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User Reviews for Remicade

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Remicade.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Crohn's Disease 3 reviews 66 medications
   
9.5
Behcet's Disease 2 reviews 1 medications
   
9.3
Rheumatoid Arthritis 17 reviews 343 medications
   
9.0
Juvenile Idiopathic Arthritis 1 reviews 8 medications
   
9.0
Uveitis 5 reviews 80 medications
   
9.0
Psoriatic Arthritis 10 reviews 58 medications
   
8.9
Ankylosing Spondylitis 6 reviews 127 medications
   
8.1
Crohn's Disease, Maintenance 26 reviews 25 medications
   
8.0
Psoriasis 2 reviews 310 medications
   
7.7
Ulcerative Colitis 23 reviews 186 medications
   
7.6
Crohn's Disease, Acute 9 reviews 14 medications
   
7.5
Summary of Remicade reviews 104 reviews 8.5

Reviews for Remicade

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For Psoriatic Arthritis "Remicade just isn't working for me or not yet. When I did my 1 and 2 infusions I could tell a difference. I had my 3 on and have to wait 8 weeks. After 3 weeks I had a flare up and I am in week 6 and I still feel awful. Maybe I need them more frequently or a higher dose. I am feeling so darn frustrated. I was hoping for a miracle drug to make me feel better and so far it's not. I read how it helps everyone but I want that for me too! Can't wait to see my dr so we can get ask up and the pain"

   
3.0

Not my miracle yet May 16, 2016

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For Ulcerative Colitis "My younger brother was on remicade for 10 years , and yes it helped him with the uc but he just passed away from cancer and liver failure at 27 years old most likely from the years of remicade. So I am leaving the warning to be careful and think that this is just some miracle drug. Everything has consequences"

   
1.0

Anonymous (taken for 10 years or more) May 13, 2016

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For Ulcerative Colitis "When my daughter was 13, she had a sudden and severe onset of UC. She was hospitalized for 2 weeks (had constant pain, couldn't eat, and was going to the bathroom 15-20x/ day). She was given IV steroids/medications with no improvement of symptoms. The day after receiving remicade, her pain was gone and she wanted to eat. She went into complete remission and has had no symptoms for the last 4 years. She does remicade infusions every 10 weeks. It has been her wonder drug! But my other dtr was diagnosed with crohns a year later at 11. Her onset was slower and she was put on various medications first. Remicade worked for her for several months but then became less effective even with increasing dose and frequency so she was switched to humi"

   
8.0

Eaimom (taken for 2 to 5 years) May 10, 2016

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For Ulcerative Colitis "Initially helped me for around 1 1/2 years, then began to lose its potency, and last two treatments had bad reaction night of treatment. More important platelet count went from normal to around 45,000. No longer taking Remicade and my platelet count is normal now."

   
3.0

tuco (taken for 1 to 2 years) May 4, 2016

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For Crohn's Disease "After a year or more on totally ineffective Humira I was put on Remicade. It has been effective for the most part. I am on the max dosage at every 4 weeks. At about 4 to 5 days before my infusion I develop my typical crohns symtoms which mostly involves pain. I had one blood test which indicated I was metabolizing the medication more quickly than normal. I if this problem persists I will be tested again to see if I have developed antibodies to the drug. Besides Humira being a total bust I react with high fever and chills to 6 MP. Prior to the Humira I had a resection of a foot of my illeum. I don't have any side effects to the Remicade just the issue I mentioned."

   
8.0

Danamy?? April 2, 2016

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For Crohn's Disease, Maintenance "This nightmare all started 9 years ago with an abcess. This turned into a fistula. The fistula went away after years then I developed another one on the opposite side. Then multiple fistulas. 10 surgeries later and now I have a fistula through the vagina. I finally changed Drs. My dr put me on remicade and methotraxate, and I am finally seeing results. Extremely tired I could continuously sleep my life away. I haven't felt any inflamation for weeks. No pain pills for 4 weeks now. So cross my fingers this works."

   
7.0

Jklm March 30, 2016

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For Ulcerative Colitis "I've been getting Remicade infusions for about 15 years. It is the ONLY drug that helped me. I'd been in remission for the past 5 years. Last infusion, my insurance wouldn't pay the hospital. After back and forth communications from doctor, hospital and insurance companies..Medicare...Blue Cross/Blue shield,..Tricare....doctor decreased my max dosage to 1/2 dose. Now I'm having a flare. It's a wonderful drug but the cost is exorbitant...especially for old people like me. Sure was good while the Remicade ride was working. Good luck all"

   
10

bgiz February 25, 2016

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For Ulcerative Colitis "I was diagnosed with UC in March 2015 out of nowhere.. Rapidly got bad and needed to be hospitalized for a week to get the flare under control.. Was given heavy doses of steroids (awful) and they did nothing to help.. I was released from the hospital after a week and symptoms were still bad.. About 2 weeks later after not being able to eat and losing 20lbs I was barely able to walk and was readmitted, this time I went to Columbia in NYC.. I wasn't able to eat for the full first week in the hospital and symptoms were steadily horrible.. My doctor decided to give me a loading dose of remicade and the results were almost immediate! I have been on remicade every 8 weeks since and don't have a single symptom of UC It's been a life saver!"

   
10

Jmaya (taken for 6 months to 1 year) February 21, 2016

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For Ulcerative Colitis "I was diagnosed with UC in my late 20s and never had to take anything heavy like Remicade. In my late 40s now and for the past 3 months, I've been upgraded to severe UC. Was put on Remicade and just finished my 2nd round. So far, I have not seen major results. Very discouraged! I want to change my diet and I'm trying but I also have 3 kids and its hard to change everything completely and have them eat what I eat. Does anyone know if this medication works? How long should I give it?"

   
2.0

mdubb February 20, 2016

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For Ulcerative Colitis "I was diagnosed with pan UC 2 years ago. My doctor gave me different medication that didn't work for me and made me worse. I lost 20 pounds in two weeks and didn't eat or drink anything because I would go to the bathroom ten times a day. My doctor finally recommended remicade, symptoms went down and a year later I've started flaring up again. They increased dosage and I get it every month now. But while I'm writing this my flare ups started again and it's been two weeks of bleeding and my doctor is on vacation. I don't know to do next, I don't want to have surgery."

   
4.0

Derek87 December 28, 2015

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For Ulcerative Colitis "I was diagnosed with uc in my twenties. For many years I maintained with various medications and only a couple of relatively minor flare ups. Suddenly at age 56 I had a severe flare up that did not respond to prednisone. Removing colon was brought up. After much suffering and weight loss for about 3 months I was put on Remicade by my wonderful GI. Within a couple of weeks my condition began to improve. I am now almost 7 years with infusions every 8 weeks. I am very grateful for this medication, although I do wonder if my immune system is weakened. It really doesn't compare to almost dying or having major surgery. I know it doesn't work for everyone but for me it was a miracle."

   
10

WNYer (taken for 5 to 10 years) October 27, 2015

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For Crohn's Disease, Maintenance "My son has crohns and lost 30 lbs in 2.5 months. He took the medicine the doctor said to take but then he developed a fistula. I could tell he was in a lot of pain but yet he would not tell me what was going on. Both of us being very uneducated of this disease had no idea of the trouble he was headed towards. I made an appointment with the surgeon, the surgeon confirmed a fistula, and said he needed to take Remicade. My son has had four Remicade treatments and I have to say he was doing a lot better after the first treatment. It has been almost 9 months now and he is back to his average weight of 190. We are both afraid of the Remicade and we don't talk about it very much at all but I do have to admit it has given my son his life back."

   
10

Mothers defeat October 17, 2015

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For Psoriatic Arthritis "I went in yesterday morning at 9am to receive my first infusion of Remicade. Had my IV inserted in my arm, and had my vitals checked at the beginning and then every 15-30 minutes. By the time I was leaving the doctor, it was about 1:00pm. So it takes a while for the first time, but after that it won't take as long. The only kind of downside to it was that I got just a little sleepy, which I read was common. It's 1:15pm, the following day of my first infusion and I haven't felt a single ounce of pain in any of my joints. I understand it's only 24 hours later but I am usually in a lot of pain all morning and I didn't have any morning stiffness when I got out of bed this morning. Very pleased so far!"

   
9.0

Anna RC October 13, 2015

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For Ulcerative Colitis "Have had uc and chrons for about a year now and started off with a serious flare that had me bed ridden. I was finally talked into trying remicade and a couple days after the initial dose I felt great with no pains. A week after the dose I developed c diff and was right back to square one. So I got the c diff taken care of and did a second dose and the c diff came right back. So I got that taken care of again and did 3rd dose and guess what c diff again. I told my GI I wasn't going to waste my time or money on it anymore. I went to the Mayo in Minn for a second opinion on my condition and after days of testing they said that I had already developed antibodies to the remicade. I'm not sure the remicade caused the c diff but now to humira."

   
1.0

Woodjunkie (taken for 1 to 6 months) October 2, 2015

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For Ulcerative Colitis "I was given Remicade while in the hospital. They premedicated me with Tylenol and Benadryl. After the Benadryl wore off, I broke out with severe hives from head to toe. I took Benadryl and then Zyrtec for ten days and neither helped the hives much. Thankfully, they finally went away. Horrible experience. I looked like I had a plague."

   
1.0

NotAhappyUc'er September 17, 2015

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For Rheumatoid Arthritis "I was diagnosed with a reactive Rheumatoid Arthritis August 1998 after getting the first shot of Hepatitis B vaccine which triggered my RA. I was on Prednisone for a year, Plaquenil, sulafalazine(which almost killed me), arava (leflunomide) for a while, was on Humira which didint help, changed to Enbrel which gave me rashes. In 2000, my rheumatologist who was into RA research and had RA himself ordered Remicaide infusion wtih MTX. That's 15 years ago of quality of life and contnuing 5mg Remicaide every 10 weeks. All my RA labs and tests are negative except CCP (which is 5X higher than the normal. This coming month I'll be OFF my MTX. Even when I'm on Remission I did not stop my Remicaide coz flare ups are worst than the first symptoms."

   
10

Redlady267 (taken for 10 years or more) August 22, 2015

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For Crohn's Disease, Maintenance "Right after my daughters 13 yr. birthday, she had severe bleeding and was diagnosed with severe crohns and colitis. She has been on Remicade since January and has infusions every six weeks. She was on put on Prednisone in March since the infusions did not stop the bleeding alone. She is now being weened off the steroids, Thank God, and is on Remicade for the rest if ths year for now. She gets a boost of energy and after her infusions, but is very smart about what she can and cant eat. Prayers to u all going through this."

   
7.0

Goober-Zoe July 21, 2015

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For Crohn's Disease, Maintenance "I suffer of Crohn's Disease about 2 years and took remicade for one now. At first i had headaches but now i just took remicade every 56 days and keeps me ok. I don't feel the syntons of disease and bacically i eat everything that i wish but i'm 29 so i'm always on diet to keep my body shape."

   
10

Tatiana Pfaltzgraff July 6, 2015

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For Crohn's Disease, Maintenance "All this has done was to make me fat, no change in crohns, very sick, 70% of side affects, still suffering now with dehydration. "

   
1.0

chip stick (taken for 1 to 2 years) July 4, 2015

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For Ankylosing Spondylitis "Getting up in the morning and walking around is a lot less challenging since I started Remicade in June 2008. Before Remicade, I'd have to sit down in my tripod stool after just crossing the street due to extreme fatigue. Now I can walk to the grocery and back."

   
8.0

LAURA87 (taken for 5 to 10 years) July 4, 2015

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For Crohn's Disease, Maintenance "I have been on Remicade for nearly 4 years. Prior to that I had a variety of Crohn's issues including two surgeries for peri-anal fistulas, severe fatigue and lots of other fun stuff. I have been very lucky in that I have responded very well to the stuff and now most days I am fortunate enough to forget I have the disease. I was apprehensive about potential side effects but to date have experienced none. Prior to Remicade I took a few medications which did absolutely nothing but the Remicade had a pronounced effect within 24 hours of my first infusion. If you have Crohn's or Colitis would seriously consider an anti TNF blocker (haven't used any of the others) and stay the hell away from steroids."

   
10

Lenny J. Delarta July 3, 2015

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For Psoriatic Arthritis "I have severe psoriatic arthritis and I've had it since I was 18. I've been on remicade for almost 10 years and I have almost no pain. My joints get a little stiff close to my infusion but that's it. It is my miracle drug and I owe my life to it. I would be crippled without it."

   
10

Susan C. (taken for 10 years or more) May 6, 2015

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For Rheumatoid Arthritis "I had my latest infusion yesterday. It just started to kick in. My fatigue is slot nonexistent and I have the energy that I used to have with Humira."

   
9.0

sawbuzz May 5, 2015

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For Crohn's Disease, Maintenance "I have received Remicade infusions to treat Crohn's. Felt bad right after the first infusion but was convinced by my physician to continue. I have also received Prolia by injection to treat osteoporosis. I decided to stop the Remicade after 3 infusions as I could feel no benefit and had felt very ill throughout. 6 months later I was diagnosed with metastatic breast cancer - this is in spite of having annual mammograms. I can't help but think the Remicade is linked to the eruption and rapid spread of my cancer. Beware!"

   
1.0

Ednibi (taken for 1 to 6 months) May 2, 2015

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For Ulcerative Colitis "I could not get the colitis under control for 18 months, finally my doctor prescribed Remicade. Well after the first treatment bleeding stopped and I feel like a normal person again. Only small side effect for me is I feel a bit dizzy just after the treatment"

   
10

Aussieboy (taken for less than 1 month) April 22, 2015

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