Niraparib User Reviews & Ratings (Page 3)
Brand names: Zejula
Niraparib has an average rating of 6.6 out of 10 from a total of 63 reviews on Drugs.com. 57% of reviewers reported a positive experience, while 27% reported a negative experience.
Reviews for Niraparib
- Cle...
- Taken for 1 to 6 months
- February 22, 2018
For Ovarian Cancer "The only side effect I have had is insomnia, but at times this is a real problem. [3-4 h/night when I have to go to work the next day]. Otherwise I don't feel like I am on a medication except when I take it at night. Platelets OK throughout so staying at 300 mg at night. So far my CA-125 is within normal limits, but it is getting slightly elevated in last 2-3 months [from 9 to 15 to 21]. I don't know if this is related to other inflammation and my gyn-onc isn't sending me off for a PET scan yet. I am happy with it so far. Biologics gets it right to me when my refill is due."
- Lor...
- Taken for 1 to 6 months
- July 7, 2021
Zejula (niraparib) for Ovarian Cancer "Diagnosed with 3b serous ovarian cancer in June 2020, had radical hysterectomy/oophrectomy/salpingectomy/cervix& omentum removal, followed by 5 months of chemo (paclitaxil and carboplatin). No evidence of cancer. Started on 2 daily capsules of Zejula in January 2021. In the 5 1/2 months since, I’ve had 4 episodes needing intervention: twice had to interrupt treatment due to low platelets, and twice needed blood transfusions because of severe anemia. The doctor is reluctant to lower the dosage but I find the 3 weeks leading up to the transfusion intolerable."
- MRS...
- March 4, 2021
For Ovarian Cancer "I’m on my 3rd recurrence Ovarian 3c High Serous. I’m vondidetes platinum sensitive & my last chemo was 3 years ago. Avastin bought me 3 years until BP increased with severe dizziness. Had to stop Avastin because of that rise & cancer started to move fast & found evidence in several localized lymph nodes. Was recommended Niraparib alone 300mg with no Chemo. I been on the 300mg for a month now. 1st few weeks were ok, just BP was high probably Niraparib also contributes to BP on top of Avastin. On the 3rd week I noticed more nausea & CBD shots help . On 4th week & side effects are very evident, severe fatigue, nausea , insomnia & mild headaches. Stomach pain & constipation. Platelets look good although the liver enzyme increased by a few numbers. Symptoms mimic those of chemo therapy. I might have to decrease dose to 200mg in a week if symptoms are intolerable. Ca125 is still pretty high. I hear both symptoms & marker get better in 3 months."
- Don...
- Taken for 1 to 6 months
- July 12, 2022
Zejula (niraparib) for Ovarian Cancer "I agree with VCW22 December 13, 2017. This drug "is killing me." WTH is the manufacturer doing? First month NO problems, FIRST week of 2nd month-immediate fevers, extreme fatigue/exhaustion, and shortness of breath. I am having a chemist analyze what is is the second batch sent to me. I will NEVER take it again!"
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Your review helps others make informed decisions.- Add...
- Taken for less than 1 month
- August 7, 2023
Zejula (niraparib) for Ovarian Cancer "I was taking 200, but it was making me feel sick. I felt tired, fatigued, had headaches, nausea, and back pain. Even with taking 100, I still experience the same effects. I guess I need to give it more time to settle in my body."
- Oll...
- Taken for 1 to 2 years
- July 15, 2024
For Ovarian Cancer "I was diagnosed with 3c ovarian/peritoneal cancer in October 2020. I had 6 cycles of chemo Carboplatin/Paclitaxel followed by 12 cycles of Avastin. Cancer progressed rapidly in May 2022 with 2 large tumors. I had 6 more cycles of chemo Carboplatin and a 6-hour operation - hysterectomy & bowel surgery (stoma), nodule removed from my liver, and removal of omentum. I had 2 more cycles of chemo Carboplatin. I started Niraparib in March 2023. I am small in build and became desperately ill within the first month, with low platelets, anemia, etc. I was hospitalized and had blood transfusions. I restarted Niraparib in April 2023 on half the dose. I am now on cycle 16. I have a good quality of life, walking, gardening, and socializing with friends and family. I have been to the Algarve and this year to Kefalonia. I continued with Niraparib on holiday. This drug has been very successful for me - and I do not have the BRCA gene mutation. It recommends taking it each evening, but I take it every day at lunchtime."
- Mic...
- Taken for 1 to 6 months
- February 11, 2022
Zejula (niraparib) for Ovarian Cancer "Maart 2021 kreeg ik te horen dat ik eierstokkanker heb fase 4. Na 6 maanden chemo, elke week kreeg ik te horen dat ik niet in aanmerking kwam voor een operatie en palliatief was. Men stelde me Zejula voor om mijn tijd te kunnen verlengen. Begonnen in oktober 2021 en tot hier toe zeer tevreden. Mijn lichaam aanvaard het op lichte bijwerkingen zoals vermoeidheid en constipatie na. Ik neem elke avond 200 gr. Tot nu toe dus gunstig effect, hopen dat dit zo mag blijven maar oncoloog was gisteren toch heel positief. We blijven ervoor gaan"
- Don...
- June 6, 2021
For Ovarian Cancer "Have been on niraparib now for just 2 weeks - already had a 2 night stay in hospital with bowel blockage. Started on 300mg nightly now reduced to 200mg. Diagnosed Stage 2 on November 2016, 3 major surgeries including bowel resection after bowel damage in 2nd surgery. 3 full cycles of chemo - chemo my best friend. Last chemo completed December 2020, cancer still in abdomen only. BRCA negative. Scared to be taking this drug, but apart from the chemo it’s my lifeline at the moment. Ca 125 @ 14 and stable. Finding dealing with this whilst managing an ileostomy stoma is a day by day issue. Been very positive through my journey up to now, held up a full time job with an understanding employer . Hoping to have positive feedback after another month or so. So great to hear all the feedback, both good and bad . Keep well all"
- Tca...
- November 2, 2019
Zejula (niraparib) for Ovarian Cancer "Took for 3 months, platelets and hemoglobin have never returned to normal, requiring transfusions, and I had a stroke. Been off the drug now for 2 months, had another transfusion two days ago."
- Anonymous
- Taken for 1 to 6 months
- November 8, 2017
Zejula (niraparib) for Ovarian Cancer "Had every side effect listed."
- Mem...
- September 12, 2019
Zejula (niraparib) for Ovarian Cancer "Zejula has not helped me, and my doctor has said I should not continue taking it. I had just gotten a 90-day supply (180 100-mg pills). Pill containers are still sealed."
- Ros...
- Taken for less than 1 month
- March 14, 2023
Zejula (niraparib) for Peritoneal Cancer "I started Zejula and feel so tired and can’t taste good. Stomach discomfort and insomnia. I pray this medication works."
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For Ovarian Cancer "I’ve been on it for 2 years after getting stage 3 Ovarian Cancer at 40 years old. Got the surgery, and 6 chemos - I never even got sick one time. Started on 3 pills but my platelets dropped so went to 2 pills. Almost right away I would notice I would feel shaky a few hours after taking them. Like, I wouldn’t actually have the shakes but it would feel like it on the inside. Started taking them right before bed and never had any other issues. About to be done with it next week - 2 years after starting this and still all clear. I truly believe one of the things that helped the most is I also take Adderall for extreme ADHD so I never had the tiredness, weakness, or fatigue that a lot of people mentioned. I did have muscle and bone aches at first and was horrible but my doctor noticed my magnesium was low so I’ve just always taken a 400mg mag supplement every night and never had that problem again. Ask about those little things! Ask to see your blood work! A slight magnesium deficiency caused all that and was easily fixed."