The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Remicade (infliximab) for Crohn's Disease, Maintenance: Ok I have had Crohn's disease for 15 years this December. I have maintained myself just fine with minor problems. Recently have learned my pain tolerance is so extreme I have been putting up with stuff shouldn't be for uncertain amount of time. Two questions from people with experience would help:
1. How is it going forward with these fistulas? Unheard of before last Wednesday and I have two forming or in process of.
2. I have limited options going forward and Remicade is seeming best course of action. How have people done with it long term it being an immune suppressant?
I am knowledgeable about these things I am hoping to hear from people who have experience dealing with fistulas and taking Remicade.
Remicade (infliximab) for Psoriatic Arthritis: I had my first infusion last week and within 3 days, I can honestly say I have no pain for the first time in weeks. I didn't have any reactions or side effects except for feeling exhausted, but that maybe related to not being able to sleep for weeks prior, due to pain. I am so happy with the effectiveness and results I have had. I would definitely recommend it!
Remicade (infliximab) for Crohn's Disease, Maintenance: I am 37 and have had Crohn's since I was 18. Three surgeries of the terminal Ilieum. From 18 to 27 I was very very ill. The Remicade has basically helped me to have a normal life again. I feel great these days, but one gets to the point where you feel good and want to be medicine free. You hear horror stories of people getting off Remicade and getting galloping Crohn's disease coming back and then the Remicade doesn't work so well.
Remicade (infliximab) for Uveitis: My daughter is 15 was diagnosed 2 yrs ago with chronic bilateral anterior uveitis..developping secondary glaucoma due to corticosteroids. She has had 2 trabs in right eye and 1 trab in left eye. She was on methotrexate, not working well decided to put her on Remicade. Things were great for almost a year. The minute her doctor slightly reduced it the inflammation was back in 3 weeks. They had to up her dose and she is still on Remicade every 4 weeks. The medicines are stablizing her but not putting her into remission that's what we are striving for.
Remicade (infliximab) for Ankylosing Spondylitis: Have it every 6 weeks but after 5 weeks I get very sore just below my shoulders, sometimes left, sometimes right, sometimes center. I go on Tylenol when I can't take the pain.
Remicade (infliximab) for Crohn's Disease, Maintenance: After resisting having read American Black Box warnings I was finally persuaded through my consultants actual experience with the medicine - that and having 6 operations/ colostomy and the disease still beating me. I was exhausted and unable to walk/do anything other than essential basic necessities - if that. I have had three infusions of Remicade so far along with steroids for peri-anal fistula, Crohns, at two weekly intervals and I have some shade of a life back. Immediately after the medicine I am very tired. I have headaches that last for about four days at a time/paracetamol doesn't touch them. I get bad cramps in my legs especially at night and occasional mild flare ups BUT NOTHING like before. Stress plays factor in starting my flare ups.
Remicade (infliximab) for Ulcerative Colitis: I was diagnosed with Ulcerative Colitis about 12 years ago and have been on Remicade for about 2 of those years. I am still taking Asacol and getting the Remicade infusions every 8 weeks, but I feel about 90-95% better since being on Remicade. I have not noticed any real side effects from taking Remicade, but I have heard from other patients that they have had them. I still think that if I had any side effects (with the exception) of major ones, I would stay on it as long as I can. The only thing I honestly can complain about is the cost. I would say if anyone is being told that it is an option for their ulcerative colitis or any of the other issues that are in the same family (IBS, Crohn's, etc) it is a huge help.
Remicade (infliximab) for Ulcerative Colitis: I was diagnosed with ulcerative colitis in Nov. They thought they that had it under control, so after being in the hospital for three weeks, I went home for two and almost died! I went back and stayed for over a month. The docs were trying everything with no answers, then they told me about Remicade and said it was for Crohn's disease, but we could try it out and see because it was my last hope. I really was happy to see that it was working and in the first of Jan I went home! I have had a kidney stone because of it, and it has acted up which made docs think it was either my appendix or diverticulitis. I still take it every 8wk through I.V, but the only other problem that I'm experiencing is hair loss now and I don't know if its the Remicade.
Remicade (infliximab) for Ulcerative Colitis: I was diagnosed wit Ulcerative Colitis 3 years ago after being on several different meds for it. My doc and I decided to try Remicade.. it works fine I think but the side effect for me was diarrhea. Plus the cost I just couldn't afford it any longer. I am back on Asacol.
Review by festulizingchronesremsvmylife (taken for 6 months to 1 year):
Remicade (infliximab) for Crohn's Disease: First couple trips are the worst but after that it becomes a routine and it works wonders I'm not lying it gave me my life back until my insurance couldn't pay now I use
Humira no competition. Remicade hands downed so if you are doing bad try it.
14 users found this comment helpful.
Remicade (infliximab) for Crohn's Disease, Acute: I'm a 19 year old female with severe Crohn's disease. I began Remicade 4 months ago following a severe flareup that landed me in the hospital, and it has been a miracle. I did have one hospitalization 4 weeks ago, but I think I would have had many more without this. I will admit that the infusions are long and expensive, and the fact that it's an IV (I hate needles). With that being said, Remicade works! In late August, I had 30cm of disease and a fistula. As of late January, I was down to less than 9cm and my fistula is gone! Without Remicade, I would have had more hospital visits and would probably have needed surgery. I am adding Imuran to supplement the Remicade, so we'll see how that goes.
Remicade (infliximab) for Ulcerative Colitis: Remicade literally gave me my life back 9 yrs ago. I was so ill ; in & out of hospitals, steroids, taking 20+ pills a day & I was still extremely sick. I finally went to Philly (where on my first visit, they were planning my surgery to remove my colon..during that conversation I stopped listening.) My dr. suggested I give Remicade a try - before surgery. At that point, I would have done anything. Honestly I did not believe anything would work since I had this disease for years and could barely function. The Remicade worked like magic - it is liquid gold - I have never had any side effects or adverse reactions - I have been in remission ever since!
12 users found this comment helpful.
Remicade (infliximab) for Crohn's Disease, Maintenance: I am a 65 year old male and I acquired Crohn's Disease in 1965 at age 19. Remicade was approved by the FDA in August of 1998 and I was given my first dose the next month. Back then, they only administered 2 doses. I received the second dose 3 months after the first one. I have had no further doses since then.
When I got the first dose I was in the midst of a flare, and I had an actively draining abdominal fistula. Three days after the first infusion the fistula closed of its own accord and I happily avoided yet another surgery for Crohn's (I have had over 20 surgeries).
I have been SYMPTOM-FREE since the second infusion. I have more health issues now, but at least they are not Crohn's related.
11 users found this comment helpful.
Remicade (infliximab) for Rheumatoid Arthritis: I was on Remicade for the past four years. It has recently started giving me bad reactions during the infusion. My arthritis would also flare 1.5-2 weeks after the infusion. Loved Remicade, hated how expensive it was.
Remicade (infliximab) for Crohn's Disease, Acute: I was put on this infusion because Sulfazine was unsuccessful in controlling the Crohns and rheumatoid arthritis. It was reasonably effective for 6 months but I never felt really well and was always achy, and then I had an anaphylactic reaction to it (I was particularly run down at that stage following a flare up). Spent 10 days in hospital and was then put on a weekly dose of Humira - I have not looked back! That was 15 months ago. With Humira I no longer even have rheumatoid arthritis!
Remicade (infliximab) for Rheumatoid Arthritis: For two year (09' 10') we were trying to figure out why my knee hurt so bad. Over the two years it moved into my whole body! I had seen 5 doctors but they had no idea and gave me guidelines of what I could not do. Which made the RA flare up worse. On Dec. 8, 10 I was at school (I am not one to complain about pain) and I broke down crying. My rheumatoid arthritis had gotten so bad in my back that it started shuting down my SNS and I could not walk. I had to have my friends carry me to the school office. My parents stayed home with me for a week because I could not move without someone. We were able to get in to see a pediatric rheumatologist on Dec. 15 10. That day I was dianosed with the disease. This is the first medicine that has helped.
11 users found this comment helpful.
Remicade (infliximab) for Rheumatoid Arthritis: I love it! I'm 16 and have been treated for five years. Methotrexate made me sick and Enbrel, via Epi pen, was more uncomfortable than my arthritis. Remicade is pain free and the time inconvenience is worth it.
13 users found this comment helpful.
Remicade (infliximab) for Crohn's Disease, Acute: Remicade has been a miracle medicine for me treating acute Crohns disease, rheumatoid arthritis and colitis. The difference in me is night and day. I am so grateful to be on my way to being well again!
Remicade (infliximab) for Crohn's Disease, Acute: Remicade was positive for me for over 8 years. Would close up my fistulas for up to 7 weeks before next infusion, but after 8 years all my joints and muscles were painful. Diagnosed with drug induced Lupus. Stopped Remicade looking for another way out.
Remicade (infliximab) for Ulcerative Colitis: The medicine works great. I've been on it for almost 2 years. The only thing is I'm getting a lot of the side effects. The one thing that is very bad is the itching on my arms that have lasted a long time. No medicine has helped so if anyone has any ideas on how to stop the itching please give me ideas. The only good thing about this medicine is that it's helping my ulcerative colitis.
12 users found this comment helpful.
Remicade (infliximab) for Crohn's Disease, Maintenance: I have been on Pentasa, prednisone and Prilosec. Was put in the hospital yesterday for a bad flare up now the doctor is going to start Remicade. I have only been sick since July but not getting any better.
Remicade (infliximab) for Uveitis: My son will be 17 next week. He was diagnosed with ideopathic bilateral pan uveitis 6 years ago. He had double cataract surgery at age 14. He was treated with 6-7 different immunosuppresant medicines, nothing worked. Last August, he was placed on Remicade, once a month. His inflammation has been almost quiet for nine months. His vision is stable. He is back to school and for the first time in five years, he is able to enjoy being a normal teenager.
Remicade (infliximab) for Ulcerative Colitis: I used Remicade for a little over a year and it helped tremendously. While I was on it I never felt better. The only reason I had to stop taking it was because I lost my insurance after I was laid off. My doctors office found a program to help pay for the treatments and I will be going back on the Remicade soon. Can't wait.
24 users found this comment helpful.
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