Remicade User Reviews & Ratings (Page 4)

• Nickie...
• January 7, 2017

For Rheumatoid Arthritis "I was diagnosed with RA in 2004 and began steroids and methotrexate. Next started Enbrel for approximately 8 months but the citric acid in the Enbrel was unbarable. Then I began Remicade Infusions. I started out nine years ago every 6 weeks. I'm now on 700 mg every four weeks and weekly injections of Methotrexate but wouldn't change a thing. I still have stiffness here or there but the fatigue and pain I use to experience are gone and I live a full and happy life. It's been such a Blessing to me."

• Kenbr...
• Taken for 10 years or more
• July 18, 2018

For Crohn's Disease "I went on this medicine in 2003 because of disease in my ileum. I was diagnosed with Crohn's the year before, and nothing had worked - asacol, prednisone, imuran. Then Remicade was a LIFESAVER! I actually could live my life like a normal person again! I had a hard time scheduling my infusions because I was in college, so my advice would be to get it as close to your due date (7 weeks, 8 weeks, etc) as you can so you can get ahead of the flare. I've noticed that if I get my remicade late, I feel pretty terrible until my next dose. I've never gotten sick or had an allergic reaction from it, and I've been on it for 15 years. It's not working as well as it once did, so I'm hoping I can change to a shot so I don't have to sit through an infusion. If you're considering going on Remicade, I highly recommend it. It helped me live a semi-normal life. However, I did develop psoriasis about 10 years ago. I'd happily take psoriasis if it means I can be on Remicade. Best of luck!"

• Cuity
• February 3, 2011

For Ankylosing Spondylitis "My first go around in 2008 was like a miracle. No side effects! After 3 infusions I lost my medical coverage. Remicade took away the morning stiffness and the pain so much I was able to do push ups and squats. If you looked at my stooped forward posture you would know why that's such a big deal. I eventually started driving the city bus after being denied for Social Security. In Sept of 2010, after 2 years of no infusions my condition worsened and I resigned from my bus driver job due to neck movement restriction. Now back on state medical ACHHS, I'm back on Remicade, just had my 2nd infusion, but this time with a cough that I'm not sure was caused by Remicade, time will tell. Overall Remicade is as close to a miracle as it can get."

• shano...
• May 9, 2009

For Crohn's Disease, Maintenance "I am 24 and I was diagnosed with Crohn's disease a year and a half ago now. I've been receiving this infusion for the past 12 months. The relief was brilliant bar constantly catching coughs, colds and flu's but it was worth it as I could lead a normal life again. My infusions were every 8 weeks and could take anything up to 4 hours but my remission time between infusions began to steadily decrease. I have now had my 9th infusion and receive them every 5 weeks. My body has grown an immunity to the drug and my doctor is changing me onto Humira as a last resort to avoid surgery. Hope this helps somebody."

• LSJ
• Taken for less than 1 month
• January 30, 2020

For Rheumatoid Arthritis "My mother had RA, was prescribed "remicade" as an option for her RA. To say the least, we ended up burying her. Shortly after taking remicade my mother's health diminished quickly. I do believe the doctor was at fault for suggesting this medicine due to her prior medical conditions. The drug was too strong. Be careful, or you could end up apart of a Eulogy!"

• WCW
• April 12, 2020

For Crohn's Disease, Maintenance "I am now 80 years old and was diagnosed with Crohn's about 3 years ago. Late in life, I know, but was misdiagnosed with IBS and put on mesalmine which only made me lose my appetite, lost so much energy that I could not walk 10 feet. Went to teaching hospital and was quickly suspected and diagnosed with Crohns. Shortly afterwards put on Remicade. Total remission, regained strength and bowel control within a week and appetite. At first on 8 weeks but noted tendency to some flare tendency toward the end so put on 6 weeks. Have had no problems and lead a "normal" life with wife, children and grandchildren now! Make sure I follow doctor's advise including all vaccinations he recommends. He does full blood work before every infusion. He is very quick to respond to any contacts or questions I make with him."

• Elibe...
• May 7, 2017

For Rheumatoid Arthritis "I was diagnosed with Systemic Sarcoidosis. After a year and 1/2 of trying different medications with no relief, I started Remicade. The first two Infusions got rid of the flu like symptoms and the horrible aching pain throughout my body. The third Infusion got rid of the same symptoms, except I do feel knee and back pain still due to damage done to those areas from arthritis. I felt the back and knee pain after the first two Infusions too. I didn't realize how sick I was until I felt better. The last time I didn't feel like I had the flu all the time, was 32 years ago! I thank God for Remicade! It's a miracle drug. I have absolutely zero side effects too! I give it a 20 on a scale of 1 to 10!"

• Anonymous
• September 6, 2016

For Crohn's Disease, Maintenance "I was diagnosed in 2013 with ibs.. Then 2014 ibd....now Feb2016 with crohn's...tried a lot of meds nothing worked went to remicaid well it has been working but never lasts that long... By 5-6 wks I'm starting to flare... This time after load in doses they used me to 7.5 and that worked I got 6 wks out of it instead of 4 wks.... But this time it's bad started flare of belly 4 days ago... And now I can't barely move feels like I've been hit by a truck... All my joints hurt so bad ...this is awful.. Hoping to get an infusion. ... But I read all the same issues...."

• Paula
• Taken for 2 to 5 years
• May 18, 2018

For Ankylosing Spondylitis "Remicade works well for me. I'm a 30 year old female. I have been on Remicade for 3 years. I sometimes have nausea after the infusions for 1-3 days and hot flashes. My iritis and uveitis have both been put in remission since being placed on Remidade!"

• Gutsy
• June 15, 2013

For Crohn's Disease, Maintenance "After resisting having read American Black Box warnings I was finally persuaded through my consultants actual experience with the medicine - that and having 6 operations/ colostomy and the disease still beating me. I was exhausted and unable to walk/do anything other than essential basic necessities - if that. I have had three infusions of Remicade so far along with steroids for peri-anal fistula, Crohns, at two weekly intervals and I have some shade of a life back. Immediately after the medicine I am very tired. I have headaches that last for about four days at a time/paracetamol doesn't touch them. I get bad cramps in my legs especially at night and occasional mild flare ups BUT NOTHING like before. Stress plays factor in starting my flare ups."

• Kwixo...
• Taken for 5 to 10 years
• April 13, 2018

For Crohn's Disease, Maintenance "Six years of Remicade infusions so as to replace prior intake of Prednisone. Must say quite effective, HOWEVER, about 3 1/2 years into it got Shingles of the eye and subsequent post-herpetic neuralgia (and there's still some itching almost five years later). Then August of 2017 got cellulitis in the right arm, a very painful infection requiring a seven day stay in the hospital on antibiotics followed by a week long IV administration at home. Once I was better, I have stopped the Remicade and so long as I am enjoying the remission I'll never return to it. My GI doc has suggested Entyvio but I most likely wouldn't even do that. Heck, if it ain't broke don't fix it!( I don't wish to tamper with my immune system and bring about more disasters!)."

• A-Train
• July 3, 2008

For Crohn's Disease, Maintenance "I am 22 years old and have had Crohn's disease since age 17. I can't take steriods of any type - makes me go crazy. Remicade is the best drug I've been on for my disease. It works great but has some bothering side effects for me but they are not bad enough to quit gettting this medication every 8 weeks at the hospital through I.V. It takes about 2 or 3 hours for the treatment to be over."

• J Yoder
• August 20, 2016

For Crohn's Disease, Maintenance "I first had symptoms when I was 17 yrs old. Was not diagnosed until I was 25 during an exploratory surgery to find out what was wrong with me. I am now 67, have had three surgeries, 2 for blockages and a variety of meds.. This last surgery did not go well and my crohn's became worse. The doctor recommended I go on Remicade. Have had three treatments with no improvement, extremely exhausted. During my treatments I developed chest pains, had an angiogram, everything fine. Then became very short of breath, fever and got water on the heart from the procedure. Will be discussing this with the doctor and requesting I stop the treatments. I have not had a rewarding experience with Remicade. Not sure what my options are going forward."

• Tatiana...
• July 6, 2015

For Crohn's Disease, Maintenance "I suffer of Crohn's Disease about 2 years and took remicade for one now. At first i had headaches but now i just took remicade every 56 days and keeps me ok. I don't feel the syntons of disease and bacically i eat everything that i wish but i'm 29 so i'm always on diet to keep my body shape."

• JLano
• August 31, 2010

For Ulcerative Colitis "Have had Ulcerative Colitis for 4 years. 3 years ago started Remicade at 5ml per Kilo, with only mild help. Only other choice was surgery. Switched Doctor who immediately doubled dose to 10ml (which I think is the normal dose) so I probably was under-medicated for 2 years. However higher dose has not helped much more. Have had almost no side effects. One allergic reaction early on to the infusion. Only minor problem is the skin on my hands and arms seems very thin and very easily bleeds from the slightest scratch. So for me it has not worked as hoped. "

• tuco
• Taken for 1 to 2 years
• May 4, 2016

For Ulcerative Colitis "Initially helped me for around 1 1/2 years, then began to lose its potency, and last two treatments had bad reaction night of treatment. More important platelet count went from normal to around 45,000. No longer taking Remicade and my platelet count is normal now."

• 53CEO
• Taken for 1 to 6 months
• January 19, 2017

For Ulcerative Colitis "After losing a substantial amount of weight and blood, in the hospital for a week two transfusioins. diagnosed as Pan Colitis / Ulcerative Colitis. 60 mg Prednizone and the bleeding stopped at day 5. I returned home and was pressured by my GI to accept Remicade. I was skeptical but sold myself on the fact of the huge numbers of folks it helps. After two succesfull infusions I was set up for my third of which I expereinced an allergic reaction in this order, itchy palms , itchy feet , itchy everywhere, needed bowel movement , almost fainting , fever, chills and tightening of throat. Once home extreme right leg pain, hand joint pain, loss of hair. (Serum sickness) now on Balsalazide , cautious diet and cannabis nightly & 6 months no issues"

• GramaJ
• April 9, 2017

For Rheumatoid Arthritis "Like some RA people, diagnosed easily back in 1990. Genetically "gifted" it from maternal side. Having tried all the old first line drugs w/o success I started on second line of meds including Enbrel. It was great for 6 months. Then it stopped. Remicade was started & after one infusion I had a horrible reaction: Serum Sickness" . Paralyzed for 3 days, severe allodynia (pain all over). Would never take this drug. It was the mouse protein in Remicade that I reacted to. Wish you all well!"

• Linda...
• Taken for 5 to 10 years
• February 13, 2017

For Ulcerative Colitis "Diagnosed in 2003 with ulcerative colitis. Started Remicade in 2010. Helped my symptoms but developed Discoid Lupus in 2015. Doctor thinks it was brought on by the Remicade. Stopped Remicade and now taking Entyvio for colitis and plaquenil for the lupus."

• PENWE...
• April 25, 2009

For Crohn's Disease, Maintenance "I was diagnosed with Crohn's disease ten years ago. I had a flare-up six months ago. I had a small bowel resection two months ago. So far I have had five transfusions. At first I felt a little faint and scared. Now it feels fine. I feel great and am in remission. I supplement my Remicade transfusions with 50 mg Imuran and B-12 shot monthly. I am very happy. I hope the good times last."

• Lulu
• Taken for 1 to 6 months
• September 14, 2018

For Psoriatic Arthritis "I feel very tired all the time, am house bound due to fatigue and pain. I also have Ankolysing Spondylitis. I’m due for my third 8 weeks treatment next week. It also makes my moods labile in the first week after treatment. I’m 62 years old, unable to work. I’m hoping for things to get better soon."

• Anonymous
• August 9, 2009

For Behcet's Disease "I have been taking Remicade for approxim ately one year now and find it works quite well for my Behcets symptoms. Things were great during the initial phase of loading doses but I found once my treatments were scheduled for every eight weeks, I seemed to experience a flare before my next session (Around the 5 or 6 week period). My doctor has just increased the treatments to every four weeks and we are hoping this will get rid of my flares all together. The only side effect of the Remicade that I have experienced is fatigue following the infusion."

• Goose...
• Taken for 1 to 6 months
• August 17, 2020

For Ankylosing Spondylitis "I went on Remicade after Humira not working for my Ankylosing Spondylitis (AS). I am 60 years old. I was diagnosed with AS in 2017. I had the symptoms for many years before getting diagnosed correctly. Many women are misdiagnosed with Fibromyalgia. I had the Remicade infusions due to Medicare not covering any of the other biologics. I had 4 infusions of the drug. Each time I felt unwell 3-4 days after getting the infusion. After the last infusion the bottoms of my feet because seriously red, sore, painful and peeling. The doctor said it was a reaction from the Remicade. Then I started to have Eczema on both of my arms and feet. I am still struggling with side effects from this drug. Now I have the AS symptoms along with not feeling well at all. I would not recommend taking this drug. It's is a biological med and my elderly body obviously could not handle it. Never would I take this drug again!"

• tkgoc...
• March 12, 2013

For Ulcerative Colitis "I was diagnosed wit Ulcerative Colitis 3 years ago after being on several different meds for it. My doc and I decided to try Remicade.. it works fine I think but the side effect for me was diarrhea. Plus the cost I just couldn't afford it any longer. I am back on Asacol."

• Paugi
• November 13, 2019

For Crohn's Disease, Maintenance "After being diagnosed with Crohns, I took two (2) Remicade infusions I believe it was only two, (2) . My condition deteriorated quickly. I lost forty pounds (40), the last ten (10 pounds I lost took only ten (10) days. I had a Prometheus Study done and it showed no trace (0) of Remicade in my system, How is that possible? Has anyone else had this to happen?"