Hydroxychloroquine User Reviews & Ratings (Page 3)

• Jason...
• Taken for 5 to 10 years
• January 17, 2014

Plaquenil (hydroxychloroquine) for Lyme Disease, Arthritis "Plaquenil has been great for me. It has reduced the stiffness & swelling in hands & feet to almost nothing. Started at 200mg twice a day, and have since reduced to one time per day. I have a complete eye exam once a year to watch for possible retina side effects."

• nanfor
• April 25, 2011

Plaquenil (hydroxychloroquine) for Sjogren's Syndrome "I have been on Plaquenil 200 mg twice a day for 6 years and it has helped me tremendously. I couldn't get up from a chair or close my fists after being diagnosed with primary Sjogrens Syndrome. It took about a year, and I'm 90 % better. I am very careful to have a thorough eye exam every year to monitor potential ocular side effects. It is worth a try and the side effects are definitely less than long term steroid use."

• Mamo...
• September 3, 2013

For Rheumatoid Arthritis "I have taken Paquenil for rheumatoid arthritis about 6 months now 200mg once a day. I cannot stress what a miracle this medicine has been for me. It was so good that some days I forgot I had rheumatoid arthritis altogether. No pains at all. The only drawback was that I was losing my hair and it became became very dry and brittle. Being a woman that scared me so I quit the medication only to have the pains come back again. I spoke to my doctor and he said try taking it 3 times a week instead of every day to see if it cuts down on the hair loss. What good is a full head of hair if you are stuck in the house and in constant pain. I'll take loosing a few locks to be able to live my life pain free."

• Anonymous
• February 26, 2012

Plaquenil (hydroxychloroquine) for Sjogren's Syndrome "It has taken about 6 weeks for this medicine to work, the benefits have been subtle. I noticed that I have been able to do more, get out more and have even cut back on a dose of painkillers, my head is clearer - I just sort of feel different, not miraculously different or anything, but just more my normal self. I am still severely allergic to the sun or any UV exposure and can be sick for days if I am not careful or if I do too much but I do believe the Plaquenil has helped and I have been on it for 2 months now so look forward to further benefits from this medicine. Only side effects are erratic blood sugar, if I don't eat regularly I go hypo - badly hypo, although my doctor said he has never heard of this, so perhaps it isn't related."

• Lou...
• Taken for 1 to 2 years
• February 2, 2020

Plaquenil (hydroxychloroquine) for Lupus "At first it made me very sick nauseous all day but figured out for me I could take it with peanut butter it coated my stomach enough to make me not nauseous. Took about 3 months to start helping joint pain and it has continued to help more the longer I’m on it, I still get joint pain flares here and there but much shorter time frames."

• a...
• March 6, 2008

Plaquenil (hydroxychloroquine) for Lupus "This drug gave me back my life. I suffered with chronic cyclical arthritis that felt like it was in every joint. The fatigue was devastating. Even if I slept for hours I still woke up feeling no better. I was scared to take this drug but eventually I had to do something. Thankfully, I have no side effects. I only have very occasional arthritis and am no longer tired. It has given me back my life. I do have my eyes checked 2x/yr."

• Suzy
• Taken for less than 1 month
• August 22, 2019

For Sjogren's Syndrome "I just had my yearly eye exam. Last year’s was just fine. This year I have the start of planquenil toxicity in both eyes. This in only one year. My Dr told me it is reversible at this point. What about those that don’t get frequent eye exams because of cost, etc. I was taken off it immediately and put on methotrexate. I am so fortunate to have such a careful Dr. Eye CT scans every other year. Please be very careful taking this drug. Be your own advocate if your Dr doesn’t think it’s important"

• Anonymous
• June 25, 2016

Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis "I have been taking plaquenil for about 4 years 200 mg twice a day . I have been having severe stomach cramps and nausea and vomiting just now realized it's the plaquenil. Because I didn't take it for 3 days because of the n/v just took it again today and got so sick had to throw up. Now realized it's the plaquenil have been to gastro dr and have done all kind of test .will not be taking this med again my Ra is nothing as bad as n/v maybe this will help some one . Don't no what I will take for this Ra pain I feel so sorry for anyone who has this Ra was not diagnosed with this untill I was 65 years old."

• reme
• June 7, 2014

Plaquenil (hydroxychloroquine) for Sjogren's Syndrome "I am only on Plaquenil a month now for primary Sjogren's Syndrome having been diagnosed in Jan 2014. So far I am feeling much better in that I am sleeping so much better. Before taking medication I would wake 5/6 times a night and found it difficult to go back to sleep now I only wake up once and go back almost immediately. This is the first thing that I have noticed and I know it is very early days as my Rheumatologist said it can take 2 months before any results."

• Chris...
• Taken for 2 to 5 years
• January 24, 2019

For Sjogren's Syndrome "I have taken 200 mg since 2016 and it definitely helps with fatigue and joint pain. BUT I have noticed that when women are given 400 mg they tend to have problems (including my daughter who had Lupus) but when she went down to 200 mg then they disappeared. I think doctors are over prescribing the amount and they should start out with 200 mg and then after 6 months (length of time it takes to fully work), if there is no difference, then a 100 mg increase (half a pill) added should be enough."

• Sjogr...
• Taken for 1 to 2 years
• October 23, 2013

Plaquenil (hydroxychloroquine) for Sjogren's Syndrome "I have been on Ranbaxy generic Plaquenil for 11 months now. I don't think think it helps me very much, but I continue to take it because I am not experiencing any side effects. My condition is not well-controlled with this drug alone and I will soon start an additional DMARD after recently finding out I am intolerant of MTX. My battle with Sjogren's has been so much more than glandular issues. It has attacked my biliary system, causing me to lose my gall bladder and have complex issues with the pyloric valve, lower esophageal sphincter and sphincter of oddi. This causes a variety of symptoms such as bile and acid reflux, bile salt diarrhea, nausea, vomiting up bile and right upper quadrant abdominal pain. I have signs of kidney disease too"

• luster
• September 25, 2012

Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis "I was diagnosed with rheumatoid arthritis in February 2012. Plaquenil has been the second medication we've tried. I've only taken it 1 week and have a horrible rash on both arms and on the backs of my legs. It has caused diarrhea and headaches. I have stopped taking this medication and am currently waiting to see what medication we will try next."

• deziner
• June 5, 2008

Plaquenil (hydroxychloroquine) for Lupus "I have been on this medication since February 2008. I have more energy and less fatigue. I still have my days, but this medication is a God send. Initially, my hair began to thin, but with supplements and proper hydration for my hair, it has levelled and is beginning to thicken again. If you are taking this medicine and have some of the side effects, please give it some time. I am glad I did."

• MissDW
• October 7, 2018

For Sjogren's Syndrome "I was on 400mg daily for my primary Sjogren's syndrome (pSS). It did help with some symptoms but I was experiencing severe fatigue, muscle pain & weakness; my rheumy said was from my pSS & Fibro. I had severe tinnitus, ear pain & fullness. Decreased mental wellness, suicidal ideation, severe anxiety, brain fog. I was on it for 1yr. I had horrible stabbing pains, electric shocks through my body, sometimes would make me scream. On the website it said these side effects may be rare but to discuss it with my doc. My rheumy told me I could not stop this med & that it wouldn't cause this problem & I need to stop doing research on the internet. So I cut my dose in half, after 6 months I was feeling better so I stopped the med completely. I found a new rheumy who confirmed that these are side effects, though not as frequent as others. I feel much better after being off of it. Some of my pSS symptoms have come back but I feel nowhere near as bad as I did when I was on hydroxychloroquine."

• Sheri...
• December 4, 2011

Plaquenil (hydroxychloroquine) for Sjogren's Syndrome "Plaquenil has given me back my quality of life. I think I've been on it for about 3 years now. However, I've recently stopped taking it as I am having flashes in one eye and don't have the money to see a retina specialist - or an eye Dr. for that matter. Now that I have stopped the medication, I am back to having constant pain throughout my body - especially in my joints...and in my bones, and I am exhausted and sleep a lot without feeling rested. As soon as I get my eyes checked and if my exam shows good results, I will be back on Plaquenil immediately."

• LGFr
• Taken for 10 years or more
• December 24, 2017

Plaquenil (hydroxychloroquine) for Undifferentiated Connective Tissue Disease "I've been on and off Plaquenil for 13 years for Undifferentiated connective tissue disease (UCTD). I have NEVER had a flare while on plaq. The only times I've had flares was when I stupidly stopped taking plaq. That is a mistake I will never make again, after a life threatening flare in 2015. Now I am on plaquenil for life, and 100 % in remission. This drug has been absolutely amazing for me. I guess it just depends on individual body chemistry, but I love this drug so very, very much. Now, honestly, you have to give it 3-6 months to fully take effect, and it can cause GI upset and other side effects at first. You just have to tough it out and be strong-minded. Plaq is a game changer for many UCTD patients but you need to be tough and patient!! Don't skip doses."

• Babyc...
• Taken for 5 to 10 years
• September 9, 2016

Plaquenil (hydroxychloroquine) for Sjogren's Syndrome "I have been on Plaquenil for several years , first the generic Plaqenil has no coating to protect your stomach lining. If you have side affects first try brand . I know Dr. s Say there is no difference ."But" composition of the drug may not affect the effectiveness of drug but it will affect the way it is absorbed in your system. Which will affect your side affects."

• Anonymous
• June 4, 2012

Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis "I have had rheumatoid arthritis for 11 years and have been taking 400 mg a day. It is now causing skin discoloration in my lower shin now grayish back. I will be going off this. Have had no eye problems while taking this medicine."

• Vet...
• May 1, 2015

Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis "I started this medication a week ago and have had very vivid dreams. I used to wake up with rib and hip pain/stiffness. I also couldn't relax and lay in bed because my body just felt restless. I would say that on day 2, I woke up almost completely relaxed and nearly no stiffness. I also started taking Celebrex on the same day, so I'm not sure if it's the combination of the two or one or the other, but I feel so much better. I am a 31 year old female and mom of a 1.5 year old."

• small...
• May 28, 2014

Plaquenil (hydroxychloroquine) for Lupus "I have been on this medication for about 12 years now. It seems to work very well but as the years have gone on it doesn't work quite as well as it used to. That's why I only rate it at an 8. There was a time when my insurance was messed up, and I didn't have the money to pay for my medications. I could definitely tell the difference when I was not on this medicine. I would definitely recommend it."

• Not...
• Taken for less than 1 month
• September 20, 2019

Plaquenil (hydroxychloroquine) for Lupus "Started taking Plaquenil 5 days ago for bad butterfly rash caused by dermal lupus. I’m extremely dizzy, bad stomach pain, ringing in the ears, etc... I’ll deal with the rash this is way to harsh. This is why pharma scares me so much. In bed on beautiful sunny day, can’t even walk my dogs so dizzy."

• Mel
• Taken for 1 to 6 months
• July 22, 2019

Plaquenil (hydroxychloroquine) for Lupus "Several years ago took Plaquenil for over two years, took about 6 months before it was effective. I have now restarted again this time it has become effective in about 10 weeks, no measurable side effects and less pain...."

• Glen
• Taken for 1 to 2 years
• January 19, 2019

Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis "When first diagnosed with rheumatoid arthritis (RA) plaquinel worked after a couple weeks. I was in remission soI stopped but Dr upset as he said it was important to keep damage to joints down. Anyway the RA flared and I'm back taking one a day. Hoping to feel better again but seems slow. Not sure if it is due to generic that I'm receiving. Also, please get eye checkups. Had a scare but it is fine. This drug has less side effects than others! Good luck."

• Seatt...
• Taken for 5 to 10 years
• May 21, 2015

Plaquenil (hydroxychloroquine) for Sjogren's Syndrome "I have been on this medication for approximately 8 years. Before I started this medicine I was in terrible shape. With Sjogren's syndrome as my primary autoimmune disease and rheumatoid arthritis as my secondary autoimmune disease I was in terrible persistent pain, had terrible joint ache and was incapacitated for about four months before finally being diagnosed and given this. Along with steroids, this medicine, and some regular doses of ibuprofen I found I was able to be mobile again, to go back to work and have a quality life again. I have not found that being on the same the dosage has lessened it's effectiveness over the last 8. During major flares especially, it would be near impossible to have a good, healthy life."

• CTT
• October 13, 2015

Plaquenil (hydroxychloroquine) for Lupus "I started this med as I have both RA and Systemic Lupus. It did nothing for me and we added Methotrexate, still no benefit. Added Enbrel, no better. My eyesight was beginning to fail so I stopped all of them. My weight ballooned up by 25lbs!! I have found no mainline meds to help and had to turn to Traditional Chinese Medicine for relief. Works great for me. I am still hoping to find something in the regular vein of meds to help and not hurt me. My insurance will not cover the help of the Traditional Chinese Medicine that is helping. What's up with that?"