The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Remicade (infliximab) for Rheumatoid Arthritis: On Remicade for 10 months. At each infusion the dose has gone up with no lasting relief. Now at 800mg every six weeks relief lasted only 2 weeks, 2 days. Back on Prednisone and Darvocet until I see doctor tomorrow. Nothing has worked except combination of Arava and Methotrexate. Had to leave Methotrexate several years ago because of high liver enzymes. At this point nothing seems to give relief except Prednisone and I WILL not take that even more than a few days. Possibly adding Arava to Remicade after tomorrow. I am getting very tired of constant pain.
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Remicade (infliximab) for Rheumatoid Arthritis: It has worked miracles in the past 8 yrs. I have had no side effects from it when used with Arava. Doctor has me now taking methotrexate and my body rejected the IV first time with the new medicines.
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Remicade (infliximab) for Crohn's Disease, Maintenance: I've had Crohn's for 12 years and I'm 44 now. I believe my Crohn's was triggered or worsened by a doctor misdiagnosing my lower back/hip joint pain from Crohn's and prescribing heavy Ibuprofen. I tried Asacol, Imuran, and Pentasa, but always ended up taking prednisone to calm the symptoms. Every February I ended up with flare-ups. Doctor put me on Remicade 4 years ago and other than some swelling up in the hands initially and getting perma-colds occasionally, it has worked very well. Now my insurance is trying to force me to go to Humira. Doctor is fighting it, but we'll see how it goes. Hope this helps.
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Remicade (infliximab) for Psoriatic Arthritis: I've had my second infusion. I'm already feeling a lot better. I have more stamina and I've already stopped using my cane unless I'm going to be walking more than 15 minutes.
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Remicade (infliximab) for Crohn's Disease, Acute: It made me ill for 2-3 days after infusion, including headaches and nausea. I was also very sluggish, and more tired. That was hard to accept with the acute chronic fatigue syndrome I already deal with.
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Remicade (infliximab) : Remicade is a lifesaver. Before Remicade, I was spending a huge amount of my time in the tub soaking because I was itching so badly. Not anymore! For the first time in 15 years, I am ready to wear short sleeves in public! I have had no side effects and am about to take my 12th treatment next week. Don't be afraid to give it a try; it's so worth it!
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Remicade (infliximab) for Crohn's Disease, Maintenance: I have had Crohn's Disease for 18 years. I was extremely ill for the first 8 years. My doctor put me on Methotrexate, and I got better, but not "well". Then, Remicade came out. I have been getting infusions every 8 weeks for over 7 years, and it has saved my life. I will say, though, that at one time they hoped to wean me off of the Methotrexate, but I started having flare-ups and the time between infusions was increased. Since I am back on the Methotrexate and Remicade, I have had no problems at all. Yes, I know my immune system is very weak, but I avoid anyone who is sick, and try to get enough rest when I can. This combination of drugs has worked for me and I hope I have helped someone out there! You may need something else with Remicade.
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Remicade (infliximab) for Behcet's Disease: I have been taking Remicade for approxim ately one year now and find it works quite well for my Behcets symptoms. Things were great during the initial phase of loading doses but I found once my treatments were scheduled for every eight weeks, I seemed to experience a flare before my next session (Around the 5 or 6 week period). My doctor has just increased the treatments to every four weeks and we are hoping this will get rid of my flares all together. The only side effect of the Remicade that I have experienced is fatigue following the infusion.
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Remicade (infliximab) for Ankylosing Spondylitis: I have been on Remicade since April after not getting any relief from Inbrel or Humira.
The initial relief was wonderful, but the results since then have been very unreliable. I find that the week before my infusion is due, I am in terrible pain all over again. I also have a hard time with the methotrexate, it makes my stomach very upset and wipes me out the day I have to take it.
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Remicade (infliximab) for Psoriatic Arthritis: I have used Remicade for the past 5 months, it cleared up the psoriasis and I got good pain relief for 4 weeks. The side effects are worth it for the relief I got.
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Remicade (infliximab) for Rheumatoid Arthritis: I have been on two other DMARDs (Enbrel and Orencia) with little or only so-so results. With Remicade I felt relief almost immediately with no adverse reactions. I noticed my inflammation and pain have greatly decreased but most importantly the fatigue that dogged me has lifted. I am hoping that this medicine keeps working for a long time. Best wishes.
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Remicade (infliximab) for Crohn's Disease, Maintenance: I'M 32 AND I'VE HAD CROHNS NOW FOR 14 YEARS. REMICADE WAS A GOD SEND BUT ONLY FOR A LIMITED TIME. I STARTED OFF LIKE EVERYONE ELSE WITH I.V EVERY 8 WEEKS. THEN AFTER A COUPLE OF YEARS IT WAS WEARING OFF FASTER SO THEN EVERY 6 WEEKS. THEN EVERY 4 WEEKS THEN IT WAS BACK ON THE STEROIDS ALONG WITH THE 4 WEEK TREATMENT. WELL AFTER 6-7 YEARS ON REMICADE IT WASN'T WORKING ANYMORE. I DO RECOMMEND IT BECAUSE I WOULD GIVE ANYTHING RIGHT NOW TO GET THOSE 6 YEARS BACK BECAUSE EVEN THOUGH I WAS BECAME IMMUNE TO IT I FELT 20 TIMES BETTER THEN COMPARED TO NOW. SINCE THE REMICADE NOTHING HAS WORKED FOR ME SINCE.
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Remicade (infliximab) for Crohn's Disease, Acute: The medicine was given I.V over a period of 2-4 hours. My problem was the nausea side effect. It was like chemotherapy nausea. They stopped the infusion, but the symptoms continued for a couple of hours.
That said, they gave me Zofran 20 minutes before the next try and slowed the infusion to about 1/4 the rate and all went very well (well, minus the 6-8 hours it took to infuse it). The therapy sessions were carried over to outpatient (I was in once every 4 weeks for 4 months then a maintenance schedule for every 8 weeks). It worked GREAT, complete remission, which really hadn't happened for me in 12 years of Acute Crohn's Disease.
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Remicade (infliximab) for Crohn's Disease, Maintenance: I am a 28 year old male and was diagnosed with Crohn's 6 years ago. I had a flare up with an abdominal aneurysm and lost approx 90 lbs. I was put on Remicade and it has saved my life. I have been on it every 8 weeks for about 4 years and have regained a healthy weight and my symptoms are at an all time low. My only complaints are that getting the treatment is time consuming and the cost is obscene if you don't have good insurance. However, despite all that, it truly has saved my life and I couldn't be happier with the actual results of the medication.
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Remicade (infliximab) for Uveitis: I am a 18 year old male. I have been on Remicade for about a year now. I got Uveitis about 4 years back. My thing, according to the doctors is chronic bilateral panuveitis. I have in both my eyes. I had been on so many medications including 6 months on steroids. But miracle came with Remicade - my inflammation is under control now. I will be on it for about a year or two more.
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Remicade (infliximab) for Crohn's Disease, Maintenance: I am 24 and I was diagnosed with Crohn's disease a year and a half ago now. I've been receiving this infusion for the past 12 months. The relief was brilliant bar constantly catching coughs, colds and flu's but it was worth it as I could lead a normal life again. My infusions were every 8 weeks and could take anything up to 4 hours but my remission time between infusions began to steadily decrease. I have now had my 9th infusion and receive them every 5 weeks. My body has grown an immunity to the drug and my doctor is changing me onto Humira as a last resort to avoid surgery. Hope this helps somebody.
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Remicade (infliximab) for Crohn's Disease, Maintenance: I was diagnosed with Crohn's disease ten years ago. I had a flare-up six months ago. I had a small bowel resection two months ago. So far I have had five transfusions. At first I felt a little faint and scared. Now it feels fine.
I feel great and am in remission. I supplement my Remicade transfusions with 50 mg Imuran and B-12 shot monthly.
I am very happy. I hope the good times last.
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Remicade (infliximab) for Ankylosing Spondylitis: Getting up in the morning and walking around is a lot less challenging since I started Remicade in June 2008.
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Remicade (infliximab) for Uveitis: My 15 year old daughter was diagnosed in January 08 with Uveitis. We did drops for 5 months with not result. Starting in May of 2008 we began an infusion treatment of Remicade and today, her flare is controlled. Life has returned to "almost" normal.
We started at every 4 weeks and have progressed to every 6 weeks. We hope to make it to 8 and still control the flare.
I am calling it a miracle drug. The issue is health care. We have insurance due to the grace of God. Each treatment comes at a price tag of $12K.
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Remicade (infliximab) for Behcet's Disease: Remicade has been a God send for my condition, especially effective with the arthritis. I stopped the infusions for about a year and since I've returned to the infusions, I've been getting lots of weird skin problems.
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Remicade (infliximab) for Crohn's Disease, Maintenance: I am 23 years old and have had Crohn's since I was 19. I started Remicade about 6 months ago, and it's the only treatment that's worked so far. It is a bit time consuming, but it's better than taking 10 pills a day (or more) and more effective. I would recommend trying this after everything else fails. It feels good to be normal again.
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Remicade (infliximab) for Rheumatoid Arthritis: After a double synovectomy of my right wrist and left elbow in 1985 at the age of twenty, I had sixteen years of remission, until 2001 when I had a downward spiral rheumatic flare. I was disabled for eight months and my Rheumatologist put me on very high doses of Methotrexate and Vioxx. I was only able to walk with a cane. Relief in 2002 to 2003 and another flare-up dislocated my left wrist and crippled my fingers. Started the year 2004 with a synovectomy of the left wrist. At this point I had enough of the Methotrexate and Vioxx. I sought alternative treatments of Gloucosamine/MSM, with Tylenol Arthritis for pain. 2006 Flare-up, I moved to RTP, where my Doctor introduced me to Remicade with medium doses of Methotrexate. No pain, I'm happy.
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Remicade (infliximab) for Rheumatoid Arthritis: I was diagnosed with Rheumatoid Arthritis in August 2005. I am 33 years old now. I tried Enbrel that worked for a little while in combination with methotrexate. Then on to Humira and methotrexate. After that didn't work I started Remicade infusions with Arava in April 2007. I have been pain free ever since. I have not had one flare up or stiffness since. Occasionally when the weather is bad I know it is coming but that is expected with arthritis. Remicade is wonderful.
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Remicade (infliximab) for Crohn's Disease, Maintenance: I am 22 years old and have had Crohn's disease since age 17. I can't take steriods of any type - makes me go crazy. Remicade is the best drug I've been on for my disease. It works great but has some bothering side effects for me but they are not bad enough to quit gettting this medication every 8 weeks at the hospital through I.V. It takes about 2 or 3 hours for the treatment to be over.
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Remicade (infliximab) for Ankylosing Spondylitis: Not a miracle but the closest thing yet. Has restored functionality to my life. Monthly infusions are a break from the seemingly rushed rheumatologist appointments and give plenty of time to discuss treatment and concerns.
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Remicade (infliximab) for Ulcerative Colitis: I've been on Remicaid for 4 years for UC. I am in complete remission...its unfortunate that it's an IV infusion, but I will gladly deal with this versus the effects of Ulcerative Colitis.
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