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User Reviews for mycophenolate mofetil systemic

Also known as: CellCept

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

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Myasthenia Gravis 6 review(s) 10 medications
8.5

Sort by: Reviews for mycophenolate mofetil systemic to treat Myasthenia Gravis

Select Members have provided additional information by completing the member surveyWBart said:
User Rating:  
7.0
CellCept (mycophenolate mofetil): I have suffered from MG for 9 years. My original symptoms were mostly ocular with some generalized symptoms. I tested negative for AcR antibodies. I was on high dose Prednisone for a long time. When the symptoms came back, I told my Neuroogist that we had to find something else and he recommended we try CellCept. It works but there are side effects (mostly just annoying) and long term risks.

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September 1, 2009 11:23 AM
Mrs. D (unregistered) said:
User Rating:  
5.0
CellCept (mycophenolate mofetil): I have been on CellCept for almost 3 years. I started taking it with an IVIG treatment and was taken off the IV to see if I can get by with just the CellCept. My oncologist wants me off it because of the increased risk of lymphmona. I will start trying to get off it in April.

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March 21, 2009 12:17 AM
Anonymous user said:
User Rating:  
10
CellCept (mycophenolate mofetil): Taking Cellcept for my Myasthenia Gravis has allowed me to live a symptom free, normal life.

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December 9, 2008 10:57 AM
Anonymous user said:
User Rating:  
10
CellCept (mycophenolate mofetil): Cellcept works for many with Myasthenia Gravis, but not all. Thank God it has worked for me. I would be taking huge amounts of steroids or some other even more potent immunosuppressents if it was not for Cellcept. Thank you Roche.

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August 14, 2008 8:49 PM
S.S. Corps user (unregistered) said:
User Rating:  
9.0
CellCept (mycophenolate mofetil): I was diagnosed with Myasthenia Gravis. It had affected my left eye. I lost control of the eyeball movement and the eyelid had to be manually opened. I have been taking 2 grams of cellcept daily for six months. I had an immediate positive response to the medication and the eye function improved 90% within a month. In the following months eye improvement was slow with small incremental improvements. Now the eyelid is working as expected. The left eyeball is not following the right eye. There are no sides effects.

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July 27, 2008 4:32 PM
Anonymous user said:
User Rating:  
10
CellCept (mycophenolate mofetil): I have Myasthenia Gravis and I have been taking Cellcept for two years. It saved my life.

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April 12, 2008 7:09 PM

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