Tysabri for Multiple Sclerosis User Reviews (Page 3)

• Bstee...
• November 30, 2016

"I was diagnosed with ms in May 31 2016. First we wanted to do tecfadra but insurance wanted me to do something cheaper. In that time I had a horrible relapse. So we choose tysabri my doctor said it was the only other drug strong enough to deal with my ms. After my 4th infusion I tested JC positive and had to be hospitalized. I am no longer on it and I am not a fan of it"

• BarryNZ
• January 29, 2020

"Hi my beloved friends, 2 days ago I had my 16th tysabri, tell you what my walking is turned to baby steps with a cane, tired exhausted especially during hot weather, but I got diagnosed 2017 and I had no walking issues apart from my right eye that had a patchy feeling, now I have shoulder pain, left leg experience momental seizures which I am controlling it with tegretol. Doctors are saying that I need to exercise but I can't as my feet are shivering and are too weak to pedal, thinking to move to ocrevus any idea."

• Mom...
• February 16, 2010

"I've only had 2 infusions of Tysabri so far. My Dr. is planning on keeping me on the drug for 12 months. So far, the side effects are min. a migraine headache and extremly tired. BUT those I can certainely live with. Within 1 day after infusion they are gone. This drug so far is much better. I seem to be feeling better both mentally and physically. I wish this drug was the first drug that I would have been given 13 yrs ago -- maybe then I would not have been classified disabled and still be able to work."

• Kate
• Taken for 2 to 5 years
• May 30, 2017

"I've used Tysabri for past couple years. Prior to Tysabri, I used couple other drugs but nothing worked as well as Tysabri. My wish would be to take it every 21 days instead of 28 days. The 4-5 days before infusion time can be very painful with head & body aches accompanied by brain fog I don't understand the risks for a 21 day infusion, but I'm willing to learn"

• KEEP...
• June 11, 2010

"I failed Copaxone and then Avonex therapy. I started Tysabri in March of 2010. Some improvement in my disability. The only side effect that I get is a two day migraine post infusion. Otherwise, I do NOT miss the shots and flu symptoms. I actually look forward to the 2 hour nap during and after infusion! I recommend this medicine to those that fail on the other ABCs!"

• Keyia
• December 6, 2019

"I was diagnosed with M.S almost 4 years ago and have been on Tysabri, and up until April of this year no problems. In April I was in the hospital 2 times. July I contracted Meningitis and was hospitalized for 8 days sent home with a picc line to infuse myself for 6 days. Then again in November I contracted Meningitis again stayed 6 days this time and came home with a picc again. This medication worked good with slowing down the progression of my lesions but it killed my immune system. My doctor has taken me off the medication. We will see what is gonna be her next move."

• mandi...
• April 12, 2011

"Have been on Tysabri for 39 months. For me, it has been life changing. I have been on it all in the last 11 yrs and nothing has worked for me like Tysabri I also experience post treatment headaches and prescription MIDRIN works great for the headache pain."

• Guidi...
• Taken for 6 months to 1 year
• May 25, 2017

"I have been on this medication for just about a year and think it is wonderful the only issue is about a week before my infusion I have a real increase in symptoms I wish that there was a 21-day option because 28 is too far"

• MS Su...
• May 31, 2019

"We found out my husband has MS a year after I had brain surgery for removing 80% of an Acoustic Neuroma Tumor. So, naturally we were devastated, AGAIN... since both our brains SUCK. He was on Copaxone for two years until he had a terrible relapse where he was totally paralyzed except his right hand and he had to be admitted into the hospital, go into rehab and come home in a hospital bed. This was when he started Tysabri, July 2011. Since then, he slowly came back from being bed ridden, to being in a wheelchair for months, to using a walker for months, then using a cane. I believe Tysabri helped him come back to himself and his family, physically and mentally. He had another relapse two years ago, only because he stopped taking Tysabri for a month to get tested for his JC virus. He has been on Tysabri for almost 8 years and his Dr plans to keep him on it unless his JC virus turns positive. We love it."

• Kirsty...
• Taken for 1 to 2 years
• February 1, 2018

"Before my treatment is due, I get so much pain in my shoulders, shoulder blades, arms and hips/leg. I also become really irritable, and erratic moods. This happens about 1 to 1.5 weeks before its due. I have been wondering if tysabri is addictive because its like my body is screaming for it. According to my MRIs my legions are shrinking so its doing something in the background. However, I've either gotten worse since being on tysabri or its progression. MRIs say stable, go figure."

• mygui...
• May 6, 2010

"I sometimes get a headache and some fatigue the day of and after the infusion, but this has done wonders in keeping my MS symptoms at bay. My lesions haven't been active for about a year now, which I believe is because of the Tysabri."

• Redd
• November 19, 2009

"I love Tysabri! Having been on it a year and a half it's a lot better than Avonex. No more flu-like symptoms! I just hate having to sit for an extra hour or so to be monitored. I recommend this when all else fails."

• Anonymous
• October 7, 2009

"I have used this medicine for two years and by far the best treatment for my multiple sclerosis. No side effects, and I don't have to take daily shots. I would recommend this to anyone who has multiple sclerosis. "

• Anonymous
• April 7, 2010

"I was on Tysabri for about 18 months and after that I was on drug holiday for about one year. I restarted my infusion in March 2010 before drug holiday. I never experienced any side effects with Tysabri, however this time around I had muscle ache, fever and daily migraine headaches for 10 days so far, because I still have the headache. I hope I can tolerate this drug again because during my 1st trial I experienced all the positives i.e, balance, walking, thinking, fatigue improvement. I will give it another 2 infusions and wait to see if the side effects stop. Otherwise I may stop the treatment."

• MSwar...
• Taken for 5 to 10 years
• October 3, 2018

"I've had monthly Tysabri infusions and have been in remission for 9 years. I've had MS for 34 years. I became JCV positive and then converted back to negative. The only side effect has been some migraines and UTI's. It has been a miracle for me. I walk with a walker and use a power scooter for long distances."

• Jo...
• December 31, 2009

"I have had 8 infusions. They help...I have mild headaches after each one, but a nap fixes that. No issues. I DO know that you have to stay in close contact with your doctor, monitor liver function and take care of yourself. "

• Kat...
• April 15, 2009

"Have had 12 treatments so far for MS. Have experienced sometimes extreme tiredness following treatments. Have gained about 40lbs in the past year since starting the treatment with no significant changes in diet or exercise. On the good side am glad to not be taking daily injections anymore."

• evang
• January 31, 2018

"changing to ocrevus in 2 weeks after 12 tysabri's. I had relapse around 9th infusion. My bloods came back JC positive (was told negative initially), MRI had increased lesion load. Also found it never lasted the 4 weeks. The pain and fatigue came back about 10 days prior to next dose initially but that became longer to the extent iIwas lucky to have a few good days after dose."

• Bliss
• Taken for 5 to 10 years
• December 4, 2020

"Abdominal discomfort, gaseous and irritable stomach, eye allergy, headache, drowsiness, urinary frequency, mental issues. I have been on Tysabri 7 years, 16 with MS. It Keeps me stable for a long long time. Best treatment in my case.Hope you all are fine."

• Thunder...
• Taken for 2 to 5 years
• February 8, 2021

"I have been on Tysabri for a couple of years. I see improvement with mo new lesions. As for many the week before the infusion it is like I crash. I hurt with low energy. I will take this compared to more disability. The brain infection chances are scary but living life to it's full potential is worth the risk."

• Flore...
• November 28, 2019

"Copaxion was first medication for two years, after 2015 definitive diagnosis of MS, but had horrible injection site side effects and more lesions. The first two infusions I felt good and some of my symptoms had eased since I had a relapse while off meds. The fifth infusion I had chills and fever for a few days and that hasn’t happened again. The worst side effect experienced is tiredness for several days and sometimes chills. I use a cane from time to time for balance and weakness. I won’t know if Tysabri is working until February MRI, and am hopeful For no new lesions. This medication is better than all the horrible injections. I do get depression after as well, but take a low dose antidepressant, which has helped very much. I am JC negative. It is good to know after reading reviews that I am not the only one who experiences tiredness after infusions. My neurologist’s PA said she hasn’t heard of anyone with side effects."

• QueenB
• Taken for 5 to 10 years
• January 5, 2022

"I was diagnosed when I was 29, but I know I've had it since I was 23. After using different therapies for years I was going downhill fast. I decided to start Tysabri. I just had my 103rd infusion. Not positive for the JC virus yet, which is tested monthly. My liver function is good. And, not only have I not had any relapses, I've also had lesions disappear! I just wanted to share my miracle drug testimony of 8.5 years. I cannot tell you how much it's changed my life! I'm walking again and haven't had any occipital neuralgia. I'm done adding symptoms of ms to my life. I look forward to my to cocktails once a month!"

• L E
• Taken for 1 to 2 years
• August 31, 2022

"Tysabri has not improved my condition, nor does it claim to, but it has stopped the progression of lesions and that is something Biogen's scientists should be proud of. I am a person who had a lot of scarring as well as moderate active disease activity when I started. My MRIs have been stable a year on. It appears it does exactly what it is supposed to. I deducted one point only because in my country it must be administered from within hospital and that can be difficult to navigate."

• KatieC
• Taken for 2 to 5 years
• May 8, 2024

"I’ve been on Tysabri for 3+ years now and it has been a great drug. It has helped me live a more normal life. I’ve had no relapses. I do struggle with spasticity, but it has stayed fairly consistent. Side effects are minor, sometimes a little joint pain and severe fatigue on the day of infusion."

• MsSJ
• March 15, 2014

"After the misery of interferon, Tysabri got me ambulatory again and has kept me walking for ten years."