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User Reviews for Remicade

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Remicade.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Crohn's Disease 2 reviews 65 medications
   
10
Psoriatic Arthritis 8 reviews 56 medications
   
9.6
Behcet's Disease 2 reviews 1 medications
   
9.3
Ulcerative Colitis 13 reviews 74 medications
   
9.2
Rheumatoid Arthritis 17 reviews 334 medications
   
9.0
Juvenile Idiopathic Arthritis 1 reviews 8 medications
   
9.0
Sarcoidosis 0 reviews 49 medications
   
9.0
Uveitis 5 reviews 71 medications
   
9.0
Ankylosing Spondylitis 6 reviews 122 medications
   
8.1
Crohn's Disease, Maintenance 24 reviews 23 medications
   
8.0
Psoriasis 2 reviews 294 medications
   
7.7
Crohn's Disease, Acute 9 reviews 14 medications
   
7.5
Bullous Pemphigoid 0 reviews 76 medications Not rated - Be the first
Celiac Disease 0 reviews 1 medications Not rated - Be the first
Cogan's Syndrome 0 reviews 9 medications Not rated - Be the first
Giant Cell Arteritis 0 reviews 1 medications Not rated - Be the first
Inflammatory Bowel Disease 0 reviews 73 medications Not rated - Be the first
Kawasaki Disease 0 reviews 69 medications Not rated - Be the first
Neurosarcoidosis 0 reviews 38 medications Not rated - Be the first
Pemphigoid 0 reviews 76 medications Not rated - Be the first
Pemphigus 0 reviews 90 medications Not rated - Be the first
Polychondritis 0 reviews 1 medications Not rated - Be the first
Pulmonary Fibrosis 0 reviews 1 medications Not rated - Be the first
Pyoderma Gangrenosum 0 reviews 1 medications Not rated - Be the first
SAPHO Syndrome 0 reviews 1 medications Not rated - Be the first
Sjogren's Syndrome 0 reviews 6 medications Not rated - Be the first
Spondyloarthritis 0 reviews 67 medications Not rated - Be the first
Subcorneal Pustular Dermatosis 0 reviews 1 medications Not rated - Be the first
Toxic Epidermal Necrolysis 0 reviews 38 medications Not rated - Be the first
Summary of Remicade reviews 89 reviews 8.8

Reviews for Remicade

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For Rheumatoid Arthritis "I was diagnosed with a reactive Rheumatoid Arthritis August 1998 after getting the first shot of Hepatitis B vaccine which triggered my RA. I was on Prednisone for a year, Plaquenil, sulafalazine(which almost killed me), arava (leflunomide) for a while, was on Humira which didint help, changed to Enbrel which gave me rashes. In 2000, my rheumatologist who was into RA research and had RA himself ordered Remicaide infusion wtih MTX. That's 15 years ago of quality of life and contnuing 5mg Remicaide every 10 weeks. All my RA labs and tests are negative except CCP (which is 5X higher than the normal. This coming month I'll be OFF my MTX. Even when I'm on Remission I did not stop my Remicaide coz flare ups are worst than the first symptoms."

   
10

Redlady267 (taken for 10 years or more) August 22, 2015

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For Crohn's Disease, Maintenance "Right after my daughters 13 yr. birthday, she had severe bleeding and was diagnosed with severe crohns and colitis. She has been on Remicade since January and has infusions every six weeks. She was on put on Prednisone in March since the infusions did not stop the bleeding alone. She is now being weened off the steroids, Thank God, and is on Remicade for the rest if ths year for now. She gets a boost of energy and after her infusions, but is very smart about what she can and cant eat. Prayers to u all going through this."

   
7.0

Goober-Zoe July 21, 2015

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For Crohn's Disease, Maintenance "I suffer of Crohn's Disease about 2 years and took remicade for one now. At first i had headaches but now i just took remicade every 56 days and keeps me ok. I don't feel the syntons of disease and bacically i eat everything that i wish but i'm 29 so i'm always on diet to keep my body shape."

   
10

Tatiana Pfaltzgraff July 6, 2015

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For Crohn's Disease, Maintenance "All this has done was to make me fat, no change in crohns, very sick, 70% of side affects, still suffering now with dehydration. "

   
1.0

chip stick (taken for 1 to 2 years) July 4, 2015

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For Ankylosing Spondylitis "Getting up in the morning and walking around is a lot less challenging since I started Remicade in June 2008. Before Remicade, I'd have to sit down in my tripod stool after just crossing the street due to extreme fatigue. Now I can walk to the grocery and back."

   
8.0

LAURA87 (taken for 5 to 10 years) July 4, 2015

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For Crohn's Disease, Maintenance "I have been on Remicade for nearly 4 years. Prior to that I had a variety of Crohn's issues including two surgeries for peri-anal fistulas, severe fatigue and lots of other fun stuff. I have been very lucky in that I have responded very well to the stuff and now most days I am fortunate enough to forget I have the disease. I was apprehensive about potential side effects but to date have experienced none. Prior to Remicade I took a few medications which did absolutely nothing but the Remicade had a pronounced effect within 24 hours of my first infusion. If you have Crohn's or Colitis would seriously consider an anti TNF blocker (haven't used any of the others) and stay the hell away from steroids."

   
10

Lenny J. Delarta July 3, 2015

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For Psoriatic Arthritis "I have severe psoriatic arthritis and I've had it since I was 18. I've been on remicade for almost 10 years and I have almost no pain. My joints get a little stiff close to my infusion but that's it. It is my miracle drug and I owe my life to it. I would be crippled without it."

   
10

Susan C. (taken for 10 years or more) May 6, 2015

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For Rheumatoid Arthritis "I had my latest infusion yesterday. It just started to kick in. My fatigue is slot nonexistent and I have the energy that I used to have with Humira."

   
9.0

sawbuzz May 5, 2015

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For Crohn's Disease, Maintenance "I have received Remicade infusions to treat Crohn's. Felt bad right after the first infusion but was convinced by my physician to continue. I have also received Prolia by injection to treat osteoporosis. I decided to stop the Remicade after 3 infusions as I could feel no benefit and had felt very ill throughout. 6 months later I was diagnosed with metastatic breast cancer - this is in spite of having annual mammograms. I can't help but think the Remicade is linked to the eruption and rapid spread of my cancer. Beware!"

   
1.0

Ednibi (taken for 1 to 6 months) May 2, 2015

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For Ulcerative Colitis "I could not get the colitis under control for 18 months, finally my doctor prescribed Remicade. Well after the first treatment bleeding stopped and I feel like a normal person again. Only small side effect for me is I feel a bit dizzy just after the treatment"

   
10

Aussieboy (taken for less than 1 month) April 22, 2015

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For Rheumatoid Arthritis "I had been on Remicade for many years with no side effects at all, perhaps a little tired every once in a while, but nothing serious. My doctor and I questioned whether I had rheumatoid arthritis. Then all of a sudden the Remicade stopped working and bam I had 2 flares that were unbelievable before doc could get anything to work for me. I was heart broken because it was such a good medicine for me."

   
10

Jeslookin50 March 24, 2015

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For Ulcerative Colitis "I was diagnosed 3 years ago with severe Ulcerative Colitis. Asacol and predisone worked at first, but after each outbreak the medicines seemed less effective. My last attack left me under 100lbs, severely anemic, and in enough pain that I needed to be kept in a continuous Dilaudid-induced daze. So many people have told me how terrible Remicade is and that I just need to, "find the right diet". If diet works for you, great! Remicade was the only thing that worked for me. The cons: It's expensive, but luckily my insurance covers it. It's inconvenient to go to the hospital every 6 weeks. I havn't noticed any side effects except hair loss at first, but now my hair is growing back. I've been told that the hair loss could also have been from all the weight loss."

   
9.0

DaniMac March 10, 2015

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For Juvenile Idiopathic Arthritis "I take this medication and I've been on it for about a year. I've had great results and it's pretty much painless. I took Humira for a short time and had to switch because the injection was too painful. Remicade is great, safe and almost painless."

   
9.0

Anonymous (taken for 1 to 2 years) February 19, 2015

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For Rheumatoid Arthritis "Had been on REMICADE since 2003 (11 years) 5vials every 4weeks. Doctor took it away due to issues with the infusion dept. I hate not being on REMICADE. REMICADE did wonders for me, it gave me life back and unfortunately I am back to where I started 11+ years ago. I am having difficulty with everything, I can barely type this comment."

   
10

Glorzmore43 February 17, 2015

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For Crohn's Disease, Maintenance "I have been dealing with Crohn's Disease for around ten years now and I was only properly diagnosed 2 yrs ago. I have received Remicade infusions every four weeks for the last year and it has made a very significant improvement in my everyday life. I no longer need to take pain meds to get through the day and my energy levels are closer to normal then they have been in years. Before Remicade it had got to the point where I could barely walk due to lower back and hip pain all related to Crohn's."

   
9.0

mustangguy (taken for 1 to 2 years) December 31, 2014

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For Crohn's Disease, Maintenance "My son started Remicade at 13yrs. He has severe Crohns flare ups and this was a last resort aside from surgery for him. The Remicade treatment gave him few side effects. He didn't get any headaches/tiredness. And he didn't get sick easier like they said he would. When almost our whole house(7 of us) got the flu; m\Micah didn't. Micah just took his last dose 8 weeks ago after being on Remicade for over a year and a half. (Micah was on Lialda too) even when they used the amount of Remicade, Micah was still getting flare ups every other month or so. They tested his blood and found out he had antibodies to the Remicade, which means his body was attacking the Remicade and that's why it was only working right after the infusions."

   
6.0

Mom of Crohns teen (taken for 1 to 2 years) December 29, 2014

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For Rheumatoid Arthritis "Horrible joint swelling/pain, fatigue like none other. Diagnosed with rheumatoid arthritis, Dr. figures I probably have had this 15 years, a few replacements along the way. Took MAJOR flare to be diagnosed. Loads of joint damage all over. Started on Remicade, nervous. Cannot take methotrexate due to kidney disease. Third dose dr increased dose, 5 days feeling worn then MIRACLE! NO swelling, pain, best I have been in years, no fatigue. Hoping it continues with each infusion. In tears of joy everyday with my quality of life."

   
10

Dee dee I Di (taken for 1 to 6 months) November 10, 2014

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For Psoriatic Arthritis "I have been taking Remicade infusions since September 2005 and I can't say anything negative about it. I go in for the infusion hurting and aching and come out feeling so much better. Worth the 12 sticks it sometimes takes to get me started infusing."

   
10

Gaga Bet September 17, 2014

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For Uveitis "I am a 28-year-old African-American female. Four years ago I was diagnosed with an autoimmune disease called, sarcoidosis. Upon being diagnosed with that auto immune disease I was also diagnosed with chronic uveitis and both of my eyes. I was placed on several amuse suppression medications as well as a oral steroid called prednisone. The prednisones left me with unbearable side effects. About a month ago. My rheumatologist started me on Remicade and has also up the dosage of my methotrexate. Since my condition is so aggressive I have to use the maximum dosage of the medication to see progress. I have only received two infusions of Remicade and I can literally see a difference. I was Lucky to receive the Remicade for free through a foundation."

Shonteezy September 8, 2014

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For Crohn's Disease "Severe scalp psoriasis developed, no flare ups though."

   
10

Christiem (taken for 5 to 10 years) July 5, 2014

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For Ulcerative Colitis "Life-changing. I once thought I was doomed to a life of pain and suffering. Now that I've been on Remicade for 3 years, I feel like a normal human being again. My disease has become a small part of my life and I don't even think about it much anymore. I do seem to be slowly losing response. I had to increase the frequency of infusions and now I sometimes have minor symptoms around the time I am due for my next dose. I was nervous when I started this medicine because of the trips to the hospital for infusions and because my doctor at the time made it sound like a huge deal to be on this. I wish I had started it sooner!"

   
10

Tomh219 (taken for 2 to 5 years) February 23, 2014

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For Ulcerative Colitis "I have been getting Remicade infusions for 4 1/2 years. I went into remission within a week of my first infusion. My only side effects I have are headaches and some chest pain off and on. But considering how my life was before Remicade I can handle it for now."

   
10

linkman12 (taken for 2 to 5 years) December 17, 2013

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For Ulcerative Colitis "I had a second relapse of Ulcerative Colitis in 2005. I spent 2 weeks in hospital, been given a fist full of medicines and sent home. Nothing worked. I contemplated having surgery to free me of the disease and wear an ostomy. To my eternal gratitude, my Gastro MD suggested Remicade. After my last colonoscopy in 2013, he said if I had not seen you as sick as you were... your colon looks perfectly healthy. I will accept the side effects (I have experienced none as of yet) to have my life back. Remicade has assistance programs to help those who need it. I am not a spokesman, I do not sell this. But I use and will as long as I can. I wish this medicine was around for my Dad as he suffered with Crohns and Colitis for years."

   
10

UC sine 1986 (taken for 5 to 10 years) December 12, 2013

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For Crohn's Disease, Maintenance "Ok I have had Crohn's disease for 15 years this December. I have maintained myself just fine with minor problems. Recently have learned my pain tolerance is so extreme I have been putting up with stuff shouldn't be for uncertain amount of time. Two questions from people with experience would help: 1. How is it going forward with these fistulas? Unheard of before last Wednesday and I have two forming or in process of. 2. I have limited options going forward and Remicade is seeming best course of action. How have people done with it long term it being an immune suppressant? I am knowledgeable about these things I am hoping to hear from people who have experience dealing with fistulas and taking Remicade. Thanks, Troy S."

Tsavary October 27, 2013

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For Psoriatic Arthritis "I had my first infusion last week and within 3 days, I can honestly say I have no pain for the first time in weeks. I didn't have any reactions or side effects except for feeling exhausted, but that maybe related to not being able to sleep for weeks prior, due to pain. I am so happy with the effectiveness and results I have had. I would definitely recommend it!"

   
10

Shellfish September 29, 2013

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