User Reviews for Oxcarbazepine

Also known as: Oxtellar XR, Trileptal

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Oxcarbazepine.

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10
   
60%(12)
9
   
10%(2)
8
   
20%(4)
7
   
0%(0)
6
   
5%(1)
5
   
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Oxcarbazepine review summary

8.9/10 Average Rating

20 Ratings with 22 User Reviews

Compare all 9 medications used in the treatment of Trigeminal Neuralgia.

Reviews for Oxcarbazepine to treat Trigeminal Neuralgia

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Review by 76 Triumph:

My girlfriend has been on oxcarbazepine for about 8 months and she has been hospitalized for low sodium three times before they figured out that oxcarbazepine was causing it. This is a very serious condition. I'm glad it works for some people but be careful. It worked for her except for the side effects, unfortunately.

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July 26, 2014 7:47 AM

Review by cardsun:

User Rating:  
   
9.0

Found this opinion forum just after waking in the night with Trigeminal Neuralgia type 2 excruciating pain. Doc prescribed oxcarbazepine but hadn't taken it consistently because of the side effects. In the time it took to read everyone's comments here the medicine brought my pain way down.

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July 14, 2014 6:08 AM

Review by Aubin:

User Rating:  
   
10

I, like all of you have had trigeminal neuralgia for years. Was on Tegretol for 2 years then quite unexpected break through of magnitude 11 on a scale of 1 to 10 pains every 4 mins, my doctor prescribed Lyrica, useless with side effects of a drunk, double vision etc. In France oxcarbazepine is not the medicine of choice, convinced doctor to prescribe oxcarbazepine, in half hour normal.

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April 12, 2014 4:30 AM

Review by JessMess:

User Rating:  
   
10

Trileptal (oxcarbazepine): I have MS and experienced a severe relapse and spent a week in the hospital with chronic face pain. After determining it was Trigeminal neuralgia, my neurologist and I spent several weeks trying numerous treatments. Trileptal was the only one that gave me not only immediate relief, but I haven't had any face pain for months now!

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August 6, 2013 2:04 PM

Review by Glad and painfree (taken for less than 1 month):

User Rating:  
   
10

I was taking Tegretol for about 2 years and it suddenly stopped working. The pain was insane and uncontrollable. My neurologist prescribed Oxstellar XR, but it was too expensive so he gave me samples of Trileptal and it worked extremely well. He then prescribed oxcarbazepine which was less expensive, it is a life saver. I'm probably taking too great of a dose but it's out of paranoia of the pain. Looking to have the surgery in case the medicines stop working.

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August 3, 2013 12:18 AM

Review by Thankful everyday (taken for 5 to 10 years):

User Rating:  
   
10

I have been on this drug for 7 years. It is the only medication that works for the intense pain. I am on a very strong dose. 1200 mg 3 x daily and even taking this dose I still have some break through pain (spring and fall). The only side effect I dont like is getting tired. However, I would rather that than the pain.

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July 31, 2013 8:19 PM

Review by triggy sufferer:

User Rating:  
   
10

I have had severe trigeminal neuralgia for one year, hospitalized 9 times in 9 months, the pain never left, I had it 24/7. I was taking up to one Tramacet every hour before I had microdecompression in February 2013. I have to say that all other treatments were not available to me as I had abhorrent loop trigeminal and the surgery was my last hope. The surgery was very difficult and was only 75% successful to date, whilst in surgery I actually had a major blood vessel that could not be decompressed. I have been on Trileptal since October 2012 and I have gained 50 lbs. I am hungry all of the time.

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May 12, 2013 10:58 AM

Review by orkie:

User Rating:  
   
10

Trileptal (oxcarbazepine): I have had Trigeminal Neuralgia for 20 yrs. There has been only one Dr. that hit it on the nose. Trileptal great medicine.

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March 12, 2013 11:50 PM

Review by Betty88 (taken for less than 1 month):

User Rating:  
   
10

Been in pain for three years with headaches and trigeminal neuraligia, and taking Tegretol with not much relief. Just switched to Oxcarbazepine, and it is like I am a new person. No pain. I'm thrilled. Hoping the relief lasts, unlike my experience with Tegretol where it worked in the beginning and then it had no effect at all. Thankful to my new doc for prescribing this for me!!!!!

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March 9, 2013 1:29 PM

Review by Anonymous:

Today is my first day taking Trileptal for Trigeminal Neuralgia and I have taken every medicine under the sun for pain relief and so far nothing, so fingers crossed this is the one.

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December 5, 2012 9:45 PM

Review by Anonymous (taken for less than 1 month):

User Rating:  
   
8.0

Trileptal (oxcarbazepine): It worked very good; however it lowered my blood sodium which can be dangerous so I had to stop taking it.

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August 18, 2012 3:25 AM

Review by mtnclimber10 (taken for 1 to 6 months):

User Rating:  
   
8.0

Trileptal (oxcarbazepine): Stopped the incapacitating seizures. Side effects are bothersome but not as awful as the seizures: Sugar-sweet taste of all food, fatigue, occasional nausea, memory issues, sight issues, balance problems.

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August 7, 2012 4:04 PM

Review by Xboater (taken for 10 years or more):

Trileptal (oxcarbazepine): I have been taking 1200mg daily for a number of years and there are times when I'm pain free and times when I'm not pain free. Interestingly enough the pain is usually worse in the morning, and if I ignore it as best I can, it subsides. But it often comes back later in the day and around bedtime.

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May 29, 2012 10:54 AM

Review by Anonymous:

User Rating:  
   
6.0

Trileptal (oxcarbazepine): Well, the pain on the nerve goes away pretty quickly after taking 150 mg of Trileptal, which I just started taking this year, because when I was told that I had trigeminal neuralgia last year, I didn't find out until the pain was almost over, but the medicine only lasts about 4 hours or so. At first, I got a headache, which didn't last too long, so I didn't take anything for the headache. What concerns me the most is that lately I have been getting pain on my ankles the next day after doing a 45 min kickboxing work-out and it's not going away, which I never had before. Today for the first time in my life I had a terrible pain on my pelvis that I couldn't hardly walk . Hopefully the pain goes away soon, and I won't have to take anything, 'until next year'!

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October 5, 2011 10:38 PM

Review by Happy in NY:

User Rating:  
   
10

This has helped me tremendously. No face pain at all having Trigeminal Disorder. The pain can make you crazy. No pain pills helped at all. Take 450 mg every night and go right to sleep. Slept in a chair for 6 weeks keeping my head up and not being able to lay down in my bed to sleep. Cried every night with pain. Feel a little drowsy, fatigued and weakness some days but I'd rather deal with that instead of the pain. It's been two months now and I feel so much better. Good luck to all.

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September 29, 2011 6:40 PM

Review by Jod123:

User Rating:  
   
10

Trileptal (oxcarbazepine): I use it for Trigeminal neuralgia and it is working great! I was first prescribed Tegretol and it worked for about a year but then the pain started to return. Doc said the Tegretol was being metabolized at a faster rate and she switched me to Trileptal. It worked in about 8 hours! And, as others have noted, you do struggle for words and have a bit of short-term memory impairment, but the pain is gone! Also, so is your libido! Tegretol was like taking Viagra, increased libido! But, it's still a better life without the pain.

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September 25, 2011 11:39 AM

Review by Anonymous:

User Rating:  
   
10

Trileptal (oxcarbazepine): I developed TGN in 1997. This is not the typical TGN since it was caused by a stress ulcer about 3/4" from the left side of my mouth over the junction of three facial nerves. About a year after the ulcer healed, the facial pain abruptly developed big time. I was first prescribed Tegretol, but made me feel like a dope. Trileptal was then prescribed and I have cut it down to only 75 mg at night. Occasionally take 150 mg Trileptol 1 X when my facial pain really tunes up. Also rub in a little dab of Metrocream topically over that painful area that numbs my face just enough to minimize any pain.

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January 21, 2011 11:23 AM

Review by Pancakes75:

Trileptal (oxcarbazepine): This medicine has been a LIFESAVER for me, because quite frankly, facial nerve pain can drive a person over the edge. It can be very good for those suffering from Trigeminal Neuralgia. I give this medicine a A . Thank You

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October 1, 2010 3:26 AM

Review by pancakes75:

User Rating:  
   
10

I used to suffer from facial nerve pain. I'm 34 and the Doctors don't know why. I've been checked for MS. Anyway wanted to say this medicine has improved my life 100 times over and quite frankly I cannot function without it. To all who suffer from facial nerve pain, PLEASE try this medicine. It's not a lifesaver for everybody, but it's worth a try to those having pain so bad, that words cannot express it. Take care my friends and try to maintain hope.

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January 30, 2010 4:19 AM

Review by Anonymous:

User Rating:  
   
10

Trileptal (oxcarbazepine): Compared to taking Tegretol for TN I would give it a 10. Much less problems with taking and no Tegretol level or white blood cell counts needed, and I can take a lesser dose mostly get by with 2 a day with the other medicine it was min of 3 but mostly 4 a day. I do feel much better physically with the smaller dose of course. kinda looped for a week switching medicines as you take both to wean off Tegretol and onto Trileptal. I definitely would try it.

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October 29, 2009 1:56 AM

Review by JCTomes:

User Rating:  
   
1.0

I am taking the maximum dosage for Trigeminal Neuralgia and I have seen no change at all.

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August 10, 2009 11:47 AM

Review by Anonymous:

User Rating:  
   
8.0

Trileptal (oxcarbazepine): It's great for trigeminal neuralgia pain. Aside from forgetting words and not being able to spell and weakness, the side effects are not too terrible. It is MUCH better than the TN pain.

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April 29, 2009 3:27 PM

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