User Reviews for Tysabri

I recently had my third infusion and I always have more energy after. My walking and balance also becomes better. I have no side effects and am very happy.

Still new to the drug but at least I don't get flu symptoms after dosing.

I have had M.S. before 2000 and they diagnosed me in 2000. I have tried all the other therapies and all of them had the really bad side effects but Tysabri it is the most relaxing drug you can take. I got a little nauseated at first but then it has disappeared with time. You don't even know it is working. I was considered a quadriplegic and now I can get around my home without lifts or anybody jerking or pulling on me. It is a great thing Tysabri. I just wish that everyone could benefit from it like me. Thank you.

I have had NO side effects from this drug. I like it much more than the others. I have been monitored very well. I would recommend this treatment for Multiple Sclerosis.

Have had 12 treatments so far for MS. Have experienced sometimes extreme tiredness following treatments. Have gained about 40lbs in the past year since starting the treatment with no significant changes in diet or exercise. On the good side am glad to not be taking daily injections anymore.

My wife was diagnosed with Multiple Sclerosis 2 months after I asked her to marry me, at age 19. Her symptoms were pretty bad. She was on Copaxone for over a year. It really didn't do anything for her. Then she went to a few more doctors who all said she had a aggressive case of MS. Her new doctor put in on Tysabri. She did very well after a couple months. She never had a serious set back. Then when we found out she was pregnant she went off of her infusions. After our baby was born 7 weeks later she had the most aggressive set back with her MS. She couldn't even hold our son. She decided to stop breastfeeding and to go back on Tysabri infusions. 3 weeks later she was able to hold him and is doing a little better each week.

I've only had 2 infusions of Tysabri so far. My Dr. is planning on keeping me on the drug for 12 months. So far, the side effects are min. a migraine headache and extremly tired. BUT those I can certainely live with. Within 1 day after infusion they are gone. This drug so far is much better. I seem to be feeling better both mentally and physically. I wish this drug was the first drug that I would have been given 13 yrs ago -- maybe then I would not have been classified disabled and still be able to work.

I've been on this medication for 4 months, and it's effectiveness is unrivaled to Copaxone and/or Rebif previously taken. I have returned mentally and physically to state prior to diagnosis.

I have had 22 treatments and the last one I had in March made me so sick. Going to take my next one 06.10.09, but they make me feel better.

I have used this medicine for two years and by far the best treatment for my multiple sclerosis. No side effects, and I don't have to take daily shots. I would recommend this to anyone who has multiple sclerosis.

I love Tysabri! Having been on it a year and a half it's a lot better than Avonex. No more flu-like symptoms! I just hate having to sit for an extra hour or so to be monitored. I recommend this when all else fails.

I failed Copaxone and then Avonex therapy. I started Tysabri in March of 2010. Some improvement in my disability. The only side effect that I get is a two day migraine post infusion. Otherwise, I do NOT miss the shots and flu symptoms. I actually look forward to the 2 hour nap during and after infusion! I recommend this medicine to those that fail on the other ABCs!

I was on Tysabri for about 18 months and after that I was on drug holiday for about one year. I restarted my infusion in March 2010 before drug holiday. I never experienced any side effects with Tysabri, however this time around I had muscle ache, fever and daily migraine headaches for 10 days so far, because I still have the headache. I hope I can tolerate this drug again because during my 1st trial I experienced all the positives i.e, balance, walking, thinking, fatigue improvement. I will give it another 2 infusions and wait to see if the side effects stop. Otherwise I may stop the treatment.

After 4 months I started seeing improvements in my body. My tremors stopped and so did my slurred speech.

I have had 8 infusions. They help...I have mild headaches after each one, but a nap fixes that. No issues. I DO know that you have to stay in close contact with your doctor, monitor liver function and take care of yourself.

Tysabri has, so far, ended my relapses. It has become my wonder-infusion!

I sometimes get a headache and some fatigue the day of and after the infusion, but this has done wonders in keeping my MS symptoms at bay. My lesions haven't been active for about a year now, which I believe is because of the Tysabri.

Have been on Tysabri for 39 months. For me, it has been life changing. I have been on it all in the last 11 yrs and nothing has worked for me like Tysabri I also experience post treatment headaches and prescription MIDRIN works great for the headache pain.

I have had multiple sclerosis for 12 years. Been on every medicine, steroids and the list goes on. 1 dose of tysabri. I'm walking 50% of the time without my walker (which I was using 100% of the time for the last 2 years). My mental and my balance have made a great recovery. I can't wait for my second dose!

The only side effect is extreme fatigue for about a week. It goes away and then I am quite good the next three weeks. So far so good.

Tysabri has changed my life. I have had 20 infusions now. At first I could feel a major "up" and then could slowly feel the medicine wearing off towards the end of the 28-day cycle. Now I don't feel much of an up or a down, but I feel consistent and "normal" again. I feel more level-headed, have consistent energy levels, and am able to work out at the gym two hours a day! The only side effect I've ever had was a bad headache on the evening of my infusion for the first 2 or 3 months. At my 6-month MRI/follow-up we found out that the Tysabri was actually causing a significant reduction in my lesions. I haven't had a relapse and only a handful of flare-ups (that last maybe an hour tops).

My husband has been on Tysabri for a year now. The first six months were great. He liked that he was had no nausea and could control bowels compared to Copaxone and Rebif. Fatigue improved. He had very slight improvements to his walking gait and balance. Mental attitude was improved. Lately, balance is poor, walking is dragging/carrying his leg forward, twitch and jerks are back. Strangers call him spider man in public (he laughs). Depression is setting in again. Hearing ringing sounds.

I have received 36 infusions and from the 1st one, my progression stopped. My major side effect is extreme confusion. I feel as if I am going insane and taking my husband of 28 years with me. He is my biggest supporter, my hero, etc. I do not know how I would have made it the past 3 years without him. He is my translator because I get so confused I tell stories totally wrong, I talk backwards. I skip every other sentence but the thing I must keep remembering is that my MRI's have not changed from the day I started Tysabri. I am staying with it for 12 more months and hopefully my wonderful husband, doctor and I will survive this.