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I was diagnosed in Nov 2006. Avonex did not work, so early in 2007 I started on Rebif. 6 years no relapses. I would get very bad headaches on the 2 day stretch with no Rebif. I made the mistake of stopping my Rebif for about 6 months and I had a relapse. Face is numb and legs and feet tingly. I regret stopping for the 6 months. I should have called MSlifelines and figured out how to manage the headaches. Regardless, I am back on Rebif and will gladly stuffer a headache if I don't suffer any more relapses. If the goings good..don't quit!
I am a 31 male, 200lbs,and was diagnosed with RR Multiple Sclerosis Feb. 2012, after losing sight in one eye, and some steroid treatment my vision returned however, the color is still a little off. My Neurologist put me on Rebif immediately. Since I have been on Rebif I have not experienced any major relapses. Just some tremors now and then and other minor symptoms that just maybe permanent nerve damage. I take the 44mcg dose at bedtime with 400mg of ibuprofen, it seems to help me sleep through the night. I do get headaches often but the ibuprofen seems to help (not eliminate them). I also get flu symptoms sometimes the day after I take a shot but not always. My liver enzymes are slightly elevated but, nothing to worry about. Thank you Rebif.
Diagnosed in 1999 and was placed on Rebif since 2004. Never had any other meds. Overall Rebif was good for me, I had 3 years with a minor relapse in each year (but did steroid treatment to resolve) and then I had no relapses, I must admit that I would skip at least 2 times a year and give myself a Rebif holiday- a week of not taking Rebif, (I don't recommend this!) I would always let me doctor know. Despite my success, I stopped in 10/2012 because Rebif never let me feel like myself and I was ALWAYS tired and sluggish. Unfortunately, in 3/2013 I had a terrible relapse that landed me in the hospital for a few days. My neuro said it was aggressive and wants me on Tysabri now.
I have had multiple sclerosis since 07/2007. On 05/2012 I have had a relapse. I have been on Rebif since 07/2007, it's awful to have this relapse, my right arm is still not 100% back. Rebif is a good medicine though, I have minimal to no side effects, I do get severe hot flashes during the times I do get to sleep...leaving me to have to constantly change my shirt every 2 hours. Regardless I'm kind of upset that I went through a relapse within 5 years of be being diagnosed.
First off, I was diagnosed with MS about a year ago, after having many relapses in a 6 month period. I was put on Rebif and after that I have not seen one more problem. It has given me a wonderful peace of mind.
Second, I know there is a long list of side effects, however, I have not had one, So I take my shot anytime during the day.
Third, my insurance is through Pfizer, which is the co-producer of this drug, so therefore I dont pay a penny out of pocket for this drug.
Honestly, thank God for this remarkable drug!
11 users found this comment helpful.
EXTREMELY blessed to have insurance coverage for this medicine. I have Multiple Sclerosis and am 29 years old. I have been sick for about 3 years now, which was about 6 months after the birth of my first and only child. My prior conditions are mostly autoimmune, ranging from Cardiomyopathy to Crohn's Disease. My disabilities from Multiple Sclerosis include right leg/foot drop or weakness, numbness, urinary issues, balance issues, SEVERE nerve pain, etc. I have been on Rebif for a month and have titrated up to the highest level of 44mcg. I have extreme fatigue, bruising at injection site, and flu like symptoms, but I have noticed the longer I have been on it, the better my worst days are. So I am praying this will work.
I was diagnosed with MS in 07/2009 and started this medication in 11/2009. I was titrated up to 22 mg and then titrated up to the 44mg within 4 months of starting medicines. I got an emergency phone call from the Neuro. office after routine blood work came back telling me to immediately move back down to 22mg dose. I had elevated liver enzymes for an entire year on this medication. Finally the levels dropped to normal range. Four months after the liver enzymes normalized I stopped having the flu like symptoms (Fever, headache, general unwell feeling). I take a Naproxen about an hour before each shot. I still get site reactions and some bruising at injection site (and burning when medicine is going in). I use the RebiSmart Injector.
I have been diagnosed with MS since April '09. I was first given Copaxone but that medication failed for me. My Doctor then decided to put me on Rebif and there was only time that I had forgotten to take Aspirin before taking the shot and that time I felt really bad the next day... other than that one time, the only other problem that I dislike about taking Rebif is the concept of giving myself a shot but the good part about Rebif is that it has kept me in remission for roughly a year now.
14 users found this comment helpful.
I was diagnosed with MS almost a year and half ago. I was on Avonex, but symptoms seems to worsen, so my Doctor switched me to Rebif. I wish I had taken this medication from the beginning! I love love love this injection! I have been on Rebif for almost a month now and can already tell a difference. I have not had any symptoms in 4 days! Which is really good for me, because I always have symptoms everyday. I recommend this to everyone! I have had no side effects, but headache. Its been great for me. No injection irritations at all.
I have taken Rebif; it has worked so well and I have had so few side effects that there's been no reason to try out the other disease modifiers. When on a consistent dosage schedule, I never experienced a relapse. The needle is really small. I rarely use my injector anymore - just stab and go. I take it at night to sleep through any effects. I was warned very seriously about the possible side effects, but the worst that I ever have is a slight fever the morning after an injection, and/or the beginnings of a headache that I nip in the bud with migraine medicine.
19 users found this comment helpful.
I have had no relapses since I have been on Rebif. I did not experience the sick feeling, Thank God. I do not like the sting, which can vary from none to a bee sting feeling. Also the mark that it leaves. I use my butt so they can not be seen.
20 users found this comment helpful.
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