigeminal Neuralgia for 20 yrs. There has been only one Dr. that hit it on the nose. Trileptal great medicine."

   
10

orkie March 12, 2013

66 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"Been in pain for three years with headaches and trigeminal neuraligia, and taking Tegretol with not much relief. Just switched to Oxcarbazepine, and it is like I am a new person. No pain. I'm thrilled. Hoping the relief lasts, unlike my experience with Tegretol where it worked in the beginning and then it had no effect at all. Thankful to my new doc for prescribing this for me!!!!!"

   
10

Betty88 (taken for less than 1 month) March 9, 2013

33 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"Today is my first day taking Trileptal for Trigeminal Neuralgia and I have taken every medicine under the sun for pain relief and so far nothing, so fingers crossed this is the one."

Anonymous December 5, 2012

12 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Trileptal (oxcarbazepine): "It worked very good; however it lowered my blood sodium which can be dangerous so I had to stop taking it."

   
8.0

Anonymous (taken for less than 1 month) August 18, 2012

39 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Trileptal (oxcarbazepine): "Stopped the incapacitating seizures. Side effects are bothersome but not as awful as the seizures: Sugar-sweet taste of all food, fatigue, occasional nausea, memory issues, sight issues, balance problems."

   
8.0

mtnclimber10 (taken for 1 to 6 months) August 7, 2012

49 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Trileptal (oxcarbazepine): "I have been taking 1200mg daily for a number of years and there are times when I'm pain free and times when I'm not pain free. Interestingly enough the pain is usually worse in the morning, and if I ignore it as best I can, it subsides. But it often comes back later in the day and around bedtime."

Xboater (taken for 10 years or more) May 29, 2012

39 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Trileptal (oxcarbazepine): "Well, the pain on the nerve goes away pretty quickly after taking 150 mg of Trileptal, which I just started taking this year, because when I was told that I had trigeminal neuralgia last year, I didn't find out until the pain was almost over, but the medicine only lasts about 4 hours or so. At first, I got a headache, which didn't last too long, so I didn't take anything for the headache. What concerns me the most is that lately I have been getting pain on my ankles the next day after doing a 45 min kickboxing work-out and it's not going away, which I never had before. Today for the first time in my life I had a terrible pain on my pelvis that I couldn't hardly walk . Hopefully the pain goes away soon, and I won't have to take anything, 'until next year'!"

   
6.0

Anonymous October 5, 2011

16 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"This has helped me tremendously. No face pain at all having Trigeminal Disorder. The pain can make you crazy. No pain pills helped at all. Take 450 mg every night and go right to sleep. Slept in a chair for 6 weeks keeping my head up and not being able to lay down in my bed to sleep. Cried every night with pain. Feel a little drowsy, fatigued and weakness some days but I'd rather deal with that instead of the pain. It's been two months now and I feel so much better. Good luck to all."

   
10

Happy in NY September 29, 2011

40 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Trileptal (oxcarbazepine): "I use it for Trigeminal neuralgia and it is working great! I was first prescribed Tegretol and it worked for about a year but then the pain started to return. Doc said the Tegretol was being metabolized at a faster rate and she switched me to Trileptal. It worked in about 8 hours! And, as others have noted, you do struggle for words and have a bit of short-term memory impairment, but the pain is gone! Also, so is your libido! Tegretol was like taking Viagra, increased libido! But, it's still a better life without the pain."

   
10

Jod123 September 25, 2011

44 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Trileptal (oxcarbazepine): "I developed TGN in 1997. This is not the typical TGN since it was caused by a stress ulcer about 3/4" from the left side of my mouth over the junction of three facial nerves. About a year after the ulcer healed, the facial pain abruptly developed big time. I was first prescribed Tegretol, but made me feel like a dope. Trileptal was then prescribed and I have cut it down to only 75 mg at night. Occasionally take 150 mg Trileptol 1 X when my facial pain really tunes up. Also rub in a little dab of Metrocream topically over that painful area that numbs my face just enough to minimize any pain. "

   
10

Anonymous January 21, 2011

32 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Trileptal (oxcarbazepine): "This medicine has been a LIFESAVER for me, because quite frankly, facial nerve pain can drive a person over the edge. It can be very good for those suffering from Trigeminal Neuralgia. I give this medicine a A . Thank You "

Pancakes75 October 1, 2010

55 users found this comment helpful. Did you?   Yes   No Report as inappropriate

"I used to suffer from facial nerve pain. I'm 34 and the Doctors don't know why. I've been checked for MS. Anyway wanted to say this medicine has improved my life 100 times over and quite frankly I cannot function without it. To all who suffer from facial nerve pain, PLEASE try this medicine. It's not a lifesaver for everybody, but it's worth a try to those having pain so bad, that words cannot express it. Take care my friends and try to maintain hope. "

   
10

pancakes75 January 30, 2010

34 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Trileptal (oxcarbazepine): "Compared to taking Tegretol for TN I would give it a 10. Much less problems with taking and no Tegretol level or white blood cell counts needed, and I can take a lesser dose mostly get by with 2 a day with the other medicine it was min of 3 but mostly 4 a day. I do feel much better physically with the smaller dose of course. kinda looped for a week switching medicines as you take both to wean off Tegretol and onto Trileptal. I definitely would try it."

   
10

Anonymous October 29, 2009

41 users found this comment helpful. Did you?   Yes   No Report as inappropriate
Page 1 2 Next
Hide