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User Reviews for Mycophenolate mofetil

Also known as: CellCept

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Mycophenolate mofetil.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Dermatomyositis 1 reviews 15 medications
   
10
Psoriatic Arthritis 1 reviews 58 medications
   
10
Ulcerative Colitis 1 reviews 186 medications
   
10
Autoimmune Hepatitis 3 reviews 3 medications
   
9.0
Nephrotic Syndrome 1 reviews 42 medications
   
9.0
Uveitis 1 reviews 80 medications
   
9.0
Systemic Lupus Erythematosus 4 reviews 98 medications
   
8.5
Multiple Sclerosis 2 reviews 86 medications
   
8.3
Organ Transplant, Re...tion Prophylaxis 7 reviews 14 medications
   
8.1
Myasthenia Gravis 12 reviews 7 medications
   
7.9
Rheumatoid Arthritis 2 reviews 343 medications
   
7.0
Summary of Mycophenolate mofetil reviews 36 reviews 8.8

Reviews for Mycophenolate mofetil

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For Psoriatic Arthritis: "I have Sj"

   
10

Shining Star (taken for less than 1 month) April 5, 2016

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For Myasthenia Gravis: "crashed this time last year couldn't swallow and lungs failed. ICU 28 days and rehab 14 on 2000 cellcept with 10/5 predisone and mestanon(sp) back to normal after 6 months and hope to get down to 5 mg daily of predisone but wonder how long I can take cellcept I have VA but not a lot of MG experience at my VA Hospital Good luck to everyone."

   
9.0

tcadle March 13, 2016

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For Myasthenia Gravis: "I was on Imuran for about 20 years for MG. but it blood tests begin to show liver damage. I went to 20 MG of prednisone a few months until it was reduced to 10 MG, then 5 MG. I relapsed again and increased to 60 MG by the end of 2014. Began taking 400MG Celcept while decreasing prednisone. Happily off prednisone October 2015, with no signs of MG. Prednisone destroys protein so I was weak and had gained 25 pounds. January 2016, still on cellcept and back to normal weight. However am weak, ache, and sleep little. These are possible side affects of cellcept. And will be looking for a solution. On a daily basis it beats the heck out of prednisone."

   
8.0

42dubbs February 3, 2016

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For Myasthenia Gravis: "very expensive once you hit the donut hole..but it does help"

   
7.0

RQr June 11, 2015

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For Myasthenia Gravis: "The normal treatment of Prednisone & Mestinon became ineffective. My neurologist asked for me to try CellCept. I was placed on 1000 mg twice a day. It has been a God send. My eyes and face cleared up and my vision improved. This year, I was forced into Obama Care and the government panel has rejected me the use of it. I would be forced to personally pay an extremely high price for it."

   
10

subsisting (taken for 2 to 5 years) May 23, 2015

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For Rheumatoid Arthritis: "With the mycophenolate mofetil I take 500 MG Tabs, 3 tablets two times a day. I find it makes me drowsy and nauseous. Plus, right now, it’s not helping the pain in my hands and fingers."

   
5.0

Jellojb April 13, 2015

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CellCept (mycophenolate mofetil) for Nephrotic Syndrome: "I was reluctant to take this medication but essentially had no choice when faced with the possibility of losing my kidneys. It saved my kidneys and also helped greatly with my other SLE symptoms (joint pain, neuropathy and lung issues to name a few). I also can't tolerate steroids, so luckily CellCept combined with Plaquenil has kept things under control without having to add Prednisone in the mix. I did experience some issues with dizziness, hair loss and insomnia, but they have tapered off after being on it for a year now; still have problems sleeping at times though and am now experiencing some anxiety. I'm also concerned about the long term effects ie. lymphoma risks and it's very expensive, but overall it saved my life."

   
9.0

Smed October 17, 2014

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CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis: "I have had 3 Kidney Transplants and I've been on Cellcept 2 different times. The last time I was on Cellcept, for 7 years it worked well until I developed Cellcept Colitis. I was extremely sick and found myself in the hospital. The doctors discontinued Cellcept and now I am on Imuran."

   
6.0

3rd times the charm (taken for 5 to 10 years) May 15, 2014

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For Multiple Sclerosis: "I have been taking this medication since 2010 after my worst episode and my first episode since taking it began two months ago. I'm taking it alone with no other Multiple Sclerosis related treatments except that we are now trying hydrocortisone since it is a natural steroid."

   
9.0

kilkennyblue (taken for 2 to 5 years) May 25, 2013

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For Myasthenia Gravis: "I have had Myasthenia Gravis for 6 years. After a serious crisis and use of high levels of Prednisone. In 2008 I was put on mycophenolate mofetil. It has helped me tremendously. Not totally free from M.G. but I am pretty good and think Mycophenolate is great. I am male 67 and am on 1.5 grams per day. It has changed my life for the good."

   
8.0

Pasadena20 April 7, 2012

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CellCept (mycophenolate mofetil) for : "I was diagnose MG for three years, having plasma weekly but still not response. Currently taking cellcept, it seems response well within two days. Hopefully it help my symtoms so I don't have to have plasma weekly"

   
9.0

Anonymous February 16, 2011

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CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis: "I had a liver transplant Feb '06 and have taken 1000mg twice a day now for a couple years. Before that dosage changed a bit to get correct dosage. I also take tacrolimus (prograf 1mg twice a day) I have had no side effects--expensive but luckily I have a plan."

   
8.0

Anonymous March 29, 2010

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CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis: "I had a liver transplant in 2001 and was put on both CellCept and Prograf. When my creatine reached 2.1 I was taken off Prograf and put on 2000 mg a day of CellCept. I have had no side effects. I only problem is the cost, I am now on Medicare and will be in the donut hole after 4 months."

   
9.0

Anonymous January 27, 2010

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CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis: "I had a liver transplantation in 1997, and been on Sadimmun Neoral for 13 years. In 2009 my Doctor decided to switch to Cellcept because my creatinine level rose from 1,3 to 1,7 (Kidney). I have been on both Neoral and Cellcept over the whole Summer of 2009. I did not feel well and finally in Nov. 2009 I had a Hyper Blood-sugar shock of 1402, Was hospitalized, now I am slowly recovering with Insulin BS 100-200. Ii switched back to Sandimmun 25-0-50 but my Doctor wants to switch again to Cellcept. I'm afraid to get a Hyperglycemia again."

   
6.0

franz_Sadimm_Cellcept January 20, 2010

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For Myasthenia Gravis: "I am 70 years old and have suffered from MG for 12 years. I have been on predisone for that time 30/10mg eod. My neurologist said that I had to get off the prednisone and highly touted Cellcept. I was on 2000mg per day for five months and then started to have severe calf, ankle and feet swelling, horrible muscle aches and increased weakness. I really was in misery. I made a special appointment with my neurologist. He told me that it couldn't be the Cellcept that was causing my problems. But, he left the room for about five minutes, came back and said I had to get off Cellcept NOW. I believe he left the room to read up on the unusual but severe side effects. My symptoms are listed in that category."

   
1.0

TCO January 3, 2010

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For Autoimmune Hepatitis: "Front-line anesthesiologist with auto-immune hepatitis. Immune-competent enough to resist patient pathogens in operating room, but Cellcept preventing my immune system from destroying my liver. Costs me $1200/mo before deductible. "

   
7.0

goodpasture December 13, 2009

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CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis: "Had kidney transplant almost 3 years ago, seems to be working great for me."

   
9.0

jaymo November 2, 2009

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CellCept (mycophenolate mofetil) for Systemic Lupus Erythematosus: "I was diagnosed with Systemic Lupus Erythematosus in November of 2006. I've been taking Cellcept 2000mg a day since then. It has helped me tremendously! I hadn't experienced any real side effects until recently. I started having anxiety attacks after being put on the generic version of Cellcept."

   
9.0

Arveel c. October 28, 2009

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CellCept (mycophenolate mofetil) for Systemic Lupus Erythematosus: "I was diagnosed with Lupus April 20, 2009. I was prescribed Cellcept and still on it. I notice a difference in the joint pain if I haven't taken my dose yet. The disadvantage is the stomach issues it causes. My doctor also prescribed me Imodium. That helps a lot."

   
8.0

Jennifer-GA October 26, 2009

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CellCept (mycophenolate mofetil) for Organ Transplant, Rejection Prophylaxis: "I have had a heart transplant. This drug has kept me alive for the last 18 months. Thank you. Fortunately I have suffered no side effects."

   
10

Kay Geigh October 16, 2009

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For Dermatomyositis: "Have been treated for Atopic Dermatomyositis since 1994 with a variety of drugs. Mycophenolate combined with small dosage of Prednisone (3 or 4 mg) have kept skin clear and relatively unaffected for past 5 years. Muscle enzymes quickly elevate if I cut back from two to one 250 mg capsule per day."

   
10

Anonymous October 14, 2009

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CellCept (mycophenolate mofetil) for Rheumatoid Arthritis: "I have been taking this for about 6 months now and it has greatly reduced the inflammation and pain caused by inflammation of the arthritis. The only complaint I have is that if I take it in the morning as the doctor wants me to (1000mg 2xday) I am drowsy the whole day."

   
9.0

Anonymous October 10, 2009

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CellCept (mycophenolate mofetil) for Myasthenia Gravis: "I have suffered from MG for 9 years. My original symptoms were mostly ocular with some generalized symptoms. I tested negative for AcR antibodies. I was on high dose Prednisone for a long time. When the symptoms came back, I told my Neuroogist that we had to find something else and he recommended we try CellCept. It works but there are side effects (mostly just annoying) and long term risks."

   
7.0

WBart September 1, 2009

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CellCept (mycophenolate mofetil) for Systemic Lupus Erythematosus: "Taking 2000mg a day with mild side effects. Tremors in my hands when I first started and when the dose was increased. Those have since stopped. Also experience some sleep problems, but this could also be due to another medication. My body responded very well to the medication and my condition has significantly improved in just a few months. Hoping for continued success on the medication."

   
8.0

Anonymous August 14, 2009

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CellCept (mycophenolate mofetil) for Ulcerative Colitis: "This stuff to me was the miracle drug. I had been put on Imuran, Asacol, and neither of them helped at all. In fact, they worsened the condition. My new doctor put me on Cellcept and within 3-4 days, all of the symptoms were gone, like there was never a problem to start with. To me, Cellcept is the greatest thing since sliced bread."

   
10

Anonymous August 4, 2009

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