Remicade User Reviews & Ratings (Page 3)

• Shell...
• September 29, 2013

For Psoriatic Arthritis "I had my first infusion last week and within 3 days, I can honestly say I have no pain for the first time in weeks. I didn't have any reactions or side effects except for feeling exhausted, but that maybe related to not being able to sleep for weeks prior, due to pain. I am so happy with the effectiveness and results I have had. I would definitely recommend it!"

• SHERI...
• June 28, 2009

For Crohn's Disease, Maintenance "I'm 32 and I've had crohns now for 14 years. Remicade was a god send but only for a limited time. I started off like everyone else with i. V every 8 weeks. Then after a couple of years it was wearing off faster so then every 6 weeks. Then every 4 weeks then it was back on the steroids along with the 4 week treatment. Well after 6-7 years on remicade it wasn't working anymore. I do recommend it because I would give anything right now to get those 6 years back because even though I was became immune to it I felt 20 times better then compared to now. Since the remicade nothing has worked for me since."

• Anonymous
• May 24, 2009

For Crohn's Disease, Maintenance "I am a 28 year old male and was diagnosed with Crohn's 6 years ago. I had a flare up with an abdominal aneurysm and lost approx 90 lbs. I was put on Remicade and it has saved my life. I have been on it every 8 weeks for about 4 years and have regained a healthy weight and my symptoms are at an all time low. My only complaints are that getting the treatment is time consuming and the cost is obscene if you don't have good insurance. However, despite all that, it truly has saved my life and I couldn't be happier with the actual results of the medication."

• LAURA
• Taken for 5 to 10 years
• July 4, 2015

For Ankylosing Spondylitis "Getting up in the morning and walking around is a lot less challenging since I started Remicade in June 2008. Before Remicade, I'd have to sit down in my tripod stool after just crossing the street due to extreme fatigue. Now I can walk to the grocery and back."

• Gaga...
• September 17, 2014

For Psoriatic Arthritis "I have been taking Remicade infusions since September 2005 and I can't say anything negative about it. I go in for the infusion hurting and aching and come out feeling so much better. Worth the 12 sticks it sometimes takes to get me started infusing."

• Eaimom
• Taken for 2 to 5 years
• May 10, 2016

For Ulcerative Colitis "When my daughter was 13, she had a sudden and severe onset of UC. She was hospitalized for 2 weeks (had constant pain, couldn't eat, and was going to the bathroom 15-20x/ day). She was given IV steroids/medications with no improvement of symptoms. The day after receiving remicade, her pain was gone and she wanted to eat. She went into complete remission and has had no symptoms for the last 4 years. She does remicade infusions every 10 weeks. It has been her wonder drug! But my other dtr was diagnosed with crohns a year later at 11. Her onset was slower and she was put on various medications first. Remicade worked for her for several months but then became less effective even with increasing dose and frequency so she was switched to humi"

• Anonymous
• May 25, 2010

For Rheumatoid Arthritis "I have had rheumatoid arthirtis for 1 year now, and continue to take Sulfasalazine and Nabumetone daily. I stopped taking the Enbrel after 7 months as it was no longer relieving joint pains. I have had two infusions so far, and do notice improvement in my most painful joint (shoulder). My rheumatologist prescribed a dose pack of steroids, which I took after my 1st infusion. Receiving these drugs together, I was hoping for more improvement, but I will take what I can get. My arm has markedly improved range of motion, although it is not back to normal. My legs are still stiff, and I still need to shuffle my feet when I walk. I go back for my third infusion next month, and thereafter infusions will be every 6-8 weeks. I sure am hopeful this treatment will improve my quality of life."

• Ashers
• Taken for 6 months to 1 year
• December 12, 2017

For Rheumatoid Arthritis "I was diagnosed with Inflammatory Arthritis (RA) September of 2015 (29 years old). First I was on Plaquenil which never seemed to help and on top of it I developed a terrible hive rash which went away once I stopped taking it. Next I tried Humira. That worked great for about 6 months before my symptoms came back. Now I'm on Remicade and have been for almost a year now. It works great. I get my infusion every 8 weeks and have NO SYMPTOMS!! I love Remicade. It gave me my life back. I am slightly concerned though because I've developed another rash that won't seem to go away after 2 months of dealing with it, trying steroids etc etc. Cross your fingers it's not Remicade causing my rash. I'll cry!"

• BILLAY
• Taken for 6 months to 1 year
• July 7, 2016

For Ulcerative Colitis "only few words please check your TB TEST FOR MORE THAN TWO OR THREE TIMES SPECIALLY WHEN YOU ARE ALREADY ON MEDS LIKE PREDNISONE AND IMURAN ....DONT PUT YOUR LIFE ON RISK ..........I AM SUFFERING A LOT BECAUSE OF THE USE OF THIS MEDICINE.....REMICADE....MY PERSONAL SOCIAL AND FINANCIAL LIFE IS DESTROYED ......SORRY IF I AM GETTING EMOTIONAL ......IT IS TRUE WHATEVER HAPPENED WITH ME .........I WISH THAT I WOULD HAVE NEVER USED THIS MEDICINE......."

• Ednibi
• Taken for 1 to 6 months
• May 2, 2015

For Crohn's Disease, Maintenance "I have received Remicade infusions to treat Crohn's. Felt bad right after the first infusion but was convinced by my physician to continue. I have also received Prolia by injection to treat osteoporosis. I decided to stop the Remicade after 3 infusions as I could feel no benefit and had felt very ill throughout. 6 months later I was diagnosed with metastatic breast cancer - this is in spite of having annual mammograms. I can't help but think the Remicade is linked to the eruption and rapid spread of my cancer. Beware!"

• Anonymous
• February 25, 2011

For Crohn's Disease, Maintenance "I was diagnosed with Crohn's Disease when I was 16 years old. I am now 47. Remicade has been a blessing. I am one of the very fortunate ones to have no real side effects. I have been on Remicade for at least 6 years. I am able to hold down an excellent job and enjoy being a wife and mother. I am grateful that I have a job with great benefits. I wish that the cost was not so outrageous so that others could benefit from this medicine. My son is on Humira and they have a program that decreases the cost significantly. Even with my insurance, they cover a large portion of my co-pay. All we can do is hope that the makers of Remicade will offer the same some day."

• Anonymous
• November 4, 2009

For Rheumatoid Arthritis "On Remicade for 10 months. At each infusion the dose has gone up with no lasting relief. Now at 800mg every six weeks relief lasted only 2 weeks, 2 days. Back on Prednisone and Darvocet until I see doctor tomorrow. Nothing has worked except combination of Arava and Methotrexate. Had to leave Methotrexate several years ago because of high liver enzymes. At this point nothing seems to give relief except Prednisone and I WILL not take that even more than a few days. Possibly adding Arava to Remicade after tomorrow. I am getting very tired of constant pain."

• Guru
• Taken for 1 to 6 months
• September 16, 2019

For Ulcerative Colitis "I had severe pancolitis and was hospitalized for 2 weeks. They started me on remicade because none of the mesalamine ever worked for me. It worked at first really well and worked well for about 2 months. After that the flare ups became so bad they were giving it to me every week. Even that didn't work this time around so the only option I had was surgery. The doctors didn't want to try other medications since I already had so much remicade in my system. After the surgery I immediately felt great. Some people might not like the idea of having a ostomy but I have gotten use to it. I did have the opportunity to get a j pouch, but one of my dads friend had a very bad experience so I decided not to."

• SusanM
• February 22, 2017

For Rheumatoid Arthritis "I was diagnosed w/ severe RA in 2009 by my general practitioner who discovered it through a blood test, which is not always common. Well, after being on MTX 8pills/a wk. (for 8 yrs) and Arava daily I have also been on Enbrel, Humira, Actemra, Orencia & Zeljanz one worked most didn't. I finally just started Remicade infusion on 2/16/17. The first day I slept 20 hrs. a few days later no change then yesterday ~The Miracle Day~ not one single pain, no flare ups 100% pain free! OMG I was so happy I cried! Today not so good as yesterday but I'm very hopeful! Good Luck to the rest of you all!!!"

• Anne
• April 25, 2018

For Rheumatoid Arthritis "I had RA for a few years and decided to try Remicade, during the infusion my chest started to get tight. I asked the nurse to check me and she checked my blood pressure , it went from 121/78 to over 250/120 in 15 minutes. She switched off the machine and I was taken to the ER for and EKG."

• Welcho
• Taken for 2 to 5 years
• August 17, 2017

For Rheumatoid Arthritis "I was on enbrel for nearly 9 years before it stopped working and humira didn't work at all for me. I started remicade nearly 4 years ago, my Dr started me out getting an infusion every 8 weeks and over the first year he brought it down to every 4 weeks. It's been working great but after the first 2 years my knees started bothering me but after some injection at my orthopedist they have been under control. Now both my elbows are really bothering me, at first it was when I woke up but now it's 24-7. I go in for my next infusion next week and will talk to my rheumatologist about the pain. I was curious to see if anyone else has had knee or elbow pain after being on remicade"

• Anonymous
• April 26, 2011

For Crohn's Disease, Maintenance "I am a 16 year old male, and was diagnosed with Crohn's disease when I was 8. I have only been on Remicade for about 8 months, but have not seen much of a difference. My energy has stayed the same, and I haven't grown any. Improvements have been that I don't have the morning cramps that I usually get, and my appetite has grown. I went from 135 pounds before the infusions to 145 pounds. I have a bloody nose at least three times a week, I now catch stomach viruses a lot easier now, and I feel dizzy/lightheaded often. Overall I guess it's working, I will do an update when I have been on the medicine longer."

• tsowe...
• September 25, 2009

For Crohn's Disease, Maintenance "I've had Crohn's for 12 years and I'm 44 now. I believe my Crohn's was triggered or worsened by a doctor misdiagnosing my lower back/hip joint pain from Crohn's and prescribing heavy Ibuprofen. I tried Asacol, Imuran, and Pentasa, but always ended up taking prednisone to calm the symptoms. Every February I ended up with flare-ups. Doctor put me on Remicade 4 years ago and other than some swelling up in the hands initially and getting perma-colds occasionally, it has worked very well. Now my insurance is trying to force me to go to Humira. Doctor is fighting it, but we'll see how it goes. Hope this helps."

• Joseph...
• Taken for 6 months to 1 year
• July 28, 2019

For Crohn's Disease "There should be a class action lawsuit against Remicade. After 9 months' being on it for Crohn's I developed drug induced Lupus. I was in my 30's and felt like I was 90. I couldn't get out of a chair. My hands curled up and I had to get shots in my back and hands. This drug nearly killed me. My Dr kept pushing me to his physician's assistant and wouldn't see me."

• Anonymous
• December 6, 2019

For Psoriatic Arthritis "Used for psoriatic arthritis, the 1st of 3 IV infusions that work great to begin with! From joints becoming near normal to a bounce in my step - then the canker sores are the 1st sign I'm flaring! I went thru 2 severe reactions before realizing it was the drug, which required immediate emergency attention as it affected my breathing, had hives and 2 weeks of misery. If only my body didn't fine ways to subvert all the Docs do to try & help it! It's frustrating!"

• Serum...
• Taken for less than 1 month
• July 9, 2016

For Crohn's Disease, Maintenance "My 14 yo had her first Remicade infusion a 10 days ago. After 8 days she had severe serum sickness. Her fever shot up to 106 and her blood pressure was really low. She spent 24 hrs in the PICU. It was very scared. Needless to say, she won't be able to take it again. We are hoping there will be no lasting effects but only time will tell. Her symptoms of serum sickness were: fever, chills, severe joint pain, hives all over, swollen hands, red eyes, and dry mouth."

• d37
• September 30, 2011

For Ulcerative Colitis "The medicine works great. I've been on it for almost 2 years. The only thing is I'm getting a lot of the side effects. The one thing that is very bad is the itching on my arms that have lasted a long time. No medicine has helped so if anyone has any ideas on how to stop the itching please give me ideas. The only good thing about this medicine is that it's helping my ulcerative colitis."

• Linds
• July 3, 2020

For Crohn's Disease, Maintenance "I have been on this medication for 14 years now, and maintained remission without any meds. I also had 2 healthy babies while on Remicade. I was diagnosed with CD of my ilium at 20 years old. I had been on Pentasa and then Imuran. Imuran worked okay, but it hurt my stomach and I never felt truly "good". I was put on Remicade after my last blockage in 2006, and I have been in true remission ever since with Remicade alone. I am a little tired after my infusion for a day, but then I feel totally normal. My two kids had no side effects from using during pregnancy. They are now 6 and 3. I had 2 c-sections, with no complications. The only thing it affected, was that my kids couldn't get the Rotavirus vaccine, because it was a live vaccine. (No live vaccines until 6 months for Remicade babies). That vaccine is new and not critical. Remicade has a payment assistance program and they help with co-pays, regardless of income."

• Anonymous
• January 9, 2010

For Crohn's Disease, Maintenance "I am a 29 year old male and have had Crohn's disease for 8 years. When I was going through college I became very ill and over a two year period of ups and downs lost 100 lbs. Only due to the grace of God I made it through college with a civil engineering degree. I was first put on all the typical drugs: Imuran, Pentasa, Asacol, Prednisone, B-12 injections. I received the Remicade initially only when I had flare ups. I watched my diet to a T (specific carbohydrate diet), but would still end up flaring up. For the past 6 years I have been on a maintenance dose of Remicade every 10 weeks and have done very well. I do have a goal to eventually get off the Remicade."

• bgiz
• February 25, 2016

For Ulcerative Colitis "I've been getting Remicade infusions for about 15 years. It is the ONLY drug that helped me. I'd been in remission for the past 5 years. Last infusion, my insurance wouldn't pay the hospital. After back and forth communications from doctor, hospital and insurance companies..Medicare...Blue Cross/Blue shield,..Tricare....doctor decreased my max dosage to 1/2 dose. Now I'm having a flare. It's a wonderful drug but the cost is exorbitant...especially for old people like me. Sure was good while the Remicade ride was working. Good luck all"